The emergent discipline of health web science

Journal of Medical Internet Research

Volumn 15, Issue 8, 2013, Pages

  Luciano, Joanne S ^a,b   Cumming, Grant P ^c   Wilkinson, Mark D ^d   Kahana, Eva ^e  

^a RENSSELAER POLYTECHNIC INSTITUTE   (United States)

^b Predictive Medicine   (United States)

^c UNIVERSITY OF THE HIGHLANDS AND ISLANDS   (United Kingdom)

^d UNIVERSIDAD POLITÉCNICA DE MADRID   (Spain)

^e CASE WESTERN RESERVE UNIVERSITY   (United States)

Author keywords

Citizen science; Crowd sourcing; Health care singularity; Health Web Science; Medicine 2.0; Patient engagement; Semantic Web; Web Science

Indexed keywords

ARTICLE; CITIZEN SCIENCE; CROWD-SOURCING; HEALTH CARE DELIVERY; HEALTH CARE SINGULARITY; HEALTH WEB SCIENCE; INFORMATION RETRIEVAL; INTERNET; MEDICINE 2.0; PATIENT ENGAGEMENT; SEMANTIC WEB; WEB SCIENCE;

CITIZEN SCIENCE; CROWD-SOURCING; HEALTH CARE SINGULARITY; HEALTH WEB SCIENCE; MEDICINE 2.0; PATIENT ENGAGEMENT; SEMANTIC WEB; WEB SCIENCE;

DELIVERY OF HEALTH CARE; INFORMATION STORAGE AND RETRIEVAL; INTERNET;

EID: 84883441180     PISSN: None     EISSN: 14388871     Source Type: Journal    
DOI: 10.2196/jmir.2499     Document Type: Review

References (47)

1. Eysenbach G. Medicine 2.0: social networking, collaboration, participation, apomediation, and openness. J Med Internet Res 2008;10(3):e22 [FREE Full text] [doi: 10.2196/jmir.1030] [Medline: 18725354]
2. Hughes B, Joshi I, Wareham J. Health 2.0 and Medicine 2.0: tensions and controversies in the field. J Med Internet Res 2008 Aug;10(3):e23 [FREE Full text] [doi: 10.2196/jmir.1056] [Medline: 18682374]
3. Web Science. University of Southampton, UK URL: http://webscience.ecs. soton.ac.uk/ [accessed 2012-12-15] [WebCite Cache ID 6CwGSQatt]
4. Berners-Lee T, Weitzner DJ, Hall W, O'Hara K, Shadbolt N, Hendler JA. A Framework for Web Science. FNT in Web Science 2006;1(1):1-130. [doi: 10.1561/1800000001]
5. Berners-Lee T, Hall W, Hendler J, Wetzner D. Creating a Science of the Web. Science 2006 Aug 11;313(5788):769-771. [doi: 10.1126/science.1126902]
6. Fensel D. Spinning the semantic web: bringing the World Wide Web to its full potential. Cambridge, Mass: MIT Press; 2003.
7. Brooks EH, Cumming GP, Luciano JS. Health Web science: application of Web science to the area of health education and health care. In: Proceedings of the Second international workshop on Web science and information exchange in the medical Web. 2011 Presented at: Second international workshop on Web science and information exchange in the medical web; October 28, 2011; Glasgow, UK p. 11-14.
8. Van De Belt TH, Engelen LJ, Berben SA, Schoonhoven L. Definition of Health 2.0 and Medicine 2.0: a systematic review. J Med Internet Res 2010;12(2):e18 [FREE Full text] [doi: 10.2196/jmir.1350] [Medline: 20542857]
9. Gloria M, Luciano JS, McGuinness DL. Building Semantically-Enriched Web Observatories. In: Proceedings of Web Science Conference. 2013 Presented at: Web Science Conference; May 2-4, 2013; Paris, France.
10. Pariser E. The Filter Bubble: What the Internet Is Hiding from You. New York: Penguin Press HC; 2011.
11. McGlynn EA. There is no perfect health system. Health Aff (Millwood) 2004;23(3):100-102 [FREE Full text] [Medline: 15160807]
12. Eysenbach G, Powell J, Englesakis M, Rizo C, Stern A. Health related virtual communities and electronic support groups: systematic review of the effects of online peer to peer interactions. BMJ 2004 May 15;328(7449):1166 [FREE Full text] [doi: 10.1136/bmj.328.7449.1166] [Medline: 15142921]
13. Hall W, Tiropanis T. Web evolution and Web science. Computer Networks 2012;56(18):3859-3865.
14. U.S. Health and Human Services and The Office of the National Coordinator for Health Information Technology introduce new Investing in Innovations (i2) Initiative. Washington, DC: HHS Press Office; 2011 Jun 8. URL: http://www.hhs.gov/news/press/2011pres/06/20110608a.html [accessed 2013-06-05] [WebCite Cache ID 6H9GDhcu5]
15. US Department of Health and Human Services, Office of the National Coordinator for Health IT. Health Data Platform Metadata Challenge. 2013. URL: http://www.health2con.com/devchallenge/health-data-platform-metadata-challenge/ [accessed 2013-04-07] [WebCite Cache ID 6FhcI51GI]
16. Wong A. Health 2.0 website. 2013 Feb 20. Winners of Health Data Platform Challenge URL: http://www.health2con.com/ news/2013/02/20/winners-of-health- data-platform-challenges/ [accessed 2013-06-05] [WebCite Cache ID 6H9GNdrj5]
17. McCusker J, Lebo T, Graves A. Health Data Statistics. 2013. URL: http://healthdata.tw.rpi.edu/statistics [accessed 2013-06-05] [WebCite Cache ID 6H9GRj7RC]
18. McCusker J, Lebo T, Graves A, Gloria M. Wiki: TWC-HealthData. 2013. URL: https://github.com/jimmccusker/ twc-healthdata/wiki [accessed 2013-06-05] [WebCite Cache ID 6H9GaCQ8x]
19. The PLoS Medicine Editors. Social Relationships Are Key to Health, and to Health Policy. PLoS Med 2010;7(8):e1000334. [doi: 10.1371/journal.pmed.1000334]
20. Christakis NA, Fowler JH. The spread of obesity in a large social network over 32 years. N Engl J Med 2007 Jul 26;357(4):370-379. [doi: 10.1056/NEJMsa066082] [Medline: 17652652]
21. Cha M, Mislove A, Gummadi KP. A measurement-driven analysis of information propagation in the flickr social network. In: Proceedings of the 18th international conference on World Wide Web. 2009 Presented at: 18th International Conference on World Wide Web; April 20-24, 2009; Madrid, Spain p. 721-730.
22. Chafe R, Born KB, Slutsky AS, Laupacis A. The rise of people power. Nature 2011;472(7344):410. [doi: 10.1038/472410a]
23. Moran L. Canadian Government Allocates Funds to Investigate "Liberation Treatment" for Multiple Sclerosis: Sacrificing Science at the Altar of Consumer Demand. 2012 Jun 07. URL: http://sandwalk.blogspot.com.es/ 2012/06/ canadian-government-allocates-funds-to.html [accessed 2012-12-15] [WebCite Cache ID 6CwGV0gzY]
24. Wiggins A, Crowston K. From conservation to crowdsourcing: A typology of citizen science. In: Proceedings of the Hawaii International Conference on System Sciences. 2011 Presented at: 44th Hawaii International Conference on System Sciences; Jan. 4-7, 2011; Kauai p. 1-10.
25. Goetz T. Wired Magazine. 2010. Sergey Brin's Search for a Parkinson's Cure URL: http://www.wired.com/magazine/2010/ 06/ff-sergeys-search/ [accessed 2013-06-05] [WebCite Cache ID 6H9HbJdzg]
26. Sackett D, Rosenberg WM, Gray JA, Haynes RB, Richardson WS. Evidence based medicine: what it is and what it isn't. BMJ 1996 Jan 13;312(7023):71-72 [FREE Full text] [Medline: 8555924]
27. Greenhalgh T. How to Read a Paper: The Basics of Evidence-Based Medicine (HOW - How To). Hoboken, NJ: Wiley-Blackwell - BMJ Books; 2006.
28. Editorial. Microarray policy. Nat Immunol 2003;4(93):-. [doi: 10.1038/ni0203-93]
29. Wicks P, Vaughan TE, Massagli MP, Heywood J. Accelerated clinical discovery using self-reported patient data collected online and a patient-matching algorithm. Nat Biotechnol 2011 May;29(5):411-414. [doi: 10.1038/nbt.1837] [Medline: 21516084]
30. deBronkart D, Kuraitis V, Kibbe D. Gimme my damn data!. URL: http://thehealthcareblog.com/blog/2010/05/07/ gimme-my-damn-data/ [accessed 2013-06-05] [WebCite Cache ID 6H9IFYBBO]
31. Shute N. Getting Medical Advice on the Web from Other Patients: Patients swap personal stories, offer help, and share studies at "crowd- sourced" disease sites. 2009 Jul 13. URL: http://health.usnews.com/health- news/best-hospitals/articles/ 2009/07/13/getting-medical-advice-on-the-web-from- other-patients [accessed 2013-06-05] [WebCite Cache ID 6H9ITqqLe]
32. Taylor D, Bury M. Chronic illness, expert patients and care transition. Sociol Health Illn 2007 Jan;29(1):27-45. [doi: 10.1111/j.1467-9566.2007.00516.x] [Medline: 17286704]
33. Wolf GI. AETHER, Quantified Self. URL: http://aether.com/quantifiedself [accessed 2012-03-27] [WebCite Cache ID 66TEHdz4d]
34. Commission of the European Communities. Communication from the Commission to the Council, the European Parliament, the Economic and Social Committee and the Committee of the Regions eEurope 2002: Quality Criteria for Health-related Websites. 2002. URL: http://www.hon.ch/HONcode/HON-CCE-en.htm [accessed 2013-06-05] [WebCite Cache ID 6H9InXmDT]
35. WHO/Europe. Empowering patients.: World Health Organization Regional Office for Europe URL: http://www.euro.who.int/ en/what-we-do/health-topics/ noncommunicable-diseases/sections/news/2012/4/empowering-patients [accessed 2013-06-05] [WebCite Cache ID 6H9It5u99]
36. Smart Cities Project. Investing in the future by working together for a sustainable and competitive region. The North Sea Region Programme URL: http://www.smartcities.info/ [accessed 2012-12-15] [WebCite Cache ID 6CwGXQBK5]
37. Morris M, Ozanne E, Miller K, Santamaria N, Pearce A, Said C, et al. Smart technologies for older people: a systematic literature review of smart technologies that promote health and wellbeing of older people living at home.: Institute for a Broadband-Enabled Society; 2012. URL: http://broadband.unimelb. edu.au/health/ageing/smart-technologies-for-older-people. html [WebCite Cache ID 6CwGZwwz2]
38. Vandervalk B, McCarthy EL, Cruz-Toledo J, Klein A, Baker CJ, Dumontier M, et al. The SADI Personal Health Lens: A Web Browser-Based System for Identifying Personally Relevant Drug Interactions. JMIR Res Protoc 2013;2(1):e14. [doi: 10.2196/resprot.2315] [Medline: 23612187]
39. S. 3822 -109th Congress: Genomics and Personalized Medicine Act of 2006. 2006. URL: http://www.govtrack.us/congress/ bills/109/s3822 [accessed 2013-06-05] [WebCite Cache ID 6H9JNFyvy]
40. S. 976 - 110th Congress: Genomics and Personalized Medicine Act of 2007. 2007. URL: http://www.govtrack.us/congress/ bills/110/s976 [accessed 2013-06-05] [WebCite Cache ID 6H9JPlobn]
41. Ranck J. Connected Health: How Mobile Phones, Cloud and Big Data Will Reinvent Healthcare. online: GigOM Books; 2012.
42. Gillam M, Feied C, Handler J, Moody E, Shneiderman B, Plaisant C, et al. The healthcare singularity and the age of semantic medicine. In: The Fourth Paradigm: Data-Intensive Scientific Discovery. online: Microsoft Research; 2009:57-64.
43. Phronesis (Greek) is an Ancient word for wisdom or intelligence which is a common topic of discussion in philosophy. URL: http://en.wikipedia.org/wiki/ Phronesis [accessed 2012-12-19] [WebCite Cache ID 6D1vpHMxY]
44. Greenhalgh T. Why do we always end up here? Evidence-based medicine's conceptual cul-de-sacs and some off-road alternative routes. J Prim Health Care 2012 Jun;4(2):92-97. [Medline: 22675691]
45. Meehl P. Clinical Versus Statistical Prediction: A Theoretical Analysis and a Review of the Evidence (The Master Work Series). Minnesota: Jason Aronson; 1954.
46. Kahneman D. Thinking, fast and slow. Toronto: Penguin Books Ltd; 2011.
47. Zuckerman E. Rewire: Digital cosmopolitans in the age of connection. New York: W.W. Norton & Company; 2013.