Defining Quality of Life in the Children of Parents with Severe Mental Illness: A Preliminary Stakeholder-Led Model

PLoS ONE

Volumn 8, Issue 9, 2013, Pages

  Bee, Penny ^a   Berzins, Kathryn ^a   Calam, Rachel ^b   Pryjmachuk, Steven ^a   Abel, Kathryn M ^a,b  

^a UNIVERSITY OF MANCHESTER   (United Kingdom)

^b UNIVERSITY OF MANCHESTER   (United Kingdom)

Author keywords

[No Author keywords available]

Indexed keywords

ADOLESCENT; ADULT; ARTICLE; BIPOLAR DISORDER; CHILD BEHAVIOR; CHILD HEALTH; CHILD PARENT RELATION; COPING BEHAVIOR; DISEASE ACTIVITY; DISEASE ASSOCIATION; DISEASE COURSE; DISEASE SEVERITY; FAMILY ASSESSMENT; FAMILY HEALTH; FEMALE; HEALTH CARE PERSONNEL; HEALTH LITERACY; HUMAN; MAJOR DEPRESSION; MALE; MENTAL DISEASE; MENTAL HEALTH; NON PROFIT ORGANIZATION; OCCUPATION; PARENT; PERSONAL EXPERIENCE; PERSONALITY DISORDER; PROBLEM SOLVING; QUALITATIVE ANALYSIS; QUALITY OF LIFE; VOLUNTEER;

ADOLESCENT; ADULT; CHILD; CHILD HEALTH SERVICES; FEMALE; FOCUS GROUPS; HEALTH SERVICES NEEDS AND DEMAND; HUMANS; INTERVIEWS AS TOPIC; MALE; MENTAL DISORDERS; PARENT-CHILD RELATIONS; PARENTS; QUALITY OF LIFE; SOCIAL WORK;

EID: 84883815449     PISSN: None     EISSN: 19326203     Source Type: Journal    
DOI: 10.1371/journal.pone.0073739     Document Type: Article

References (38)

1. SCIE (2011) Think child, think parent, think family: a guide to parental mental health and child welfare. Family & Children's Services Guide 30. Available: http://www.scie.org.uk/publications/guides/guide30/index.asp. Accessed 17 December 2012.
2. Royal College of Psychiatrists (2010). CR164 Parents as patients: Supporting the needs of patients who are parents and their children. Available: http://www.rcpsych.ac.uk/publications/collegereports/cr/cr164.aspx. Accessed 17 December 2012.
3. Göpfert M, Webster J & Seeman M (2004) Parental psychiatric disorder: distressed parents and their families. Cambridge: Cambridge University Press 2nd Edition.
4. Ruggeri M, Lees M, Thronicroft G, Bisoffi G, Tansella M, (2000) Definition and prevalence of severe and persistent mental illness. B J Pysch 177: 149-155.
5. Schinnar AP, Rothbard AB, Kanter R, Jung YS, (1990) An empirical literature review of definitions of severe and persistent mental illness. Am J Psychiatry 147: 1602-1608.
6. Rethink (2008) Rethink Policy Statement 43: Rethink's understanding of severe mental illness. Available: http://www.rethink.org. Accessed 17 December 2012.
7. Reupert A, Maybery D, (2007) Families affected by parental mental illness: A multi-perspective account of issues and interventions. Am J Orthopsychiatry 77(3): 362-369.
8. Goodman SH, Rouse MH, Connell AM, Broth MR, Hall CM, et al. (2011) Maternal depression and child psychopathology: a meta-analytic review. Clin Child Fam Psychol Rev 14(1): 1-27.
9. Beardslee WR, Versage EM, Gladstone TRG, (1998) Children of Affectively Ill Parents: A Review of the Past 10 Years. J Am Acad Child Adolesc Psychiatry 37(11): 1134-1141.
10. Fernbacher S, Goodyear M, Farhall J, (2009) Taking a closer look: A cross-sector audit of families where a parent has a mental illness. Adv Mental Health. 8(3): 242-249.
11. Oyserman D, Mowbray CT, Meares PA, Firminger KB, (2000) Parenting among mothers with a serious mental illness. Am J Orthopsychiatry 70(3): 296-315.
12. Larsson B, Knutsson-Medin L, Sundelin C, Trost von Werder A, (2000) Social competence and emotional/behavioural problems in children of psychiatric inpatients. Eur Child Adolesc Psychiatry 9(2): 122-128.
13. Somers V, (2007) Schizophrenia: The impact of parental illness on children. Br J Soc Work 37(8): 1319-1334.
14. Bella T, Goldstein T, Axelson D, Obreja M, Monk K, et al. (2011) Psychosocial functioning in offspring of parents with bipolar disorder. J Affect Disord 133(1-2): 204-211.
15. Stith SM, Liu T, Davies LC, Boykin EL, Alder MC, et al. (2009) Risk factors in child maltreatment: A meta-analytic review of the literature. Aggress Violent Behav 14(1): 13-29.
16. Bee P, Bower P, Byford S, Churchill R, Calam R et al. (2013) The clinical-effectiveness, cost-effectiveness and acceptability of community-based interventions aimed at improving or maintaining quality of life in children of parents with severe mental illness: A systematic review. Health Technol Assess (In Press).
17. Barry M, Zissi A, (1997) Quality of life as an outcome measure in evaluating mental health services: a review of the empirical evidence. Soc Psychiatry Psychiatr Epidemiol 32: 38-47.
18. World Health Organization (1995) The World Health Organization Quality of Life assessment (WHOQOL): position paper from the World Health Organization. Soc Sci Med 41(10): 1403-9.
19. Eiser C, Morse R (2001) Quality-of-life measures in chronic diseases of childhood. Health Technol Assess 5(4).
20. Bowling A, Gabriel Z, (2004) An integrational model of quality of life in older age. A comparison of analytic and lay models of quality of life. Social Indicators Research 69 1-36: 80.
21. Wilson IB, Cleary PD, (1995) Linking clinical variables with health-related quality of life. JAMA 273(1): 59-65.
22. Drummond MF, Sculpher MJ, Torrance GW (2005) Methods for the economic evaluation of health care programmes. Oxford: Oxford University Press.
23. Siegel JE, Weinstein MC, Russell LB, Gold MR, (1996) Recommendations for reporting cost-effectiveness analyses. JAMA. 276(16): 1339-41.
24. Department of Children, Schools and Families (2003) Every Child Matters. Available: https://www.education.gov.uk/publications/eOrderingDownload/CM5860.pdf. Accessed 17 December 2012.
25. Macdonald G, Livingstone N, Davidson G, Sloan S, Fargas M et al. (2011) Improving the Mental Health of Northern Ireland's Children and Young People. Belfast: Queen's University Institute of Child Care Research.
26. Scottish Government (2009) Towards a mentally flourishing Scotland: policy and action plan 2009-2011. Edinburgh: Scottish Government.
27. Harding L, (2001) Children's quality of life assessments: a review of generic and health related quality of life measures completed by children and adolescents. Clin Psychol Psychother 8(2): 79-96.
28. Collier J, MacKinlay D, Phillips D, (2000) Norm values for Generic Children's Quality of Life Measure (GCQ) from a large school based sample. Qual Life Res 9: 617-623.
29. Matza LS, Swensen AR, Flood EM, Secnik K, Leidy NK, (2004) Assessment of health-related quality of life in children: a review of conceptual, methodological, and regulatory issues. Value Health 7(1): 79-92.
30. Crossroads Caring for Carers and The Princess Royal Trust for Carers (2008) Economic evaluation of young carers' interventions. Available: http://static.carers.org/files/finalfinal3-4040.pdf. Accessed 17 December 2012.
31. Alderson P (1995) Listening to children: children, social research and ethics. London: Barnardos.
32. Ritchie J, Spencer L (1994) Qualitative data analysis for applied policy research. In: Bryman A, Burgess T (Eds). Analysing qualitative data. London: Routledge, pp173-194.
33. Beresford B, Clarke S, Gridley K, Parker G, Pitman R et al. (2008) Technical Report for SCIE Research Review on Access, Acceptability and Outcomes of Services/Interventions to Support Parents with Mental Health Problems and their Families, Social Policy Research Unit, University of York, York.
34. Gladstone BM, Boydell KM, Seeman MV, McKeever PD, (2011) Children's experiences of parental mental illness: a literature review. Early Interv Psychiatry 5(4): 271-89.
35. Grant G, Repper J, Nolan M, (2008) Young people supporting parents with mental health problems: experiences of assessment and support. Health Soc Care Community 16(3): 271-81.
36. Social Inclusion Task Force (2007) Reaching out: Think family. London: HMSO.
37. Social Exclusion Unit (2008) Families at risk review: Background analysis. London: HMSO.
38. Ofsted (2013) What about the children: Joint working between adult and children's services when parents or carers have mental ill health and/or drug and alcohol problems. London: Ofsted (Report No: 130066).