The power of Us: A new approach to advocacy for rare cancers

Patients as Policy Actors

Volumn , Issue , 2011, Pages 197-214

  Marcus, Amy Dockser ^a  

^a NONE

Author keywords

[No Author keywords available]

Indexed keywords

EID: 84884333847     PISSN: None     EISSN: None     Source Type: Book    
DOI: None     Document Type: Chapter

References (8)

1. American Cancer Society, Cancer Facts and Figures 2009, http://www.cancer.org/Research/CancerFactsFigures/cancer-facts-figures-2009.
2. http://www.standup2cancer.org/node/2718.
3. www.rarediseases.org/research/requests.
4. www.rarediseases.org/research/member-org-rfp.
5. Amy Dockser Marcus, "Coaxing Cancer Researchers to Take Your Money: Sometimes Even Large Sums Can't Attract Scientists to Investigate Rare Diseases, " Wall Street Journal, May 22, 2007.
6. Amy Dockser Marcus, "Putting Drug Development in Patients' Hands: An Entrepreneur Stricken with Cancer Sets Up Firm to Develop 'Virtual' Biotechs, " Wall Street Journal, July 29, 2008.
7. U.S. Department of Health and Human Services, "Novel Approach Targets an Inherited Disorder, " NIH News, www.genome.gov/25522141.
8. Amy Dockser Marcus, "NIH Takes on New Role in Fight against Rare Diseases, " Wall Street Journal, July 23, 2010.