Development and validation of the Psychological Adaptation Scale (PAS): Use in six studies of adaptation to a health condition or risk

Patient Education and Counseling

Volumn 93, Issue 2, 2013, Pages 248-254

  Biesecker, Barbara B ^a,b   Erby, Lori H ^b   Woolford, Samuel ^c   Adcock, Jessica Young ^d   Cohen, Julie S ^a   Lamb, Amanda ^e   Lewis, Katie V ^a   Truitt, Megan ^f   Turriff, Amy ^g   Reeve, Bryce B ^h  

^a NATIONAL HUMAN GENOME RESEARCH INSTITUTE   (United States)

^b JOHNS HOPKINS BLOOMBERG SCHOOL OF PUBLIC HEALTH   (United States)

^c BENTLEY UNIVERSITY   (United States)

^d GREATER BALTIMORE MEDICAL CENTER   (United States)

^e MAINE MEDICAL CENTER   (United States)

^f NewYork Presbyterian Hospital   (United States)

^g NATIONAL EYE INSTITUTE   (United States)

^h IL   (United States)

Author keywords

Adaptation; Health threat of chronic condition or risk; Outcomes of coping; The Psychological Adaptation Scale

Indexed keywords

ADAPTIVE BEHAVIOR; ADOLESCENT; ADULT; AGED; ARTICLE; CONTROLLED STUDY; COPING BEHAVIOR; HEALTH HAZARD; HUMAN; INSTRUMENT VALIDATION; INTEGRATION; MALE; PRIORITY JOURNAL; PROCESS DEVELOPMENT; PSYCHOLOGICAL ADAPTATION SCALE; PSYCHOLOGICAL WELL BEING; QUALITY OF LIFE; RATING SCALE; RISK ASSESSMENT; SELF ESTEEM; STANDARDIZATION;

ADAPTATION; HEALTH THREAT OF CHRONIC CONDITION OR RISK; OUTCOMES OF COPING; THE PSYCHOLOGICAL ADAPTATION SCALE;

ADAPTATION, PSYCHOLOGICAL; ADULT; CAREGIVERS; CHILD; FEMALE; GENETIC DISEASES, INBORN; HUMANS; MALE; PSYCHIATRIC STATUS RATING SCALES; SELF CONCEPT; SOCIAL ADJUSTMENT; SPIRITUALITY;

EID: 84885383256     PISSN: 07383991     EISSN: 18735134     Source Type: Journal    
DOI: 10.1016/j.pec.2013.05.006     Document Type: Article

References (25)

1. Resta R., Biesecker B.B., Bennett R.L., Blum S., Hahn S.E., Strecker M.N., Williams J.L. A new definition of genetic counseling: National Society of Genetic Counselors' Task Force report. J Genet Couns 2006, 15:77-83.
2. Biesecker B.B., Erby L. Adaptation to living with a genetic condition or risk: a mini-review. Clin Genet 2008, 74:401-407.
3. Lazarus R.S., Folkman S. Stress. Appraisal and Coping 1984, Springer, New York City.
4. Walker L.S., Smith C.A., Garber J., Claar R.L. Appraisal and coping with daily stressors by pediatric patients with chronic abdominal pain. J Pediatr Psychol 2007, 32:206-216.
5. Rutterford N.A., Wood R.L. Evaluating a theory of stress and adjustment when predicting long-term psychosocial outcome after brain injury. J Int Neuropsychol Soc 2006, 12:359-367.
6. Taylor S.E. Adjustment to threatening life events: a theory of cognitive adaptation. Am Psychol 1983, 38:1161-1173.
7. Zakowski S.G., Hall M.H., Klein L.C., Baum A. Appraised control, coping, and stress in a community sample: a test of the goodness-of-fit hypothesis. Ann Behav Med 2001, 23:158-165.
8. Kendall E., Terry D. Predicting emotional well-being following traumatic brain injury: a test of mediated and moderated models. Soc Sci Med 2009, 69:947-954.
9. Walker J.G., Jackson H.J., Littlejohn G.O. Models of adjustment to chronic illness: using the example of rheumatoid arthritis. Clin Psychol Rev 2004, 24:461-488.
10. Wakefield C.E., McLoone J.K., Butow P., Lenthen K., Cohn R.J. Parental adjustment to the completion of their child's cancer treatment. Pediatr Blood Cancer 2011, 56:524-531.
11. Rosenberg M. Society and the Adolescent Self-Image 1965, Princeton University Press, Princeton, NJ.
12. Turriff A., Levy H.P., Biesecker B. Prevalence and psychosocial correlates of depressive symptoms among adolescents and adults with Klinefelter syndrome. Genet Med 2011, 13:966-972.
13. Truitt M., Biesecker B., Capone G., Bailey T., Erby L. The role of hope in adaptation to uncertainty: the experience of caregivers of children with Down syndrome. Patient Educ Couns 2012, 87:233-238.
14. Voss K. Caregiver adaptation to Autism Spectrum Disorders 2008, The Johns Hopkins Bloomberg School of Public Health, Baltimore, MD, (Master's thesis).
15. Cohen J.S. Adaptation and Quality of Life Among Adults with Neurofibromatosis Type 1 2009, The Johns Hopkins Bloomberg School of Public Health, Baltimore, MD, (Master's thesis).
16. Lamb A.E. The Role of Family Functioning in Adaptation to Being a Caregiver of an Individual with Rett Syndrome 2010, The Johns Hopkins Bloomberg School of Public Health, Baltimore, MD, (Master's thesis).
17. Adcock J.Y. The Extent and Patterns of Disclosure Within the Huntington Disease Community and the Association with Adaptation to Living at Risk 2008, The Johns Hopkins Bloomberg School of Public Health, Baltimore, MD, (Master's thesis).
18. Radloff L.S. The CES-D scale: a self-report depression scale for research in the general population. Appl Psychol Measure 1977, 1:385-401.
19. Snyder C.R., Harris C., Anderson J.R., Holleran S.A., Irving L.M., Sigmon S.T., Yoshinobu L., Gibb J., Langelle C., Harney P. The will and the ways: development and validation of an individual-differences measure of hope. J Pers Soc Psychol 1991, 60:570-585.
20. Ferrans C., Powers M. Psychometric assessment of the Quality of Life Index. Res Nurs Health 1992, 15:29-38.
21. Jacob T., Tennenbaum D.L. Family Assessment: Rationale, Methods and Future Directions 1988, Plenum Press, New York City.
22. Hair J.F., Black W.C., Babin B.J., Anderson R.E. Multivariate Data Analysis 2010, Pearson Prentice Hall, New Jersey. 7th Edition.
23. Chesney M.A., Chambers D.B., Taylor J.M., Johnson L.M., Folkman S. Coping effectiveness training for men living with HIV: results from a randomized trial testing a group-based intervention. Psychosomatic Med 2003, 65:1038-1046.
24. Kennedy P., Duff J., Evans M., Beedie A. Coping effectiveness training reduces depression and anxiety following traumatic spinal cord injuries. Br J Clin Psychol 2003, 42:41-52.
25. Payne K., Nicholls S., McAllister M., Macleod R., Donnai D., Davies L.M. Outcome measurement in clinical genetics services: a systematic review of validated measures. Value Health 2008, 11:497-508.