Should Researchers Disclose Results to Descendants?

American Journal of Bioethics

Volumn 13, Issue 10, 2013, Pages 64-65

  Rothstein, Mark A ^a  

^a University of Louisville School of Medicine   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ARTICLE; CONFIDENTIALITY; ETHICS; FAMILY; GENETIC DISORDER; GENETIC PREDISPOSITION; GENETIC PRIVACY; GENETIC SCREENING; GENETICS; HEALTH INSURANCE; HUMAN; HUMAN RELATION; INFORMED CONSENT; INTERPERSONAL COMMUNICATION; METHODOLOGY; PRIMARY PREVENTION; RESEARCH ETHICS; RESEARCH SUBJECT; STANDARD; UNITED STATES;

CONFIDENTIALITY; DUTY TO WARN; ETHICS, RESEARCH; FAMILY; GENETIC DISEASES, INBORN; GENETIC PREDISPOSITION TO DISEASE; GENETIC PRIVACY; GENETIC RESEARCH; GENETIC TESTING; HEALTH INSURANCE PORTABILITY AND ACCOUNTABILITY ACT; HUMANS; PRIMARY PREVENTION; RESEARCH SUBJECTS; RESEARCHER-SUBJECT RELATIONS; TRUTH DISCLOSURE; UNITED STATES;

EID: 84884226780     PISSN: 15265161     EISSN: 15360075     Source Type: Journal    
DOI: 10.1080/15265161.2013.828531     Document Type: Article

References (3)

1. Berg, J. S., Khoury, M. J. and Evans, J. P. 2011. Deploying whole genome sequencing in clinical practice and public health: Meeting the challenge one bin at a time. Genetics in Medicine, 13 (6): 499-504.
2. Hafemeister, T. L. and Spinos, S. 2009. Lean on me: A physician's fiduciary duty to disclose an emergent medical risk to the patient. Washington University Law Review, 86 (2): 1167-1210.
3. U.S. Department of Health and Human Services. 2013. Frequently asked questions about the HIPAA Privacy Rule: How can family members of a deceased individual obtain the deceased individual's protected health information that is relevant to their own health care?. Available at: http://www.hhs.gov/ocr/privacy/hipaa/faq/smaller_providers_and_businesses/222.html (accessed May 8, 2013)