Assistive technologies after stroke: Self-management or fending for yourself? A focus group study

BMC Health Services Research

Volumn 13, Issue 1, 2013, Pages

  Demain, Sara ^a   Burridge, Jane ^a   Ellis Hill, Caroline ^b   Hughes, Ann Marie ^a   Yardley, Lucy ^a   Tedesco Triccas, Lisa ^a   Swain, Ian ^b,c  

^a UNIVERSITY OF SOUTHAMPTON   (United Kingdom)

^b BOURNEMOUTH UNIVERSITY   (United Kingdom)

^c SALISBURY NHS FOUNDATION TRUST   (United Kingdom)

Author keywords

Assistive technology; Family caregivers; Health care professional; Patient; Qualitative research; Rehabilitation; Self management; Stroke; Upper limb

Indexed keywords

ADULT; AGE; AGED; ARTICLE; ATTITUDE TO HEALTH; CAREGIVER; CEREBROVASCULAR ACCIDENT; EQUIPMENT; FAMILY; FEMALE; HUMAN; INFORMATION PROCESSING; MALE; METHODOLOGY; MIDDLE AGED; PSYCHOLOGICAL ASPECT; SELF CARE; SELF HELP; SEX DIFFERENCE; VERY ELDERLY;

ADULT; AGE FACTORS; AGED; AGED, 80 AND OVER; ATTITUDE TO HEALTH; CAREGIVERS; FAMILY; FEMALE; FOCUS GROUPS; HUMANS; MALE; MIDDLE AGED; SELF CARE; SELF-HELP DEVICES; SEX FACTORS; STROKE;

EID: 84883194938     PISSN: None     EISSN: 14726963     Source Type: Journal    
DOI: 10.1186/1472-6963-13-334     Document Type: Article

References (32)

1. Quantifying the value of stroke disability outcomes: WHO global burden of disease project disability weights for each level of the modified rankin scale. Hong KS, Saver JL, Stroke 2009 40 3828 3833 10.1161/STROKEAHA.109.561365 19797698
2. WHO, 10 Facts on Ageing and the Life Course Geneva: World Health Organisation 2011
3. A functional MRI study of subjects recovered from hemiparetic stroke. Cramer S, Nelles G, Benson R, Kaplan J, Stroke 1997 28 2518 2527 10.1161/01.STR.28.12.2518 9412643 (Pubitemid 28007661)
4. Recovery of upper extremity function in stroke patients: the Copenhagan study. Nakayama H, Jorgensen HS, Raaschou HO, Olsen TS, Arch Phys Med Rehabil 1994 75 394 399 10.1016/0003-9993(94)90161-9 8172497 (Pubitemid 24134114)
5. Probability of regaining dexterity in the flaccid upper limb: impact of severity of paresis and time since onset in acute stroke. Kwakkel G, Kollen BJ, van der Grond J, Prevo AJH, Stroke 2003 34 2181 2186 10.1161/01.STR.0000087172. 16305.CD 12907818 (Pubitemid 37099833)
6. Factors influencing stroke survivors' quality of life during sub-acute recovery. Nichols-Larsen DS, Clark PC, Zeringue A, Greenspan A, Blanton S, Stroke 2005 36 1480 1484 10.1161/01.STR.0000170706.13595.4f 15947263 (Pubitemid 40967516)
7. Cost of stroke in the United Kingdom. Saka O, McGuire A, Wolfe C, Age Ageing 2009 38 27 32 19141506
8. Cost of stroke in Europe. Truelsena T, Ekmanb M, Boysen G, Eur J Neurol 2005 12 Suppl 1 78 84 15877785 (Pubitemid 40755610)
9. Royal College Physicians, Prepared on behalf of the Intercollegiate Stroke Working Party London: National Sentinel Audit Report 2010 2010
10. Agency for Healthcare Research and Quality, Hospital Stays for Stroke and Other Cerebrovascular Diseases, 2005 Rockville: Healthcare Cost and Utilization Project Statistical Brief #51 2008
11. Effects of augmented exercise therapy time after stroke a meta-analysis. Kwakkel G, Van Peppen R, Wagenaar RC, Wood Dauphinee S, Richards C, Ashburn A, Miller K, Lincoln N, Partridge C, Wellwood I, Langhorne P, Stroke 2004 35 2529 2536 10.1161/01.STR.0000143153.76460.7d 15472114 (Pubitemid 39458412)
12. Department of Health, National Stroke Strategy London: Department of Health 2007
13. Effect of constraint-induced movement therapy on upper extremity function 3 to 9 months after stroke: the EXCITE randomized clinical trial. Wolf SL, Winstein CJ, Miller JP, Taub E, Uswatte G, Morris D, Uswatte G, Taub E, Light KE, Sawaki L, JAMA 2006 296 2095 2104 10.1001/jama.296.17.2095 17077374 (Pubitemid 44664704)
14. National Audit Office, Public Affairs Briefing Paper: Reducing Brain Damage London: Faster Access to Stroke Care 2005
15. Electromechanical and robot-assisted arm training for improving generic activities of daily living, arm function, and arm muscle strength after stroke. Mehrholz J, Hädrich A, Platz T, Kugler J, Pohl M, Cochrane Database Syst Rev 2012 Issue 6 rt. No.: CD006876 pub3 10.1002/14651858.CD006876
16. Accelerometer-triggered electrical stimulation for reach and grasp in chronic stroke patients: a pilot study. Mann G, Taylor P, Lane R, Neurorehab Neural Re 2011 25 774 780 10.1177/1545968310397200
17. Virtual reality in stroke rehabilitation: a meta-analysis and implications for clinicians. Saposnik G, Levin M, for the Stroke Outcome Research Canada (SORCan) Working Group, Stroke 2011 42 1380 1386 10.1161/STROKEAHA.110.605451 21474804
18. Effects of repetitive transcranial magnetic stroke stimulation on motor functions in patients with stroke: a meta-analysis. Hsu W-Y, Cheng C-H, Liao K-K, Lee I-H, Lin Y-Y, Stroke 2012 43 1849 1857 10.1161/STROKEAHA.111.649756 22713491
19. Potential for new technologies in clinical practice. Burridge JH, Hughes AM, Curr Opin Neurol 2010 23 671 677 10.1097/WCO.0b013e3283402af5 20962639
20. Focus group research. Finch H, Lewis J, Qualitative research in practice: a guide for social science students London: Sage, Ritchie J, Lewis J, 2003 170 198
21. The methodology of focus groups. Kitzinger J, Sociol Health Illn 1994 16 103 121 10.1111/1467-9566.ep11347023
22. Focus group research in family planning and reproductive health care. Teijlingenvan ER, Pitchforth E, J Fam Plann Reprod Health Care 2006 32 1 30 32 10.1783/147118906775275299 16492335
23. Using thematic analysis in psychology. Braun V, Clarke V, Qual Res Psych 2006 3 77 101 10.1191/1478088706qp063oa
24. Early intensive task-specific sensory and motor training of the upper limb following acute stroke: a pilot study. Miller K, Galea M, Kilbreath S, Phillips B, Neurological Rehabilitation Bologna: Mondizzi Editore, Battistin L, Dam M, Tonin P, 2002 247 251
25. From support to boundary: a qualitative study of the border between self-care and professional care. Kielmann T, Huby G, Powell A, Sheikh A, Price D, Williams S, Pinnock H, Patient Educ Couns 2010 79 55 61 10.1016/j.pec.2009. 07.015 19709844
26. Support for self care for patients with chronic disease. Kennedy AP, Rogers AE, Bower P, BMJ 2007 335 968 970 10.1136/bmj.39372.540903.94 17991978 (Pubitemid 350144663)
27. Irish Heart Foundation National Stroke Review Group, Irish National Audit of Stroke Care Dublin: Irish Heart Foundation National Stroke Review Group 2008
28. Seeking the views of health professionals on translating chronic disease self-management models into practice. Lake A, Staiger P, Patient Educ Couns 2010 79 62 68 10.1016/j.pec.2009.07.036 19733460
29. A new stroke self-management programme: preliminary analysis of training for practitioners [abstract]. Jones F, Lennon S, Int J Stroke 2009 4 2 23 19236494
30. A narrative review on haptic devices: relating the physiology and psychophysical properties of the hand to devices for rehabilitation in central nervous system disorders. Demain S, Cunningham S, Metcalf CD, Zheng D, Merrett GV, Disabil and Rehabil Assist Technol 2012 1 9
31. Rogers EM, The diffusion of innovation New York: Free Press 1995
32. Understanding the implementation of complex interventions in health care: the normalization process model. May C, Finch T, Mair F, Ballini L, Dowrick C, Eccles M, Gask L, MacFarlane A, Murray E, Rapley T, Rogers A, Treweek S, Wallace P, Anderson G, Burns J, Heaven B, BMC Health Serv Res 2007 7 148 10.1186/1472-6963-7-148 17880693 (Pubitemid 350150886)