Why don't we trust health websites that help us help each other? An analysis of online peer-to-peer healthcare

Proceedings of the 5th Annual ACM Web Science Conference, WebSci'13

Volumn volume, Issue , 2013, Pages 396-404

  Sillence, Elizabeth ^a   Hardy, Claire ^a   Briggs, Pam ^a  

^a NORTHUMBRIA UNIVERSITY   (United Kingdom)

Author keywords

Advertising; Credibility; EHealth; Health; Health informatics; Patient communities; Patient experience; Smoking cessation; Trust

Indexed keywords

MARKETING;

CREDIBILITY; EHEALTH; HEALTH INFORMATICS; PATIENT EXPERIENCES; SMOKING CESSATIONS; TRUST;

HEALTH;

EID: 84883127939     PISSN: None     EISSN: None     Source Type: Conference Proceeding    
DOI: 10.1145/2464464.2464488     Document Type: Conference Paper

References (35)

1. Fox, S. The social life of health information. Pew Internet and American Life, (2011), http://www.pewinternet.org/Reports/2011/Social-Life-of-Health- Infor-Summary-of-Findings.aspx
2. Mo, P.K.H. and Coulson, N.S. Exploring the communication of social support within virtual communities: A content analysis of messages posted to an online HIV/AIDS support group. CyberPsychology & Behavior 11, (2008), 371-374.
3. Brann, M. and Anderson, J.G. E-Medicine and health care consumers: Recognizing current problems and possible resolutions for a safer environment. Health Care Analysis 10, (2002), 403-415.
4. Christensen, H. and Griffiths, K. The internet and mental health practice. Evidence-Based Mental Health 6, (2003), 66-69.
5. Laurent, M. and Vickers, T.J. Seeking health information online: Does Wikipedia matter? Journal of the American Medical Informatics Association 16, (2009), 471-479.
6. Anderson, J.G., Rainey, M.R., and Eysenbach, G. The impact of CyberHealthcare on the physician-patient relationship. Journal of Medical Systems 27, (2003), 67-84.
7. Berland, G.K., Elliott, M.N., Morales, L.S., Algazy, J.I., Kravitz, R.L., Broder, M.S., et al. Health information on the Internet: Accessibility, quality, and readability in English and Spanish. Journal of the American Medical Association 23, (2001), 2612-2621.
8. Fox, S. and Rainie, L. Vital decisions: How Internet users decide what information to trust when they or their loved ones are sick. Washington, DC: Pew Internet & American Life Project, 2002.
9. Friedewald, V.E. Jr. The Internet's influence on the doctor-patient relationship. Health Management Technology 21, 11 (2000), 79-80.
10. Pemberton, P. J. and Goldblatt, J. The Internet and the changing roles of doctors, patients and families. Medical Journal of Australia 169, (1998), 594-595.
11. Eysenbach, G. The impact of the Internet on cancer outcomes. CA: A Cancer Journal for Clinicians 53, (2003), 356-371.
12. Frost, J. Social uses of personal health information within PatientsLikeMe, an online patient community: What can happen when patients have access to one another's data. Journal of Medical Internet Research 10, (2008), e15.
13. Ziebland, S., Chapple, A., Dumelow, C., Evans, J., Prinjha, S. and Rozmovits, L. How the internet affects patients' experience of cancer: A qualitative study. British Medical Journal 328, 7439, (2004), 564.
14. Caron-Flinterman, J.F., Broerse, J.E.W. and Bunders, J.F.G. The experiential knowledge of patients: A new resource for biomedical research? Social Science & Medicine 60, (2005), 2575-2584.
15. Entwistle, V.A., Renfrew, M.J., Yearley, S., Forrester, J. and Lamont, T. Lay perspectives: Advantages for health research. British Medical Journal 316, 7129, (1998), 463-466.
16. France, E.F., Wyke, S., Ziebland, S.; Entwistle, V.A. and Hunt, K. How personal experiences feature in women's accounts of use of information for decisions about antenatal diagnostic testing for foetal abnormality. Social Science & Medicine 72, (2011), 755-762.
17. Entwistle, V.A., France, E.F., Wyke, S., Jepson, R., Hunt, K., Ziebland, S. and Thompson, A. How information about other people's personal experiences can help with healthcare decision-making: A qualitative study. Patient Education and Counseling 85, (2011), 291-298.
18. Wicks, P., Massagli, M., Frost, J., Brownstein, C., Okun, S., Vaughan, T., et al. Sharing health data for better outcomes on PatientsLikeMe. Journal of Medical Internet Research 12, 2 (2010), e19.
19. Ziebland, S. and Wyke, S. Health and illness in a connected world: How might sharing experiences on the Internet affect people's health? Millbank Quarterly 90, 2 (2012), 219-249.
20. Hinton, L., Kurinczuk, J.J., and Ziebland, S. Infertility; isolation and the Internet: A qualitative interview study. Patient Education and Counseling 81, (2010), 436-41.
21. Sillence, E.; Briggs, P.; Harris, P. and Fishwick, L. Going online for health advice: Changes in usage and trust practices over the last five years. Interacting with Computers 19, (2007), 397-406.
22. Kamal, N., Fels, S. and Ho, K. Online social networks for personal informatics to promote positive health behavior. In Proc. of the 2nd ACM SIGMM Workshop on Social Media (Firenze, Italy), (2010), 47-52.
23. Powell J. and Clarke, A. Information in mental health: qualitative study of mental health service users. Health Expectations 9, (2006), 359-365.
24. Powell J., and Clarke, A. Internet information seeking in mental health: population survey. British Journal of Psychiatry 189, (2006), 273-277.
25. Briggs, P., Burford, B., De Angeli, A. and Lynch, P. Trust in online advice. Social Science Computer Review 20, 3 (2002), 321-332.
26. Harris, P.R., Sillence, E. and Briggs, P. Perceived threat and corroboration: Key factors that improve a predictive model of trust in Internet-based health information and advice. Journal of Medical Internet Research 13, 3 (2011), e51.
27. Sillence, E. Briggs, P. Harris, P. & Fishwick, L. Changes in online health usage over the last 5 years. Ex Abstracts CHI 2006 ACM Press (2006).
28. Sillence, E., Briggs, P., Fishwick, L. and Harris, P. Trust and mistrust of online health Sites. Ex Abstracts CHI 2004 ACM Press (2004).
29. Harris, P. R., Sillence, E. and Briggs, P. The effect of trust-related design cues on responses to a web-based message about the breast cancer risks from alcohol. Journal of Medical Internet Research 11, 3 (2009), e37.
30. Braun, V. & Clarke, V. Using thematic analysis in psychology. Qualitative Research in Psychology 3, 2 (2006), 77-101.
31. Wangberg, S.C., Nilsen, O., Antypas, K., and Gram, I.T. Effect of tailoring in an Internet-based intervention for smoking cessation: Randomized controlled trial. Journal of Medical Internet Research 13, (2011), e121.
32. van Genugten, L., van Empelen, P., Boon, B., Borsboom, G., Visscher, T. and Oenema, A. Results from an online computer-tailored weight management intervention for overweight adults: Randomized controlled trial. Journal of Medical Internet Research 14, (2012), e44.
33. Peels, D.A., van Stralen, M.M., Bolman, C., Golsteijn, R.H.J., de Vries, H., Mudde, A.N. and Lechner, L. Development of web-based computer-tailored advice to promote physical activity among people older than 50 years. Journal of Medical Internet Research 14, (2012), e39.
34. Cobb, N.K., Graham, A.L., Byron, M.J., Niaura, R.S. and Abrams, D.B. Online social networks and smoking cessation: A scientific research agenda. Journal of Medical Internet Research 13, (2011), e119.
35. Department of Health. Equity and excellence: Liberating the NHS (White Paper-Cm7781) (2010).