Melanoma survivors at high risk of developing new primary disease: A qualitative examination of the factors that contribute to patient satisfaction with clinical care

Psycho-Oncology

Volumn 22, Issue 9, 2013, Pages 1994-2000

  McLoone, J K ^a   Watts, K J ^a,b   Menzies, S W ^c,d   Barlow Stewart, K ^e   Mann, G J ^d,f   Kasparian, N A ^a  

^a UNIVERSITY OF NEW SOUTH WALES   (Australia)

^b PRINCE OF WALES HOSPITAL   (Australia)

^c ROYAL PRINCE ALFRED HOSPITAL   (Australia)

^d UNIVERSITY OF SYDNEY   (Australia)

^e ROYAL NORTH SHORE HOSPITAL   (Australia)

^f MELANOMA INSTITUTE AUSTRALIA   (Australia)

Author keywords

melanoma; patient satisfaction with care; psychosocial research; qualitative methods; unmet needs

Indexed keywords

ADULT; AGED; ARTICLE; CLINICAL ARTICLE; COMPUTER PROGRAM; DISEASE PREDISPOSITION; DYSPLASTIC NEVUS; FEMALE; HEALTH CARE; HUMAN; MALE; MELANOMA; PATIENT CARE; PATIENT SATISFACTION; PHYSICIAN; PSYCHOLOGICAL ASPECT; QUALITATIVE ANALYSIS; SEMI STRUCTURED INTERVIEW; TELECONSULTATION; TRUST;

MELANOMA; PATIENT SATISFACTION WITH CARE; PSYCHOSOCIAL RESEARCH; QUALITATIVE METHODS; UNMET NEEDS;

ADULT; AGED; AUSTRALIA; FEMALE; HUMANS; MALE; MELANOMA; MIDDLE AGED; NEEDS ASSESSMENT; PATIENT SATISFACTION; QUESTIONNAIRES; RISK; SKIN NEOPLASMS; SURVIVORS;

EID: 84883193921     PISSN: 10579249     EISSN: 10991611     Source Type: Journal    
DOI: 10.1002/pon.3243     Document Type: Article

References (48)

1. Baade P, Meng X, Youlden D, et al,. Time trends and latitudinal differences in melanoma thickness distribution in Australia, 1990-2006. Int J Cancer 2012.
2. Bray F, Ren JS, Masuyer E, et al,. Estimates of global cancer prevalence for 27 sites in the adult population in 2008. Int J Cancer 2012.
3. US Cancer Statistics Working Group United States cancer statistics: 1999-2007 incidence and mortality web-based report. Available from www.cdc.gov/uscs., 2010.
4. Homsi J, Kashani-Sabet M, Messina JL, et al,. Cutaneous melanoma: prognostic factors. Cancer Control 2005; 12: 223-229.
5. Bradford P, et al,. Increased risk of second primary cancers after a diagnosis of melanoma. Arch Dermatol 2010; 146 (3): 265-272.
6. Shore RN, Shore P, Monahan NM, et al,. Serial screening for melanoma: measures and strategies that have consistently achieved early detection and cure. J Drugs Dermatol 2011; 10: 244-252.
7. Brandberg Y, Bergenmar M, Bolund C, et al,. Information to patients with malignant melanoma: a randomized group study. Patient Educ Couns 1994; 23 (2): 97-105.
8. Bonevski B, Sanson-Fisher R, Hersey P, et al,. Assessing the perceived needs of patients attending an outpatient melanoma clinic. J Psychosoc Oncol 1999; 17: 101-118.
9. Kasparian N, McLoone J, Butow P,. Psychological responses and coping strategies among patients with malignant melanoma: a systematic review of the literature. Arch Dermatol 2009; 145 (12): 1415-1427.
10. Sollner W, Zingg-Schir M, Rumpold G, et al,. Need for supportive counselling-the professionals' versus the patients' perspective: a survey in a representative sample of 236 melanoma patients. Psychother Psychosom 1998; 67 (2): 94-104.
11. Fawzy F, Kemeny M, Fawzy N, et al,. A structured psychiatric intervention for cancer patients: I. Changes over time and methods of coping in affect of disturbance. Arch Gen Psychiatry 1990; 47: 720-725.
12. Holland JC, Passik S, Kash KM, et al,. The role of religious and spiritual beliefs in coping with malignant melanoma. Psycho-oncology 1999; 8 (1): 14-26.
13. Zabora J, Brintzenhofeszoc K, Curbow B, et al,. The prevalence of psychological distress by cancer site. Psycho-Oncology 2001; 10 (1): 19-28.
14. Brandberg Y, Bolund C, Sigurdardottir V, et al,. Anxiety and depressive symptoms at different stages of malignant melanoma. Psycho-Oncology 1992; 1 (2): 71-78.
15. Trask PC, Paterson AG, Hayasaka S, et al,. Psychosocial characteristics of individuals with non-stage IV melanoma. J Clin Oncol 2001; 19 (11): 2844-50.
16. Brandberg Y, Kock E, Oskar K, et al,. Psychological reactions and quality of life in patients with posterior uveal melanoma treated with ruthenium plaque therapy or enucleation: a one year follow-up study. Eye 2000; 14 (Pt 6): 839-46.
17. Brandberg Y, Bergenmar M, Michelson H, et al,. Six-month follow-up of effects of an information programme for patients with malignant melanoma. Patient Educ Couns 1996; 28 (2): 201-8.
18. Brandberg Y, Bergenmar M, Bolund C, et al,. Psychological effects of participation in a prevention programme for individuals with increased risk for malignant melanoma. Eur J Cancer 1992; 28A (8-9): 1334-8.
19. Kelly B, Raphael B, Smithers M, et al,. Psychological responses to malignant melanoma: An investigation of traumatic stress reactions to life-threatening illness. Gen Hosp Psychiatry 1995; 17 (2): 126-34.
20. Bergenmar M, Nilsson B, Hansson J, et al,., Anxiety and depressive symptoms measured by the Hospital Anxiety and Depression Scale as predictors of time to recurrence in localized cutaneous melanoma. Acta Oncol 2004; 43 (2): 161-8.
21. Gibertini M, Reintgen DS, Baile WF,. Psychosocial aspects of melanoma. Ann Plast Surg 1992; 28 (1): 17-21.
22. McLoone JK, Watts K, Menzies S, et al,. When the risks are high: psychological adjustment among melanoma survivors at high risk of developing new primary disease. Qualitative Health Research, In press.
23. Murchie P, Nicolson MC, Hannaford PC, et al,. Patient satisfaction with GP-led melanoma follow-up: a randomised controlled trial. Br J Cancer 2010; 102 (10): 1447-55.
24. Baughan CA, Hall VL, Leppard BJ, et al,. Follow-up in stage I cutaneous malignant melanoma: an audit. Clin Oncol 1993; 5 (3): 174-80.
25. Patton M, Qualitative research and evaluation methods. (3rd edn), Thousand Oaks, CA: Sage 2002.
26. Kelly JW, Yeatman JM, Regalia C, et al,. A high incidence of melanoma found in patients with multiple dysplastic naevi by photographic surveillance. Med J Aust 1997; 167 (4): 191-4.
27. Halpern AC, Guerry D, Elder DE, et al,. Dysplastic nevi as risk markers of sporadic (nonfamilial) melanoma: a case-control study. Arch Dermatol 1991; 127 (7): 995-9.
28. Kasparian N, et al,. Skin cancer screening behaviours among individuals with a strong family history of malignant melanoma. Br J Cancer 2010; 103: 1502-1509.
29. Kasparian N, Meiser B, Butow P, et al,. Anticipated uptake of genetic testing for familial melanoma in an Australian sample: an exploratory study. Psycho-Oncology 2007; 16: 69-78.
30. Kasparian N, Meiser B, Butow P, et al,. Predictors of psychological distress among individuals with a strong family history of malignant melanoma. Clin Genet 2008; 73: 121-131.
31. Kasparian N, Butow P, Meiser B, et al,. High- and average-risk individuals' beliefs about, and perceptions of, malignant melanoma: an Australian perspective. Psycho-Oncology 2008; 17 (3): 270-279.
32. Kasparian N, Meiser B, Butow P, et al,. Better the devil you know? High-risk individuals' anticipated psychological responses to genetic testing for melanoma susceptibility. J Genet Couns 2006; 15: 433-447.
33. Kasparian N, Meiser B, Butow P, et al,. Genetic testing for melanoma risk: a prospective cohort study of uptake and outcomes among Australian families. Genet Med 2009; 11 (4): 265-278.
34. DiCicco-Bloom B, Crabtree BF,. The qualitative research interview. Med Educ 2006; 40 (4): 314-321.
35. Marshall M,. Sampling for qualitative research. Fam Pract 1996; 13: 522-525.
36. Morse J,. The significance of saturation. Qual Health Res 1995; 5: 147-149.
37. Miles M, Huberman A,. Qualitative Data Analysis: An Expanded Sourcebook, London Sage. 1994
38. Hsieh H, Shannon S,. Three approaches to qualitative content analysis. Qual Health Res 2005; 15: 1277-1288.
39. Coffey A, Atkinson P,. Making Sense of Qualitative Data: Complementary Research Strategies. Thousand Oaks: Sage 1996.
40. Morse J, Field P,. Qualitative Research Methods for Health Professionals. (2nd edn), Thousand Oaks, CA: Sage. 1995.
41. Sankar P, Wolpe PR, Jones NL, et al,. How do women decide? Accepting or declining BRCA1/2 testing in a nationwide clinical sample in the United States. Community Genet 2006; 9 (2): 78-86.
42. Hruschka D, Schwartz D, St John DC, et al,. Reliability in coding open-ended data: lessons learned from HIV behavioral research. Field Methods 2004; 16: 307-331.
43. Denzin N, Lincoln Y, (eds.) Handbook of Qualitative Research. (Second edn), Sage Publications, Inc: California. 2000.
44. Morgan D,. Qualitative content analysis: a guide to paths not taken. Qual Health Res 1993; 3: 112-121.
45. Qureshi AA, Brandling-Bennett HA, Wittenberg E, et al,. Willingness-to-pay stated preferences for telemedicine versus in-person visits in patients with a history of psoriasis or melanoma. Telemed JE Health 2006; 12 (6): 639-43.
46. Australian Cancer Network, Clinical practice guidelines for the management of melanoma in Australia and New Zealand, 2008, National Health and Medical Research Council (NHMRC): Canberra.
47. Howell D, Keller-Olaman S, Oliver T, et al,. A Pan-Canadian Practice Guideline: Screening, Assessment and Care of Psychosocial Distress (Depression, Anxiety) in Adults with Cancer, C.P.A.C.C.J.A.G.a.t.C.A.o.P. Oncology: Toronto, Editor 2010.
48. Turner J, Zapart S, Pedersen K, et al,. Clinical practice guidelines for the psychosocial care of adults with cancer. Psycho-Oncology 2005; 14 (3): 159-173.