Information for decision making by post-menopausal women with hormone receptor positive early-stage breast cancer considering adjuvant endocrine therapy

Breast

Volumn 22, Issue 5, 2013, Pages 919-925

  Feldman Stewart, Deb ^a,b   Madarnas, Yolanda ^b   Mates, Mihaela ^b   Tong, Christine ^a   Grunfeld, Eva ^c   Verma, Shailendra ^d   Carolan, Hannah ^e   Brundage, Michael ^a,b  

^a QUEEN S UNIVERSITY   (Canada)

^b QUEEN S UNIVERSITY   (Canada)

^c UNIVERSITY OF TORONTO   (Canada)

^d OTTAWA REGIONAL CANCER CENTRE   (Canada)

^e BRITISH COLUMBIA CANCER AGENCY   (Canada)

Author keywords

Adjuvant endocrine therapy decision; Breast cancer; Patient decision making

Indexed keywords

HORMONE RECEPTOR;

ADULT; AGED; ARTICLE; BREAST CANCER; CANCER ADJUVANT THERAPY; CANCER HORMONE THERAPY; CANCER STAGING; EARLY CANCER; EDUCATIONAL STATUS; FEMALE; HUMAN; MAJOR CLINICAL STUDY; MARRIED PERSON; MEDICAL INFORMATION; PATIENT DECISION MAKING; POSTMENOPAUSE; PRIORITY JOURNAL; QUESTIONNAIRE;

ADJUVANT ENDOCRINE THERAPY DECISION; BREAST CANCER; PATIENT DECISION MAKING;

ADULT; AGED; AGED, 80 AND OVER; ANTINEOPLASTIC AGENTS, HORMONAL; BREAST NEOPLASMS; CHEMOTHERAPY, ADJUVANT; DECISION MAKING; FEMALE; HUMANS; MIDDLE AGED; NEEDS ASSESSMENT; PATIENT EDUCATION AS TOPIC; PATIENT PARTICIPATION; POSTMENOPAUSE; QUESTIONNAIRES; RECEPTOR, ERBB-2; RECEPTORS, ESTROGEN; RECEPTORS, PROGESTERONE;

EID: 84884128487     PISSN: 09609776     EISSN: 15323080     Source Type: Journal    
DOI: 10.1016/j.breast.2013.04.020     Document Type: Article

References (40)

1. International Agency For Research on Cancer WHO Breast cancer incidence and mortality worldwide in 2008 2008, http://globocan.iarc.fr/factsheets/cancers/breast.asp.
2. Canadian Cancer Society, Public Health Agency Of Canada, Statistics Canada Canadian cancer statistics 2011 2011.
3. Ciccarese M., Lorusso V., De Laurentis M. Controversies in adjuvant endocrine therapy for pre- and post-menopausal women with breast cancer. EJC Supplements 2008, 6:4-9.
4. Eisen A., Trudeau M., Shelley W., Sinclair S. The role of aromatase inhibitors in adjuvant therapy for postmenopausal women with hormone receptor-positive breast cancer: guideline recommendations. Evidence-based series #1-18: section 1, 1-9 2008, Breast Cancer Disease Site Group.
5. Lin N.U., Winer E.P. Advances in adjuvant endocrine therapy for postmenopausal women. JClin Oncol 2008, 26:798-805.
6. Ontario Legislature Bill 109 1992.
7. Appelbaum P.S., Lidz C.W., Meisel A. Informed consent: legal theory and clinical practice 1987, Oxford University Press, New York.
8. Wallace L.M. Informed consent to elective surgery: the 'therapeutic' value?. Soc Sci Med 1986, 22:29-33.
9. Devine E.C., Cook T.D. Ameta-analytic analysis of effects of psychoeducational interventions on length of postsurgical hospital stay. Nurse Res 1983, 32:267-274.
10. Greenfield S., Kaplan S., Ware J.E. Expanding patient involvement in care. Ann Intern Med 1985, 102:520-528.
11. Jacobs C., Ross R.D., Walker I.M., Stockdale F.E. Behavior of cancer patients: a randomized study of the effects of education and peer support groups. Am J Clin Oncol (CCT) 1983, 6:347-350.
12. Meyerowitz B.E., Watkins I.K., Sparks F.C. Psychosocial implications of adjuvant chemotherapy. Cancer 1983, 52:1541-1545.
13. Molleman E., Krabbendam P.J., Annyas A.A., Kloops H.S., Sleijfer D.T., Vermey A. The significance of the doctor-patient relationship in coping with cancer. Soc Sci Med 1984, 18:475-480.
14. D'Haese S., Vinh-Hung V., Bijdekerke P., Spinnoy M., De Beukeleer M., Lochie N., et al. The effect of timing of the provision of information on anxiety and satisfaction of cancer patients receiving radiotherapy. JCancer Educ 2000, 15:223-227.
15. Jensen A.B., Madsen B., Andersen P., Rose C. Information for cancer patients entering a clinical trial - an evaluation of an information strategy. Eur J Cancer 1993, 29A:2235-2238.
16. Thomas R., Daly M., Perryman B., Stockton D. Forewarned is forearmed - benefits of preparatory information on video cassette for patients receiving chemotherapy or radiotherapy - a randomised controlled trial. Eur J Cancer 2000, 36:1536-1543.
17. Roter D.L., Hall J.A., Katz N.R. Relations between physicians' behaviors and analogue patients' satisfaction, recall and impressions. Med Care 1987, 25:437-450.
18. Hack T.F., Degner L.F., Watson P., Sinha L. Do patients benefit from participating inmedical decision making? Longitudinal follow-up of women with breast cancer. Psycho-Oncol 2006, 15:9-19.
19. Brown R., Butow P., Wilson-Genderson M., Bernhard J., Ribi K., Juraskova J. Meeting the decision-making preferences of patients with breast cancer in oncology consultations: impact on decision-related outcomes. JClin Oncol 2012, 30:857-862.
20. Nakashima M., Kuroki S., Shinkoda H., Suetsugu Y., Shimada K., Kaku T. Information-seeking experiences and decision-making roles of Japanese women with breast cancer. Fukuoka Acta Med 2012, 103:120-130.
21. Pauwels E.E.J., Charlier C., De Bourdeaudhuij I., Lechner L., Van Hoof E. Care needs after primary breast cancer treatment. Survivors' associated sociodemographic and medical characteristics. Psycho-Oncol 2013, 22:125-132.
22. Feldman-Stewart D, Madarnas Y, Mates M, Tong C, Grunfeld E, Verma S, etal.Information needs of post-menopausal women with hormone receptor positive early-stage breast cancer considering adjuvant endocrine therapy. Patient Education and Counseling, in press.
23. Feldman-Stewart D., Brundage M.D., Hayter C., Groome P., Nickel J.C., Downes H., et al. What questions do patients with curable prostate cancer want answered?. Med Decis Making 2000, 20:7-19.
24. Tebrake M, Feldman-Stewart D, Madarna Y, Lamb M, Tramner J. Identifying the questions and informational needs of breast cancer patients making treatment decisions about endocrine therapy. Presented to International Psycho-Oncology Society, 2008, Madrid, Spain; 2008.
25. Dillman D.A. Implementing mail surveys. Mail and telephone surveys: the total design method 1978, 160-199. John Wiley & Sons, New York, N.Y.
26. Ajzen I. From intentions to actions: a theory of planned behavior. Action-control: from cognition to behavior 1985, 11-39. Springer, Heidelberg. J. Kuhl, J. Beckman (Eds.).
27. Fishbein M. Areasoned action approach to health promotion. Med Decis Making 2008, 28:834-844.
28. Miller S.M., Fang C.Y., Diefenbach M.A., Bales C.B. Tailoring psychosocial interventions to the individual's health information-processing style - the influence of monitoring versus blunting in cancer risk and disease. Psychosocial interventions for cancer 2001, 343-362. American Psychological Association, Washington, D.C. A. Baum, B.L. Andersen (Eds.).
29. Feldman-Stewart D., Brennenstuhl S., Brundage M.D. The information needed by Canadian early-stage prostate cancer patients for decision-making: stable over a decade. Pat Educ Couns 2008, 73:437-442.
30. Feldman-Stewart D., Brundage M.D., Van Manen L., Svenson O. Patient-focussed decision-making in early-stage prostate cancer: insights from a cognitively based decision aid. Health Expectat 2004, 7:126-141.
31. Fallowfield L.J., Hall A., Maguire G.P., Baum M. Psychological outcomes of different treatment policies in women with early breast cancer outside a clinical trial. Br Med J 1990, 301:575-580.
32. Capirci C., Feldman-Stewart D., Mandoliti G., Brundage M., Belluco G., Magnani K. Information priorities of Italian early-stage prostate cancer patients and of their health-care professionals. Pat Educ Couns 2005, 56:174-181.
33. Feldman-Stewart D., Chammas S., Hayter C., Pater J., Mackillop W.J. An empirical approach to informed consent in ovarian cancer. JClin Epidemiol 1996, 49:1259-1269.
34. Elkin E.B., Kim S.H., Casper E.S., Kissane D.W., Schrag D. Desire for information and involvement in treatment decisions: elderly cancer patients' preferences and their physicians' perceptions. JClin Oncol 2007, 25:5275-5280.
35. Bruera E., Willey J.S., Palmer J.L., Rosales M. Treatment decisions for breast carcinoma: patient preferences and physician perceptions. Cancer 2002, 94:2076-2080.
36. Hotta K., Kiura K., Takigawa N., Yoshioka H., Hayashi H., Fukuyama H., et al. Desire for information and involvement in treatment decisions - lung cancer patients' preferences and their physicians' perceptions: results from Okayama Lung Cancer Study Group Trial 0705. JThorac Oncol 2010, 5:1668-1672.
37. Feldman-Stewart D., Brundage M.D., Tong C., Siemens R., Alibhai S., Pickles T., et al. The impact of explicit values clarification exercises in a patient decision aid emerges after the decision is actually made: Evidence from a randomized controlled trial. Med Decis Making 2012, 32:616-626.
38. Feldman-Stewart D., Capirci C., Brennenstuhl S., Tong C., Abacioglu U., Gawkowska-Suwinska M., et al. Information for decision making by early-stage prostate cancer patients: a comparison across 9 countries. Med Decis Making 2011, 31:751-766.
39. Carolan H., Parsons C., Feldman-Stewart D., Botorff J. Determining the information necessary for patient treatment decisions in ductal carcinoma in situ of the breast (DCIS) September 2008, Canadian Association of Radiation Oncology, Montreal Canada.
40. Sheridan S.L., Felix K., Pignone M.P., Lewis C.L. Information needs of men regarding prostate cancer screening and the effect of a brief decision aid. Pat Educ Couns 2004, 54:345-351.