Health risk behaviors in adolescents and emerging adults with congenital heart disease: Psychometric properties of the Health Behavior Scale-Congenital Heart Disease

European Journal of Cardiovascular Nursing

Volumn 12, Issue 6, 2013, Pages 544-557

  Goossens, Eva ^a,b   Luyckx, Koen ^a   Mommen, Nele ^a   Gewillig, Marc ^c   Budts, Werner ^c   Zupancic, Nele ^a   Moons, Philip ^a,c,d  

^a UNIVERSITY OF LEUVEN   (Belgium)

^b RESEARCH FOUNDATION FLANDERS FWO   (Belgium)

^c UNIVERSITY HOSPITALS LEUVEN   (Belgium)

^d Rigshospitalet   (Denmark)

Author keywords

adolescence; congenital; health behavior; Heart defects; life style; psychometric properties; reliability; validity

Indexed keywords

ADOLESCENT; ADULT; ARTICLE; BEHAVIOR CHANGE; CONGENITAL HEART DISEASE; CONTENT VALIDITY; FEMALE; HEALTH BEHAVIOR; HEALTH PROMOTION; HUMAN; LIFESTYLE; MAJOR CLINICAL STUDY; MALE; PRIORITY JOURNAL; PSYCHOMETRY; QUESTIONNAIRE; RATING SCALE; RELIABILITY;

ADOLESCENCE; CONGENITAL; HEALTH BEHAVIOR; HEART DEFECTS; LIFE STYLE; PSYCHOMETRIC PROPERTIES; RELIABILITY; VALIDITY;

ADOLESCENT; AGE FACTORS; ALCOHOL DRINKING; EXERCISE; FEMALE; HEALTH BEHAVIOR; HEART DEFECTS, CONGENITAL; HUMANS; MALE; ORAL HYGIENE; PSYCHOMETRICS; QUESTIONNAIRES; REPRODUCIBILITY OF RESULTS; RISK-TAKING;

EID: 84885482393     PISSN: 14745151     EISSN: 18731953     Source Type: Journal    
DOI: 10.1177/1474515113475934     Document Type: Article

References (61)

1. Uzark K, VonBargen-Mazza P, Messiter E. Health education needs of adolescents with congenital heart disease. J Pediatr Health Care. 1989 ; 3: 137-143
2. Staff J, Schulenberg JE, Maslowsky J, et al. Substance use changes and social role transitions: Proximal developmental effects on ongoing trajectories from late adolescence through early adulthood. Dev Psychopathol. 2010 ; 22: 917-932
3. Chen P, Jacobson KC. Developmental trajectories of substance use from early adolescence to young adulthood: Gender and racial/ethnic differences. J Adolesc Health. 2012 ; 50: 154-163
4. Moons P, Budts W, Costermans E, et al. Pregnancy-related health behavior of women with congenital heart disease: Room for behavioral change interventions. Congenit Heart Dis. 2009 ; 4: 348-355
5. Brickner ME, Hillis LD, Lange RA. Congenital heart disease in adults. First of two parts. N Engl J Med. 2000 ; 342: 256-263
6. Brickner ME, Hillis LD, Lange RA. Congenital heart disease in adults. Second of two parts. N Engl J Med. 2000 ; 342: 334-342
7. Sable C, Foster E, Uzark K, et al. Best practices in managing transition to adulthood for adolescents with congenital heart disease: The transition process and medical and psychosocial issues: A scientific statement from the American Heart Association. Circulation. 2011 ; 123: 1454-1485
8. Gisle L,Hesse E,Drieskens S. Operationele Directie Volksgezondheid en surveillance, Brussel Wetenschappelijk Instituut Volksgezondheid. Gezondheidsenquête, België 2008. Rapport II-Leefstijl en preventie. IPH/EPI REPORTS N 2010/00. 2009: https://www.wiv-isp.be/epidemio/epinl/CROSPNL/ HISNL/his08nl/belangrijkste%20resultaten-NL.pdf
9. Reid GJ, Webb GD, McCrindle BW, et al. Health behaviors among adolescents and young adults with congenital heart disease. Congenit Heart Dis. 2008 ; 3: 16-25
10. Chen CW, Chen YC, Chen MY, et al. Health-promoting behavior of adolescents with congenital heart disease. J Adolesc Health. 2007 ; 41: 602-609
11. Massin MM, Hovels-Gurich H, Seghaye MC. Atherosclerosis lifestyle risk factors in children with congenital heart disease. Eur J Cardiovasc Prev Rehabil. 2007 ; 14: 349-351
12. Van Deyk K, Moons P, Budts W. Health behaviour of adult patients with congenital heart disease. Eur J Cardiovasc Nurs. 2005 ; 4 (1). 58
13. Babor TF, Higgings-Biddle JC, Saunders JB, et al AUDIT The Alcohol Use Disorders Identification Test - Guidelines for Use in Primary Care. Geneva, Switzerland: World Health Organization-Department of Mental Health and Substance Dependence ; 2001 2001 :
14. Baecke JAH, Burema J, Frijters JER. A short questionnaire for the measurement of habitual physical activity in epidemiological studies. Am J Clin Nutr. 1982 ; 36: 936-942
15. Brener ND, Collins JL, Kann L, et al. Reliability of the youth risk behavior survey questionnaire. Am J Epidemiol. 1995 ; 141: 575-580
16. Center for Disease Control and Prevention-Division of Adolescent and School Health. Youth Risk Behavior Survey YRBS. Standard 2011 High School Questionnaire Item Rationale. 1-31. 2011: http://www.cdc.gov/healthyyouth/yrbs/ pdf/questionnaire/2011-standard-itemrationale.pdf
17. Florindo AA, Latorre MR, Santos EC, et al. Validity and reliability of the Baecke questionnaire for the evaluation of habitual physical activity among people living with HIV/AIDS. Cad Saude Publica. 2006 ; 22: 535-541
18. Kolbe LJ. An epidemiological surveillance system to monitor the prevalence of youth behaviors that most affect health. Health Education. 1990 ; 21: 44-48
19. Saunders JB, Aasland O, Amundsen A, et al. Alcohol consumption and related problems among primary health care patients: WHO collaborative project on early detection of persons with harmful alcohol consumption-I. Addiction. 1993 ; 88: 349-362
20. Saunders JB, Aasland OG, Babor TF, et al. Development of the alcohol use disorders identification test AUDIT: WHO collaborative project on early detection of persons with harmful alcohol consumption-II. Addiction. 1993 ; 88: 791-804
21. Vanheusden K Mental health problems and barriers to service use in Dutch young adults. Rotterdam, The Netherlands: Erasmus University ; 2008 :
22. Reid GJ, Siu SC, McCrindle BW, et al. Sexual behavior and reproductive concerns among adolescents and young adults with congenital heart disease. Int J Cardiol. 2008 ; 125: 332-338
23. Godin G, Shephard RJ. A simple method to assess exercise behavior in the community. Can J Appl Sport Sci. 1985 ; 10: 141-146
24. Durnin JVGA, Passmore R Energy, work and leisure. 1 st ed.London: Heinemann Educational Books Ltd, 1967. London: Heinemann Educational Books Ltd ; 1967 :
25. Standards for Educational and Psychological Testing. Washington DC: American Educational Research Association ; 1999 :
26. Davis LL. Instrument review: Getting the most from a panel of experts. Appl Nurs Res. 1992 ; 5: 194-197
27. Grant JS, Davis LT. Selection and use of content experts in instrument development. Res Nurs Health. 1997 ; 20: 269-274
28. Polit DF, Beck CT, Owen SV. Is the CVI an acceptable indicator of content validity? Appraisal and recommendations. Res Nurs Health. 2007 ; 30: 459-467
29. Waltz CF, Strickland O, Lenz ER, et al Measurement in nursing and health research. 3 rd ed.New York: Springer Publishing Co., 2005. New York: Springer Publishing Co ; 2005 :
30. Cicchetti DV, Sparrow S. Developing criteria for establishing interrater reliability of specific items: Application to assessment of adaptive behavior. Am J Ment Defic. 1981 ; 86: 127-137
31. Fleiss JL Statistical methods for rates and proportions. 2 nd ed.New York: Chichester: John Wiley & Son, 1981. New York: Chichester John Wiley & Son ; 1981 :
32. Health-risk behaviors among persons aged 12-21 years-United States, 1992. From the Centers for Disease Control and Prevention. Health-risk behaviors among persons aged 12-21 years-United States 1992. JAMA. 1994 ; 271 (17). 311
33. Philippaerts RM, Westerterp KR, Lefevre J. Double labelled water validation of three physical activity questionnaires. J Sport Med. 1999 ; 20: 284-289
34. Philippaerts RM, Westerterp KR, Lefevre J. Comparison of two questionnaires with a tri-axial accelerometer to assess physical activity patterns. J Sport Med. 2001 ; 22: 34-39
35. Goodwin LD, Leech NL. Changing conceptions of measurement validity: An update on the new standards. Measurement and evaluation in counseling and development. 2003 ; 36: 181-191
36. Knapp TR, Kimble LP, Dunbar SB. Distinguishing between the stability of a construct and the stability of an instrument in trait/state measurement. Nurs Res. 1998 ; 47: 60-62
37. Heise DR. Separating reliability and stability in test-retest correlation. Am Sociol Rev. 1969 ; 34: 93-101
38. Liang MH. Longitudinal construct validity: Establishment of clinical meaning in patient evaluative instruments. Med Care. 2000 ; 38: 84-90
39. Husted JA, Cook RJ, Farewell VT, et al. Methods for assessing responsiveness: A critical review and recommendations. J Clin Epidemiol. 2000 ; 53: 459-468
40. Guyatt G, Walter S, Norman G. Measuring change over time: Assessing the usefulness of evaluative instruments. J Chronic Dis. 1987 ; 40: 171-178
41. Mitchell SC, Korones SB, Berendes HW. Congenital heart disease in 56,109 births. Incidence and natural history. Circulation. 1971 ; 43: 323-332
42. Montoye HJ, Kemper HCG, Saris WHM, et al Human kinetics. Champaign IL: ; 1996: 191.
43. Pereira MA, Fitzergerald SJ, Gregg EW, et al. A collection of physical activity questionnaires for health-related research. Med Sci Sports Exerc. 1997 ; 29: S1 - S205
44. Dillman D Mail and other self-administered questionnaires. Handbook of survey research. New York: Academic Press ; 1983 :
45. Luyckx K, Goossens E, Van Damme C, et al. Identity formation in adolescents with congenital cardiac disease: A forgotten issue in the transition to adulthood. Cardiol Young. 2011 ; 21: 411-420
46. Rickham PP. Human experimentation. Code of ethics of the world medical association. Declaration of Helsinki. Br Med J. 1964 ; 2: 177
47. European Monitoring Centre for Drugs and Drug Addiction. Thematic papers: Hallucinogenic mushrooms: an emerging trend case study. 2006: http://www.emcdda.europa.eu/publications/thematic-papers/mushrooms
48. Global recommendations on physical activity for health. Geneva, Switzerland: ; 2010 :
49. Habib G, Hoen B, Tornos P, et al. Guidelines on the prevention, diagnosis, and treatment of infective endocarditis new version 2009.: The Task Force on the Prevention, Diagnosis, and Treatment of Infective Endocarditis of the European Society of Cardiology ESC. Endorsed by the European Society of Clinical Microbiology and Infectious Diseases (ESCMID) and the International Society of Chemotherapy (ISC) for Infection and Cancer. Eur Heart J. 2007 ; 30: 2369-2413
50. Wilson W, Taubert KA, Gewitz M, et al. Prevention of infective endocarditis: Guidelines from the American Heart Association: A guideline from the American Heart Association Rheumatic Fever, Endocarditis, and Kawasaki Disease Committee, Council on Cardiovascular Disease in the Young, and the Council on Clinical Cardiology, Council on Cardiovascular Surgery and Anesthesia, and the Quality of Care and Outcomes Research Interdisciplinary Working Group. Circulation. 2007 ; 116: 1736-1754
51. Busuttil NA, Mooney G, El Bahannasawy E, et al. The dental health and preventative habits of cardiac patients attending the Royal Hospital for Sick Children Glasgow. Eur Arch Paediatr Dent. 2006 ; 7: 23-30
52. Duval X LC. Prophylaxis of infective endocarditis: Current tendencies, continuing controversies. Lancet Infect Dis. 2008 ; 8: 225-232
53. Forner L, Larsen T, Kilian M, et al. Incidence of bacteremia after chewing, tooth brushing and scaling in individuals with periodontal inflammation. J Clin Periodontol. 2006 ; 33: 401-407
54. Lockhart PB, Loven B, Brennan MT, et al. The evidence base for the efficacy of antibiotic prophylaxis in dental practice. J Am Dent Assoc. 2007 ; 138: 458-474
55. Lockhart PB, Brennan MT, Thornhill M, et al. Poor oral hygiene as a risk factor for infective endocarditis-related bacteremia. J Am Dent Assoc. 2009 ; 140: 1238-1244
56. Roberts GJ. Dentists are innocent! 'Everyday' bacteremia is the real culprit: A review and assessment of the evidence that dental surgical procedures are a principal cause of bacterial endocarditis in children. Pediatr Cardiol. 1999 ; 20: 317-325
57. Crasta K, Daly CG, Mitchell D, et al. Bacteraemia due to dental flossing. J Clin Periodontol. 2009 ; 36: 323-332
58. Storm BL, Abrutyn E, Berlin JA, et al. Risk factors for infective endocarditis: Oral hygiene and nondental exposures. Circulation. 2000 ; 102: 2842-2848
59. Norusis MJ Measuring scales: Reliability analysis examples. SPSS Professional Statistics 7.5. Chicago: SPSS Inc ; 1997: 103-111.
60. Warnes CA, Liberthson R, Danielson GK, et al. Task force 1: The changing profile of congenital heart disease in adult life. J Am Coll Cardiol. 2001 ; 37: 1170-1175
61. Saunders JB, Aasland OG, Amundsen A, et al. Alcohol consumption and related problems among primary health care patients: WHO collaborative project on early detection of persons with harmful alcohol consumption-I. Addiction. 1993 ; 88: 349-362