Social support provided by and strain experienced by African-American cancer caregivers

Supportive Care in Cancer

Volumn 21, Issue 10, 2013, Pages 2719-2725

  Cooper, Dexter L ^a   Powe, Barbara D ^b   Smith, Tenbroeck ^a  

^a BEHAVIORAL RESEARCH CENTER   (United States)

^b AMERICAN CANCER SOCIETY   (United States)

Author keywords

African American; Cancer caregivers; Social support; Strain

Indexed keywords

ADULT; AFRICAN AMERICAN; ARTICLE; CANCER PAIN; CANCER PATIENT; CAREGIVER BURDEN; DEMOGRAPHY; EMOTIONALITY; FEMALE; HUMAN; MAJOR CLINICAL STUDY; MALE; MODIFIED CAREGIVER STRAIN INDEX; NAUSEA; PRIORITY JOURNAL; RATING SCALE; SOCIAL SUPPORT; SPIRITUAL CARE; STRESS; STRUCTURED INTERVIEW; TELEPHONE INTERVIEW;

ADULT; AFRICAN AMERICANS; CAREGIVERS; EMOTIONS; FEMALE; HUMANS; MALE; MIDDLE AGED; NEOPLASMS; SOCIAL SUPPORT; SPIRITUALITY; UNITED STATES;

EID: 84884282590     PISSN: 09414355     EISSN: 14337339     Source Type: Journal    
DOI: 10.1007/s00520-013-1849-9     Document Type: Article

References (30)

1. National Cancer Institute (2010) Family caregivers in cancer: roles and challenges. National Cancer Institute. Available from: http://www.cancer.gov/ cancertopics/pdq/supportivecare/caregivers/healthprofessional. Accessed 20 Jan 2011
2. Hamilton JB, Sandelowski M (2004) Types of social support in African Americans with cancer. Oncol Nurs Forum 31(4):792-800
3. National Alliance for Caregiving (2009) American Association of Retired Persons. Family Caregiving in the U.S.: Findings from a National Survey. National Alliance for Caregiving and AARP. Available from: http://www. caregiving.org/data/Caregiving-in-the-US-2009-full-report.pdf. Accessed 4 Nov 2010
4. Deshields TL, Rihanek A, Potter P et al (2012) Psychosocial aspects of caregiving: perceptions of cancer patients and family caregivers. Support Care Cancer Off J Multinatl Assoc Support Care Cancer 20(2):349-356
5. Teschendorf B, Schwartz C, Ferrans CE, O'Mara A, Novotny P, Sloan J (2007) Caregiver role stress: when families become providers. Cancer control J Moffitt Cancer Center 14(2):183-189
6. American Cancer Society (2010) Caring for a loved one with cancer - and yourself. Available from: http://www.cancer.org/Treatment/Caregivers/ CopingasaCaregiver/HowtoCareforaLovedOneWithCancer/being-a-caregiver-why-needed. Accessed 20 Jan 2011
7. Cohen S, Underwood LG, Gottlieb BH (2000) Social relationships and health. In: Cohen S, Underwood LG, Gottlieb BH (eds) Social support measurement and intervention. Oxford, New York, pp 3-25
8. Heaney CA, Israel BA (1997) Social networks and social support. In: Glanz K, Lewis FM, Rimer BK (eds) Health behavior and health education - theory, research, and practice, 2nd edn. Jossey-Bass, San Francisco, pp 179-205
9. Golant M, Haskins NV (2008) "Other cancer survivors": the impact on family and caregivers. Cancer J 14(6):420-424
10. Houldin AD (2007) A qualitative study of caregivers' experiences with newly diagnosed advanced colorectal cancer. Oncol Nurs Forum 34(2):323-330
11. Mellon S, Northouse LL, Weiss LK (2006) A population-based study of the quality of life of cancer survivors and their family caregivers. Cancer Nurs 29(2):120-131
12. Bowman KF, Rose JH, Deimling GT (2006) Appraisal of the cancer experience by family members and survivors in long-term survivorship. Psychooncology 15(9):834-845
13. American Cancer Society (2011) Cancer facts and figures for African Americans 2011-2012. Available from: http://www.cancer.org/acs/groups/content/ @epidemiologysurveilance/documents/document/acspc-027765.pdf. Accessed 6 Apr 2011
14. National Cancer Institute (2008) Cancer Health Disparities Fact Sheet. Available from: http://www.cancer.gov/cancertopics/factsheet/disparities/cancer- health-disparities. Accessed 4 Nov 2010
15. Martin MY, Sanders S, Griffin JM et al (2012) Racial variation in the cancer caregiving experience: a multisite study of colorectal and lung cancer caregivers. Cancer nursing 35(4):249-256
16. Smith T, Stein K, Kim Y, Cooper D, Virgo K, Corral I, Landrine H (2012) Racial, ethnic and socioeconomic health disparities among cancer survivors and informal caregivers. In: Elk, Landrine (eds) Cancer disparities: causes and evidence-based solutions. Springer, New York
17. Walker KO, Calmes D, Hanna N, Baker R (2008) The impact of public hospital closure on medical and residency education: implications and recommendations. J Natl Med Assoc 100(12):1377-1383
18. Robinson BC (1983) Validation of a caregiver strain index. J Gerontol 38(3):344-348
19. Miles M, Huberman A (1994) Qualitative data analysis. Sage, Thousand Oaks
20. Dilworth-Anderson P, Goodwin PY, Williams SW (2004) Can culture help explain the physical health effects of caregiving over time among African American caregivers? J Gerontol B Psychol Sci Soc Sci 59(3):S138-S145
21. Scharlach AE, Kellam R, Ong N, Baskin A, Goldstein C, Fox PJ (2006) Cultural attitudes and caregiver service use: lessons from focus groups with racially and ethnically diverse family caregivers. J Gerontol Soc Work 47(1-2):133-156
22. Navaie-Waliser M, Feldman PH, Gould DA, Levine C, Kuerbis AN, Donelan K (2001) The experiences and challenges of informal caregivers: common themes and differences among Whites, Blacks, and Hispanics. Gerontologist 41(6):733-741
23. Glajchen M (2004) The emerging role and needs of family caregivers in cancer care. J Support Oncol 2(2):145-155
24. Bullock K, Crawford SL, Tennstedt SL (2003) Employment and caregiving: exploration of African American caregivers. Soc Work 48(2):150-162
25. Kim Y, Kashy DA, Spillers RL, Evans TV (2010) Needs assessment of family caregivers of cancer survivors: three cohorts comparison. Psychooncology 19(6):573-582
26. Siefert ML, Williams AL, Dowd MF, Chappel-Aiken L, McCorkle R (2008) The caregiving experience in a racially diverse sample of cancer family caregivers. Cancer Nurs 31(5):399-407
27. Knight BG, Sayegh P (2010) Cultural values and caregiving: the updated sociocultural stress and coping model. J Gerontol B Psychol Sci Soc Sci 65B(1):5-13
28. Rozario PA, DeRienzis D (2008) Familism beliefs and psychological distress among African American women caregivers. Gerontologist 48(6):772-780
29. Pinquart M, Sorensen S (2005) Ethnic differences in stressors, resources, and psychological outcomes of family caregiving: a meta-analysis. Gerontologist 45(1):90-106
30. Francis LE, Bowman KF, Kypriotakis G, Rose JH (2011) Relationships and emotional wellbeing among African American and White advanced cancer caregivers. Patient Educ Couns 85(3):446-453