A survey of cancer patients' unmet information and coordination needs in handovers - A cross-sectional study

BMC Research Notes

Volumn 6, Issue 1, 2013, Pages

  Søndergaard, Eva Gad ^a   Grøne, Bettina Haastrup ^a   Wulff, Christian Nielsen ^b   Larsen, Pia Veldt ^c   Søndergaard, Jens ^c  

^a UNIVERSITY OF SOUTHERN DENMARK   (Denmark)

^b AARHUS UNIVERSITY   (Denmark)

^c UNIVERSITY OF SOUTHERN DENMARK   (Denmark)

Author keywords

Cancer; Coordination; Handovers; Information; Need

Indexed keywords

ADULT; AGED; ARTICLE; ATTITUDE TO HEALTH; CLINICAL HANDOVER; CROSS-SECTIONAL STUDY; DEMOGRAPHY; DENMARK; FEMALE; HEALTH CARE SURVEY; HEALTH SERVICE; HUMAN; MALE; MIDDLE AGED; NEEDS ASSESSMENT; NEOPLASM; PREVALENCE; QUESTIONNAIRE; STATISTICS; VERY ELDERLY;

ADULT; AGED; AGED, 80 AND OVER; CROSS-SECTIONAL STUDIES; DEMOGRAPHY; DENMARK; FEMALE; HEALTH CARE SURVEYS; HEALTH KNOWLEDGE, ATTITUDES, PRACTICE; HEALTH SERVICES NEEDS AND DEMAND; HUMANS; MALE; MIDDLE AGED; NEEDS ASSESSMENT; NEOPLASMS; PATIENT HANDOFF; PREVALENCE; QUESTIONNAIRES;

EID: 84885396700     PISSN: None     EISSN: 17560500     Source Type: Journal    
DOI: 10.1186/1756-0500-6-378     Document Type: Article

References (40)

1. Buch MS, Forløbskoordination på kronikerområdet: Hvad skal der til i praksis? [In Danish] Copenhagen: Forum for Kvalitet og Udvikling i offentlig Service 2008 23960114
2. Lost in transition: challenges and opportunities for improving the quality of transitional care. Coleman EA, Berenson RA, Ann Intern Med 2004 141 7 533 536 10.7326/0003-4819-141-7-200410050-00009 15466770 (Pubitemid 39350243)
3. Der er mange sikkerhedsrisici ved patientovergange [In Danish]. Siemsen I, Michaelsen L, Nielsen J, Østergaard D, Andersen H, J Dan Med Assoc 2011 173 20 1412 1426
4. Left in limbo: patients' views on care across the primary/secondary interface. Preston C, Cheater F, Baker R, Hearnshaw H, Qual Health Care 1999 8 1 16 21 10.1136/qshc.8.1.16 10557664 (Pubitemid 29161507)
5. Martin HM, Er der styr på mig? Sammenhængende patientforløb fra patientens perspektiv [In Danish] Copenhagen: The Danish Institute for Health Services Research 2010
6. Jensen L, Villadsen K, I gode hænder? En kvalitativ analyse af patienters oplevelser af sammenhæng, tryghed og kontaktperson [In Danish] Copenhagen: Unit of Patient-Perceived Quality 2010 23514998
7. Improving measurement in clinical handover. Jeffcott SA, Evans SM, Cameron PA, Chin GS, Ibrahim JE, Qual Saf Health Care 2009 18 4 272 277 10.1136/qshc.2007.024570 19651930
8. Siemsen I, Patientovergange-Et eksplorativt studie af faktorer der påvirker sikkerheden af patientovergange [In Danish]. PhD Thesis Technical University of Denmark, Department of Management Engineering 2011
9. The National Board of Health, Utilsigtede hændelser i kræftbehandlingen-en analyse af hændelsesrapporter fra Dansk Patientsikkerhedsdatabase (DSPD) [In Danish] Copenhagen 2010
10. Wong MC, Yee KC, Turner P, A Structured Evidence-based Literature Review regarding the Effectiveness of Improvement Interventions in Clinical Handover Australia: The eHealth Services Research Group, University of Tasmania 2008
11. Information needs and sources of information among cancer patients: a systematic review of research (1980-2003). Rutten LJ, Arora NK, Bakos AD, Aziz N, Rowland J, Patient Educ Couns 2005 57 3 250 261 10.1016/j.pec.2004.06.006 15893206 (Pubitemid 40694003)
12. What is important in cancer care coordination? A qualitative investigation. Walsh J, Young JM, Harrison JD, Butow PN, Solomon MJ, Masya L, White K, Eur J Cancer Care 2011 20 2 220 227 10.1111/j.1365-2354.2010.01187.x
13. Østerbye T, Nyby TK, Landsdækkende undersøgelse af kræftpatienters oplevelser [In Danish] Copenhagen: Unit of Patient-Perceived Quality 2010
14. Information needs and decision-making preferences: comparing findings for gynaecological, breast and colorectal cancer. Beaver K, Booth K, Eur J Oncol Nurs 2007 11 5 409 416 10.1016/j.ejon.2007.04.004 17604693
15. Information needs and information-seeking behaviors of men with prostate cancer and their partners: a review of the literature. Echlin KN, Rees CE, Cancer Nurs 2002 25 1 35 41 10.1097/00002820-200202000-00008 11838718 (Pubitemid 34101405)
16. Continuity of care: a multidisciplinary review. Jeannie LH, Robert JR, George KF, Barbara HS, Carol EA, Rachael M, BMJ 2003 327 1219 10.1136/bmj.327.7425.1219 14630762
17. Krag A, Gut R, Freil M, POPS-Patienters oplevelser i Overgange mellem Primær og Sekundær sektor [In Danish] Copenhagen: Unit of Patient-Perceived Quality 2007
18. Grønvold M, Pedersen C, Jensen CR, Faber MT, Johnsen AT, Kræftpatientens verden [In Danish] Copenhagen: The Danish Cancer Society 2006 24092391
19. Gender-related needs and preferences in cancer care indicate the need for an individualized approach to cancer patients. Wessels H, de Graeff A, Wynia K, de Heus M, Kruitwagen CL, Woltjer GT, Teunissen SC, Voest EE, Oncologist 2010 15 6 648 655 10.1634/theoncologist.2009-0337 20507890
20. Cancer patients' needs for rehabilitation services. Thorsen L, Gjerset GM, Loge JH, Kiserud CE, Skovlund E, Flotten T, Fossa SD, Acta Oncol 2011 50 2 212 222 10.3109/0284186X.2010.531050 21231783
21. Cancer patients' information needs across the cancer care continuum: evidence from the cancer information service. Squiers L, Finney Rutten LJ, Treiman K, Bright MA, Hesse B, J Health Commun 2005 10 Suppl 1 15 34 16377598 (Pubitemid 43041756)
22. How do people with cancer wish to be cared for in primary care? Serial discussion groups of patients and carers. Kendall M, Boyd K, Campbell C, Cormie P, Fife S, Thomas K, Weller D, Murray SA, Fam Pract 2006 23 6 644 650 10.1093/fampra/cml035 16837479
23. Dokumentationsrapport Spørgeskemaundersøgelse, PaRIS-Patientens Rejse i Sundhedssektoren [In Danish]. Draborg E, Kjær T, Bech M, Mollerup M, Volume 5Denmark: Institute of Public Health, Health Economics, University of Southern Denmark Health Economics Papers. 2009
24. Hove G, Heje H, Olesen F, Vedsted P, DanPEP-Danske Patienter Evaluerer Almen Praksis [In Danish] Research Unit for General Practice: Aarhus University 2006
25. The Picker Patient Experience Questionnaire: development and validation using data from in-patient surveys in five countries. Jenkinson C, Coulter A, Bruster S, Int J Qual Health Care 2002 14 5 353 358 10.1093/intqhc/14.5.353 12389801 (Pubitemid 35174886)
26. Wulff CN, The Effect of Hospital-Based Case Management in Cancer care Pathways. PhD Thesis Aarhus University, Research Unit for General Practice 2012 Unpublished
27. Unit of Patient-Perceived Quality, Den Landsdækkende Undersøgelse af Patientoplevelser 2010 [In Danish] Copenhagen 2011 24090851
28. Olsen H, Guide til gode spørgeskemaer [In Danish] Copenhagen: The Danish National Institute of Social Research 2006
29. Spørgeskemaundersøgelser [In Danish]. Münster K, Forskningsmetoder i Folkesundhedsvidenskab Copenhagen: Munksgaard Danmark, Vallgårda S, Koch L, 3 2007 237 256
30. Lov om videnskabsetisk behandling af sundhedsvidenskabelige forskningsprojekter. https://www.retsinformation.dk/Forms/R0710.aspx?id=137674
31. Forskere. http://www.cvk.sum.dk/forskere.aspx
32. The National Board of Health, Cancerregisteret 2010 [In Danish] Copenhagen 2011
33. The physical and psycho-social experiences of patients attending an outpatient medical oncology department: a cross-sectional study. Newell, Sanson F, Girgis, Ackland, Eur J Cancer Care 1999 8 2 73 82 10.1046/j.1365-2354.1999. 00125.x
34. Cancer rehabilitation: psychosocial rehabilitation needs after discharge from hospital? Mikkelsen TH, Sondergaard J, Jensen AB, Olesen F, Scand J Prim Health Care 2008 26 4 216 221 10.1080/02813430802295610 18792854
35. Patients' experiences with navigation for cancer care. Carroll JK, Humiston SG, Meldrum SC, Salamone CM, Jean-Pierre P, Epstein RM, Fiscella K, Patient Educ Couns 2010 80 2 241 247 10.1016/j.pec.2009.10.024 20006459
36. Unit of Patient-Perceived Quality, Den Landsdækkende Undersøgelse af Patientoplevelser 2011 [In Danish] Copenhagen 2012 24090851
37. Patient views on choice and participation in primary health care. Rosén P, Anell A, Hjortsberg C, Health Policy 2001 55 2 121 128 10.1016/S0168-8510(00)00122-6 11163651 (Pubitemid 32037123)
38. Participation in cancer rehabilitation and unmet needs: a population-based cohort study. Holm L, Hansen D, Johansen C, Vedsted P, Larsen P, Kragstrup J, Søndergaard J, Support Care Cancer 2012 20 2913 2924 10.1007/s00520-012-1420-0 22415608
39. Comorbidities in head and neck cancer: agreement between self-report and chart review. Mukerji SS, Duffy SA, Fowler KE, Khan M, Ronis DL, Terrell JE, Otolaryngol Head Neck Surg 2007 136 4 536 542 10.1016/j.otohns.2006.10.041 17418247 (Pubitemid 46517758)
40. Patient characteristics and quality dimensions related to patient satisfaction. Rahmqvist M, Bara A-C, International J Qual Health Care 2010 22 2 86 92 10.1093/intqhc/mzq009