Self-reported medical morbidity among informal caregivers of chronic illness: The case of cancer

Quality of Life Research

Volumn 22, Issue 6, 2013, Pages 1265-1272

  Kim, Youngmee ^a   Carver, Charles S ^a   Cannady, Rachel S ^b   Shaffer, Kelly M ^a  

^a Department of Biology   (United States)

^b AMERICAN CANCER SOCIETY   (United States)

Author keywords

Caregivers; Morbidity; Scale development and validation

Indexed keywords

ADULT; AGED; ARTICLE; CAREGIVER; CHRONIC DISEASE; FEMALE; HEALTH STATUS; HUMAN; MALE; MENTAL HEALTH; MIDDLE AGED; MORBIDITY; NEOPLASM; PREDICTIVE VALUE; PREVALENCE; PSYCHOLOGICAL ASPECT; QUALITY OF LIFE; QUESTIONNAIRE; REPRODUCIBILITY; SELF REPORT; SOCIOECONOMICS; STATISTICS; VERY ELDERLY;

ADULT; AGED; AGED, 80 AND OVER; CAREGIVERS; CHRONIC DISEASE; FEMALE; HEALTH STATUS; HUMANS; MALE; MENTAL HEALTH; MIDDLE AGED; MORBIDITY; NEOPLASMS; PREDICTIVE VALUE OF TESTS; PREVALENCE; QUALITY OF LIFE; QUESTIONNAIRES; REPRODUCIBILITY OF RESULTS; SELF REPORT; SOCIOECONOMIC FACTORS;

EID: 84885173603     PISSN: 09629343     EISSN: None     Source Type: Journal    
DOI: 10.1007/s11136-012-0255-y     Document Type: Article

References (34)

1. Schulz, R.; & Beach, S. R. (1999). Caregiving as a risk factor for mortality: The caregiver health effects study. Journal of the American Medical Association, 282(23), 2215-2219. (Pubitemid 30002964)
2. Vitaliano, P. P.; Zhang, J.; & Scanlan, J. M. (2003). Is caregiving hazardous to one's physical health? A meta-analysis. Psychological Bulletin, 129(6), 946-972. (Pubitemid 37398636)
3. Kim, Y.; & Given, B. A. (2008). Quality of life of family caregivers of cancer survivors across the trajectory of the illness. Cancer, 112(11 suppl), 2556-2568.
4. Yabroff, K. R.; & Kim, Y. (2009). Time costs associated with informal caregiving for cancer survivors. Cancer, 115(18 suppl), 4362-4373.
5. American Cancer Society (ACS). (2012). Cancer facts and figures 2012. Atlanta, GA: American Cancer Society.
6. Yancik, R.; Ganz, P. A.; Varricchio, C. G.; & Conley, B. (2001). Perspectives on comorbidity and cancer in older patients: Approaches to expand the knowledge base. Journal of Clinical Oncology, 19(4), 1147-1151. (Pubitemid 32176292)
7. Administration on Aging. (2003). A profile of older Americans: 2003. Resource document. US Department of Health and Human Services. http://www.aoa.gov/aoaroot/aging-statistics/Profile/2011/docs/2011profile.pdf.
8. Greenfield, S.; Aronow, H. U.; Elashoff, R. M.; & Watanabe, D. (1988). Flaws in mortality data: The hazards of ignoring comorbid disease. Journal of the American Medical Association, 260(15), 2253-2255.
9. Iezzoni, L. I.; Foley, S. M.; Daley, J.; Hughes, J.; Fisher, E. S.; & Heeren, T. (1992). Comorbidities, complications, and coding bias: Does the number of diagnosis codes matter in predicting in-hospital mortality? Journal of the American Medical Association, 267(16), 2197-2203.
10. Charlson, M. E.; Pompei, P.; Ales, K.; & MacKenzie, C. R. (1987). A new method of classifying prognostic comorbidity in longitudinal studies: Development and validation. Journal of Chronic Diseases, 40(5), 373-383. (Pubitemid 17055592)
11. Colditz, G. A.; Martin, P.; Stampfer, M. J.; Willett, W. C.; Sampson, L.; Rosner, B.; et al. (1986). Validation of questionnaire information on risk factors and disease outcomes in a prospective cohort study of women. American Journal of Epidemiology, 123(5), 894-900. (Pubitemid 16049247)
12. Greenfield, S.; Sullivan, L.; Dukes, K. A.; Silliman, R.; D'Agostino, R.; & Kaplan, S. H. (1995). Development and testing of a new measure of case mix for use in office practice. Medical Care, 33(4 suppl), AS47-AS55.
13. Katz, J. N.; Chang, L. C.; Sangha, O.; Fossel, A. H.; & Bates, D. W. (1996). Can comorbidity be assessed by questionnaire rather than medical record review? Medical Care, 34(1), 73-84. (Pubitemid 126433198)
14. Linet, M.; Harlow, S.; McLaughlin, J. K.; & McCaffrey, L. D. (1989). A comparison of interview data and medical records for previous medical conditions and surgery. Journal of Clinical Epidemiology, 42(12), 1207-1213. (Pubitemid 20018459)
15. Mechanic, D. (1980). The experiences and reporting of common physical complaints. Journal of Health and Social Behavior, 21(2), 146-155.
16. Smith, T.; Stein, K. D.; Mehta, C. C.; Kaw, C.; Kepner, J. L.; Buskirk, T.; et al. (2007). The rationale, design, and implementation of the American Cancer Society's studies of cancer survivors. Cancer, 109(1), 1-12. (Pubitemid 46120189)
17. Kim, Y.; & Spillers, R. L. (2010). Quality of life of family caregivers at 2 years after a relative's cancer diagnosis. Psycho-Oncology, 19(4), 431-440.
18. Kim, Y.; Kashy, D. A.; Kaw, C. K.; Smith, T.; & Spillers, R. L. (2009). Sampling in population- based cancer caregivers research. Quality of Life Research, 18(8), 981-989.
19. International classification of disease. (2011). Tenth revision, Clinical Modification (ICD-10-CM). Centers for Disease Control and Prevention. http://www.cdc.gov/nchs/icd/icd10cm.htm.
20. National Health Interview Survey. (2012). Centers for Disease Control and Prevention. http://www.cdc.gov/nchs/nhis.htm.
21. Miller, M. D.; Paradis, C. F.; Houck, P. R.; Mzaumdar, S.; Stack, J. A.; Rifai, H.; et al. (1992). Rating chronic medical illness burden in geropsychiatric practice and research: Application of the Cumulative Illness Rating Scale. Psychiatry Research, 41, 237-248.
22. Yancik, R.; Wesley, M. N.; Ries, L. A. G.; Havlik, R. J.; Long, S.; Edwards, B. K.; et al. (1998). Comorbidity and age as predictors of risk for early mortality of male and female colon carcinoma patients: A population-based study. Cancer, 82(11), 2123-2134. (Pubitemid 28240818)
23. Kroenke, C. H.; Rosner, B.; Chen, W. Y.; Kawachi, I.; Colditz, G. A.; & Holmes, M. D. (2004). Functional impact of breast cancer by age at diagnosis. Journal of Clinical Oncology, 22(10), 1849-1856. (Pubitemid 41095175)
24. Ware, J. E.; Jr, Kosinski, M.; & Keller, S. (1994). SF-36 physical and mental health summary scales: A user's manual (2nd ed.). Boston, MA: Health Institute, New England Medical Center.
25. Ware, J. E.; Jr, Kosinski, M.; Turner-Bowker, D. M.; & Gandek, B. (2002). How to score version 2 of the SF-12 health survey (with a supplement documenting version 1). Lincoln, RI: QualityMetric Incorporated.
26. McHorney, C. A.; Ware, J. E.; Jr, & Raczek, A. E. (1993). The MOS 36-item short-form health survey (SF-36): II. Psychometric and clinical tests of validity in measuring physical and mental health constructs. Medical Care, 31(3), 247-263.
27. Schlenk, E. A.; Erlen, J. A.; Dunbar-Jacob, J.; McDowell, J.; Engberg, S.; Sereika, S. M.; et al. (1997). Health-related quality of life in chronic disorders: A comparison across studies using the MOS SF-36. Quality of Life Research, 7, 57-65. (Pubitemid 28113965)
28. Ries, L.; Eisner, M.; Kosary, C.; Miller, B.; Clegg, L.; Mariotto, A.; et al. (2007). SEER cancer statistics review, 1975-2004. Bethesda, MD: National Cancer Institute.
29. Kim, Y.; Baker, F.; & Spillers, R. L. (2007). Cancer caregivers' quality of life: Effects of gender, relationship, and appraisal. Journal of Pain and Symptom Management, 34(3), 294-304. (Pubitemid 47361668)
30. United States 2000 Census. (2003). United States Census Bureau. http://www.census.gov/prod/cen2000/index.html.
31. National Center for Health Statistics. (2011). Health, United States, 2010: With special feature on death and dying. Resource document. National Center for Health Statistics. http://www.cdc.gov/nchs/data/hus/hus10.pdf.
32. Shapiro, S. S.; & Wilk, M. B. (1965). An analysis of variance test for normality (complete samples). Biometrika, 52(3-4), 591-611.
33. Raudenbush, S. W.; Bryk, A. S.; Cheong, Y. F.; & Congdon, R. T.; Jr. (2004). HLM 6: Hierarchical linear and nonlinear modeling (2nd ed.). Lincolnwood, IL: Scientific Software International.
34. Raudenbush, S. Q.; & Bryk, A. S. (2002). Hierarchical linear models: Applications and data analysis models. Thousand Oaks, CA: Sage Publications, Inc.