Quality of life among adult patients with neurofibromatosis 1, neurofibromatosis 2 and schwannomatosis: A systematic review of the literature

Journal of Neuro-Oncology

Volumn 114, Issue 3, 2013, Pages 257-262

  Vranceanu, Ana Maria ^a   Merker, Vanessa L ^a   Park, Elyse ^a   Plotkin, Scott R ^a  

^a HARVARD MEDICAL SCHOOL   (United States)

Author keywords

Neurofibromatosis 1; Neurofibromatosis 2; Quality of life; Schwannomatosis

Indexed keywords

ALTERNATIVE MEDICINE; CROSS-SECTIONAL STUDY; DISEASE SEVERITY; HUMAN; LONG TERM CARE; NEURILEMOMA; NEUROFIBROMATOSIS; POPULATION RESEARCH; PREDICTOR VARIABLE; QUALITY OF LIFE; REVIEW; SOCIAL PSYCHOLOGY; SYSTEMATIC REVIEW;

ADULT; HUMANS; NEURILEMMOMA; NEUROFIBROMATOSES; NEUROFIBROMATOSIS 1; NEUROFIBROMATOSIS 2; QUALITY OF LIFE; REVIEW LITERATURE AS TOPIC; SKIN NEOPLASMS;

EID: 84883205489     PISSN: 0167594X     EISSN: 15737373     Source Type: Journal    
DOI: 10.1007/s11060-013-1195-2     Document Type: Review

References (22)

1. Evans DG, Howard E, Giblin C, Clancy T, Spencer H, Huson SM, Lalloo F (2010) Birth incidence and prevalence of tumor-prone syndromes: estimates from a UK family genetic register service. Am J Med Genet A 152A:327-332
2. Lu-Emerson C, Plotkin SR (2009) The neurofibromatoses. Part 1: NF1. Rev Neurol Dis 6:E47-E53
3. Lu-Emerson C, Plotkin SR (2009) The neurofibromatoses. Part 2: NF2 and schwannomatosis. Rev Neurol Dis 6:E81-E86
4. Antinheimo J, Sankila R, Carpen O, Pukkala E, Sainio M, Jaaskelainen J (2000) Population-based analysis of sporadic and type 2 neurofibromatosis- associated meningiomas and schwannomas. Neurology 54:71-76
5. Moher D, Liberati A, Tetzlaff J, Altman DG (2009) Preferred reporting items for systematic reviews and meta-analyses: the PRISMA statement. PLoS Med 6:e1000097
6. Kuijpers T, van der Windt DA, van der Heijden GJ, Bouter LM (2004) Systematic review of prognostic cohort studies on shoulder disorders. Pain 109:420-431
7. Scholten-Peeters GG, Verhagen AP, Bekkering GE, van der Windt DA, Barnsley L, Oostendorp RA, Hendriks EJ (2003) Prognostic factors of whiplash-associated disorders: a systematic review of prospective cohort studies. Pain 104:303-322
8. Ariens GA, van Mechelen W, Bongers PM, Bouter LM, van der Wal G (2000) Physical risk factors for neck pain. Scand J Work Environ Health 26:7-19
9. Wolkenstein P, Zeller J, Revuz J, Ecosse E, Leplege A (2001) Quality-of-life impairment in neurofibromatosis type 1: a cross-sectional study of 128 cases. Arch Dermatol 137:1421-1425
10. Granstrom S, Langenbruch A, Augustin M, Mautner VF (2012) Psychological burden in adult neurofibromatosis type 1 patients: impact of disease visibility on body image. Dermatology 224:160-167
11. Cosyns M, Mortier G, Janssens S, Van BJ (2012) Voice-related quality of life in adults with neurofibromatosis type 1. J Voice 26:e57-e62
12. Langenbruch AK, Augustin M, Granstrom S, Kluwe L, Mautner VF (2011) Clinical and healthcare status of patients with neurofibromatosis type 1. Br J Dermatol 165:225-227
13. Neary WJ, Hillier VF, Flute T, Stephens SD, Ramsden RT, Evans DG (2010) The relationship between patients' perception of the effects of neurofibromatosis type 2 and the domains of the Short Form-36. Clin Otolaryngol 35:291-299
14. Kodra Y, Giustini S, Divona L, Porciello R, Calviei S, Wolkenstein P, Taruscio D (2009) Health-related quality of life in patients with neurofibromatosis type 1. Dermatology 218:215-220
15. Page PZ, Page GP, Ecosse E, Korf BR, Leplege A, Wolkenstein P (2006) Impact of neurofibromatosis 1 on quality of life: a cross-sectional study of 176 American cases. Am J Med Genet A 140A:1893-1898
16. Nutakki K, Hingtgen CM, Monahan P, Varni JW, Swigonski NL (2013) Development of the adult PedsQL neurofibromatosis type 1 module: initial feasibility, reliability and validity. Health Qual Life Outcomes 11:21
17. Ware JE Jr, Sherbourne CD (1992) The MOS 36-item short-form health survey (SF-36). I. Conceptual framework and item selection. Med Care 30:473-483
18. Chren MM, Lasek RJ, Flocke SA, Zyzanski SJ (1997) Improved discriminative and evaluative capability of a refined version of Skindex, a quality-of-life instrument for patients with skin diseases. Arch Dermatol 133:1433-1440
19. Samuelsson B, Riccardi VM (1989) Neurofibromatosis in Gothenburg, Sweden. III. Psychiatric and social aspects. Neurofibromatosis 2:84-106
20. Bull AA, Meyerowitz BE, Hart S, Mosconi P, Apolone G, Liberati A (1999) Quality of life in women with recurrent breast cancer. Breast Cancer Res Treat 54:47-57
21. Downe-Wamboldt B, Butler L, Coulter L (2006) The relationship between meaning of illness, social support, coping strategies, and quality of life for lung cancer patients and their family members. Cancer Nurs 29:111-119
22. Carslon LE, Bultz BD (2004) Efficacy and medical cost offset of psychosocial interventions in cancer care: making the case of economic analyses. Psycho-oncology 13:347-837