The decision to continue a pregnancy affected by down syndrome: Timing of decision and satisfaction with receiving a prenatal diagnosis

Journal of Genetic Counseling

Volumn 22, Issue 5, 2013, Pages 587-593

  Hurford, Emily ^a,b   Hawkins, Anne ^a   Hudgins, Louanne ^a   Taylor, Joanne ^a  

^a STANFORD UNIVERSITY   (United States)

^b UNIVERSITY OF CALIFORNIA   (United States)

Author keywords

Amniocentesis; Chorionic villus sampling; Decision making; Down syndrome; Genetic counseling; Genetic counselor; Prenatal diagnosis

Indexed keywords

DECISION MAKING; DOWN SYNDROME; FEMALE; HUMAN; INFORMATION PROCESSING; PATHOPHYSIOLOGY; PATIENT SATISFACTION; PREGNANCY; PRENATAL DIAGNOSIS; PSYCHOLOGY; TIME; ARTICLE; PSYCHOLOGICAL ASPECT;

DATA COLLECTION; DECISION MAKING; DOWN SYNDROME; FEMALE; HUMANS; PATIENT SATISFACTION; PREGNANCY; PRENATAL DIAGNOSIS; TIME FACTORS;

EID: 84885469301     PISSN: 10597700     EISSN: 15733599     Source Type: Journal    
DOI: 10.1007/s10897-013-9590-6     Document Type: Article

References (12)

1. Hawkins, A., Stenzel, A., Taylor, J., Chock, V., & Hudgins, L. (2012). Variables influencing pregnancy termination following prenatal diagnosis of fetal chromosome abnormalities. Journal of Genetic Counseling. doi: 10.1007/s10897- 012-9539-1.
2. Jones, J. M. (2004). Tracking religious affiliation, state by state. Gallup Poll. Retrieved from: http://www.gallup.com/poll/12091/tracking- religious-affiliation-state-state.aspx.
3. Kornman, L. H., Wortelboer, M. J. M., Beekhuis, J. R., Morssink, L. P., & Mantingh, A. (1997). Prenatal Diagnosis, 17(11), 1011-1018.
4. Mansfield, C., Hopfer, S., & Marteau, T. M. (1999). Termination rates after prenatal diagnosis of Down syndrome, spina bifida, anencephaly, and Turner and Klinefelter syndrome: a systematic literature review. Prenatal Diagnosis, 19, 808-812.
5. Natoli, J. L., Ackerman, D. L., McDermott, S., & Edwards, J. G. (2012). Prenatal diagnosis of Down syndrome: a systematic review of termination rates (1995-2011). Prenatal Diagnosis, 32, 142-153.
6. Schechtman, K. B., Gray, D. L., Baty, J. D., & Rothman, S. M. (2002). Decision-making for termination of pregnancies with fetal anomalies: analysis of 53,000 pregnancies. Obstetrics and Gynecology, 99(2), 216-222.
7. Shaffer, B. L., Caughey, A. B., & Norton, M. E. (2006). Variation in the decision to terminate pregnancy in the setting of fetal aneuploidy. Prenatal Diagnosis, 26, 667-671.
8. Sheets, K. B., Crissman, B. G., Feist, C. D., Sell, S. L., Johnson, L. R., Donahue, K. C., et al. (2011). Practice guidelines for communicating a prenatal or postnatal diagnosis of Down syndrome: recommendations of the National Society of Genetic Counselors. Journal of Genetic Counseling. doi: 10.1007/s10897-011-9375-8.
9. Skotko, B. (2005). Prenatally diagnosed Down syndrome: mothers who continued their pregnancies evaluate their health care providers. American Journal of Obstetrics and Gynecology, 192, 670-677.
10. U.S. Census Bureau (2010). USA Quickfacts. Retrieved from: http://quickfacts.census.gov/qfd/states/00000.html.
11. Verp, M. S., Bombard, A. T., Simpson, J. L., & Elias, S. (1988). Parental decision following prenatal diagnosis of fetal chromosome abnormality. American Journal of Medical Genetics, 29, 613-622.
12. Zlotogora, J. (2002). Parental decisions to abort or continue a pregnancy with an abnormal finding after an invasive prenatal test. Prenatal Diagnosis, 22, 1102-1106.