Do-not-hospitalize orders for individuals with advanced dementia: Healthcare proxies' perspectives

Journal of the American Geriatrics Society

Volumn 61, Issue 9, 2013, Pages 1568-1573

  Mann, Elizabeth ^a   Goff, Sarah L ^b,c   Colon Cartagena, Wanda ^b   Bellantonio, Sandra ^b   Rothberg, Michael B ^d  

^a HOSPITAL OF THE UNIVERSITY OF PENNSYLVANIA   (United States)

^b BAYSTATE MEDICAL CENTER   (United States)

^c TUFTS UNIVERSITY   (United States)

^d LERNER RESEARCH INSTITUTE   (United States)

Author keywords

advanced dementia; do not hospitalize orders; qualitative

Indexed keywords

AGED; CLINICAL ARTICLE; DEMENTIA; FEMALE; HEALTH CARE PERSONNEL; HEALTH PERSONNEL ATTITUDE; HOSPITALIZATION; HUMAN; JOB STRESS; MALE; MEDICAL DECISION MAKING; NURSING HOME PATIENT; PERSONAL EXPERIENCE; QUALITATIVE ANALYSIS; REVIEW; SEMI STRUCTURED INTERVIEW; UNITED STATES;

ADVANCED DEMENTIA; DO-NOT-HOSPITALIZE ORDERS; QUALITATIVE;

ADVANCE DIRECTIVES; AGED, 80 AND OVER; DECISION MAKING; DEMENTIA; FEMALE; HOSPITALIZATION; HUMANS; MALE; MASSACHUSETTS; NURSING HOMES; PROXY;

EID: 84884284219     PISSN: 00028614     EISSN: 15325415     Source Type: Journal    
DOI: 10.1111/jgs.12406     Document Type: Review

References (29)

1. Alzheimer's Association. 2012 Alzheimer's disease facts and figures. Alzheimers Dement 2012; 8: 131-168.
2. Givens JL, Selby K, Goldfeld KS, et al. Hospital transfers of nursing home residents with advanced dementia. J Am Geriatr Soc 2012; 60: 905-909.
3. Mitchell SL, Teno JM, Intrator O, et al. Decisions to forgo hospitalization in advanced dementia: A nationwide study. J Am Geriatr Soc 2007; 55: 432-438.
4. Dening KH, Jones L, Sampson EL,. Advance care planning for people with dementia: A review. Int Psychogeriatr 2011; 23: 1535-1551.
5. Advance Care Planning, National Institute on Aging. Available at http://www.nia.nih.gov/health/publication/advance-care-planning Accessed December 7, 2012.
6. Volandes AE, Paasche-Orlow MK, Mitchell SL, et al. Randomized controlled trial of a video decision support tool for cardiopulmonary resuscitation decision making in advanced cancer. J Clin Oncol 2013; 31: 380-386.
7. Lamberg JL, Person CJ, Kiely DK, et al. Decisions to hospitalize nursing home residents dying with advanced dementia. J Am Geriatr Soc 2005; 53: 1396-1401.
8. Sampson EL, Jones L, Thuné-Boyle ICV, et al. Palliative assessment and advance care planning in severe dementia: An exploratory randomized controlled trial of a complex intervention. Palliat Med 2011; 25: 197-209.
9. Crabtree BF, Miller W, eds. Doing Qualitative Research, 2nd Ed. Thousand Oaks, CA: Sage Publications, 1999.
10. Strauss A, Corbin J, eds. Basics of Qualitative Research. Thousand Oaks, CA: Sage Publications, 1998.
11. Bailey RA, Reardon G, Wasserman MR, et al. Association of anemia with worsened activities of daily living and health-related quality of life scores derived from the Minimum Data Set in long-term care residents. Health Qual Life Outcomes 2012; 10: 129.
12. Carpenter GI, Hastie CL, Morris JN, et al. Measuring change in activities of daily living in nursing home residents with moderate to severe cognitive impairment. BMC Geriatr 2006; 6: 7.
13. Sandelowski M, Leeman J,. Writing usable qualitative health research findings. Qual Health Res 2012; 22: 1404-1413.
14. Hospitalizations of Nursing Home Residents: Background and Options [on-line]. Available at http://aspe.hhs.gov/daltcp/reports/2011/nhreshosp.htm Accessed December 7, 2012.
15. Koch KA,. Patient Self-Determination Act. J Fla Med Assoc 1992; 79: 240-243.
16. Mitchell SL, Black BS, Ersek M, et al. Advanced dementia: State of the art and priorities for the next decade. Ann Intern Med 2012; 156 (1 Pt 1): 45-51.
17. Mitchell SL, Teno JM, Kiely DK, et al. The clinical course of advanced dementia. N Engl J Med 2009; 361: 1529-1538.
18. Zier LS, Burack JH, Micco G, et al. Doubt and belief in physicians' ability to prognosticate during critical illness: The perspective of surrogate decision makers. Crit Care Med 2008; 36: 2341-2347.
19. Evans LR, Boyd EA, Malvar G, et al. Surrogate decision makers' perspectives on discussing prognosis in the face of uncertainty. Am J Respir Crit Care Med 2009; 179: 48-53.
20. Cohen LM, Ruthazer R, Moss AH, et al. Predicting six-month mortality for patients who are on maintenance hemodialysis. Clin J Am Soc Nephrol 2010; 5: 72-79.
21. Handy CM, Sulmasy DP, Merkel CK, et al. The surrogate's experience in authorizing a do not resuscitate order. Palliat Support Care 2008; 6: 13-19.
22. Givens JL, Kiely DK, Carey K, et al. Healthcare proxies of nursing home residents with advanced dementia: Decisions they confront and their satisfaction with decision-making. J Am Geriatr Soc 2009; 57: 1149-1155.
23. Teno JM, Gruneir A, Schwartz Z, et al. Association between advance directives and quality of end-of-life care: A national study. J Am Geriatr Soc 2007; 55: 189-194.
24. Wright AA, Zhang B, Ray A, et al. Associations between end-of-life discussions, patient mental health, medical care near death, and caregiver bereavement adjustment. JAMA 2008; 300: 1665-1673.
25. Engel SE, Kiely DK, Mitchell SL,. Satisfaction with end-of-life care for nursing home residents with advanced dementia. J Am Geriatr Soc 2006; 54: 1567-1572.
26. Hall S, Kolliakou A, Petkova H, et al. Interventions for improving palliative care for older people living in nursing care homes. Cochrane Database Syst Rev 2011; 16 (3): CD007132.
27. Bravo G, Arcand M, Blanchette D, et al. Promoting advance planning for health care and research among older adults: A randomized controlled trial. BMC Med Ethics 2012; 13: 1.
28. Volandes AE, Paasche-Orlow M, Gillick MR, et al. Health literacy not race predicts end-of-life care preferences. J Palliat Med 2008; 11: 754-762.
29. Guest G, Bunce A, Johnson L,. How many interviews are enough? Field Methods 2006; 18: 59-82.