Maintaining distance from a necessary intrusion: A postcolonial perspective on dying at home for Chinese immigrants in Toronto, Canada

European Journal of Oncology Nursing

Volumn 17, Issue 5, 2013, Pages 649-656

  Seto Nielsen, Lisa ^a   Angus, Jan E ^a   Gastaldo, Denise ^a   Howell, Doris ^a,b   Husain, Amna ^c  

^a UNIVERSITY OF TORONTO   (Canada)

^b PRINCESS MARGARET HOSPITAL   (Canada)

^c MOUNT SINAI HOSPITAL   (Canada)

Author keywords

Canada; Chinese immigrant; Culture; Ethnography; Home care; Oncology; Palliative care; Postcolonialism; Qualitative

Indexed keywords

ARTICLE; ASIAN; CANADA; CAREGIVER; CHINESE IMMIGRANT; CULTURAL ANTHROPOLOGY; CULTURAL FACTOR; ENVIRONMENT; ETHNOGRAPHY; ETHNOLOGY; EVALUATION STUDY; FAMILY RELATION; FEMALE; HOME CARE; HUMAN; INTERVIEW; MALE; METHODOLOGY; MIGRANT; NEOPLASM; NURSING; ONCOLOGY; PALLIATIVE THERAPY; POSTCOLONIALISM; PSYCHOLOGICAL ASPECT; QUALITATIVE; STATISTICS; TERMINAL CARE; URBAN POPULATION;

CANADA; CHINESE IMMIGRANT; CULTURE; ETHNOGRAPHY; HOME CARE; ONCOLOGY; PALLIATIVE CARE; POSTCOLONIALISM; QUALITATIVE;

ASIAN CONTINENTAL ANCESTRY GROUP; CANADA; CAREGIVERS; CULTURAL CHARACTERISTICS; EMIGRANTS AND IMMIGRANTS; ENVIRONMENT; EVALUATION STUDIES AS TOPIC; FAMILY RELATIONS; FEMALE; HUMANS; INTERVIEWS AS TOPIC; MALE; NEOPLASMS; ONTARIO; PALLIATIVE CARE; TERMINAL CARE; URBAN POPULATION;

EID: 84883821007     PISSN: 14623889     EISSN: 15322122     Source Type: Journal    
DOI: 10.1016/j.ejon.2013.06.006     Document Type: Article

References (60)

1. Abelson J., Gold S.T., Woodward, O'Connor D., Hutchison B. Managing under managed community car: the experiences of clients, providers andmanagers in Ontario's competitive home care sector. Health Policy 2004, 68:359-372.
2. Agar M. Culture: can you take it anywhere?. International Journal of Qualitative Methods 2006, 5:1-12.
3. Anderson J.M. Gender, "race", poverty, health and discourses of health reform in the context of globalization: a postcolonial feminist perspective in policy research. Nursing Inquiry 2000, 7:220-229.
4. Anderson J.M., Perry J., Blue C., Browne A., Henderson A., Khan K.B., et al. "Rewriting" cultural safety within the postcolonial and postnational feminist project: toward new epistemologies of healing. Advances in Nursing Science 2003, 26:196-214.
5. Angus J., Kontos P., Dyck I., McKeever P., Poland B. The personal significance of home: habitus and the experience of receiving long term home care. Sociology of Health and Illness 2005, 27:161-187.
6. Ashcroft B., Griffiths G., Tiffin H. Postcolonial Studies: The Key Concepts 2007, Routledge, London, UK. second ed.
7. Braun K.L., Nichols R. Death and dying in four Asian American cultures: a descriptive study. Death Studies 1997, 21:327-359.
8. Burge F., Lawson B., Johnston G. Trends in the place of death of cancer patients, 1992-1997. Canadian Medical Association Journal 2003, 168:265-270.
9. Chochinov H.M. The Senate report on end-of-life care: the ball is in our court. Canadian Medical Association Journal 2001, 164:794-795.
10. Choudhry U.K. Uprooting and resettlement experiences of South Asian immigrant women. Western Journal of Nursing Research 2001, 23:376-393.
11. Chui T., Tran K., Flanders J. Chinese Canadians: enriching the cultural mosaic. Canadian Social Trends 2005, 76:24-32.
12. Deber R. Health care reform: lessons from Canada. American Journal of Public Health 2003, 93:20-24.
13. Dyck I., Dossa P. Place, health and 'home': gender and migration in the constitution of healthy space. Health and Place 2007, 13:691-701.
14. Ernst E., Casileth B.R. The prevalence of complementary/alternative medicine in cancer: a systematic review. Cancer 1998, 83:777-782.
15. Exley C., Allen D. Acritical examination of home care: end-of-life care as an illustrative case. Social Science & Medicine 2007, 65:2317-2327.
16. Finlay L. 'Rigour', 'ethnical integrity' or 'artistry'? Reflexively reviewing criteria for evaluating qualitative research. British Journal of Occupational Therapy 2006, 69:319-326.
17. Frank A. The Wounded Storyteller: Body, Illness, and Ethics 1995, University of Chicago Press, Chicago, IL.
18. Giacomini M.K., Cook D.J. User's guides to the medical literature XXIII. Qualitative research in health care. A. Are the results of the study valid?. Journal of American Medical Association 2000, 284:357-362.
19. Glick Schiller N., Basch L., Blanc-Szanton C. Transnationalism: a new analytic framework for understanding migration. Annals New York Academy of Sciences 1992, 645:1-24.
20. Guerriere D.N., Zagorski B., Fassbender K., Masucci L., Librach L., Coyte P.C. Cost variations in ambulatory and home-based palliative care. Palliative Medicine 2010, 24:523-532.
21. Hammersley M., Atkinson P. Ethnography: Principles in Practice 2007, Routledge, New York, US. third ed.
22. Hayes H. (Be)Coming home: an existential perspective on migration, settlement and the meanings of home. Existential Analysis 2007, 18:2-16.
23. Hazuda H.P. Non-English speaking patients a challenge to researchers. Journal of General Internal Medicine 1996, 11:58-59.
24. Health Canada Canada Health Act: annual report 2010-2011 Retrieved from:. http://www.hc-sc.gc.ca/hcs-sss/alt_formats/pdf/pubs/cha-ics/2011-cha-lcs-ar-ra-eng.pdf.
25. Higginson I.J., Sen-Gupta G.J.A. Place of care in advanced cancer: a qualitative systematic literature review of patient preferences. Journal of Palliative Medicine 2000, 3:287-300.
26. Li P. Chinese in Canada 1998, Oxford University Press, Toronto, Canada. second ed.
27. Liamputtong P., Ezzy D. Qualitative Research Methods 2005, Oxford University Press, Melbourne, Australia.
28. Lilly M.B., Laporte A., Coyte P.C. Do they care too much to work? The influence of caregiving intensity on the labour force participation of unpaid caregivers in Canada. Journal of Health Economic 2010, 29:895-903.
29. Liu X.-F., Norcliffe G. Closed windows, open doors: geopolitics and post-1949 Mainland Chinese immigration to Canada. The Canadian Geographer 1996, 40:306-319.
30. Loomba A. Colonialism/Postcolonialism 2005, Routledge, New York, US. second ed.
31. Lopez G.I., Figueroa M., Connor S.E., Maliski S.L. Translation barriers in conducting qualitative research with Spanish speakers. Qualitative Health Research 2008, 18:1729-1737.
32. Masucci L., Guerriere D.N., Cheng R., Coyte P.C. Determinants of place of death for recipients of home-based palliative care. Journal of Palliative Care 2010, 26:279-286.
33. Mjelde-Mossey L.A., Chan C.L.W. Survey on death and dying in Hong Kong: attitudes, beliefs, and preferred end-of-life care. Social Work in Health Care 2007, 45:49-65.
34. Mohammed S.A. Moving beyond the 'exotic': applying postcolonial theory in health research. Advances in Nursing Science 2006, 29:98-109.
35. Morse J.M., Field P.A. Qualitative Research Methods for Health Professionals 1995, Sage, Thousand Oaks, USA. ssecond ed.
36. Muecke M.A. On the evaluation of ethnographies. Critical Issues in Qualitative Research Methods 1994, 187-209. Sage, Thousand Oaks. J.M. Morse (Ed.).
37. Neutel C.I., Bishop M.L., Harper S.D., Gaudette L.A. Proportion of cancer deaths occurring in hospital, Canada, 1994-2000. Canadian Journal of Public Health 2005, 96:264-268.
38. Owens A., Randhawa G. 'It's different from my culture; they're very different': providing community-based 'culturally competent' palliative care for South Asian people in the UK. Health and Social Care in the Community 2004, 12:414-421.
39. Payne S., Chapman A., Holloway M., Seymour J.E., Chau R. Chinese community views: promoting cultural competence in palliative care. Journal of Palliative Care 2005, 21:111-116.
40. Picot G. Immigrant Economic and Social Outcomes in Canada: Research and Data Development at Statistics Canada 2008, Ministry of Industry, Ottawa, Canada.
41. Purkis M.E., van Mossel C. Cancer as a contested illness: seeking help amid treatment. Contesting Illnesses: Process and Practices 2008, 142-157. University of Toronto Press, Toronto. P. Moss, K. Teghtsoonian (Eds.).
42. Puzan E. The unbearable whiteness of being (in nursing). Nursing Inquiry 2003, 10:193-200.
43. Racine L. Implementing a postcolonial feminist perspective in nursing research related to non-Western populations. Nursing Inquiry 2003, 10:91-102.
44. Reimer Kirkham S., Anderson J.M. Postcolonial nursing scholarship: from epistemology to method. Advances in Nursing Science 2002, 25:1-17.
45. Said E.W. Orientalism 1979/2003, Vintage Books a Division of Random House, New York.
46. Savage J. Ethnography and health care. British Medical Journal 2000, 321:1400-1402.
47. Sorensen Marshall E. Home as place for healing. Advances in Nursing Science 2008, 31:259-267.
48. Standing Senate Committee on Social Affairs, Science and Technology Quality End-of-life Care: The Right of Every Canadian 2000, The Senate of Canada, Ottawa, Canada, Retrieved from:. http://www.parl.gc.ca/36/2/parlbus/commbus/senate/Com-e/upda-e/rep-e/repfinjun00-e.htm.
49. Statistics Canada Visible Minority Groups, 2006 counts, for Canada, Provinces, Territories Retrieved from:. http://www12.statcan.gc.ca/census-recensement/2006/dp-pd/tbt/Rp-eng.cfm%3fTABID%3d1%26LANG%3dE%26A%3dR%26APATH%3d3%26DETAIL%3d0%26DIM%3d3%26FL%3dA%26FREE%3d0%26GC%3d01%26GID%3d837928%26GK%3d1%26GRP%3d1%26O%3dD%26PID%3d92338%26PRID%3d0%26PTYPE%3d88971,97154%26S%3d0%26SHOWALL%3d0%26SUB%3d0%26Temporal%3d2006%26THEME%3d80%26VID%3d14473%26VNAMEE%3d%26VNAMEF%3d%26D1%3d0%26D2%3d0%26D3%3d0%26D4%3d0%26D5%3d0%26D6%3d0.
50. Statistics Canada Deaths 2005. Catalogue no. 84F0211X Retrieved from:. http://www.statcan.gc.ca/pub/84f0211x/84f0211x2008000-eng.pdf.
51. Statistics Canada Generation status, age groups and sex for the population 15 years and over of Canada, Provinces and Territories, 2006 Census. Catalogue no. 97-557-XCB2006010 Retrieved from:. http://www12.statcan.ca/census-recensement/2006/dp-pd/tbt/Rp-eng.cfm%3fLANG%3dE%26APATH%3d3%26DETAIL%3d0%26DIM%3d0%26FL%3dA%26FREE%3d0%26GC%3d0%26GID%3d0%26GK%3d0%26GRP%3d1%26PID%3d89431%26PRID%3d0%26PTYPE%3d88971,97154%26S%3d0%26SHOWALL%3d0%26SUB%3d0%26Temporal%3d2006%26THEME%3d72%26VID%3d0%26VNAMEE%3d%26VNAMEF%3d.
52. Szeto Y., Cheng K.-F. Quality of life of patients with terminal cancer receiving palliative home care. Journal of Palliative Care 2006, 22:261-319.
53. Thomas R., Wilson D.M., Justice C., Birch S., Sheps S. Aliterature review of preferences for end-of-life care in developed countries by individuals with different cultural affiliations and ethnicity. Journal of Hospice and Palliative Nursing 2008, 10:141-162.
54. Tuhiwai Smith L. Decolonizing Methodology 1999, ZED Books, London, UK.
55. Verheof M.J., Balneaves L.G., Boon H.S., Vroegindewey A. Reasons for and characteristics associated with complementary and alternative medicine use among adult cancer patients: a systematic review. Integrative Cancer Therapies 2005, 4:274-286.
56. Wang, S., Zhong, J., 2013. Working paper series: delineating ethnoburbs in metropolitan Toronto. CERIS working paper no. 100. CERIS, The Ontario Metropolis: Toronto, Canada.
57. Williams A.M. The development of Ontario's home care program: a critical geographical analysis. Social Science & Medicine 1996, 42:937-948.
58. Wilson D.M., Truman C.D., Thomas R., Fainsinger R., Kovacs-Burns K., Froggatt K., et al. The rapidly changing location of death in Canada, 1994-2004. Social Science & Medicine 2009, 68:1752-1758.
59. Woo K.Y. Care for Chinese palliative patients. Journal of Palliative Care 1999, 15:70-74.
60. Yick A.G., Gupta R. Chinese cultural dimensions of death, dying, and bereavement: focus group findings. Journal of Cultural Diversity 2002, 9:32-43.