Use and Acceptance of AAC Systems by Children with Angelman Syndrome

Journal of Applied Research in Intellectual Disabilities

Volumn 26, Issue 6, 2013, Pages 557-567

  Calculator, Stephen N ^a  

^a UNIVERSITY OF NEW HAMPSHIRE   (United States)

Author keywords

Angelman syndrome; Augmentative and alternative communication; Severe disabilities

Indexed keywords

ADOLESCENT; ARTICLE; AUGMENTATIVE AND ALTERNATIVE COMMUNICATION; CHILD; CHILD BEHAVIOR; COMMUNICATION AID; DECISION MAKING; HANDICAPPED CHILD; HAPPY PUPPET SYNDROME; HUMAN; INFORMATION PROCESSING; INTERNET; MOTIVATION; NONVERBAL COMMUNICATION; NORTH AMERICA; PARENT; PATHOPHYSIOLOGY; PRESCHOOL CHILD; PSYCHOLOGICAL ASPECT; QUALITATIVE RESEARCH; SEVERE DISABILITIES; UTILIZATION REVIEW;

ANGELMAN SYNDROME; AUGMENTATIVE AND ALTERNATIVE COMMUNICATION; SEVERE DISABILITIES;

ADOLESCENT; ANGELMAN SYNDROME; CHILD; CHILD BEHAVIOR; CHILD, PRESCHOOL; CHOICE BEHAVIOR; COMMUNICATION AIDS FOR DISABLED; DATA COLLECTION; DISABLED CHILDREN; HUMANS; INTERNET; MOTIVATION; NONVERBAL COMMUNICATION; NORTH AMERICA; PARENTS; QUALITATIVE RESEARCH;

EID: 84884978085     PISSN: 13602322     EISSN: 14683148     Source Type: Journal    
DOI: 10.1111/jar.12048     Document Type: Article

References (38)

1. Aldridge A. & Levine K. (2001) Surveying the Social World: Principles and Practice in Survey Research. Open University Press, Philadelphia.
2. Alvares R. & Downing S. (1998) A survey of expressive communication skills in children with Angelman Syndrome. American Journal of Speech-Language Pathology 7, 13-24.
3. American Speech-Language-Hearing Association (2002) Augmentative and alternative communication: knowledge and skills for service delivery. ASHA Leader 7(Suppl. 22), 97-106.
4. American Speech-Language-Hearing Association (2004) Roles and responsibilities of speech-language pathologists with respect to augmentative and alternative communication: technical report. ASHA Supplement 24, 1-17.
5. Anderson W., Rasmussen R. & Stromme P. (2001) Levels of cognitive and linguistic development in Angelman syndrome: a study of 20 children. Logopedics, Phoniatrics, Vocology 26, 2-9.
6. Arron K., Oliver C., Moss J., Berg K. & Burbridge C. (2011) The prevalence and phenomenology of self-injurious and aggressive behaviour in genetic syndromes. Journal of Intellectual Disability Research 55, 1109-1120.
7. Auerbach C. & Silverstein L. (2003) Qualitative Data. New York University Press, New York.
8. Bailey R., Parette H., Stoner J., Angell M. & Carroll K. (2006) Family members' perceptions of augmentative and alternative communication device use. Language, Speech and Hearing Services in Schools 37, 50-60.
9. Ball L., Beukelman D. & Pattee G. (2004) Acceptance of augmentative and alternative communication technology by persons with amyotrophic lateral sclerosis. Augmentative and Alternative Communication 20, 113-122.
10. Bernard H. & Ryan G. (2010) Analyzing Qualitative Data: Systematic Approaches. Sage Publications, Los Angeles.
11. Blackstone S. & Hunt-Berg P. (2003) Social Networks: A Communication Inventory for Individuals With Complex Communication Needs and Their Communication Partners. Augmentative Communication, Inc, Monterey, CA.
12. Calculator S. (2002) Use of enhanced natural gestures to foster interactions between children with Angelman Syndrome and their parents. American Journal of Speech-Language Pathology 11, 340-355.
13. Calculator S. (2009) Augmentative and alternative communication (AAC) and inclusive education for students with the most severe disabilities. International Journal of Inclusive Education 13, 93-113.
14. Calculator S. & Black T. (2010) Parents' priorities for AAC and related instruction for their children with Angelman Syndrome. Augmentative and Alternative Communication 26, 30-40.
15. Clayton-Smith J. & Laan L. (2003) Angelman syndrome: a review of the clinical and genetic aspects. Journal of Medical Genetics 40, 87-95.
16. Cress C. (2004) Augmentative and alternative communication and language: understanding and responding to parents' perspectives. Topics in Language Disorders 24, 51-61.
17. Didden R., Korzilius H., Duker P. & Curfs L. (2004) Communication functioning in individuals with Angelman syndrome: a comparative study. Disability and Rehabilitation 26, 1263-1267.
18. Didden R., Sigafoos J., Korzilius H., Baas A., Lancioni G., O'Reilly M. & Curfs L. (2009) Form and function of communicative behaviors in individuals with Angelman Syndrome. Journal of Applied Research in Intellectual Disabilities 22, 526-537.
19. Downing J. (2002) Including Students With Severe and Multiple Disabilities in Typical Classrooms. 2nd edn. Paul H. Brookes, Baltimore.
20. Downing J. (2005) Inclusive education for high school students with severe intellectual disabilities: supporting communication. Augmentative and Alternative Communication 21, 132-148.
21. Ely M., Anzul M., Friedman T., Garner D. & Steinmetz M. (1991) Doing Qualitative Research. Taylor and Francis, NY.
22. Flick U. (2002) An Introduction to Qualitative Research. Sage Publications, London.
23. Gentile J., Ta W. H., Horowitz L., Bacino C., Skinner S., Barbieri-Welge R., Bauer-Carlin A., Beaudet A., Bichell T., Lee H. S., Sahoo T., Waisbren S., Bird L. & Peters S. (2010) A neurodevelopmental survey of Angelman Syndrome with genotype-phenotype correlations. Journal of Development and Behavior Pediatrics 31, 592-601.
24. Groves R. (2004) Survey Error and Survey Costs. John Wiley & Sons, Hoboken, NJ.
25. Johnson J., Inglebret E., Jones C. & Ray J. (2006) Perspectives of speech-language pathologists regarding success vs. abandon-ment of AAC. Augmentative and Alternative Communication 22, 85-99.
26. Johnston S., Reichle J. & Evans J. (2004) Supporting augmentative and alternative communication use by beginning communicators with severe disabilities. American Journal of Speech-Language Pathology 13, 20-30.
27. Joleff N., Emmerson F., Ryan M. & McDonachie H. (2006) Communication skills in Angelman Syndrome: matching phenotype to genotype. Advances in Speech-Language Pathology 8, 28-33.
28. Kent-Walsh J. & Light J. (2003) General education teachers' experiences with inclusion of students who use augmentative and alternative communication. Augmentative and Alternative Communication 19, 104-124.
29. Light J., Parsons A. & Drager K. (2002) There's more to life than cookies. Developing interactions for social closeness with beginning communicators who use AAC. In: Exemplary Practices for Beginning Communicators (eds J. Reichle, D. Beukelman & J. Light ), pp. 187-218. Paul H. Brookes, Baltimore.
30. Rea L. & Parker R. (2005) Designing and Conducting Survey Research: A Comprehensive Guide. 3rd edn. John Wiley & Sons, San Francisco.
31. Scherer M. (1993) What we know about women's technology use, avoidance, and abandonment. Women and Therapy 14, 117-132.
32. Schonlau M., Fricker R. & Elliott M. (2002) Conducting Research Surveys via Email and the Web. RAND, Santa Monica, CA.
33. Soto G., Muller E., Hunt P. & Goetz L. (2001) Professional skills for serving students who use AAC in general education classrooms: a team perspective. Language, Speech, and Hearing Services in the Schools 32, 51-56.
34. Starble A., Hutchins T., Favro M., Prelock P. & Bitner B. (2005) Family-centered intervention and satisfaction with AAC device training. Communication Disorders Quarterly 27, 47-54.
35. Walz N. (2007) Parent report of stereotyped behaviors, social interaction, and developmental disturbances in individuals with Angelman syndrome. Journal of Autism and Developmental Disorders 37, 940-947.
36. Williams C. (2005) Neurological aspects of Angelman Syndrome. Brain and Development 27, 88-94.
37. Williams M., Krezman C. & McNaughton D. (2008) "Reach for the stars": five principles for the next 25 years of AAC. Augmentative and Alternative Communication 24, 194-206.
38. Williams C., Peters S. & Calculator S. (2009) Facts About Angelman Syndrome. 7th edn. Retrieved from http://www.angelman.org/_angelman/assets/File/factsabout as 2009 3-19-10.pdf