Attitudes towards prenatal diagnosis and abortion in a multi-ethnic country: A survey among parents of children with thalassaemia major in Malaysia

Journal of Community Genetics

Volumn 4, Issue 2, 2013, Pages 215-221

  Ngim, Chin Fang ^a   Lai, Nai Ming ^a   Ibrahim, Hishamshah ^b   Ratnasingam, Vanassa ^a  

^a MONASH UNIVERSITY MALAYSIA   (Malaysia)

^b HOSPITAL KUALA LUMPUR   (Malaysia)

Author keywords

[No Author keywords available]

Indexed keywords

ADULT; ARTICLE; ATTITUDE TO ABORTION; CULTURAL FACTOR; FEMALE; HUMAN; MALAYSIA; MALE; MEDICAL DECISION MAKING; MOSLEM; PARENTAL ATTITUDE; PREGNANCY TERMINATION; PRENATAL DIAGNOSIS; PRIORITY JOURNAL; RELIGION; THALASSEMIA MAJOR;

EID: 84882975759     PISSN: 1868310X     EISSN: 18686001     Source Type: Journal    
DOI: 10.1007/s12687-012-0133-x     Document Type: Article

References (21)

1. Ahmed S, Saleem M, Sultana N, Raashid Y, Waqar A, Anwar M, Modell B, Karamat KA, Petrou M (2000) Prenatal diagnosis of beta-thalassemia in Pakistan: experience in a Muslim country. Prenat Diagn 20(5):378-383
2. Ahmed S, Green JM, Hewison J (2006) Attitudes towards prenatal diagnosis and termination of pregnancy for thalassemia in pregnant Pakistani women in the North of England. Prenat Diagn 26:248-257
3. Ainoon O, Cheong SK (1994) Thalassemia in Malaysia: a strategy for prevention. Malays J Pathol 16(1):23-27
4. Alkuraya FS, Kilani RA (2001) Attitude of Saudi families affected with hemoglobinopathies towards prenatal screening and abortion and the influence of religious ruling (Fatwa). Prenat Diagn 21(6):448-451
5. Borgna-Pignatti C, Galanello R (2009) Thalassemias and related disorders: quantitative disorders of hemoglobin synthesis. In: Greer JP (ed) Wintrobe's clinical hematology, 12th edn. Williams and Wilkins, Philadelphia, pp 1083-1131
6. Cao A, Rosatelli MC, Galanello R (1998) Prevention and control of haemoglobinopathies. Ann Nestle 56(2):73-81
7. Christianson A, Streetly A, Darr A (2004) Lessons from thalassemia screening in Iran. BMJ 329:1115-1117
8. Department of Statistics Malaysia (2010) Social statistics bulletin Malaysia http://www.statistics.gov.my/portal/download-Population/files/ census2010/Taburan-Penduduk-dan-Ciri-ciri-Asas-Demografi.pdf. Accessed 5 April 2012
9. El-Beshlawy A, El-Shekha A, Momtaz M, Said F, Hamdy M, Osman O, Meshaal S, Gafaar T, Petrou M (2012) Prenatal diagnosis for thalassaemia in Egypt: what changed parents' attitude? Prenat Diagn 32:777-782
10. George E (1998) Thalassemia: a public health problem in Malaysia. In: George E (ed) Thalassemia carrier diagnosis in Malaysia. SP-Muda Printing Sdn Bhd, Kuala Lumpur, pp 1-6
11. George E (2001) Beta-thalassemia major in Malaysia, an ongoing public health problem. Med J Malays 56(4):397-400
12. Gilani AI, Jadoon AS, Qaiser R (2007) Attitudes towards genetic diagnosis in Pakistan: a survey of medical and legal communities and parents of thalassemic children. Community Genet 10:140-146
13. Karimi M, Jamalian N, Yarmohammadi H, Askarnejad A, Afrasiabi A, Hashemi A (2007) Premarital screening for beta-thalassemia in Southern Iran: options for improving the programme. J Med Screen 14(2):62-66
14. Karimi M, Johari S, Cohan N (2010) Attitude toward prenatal diagnosis for beta-thalassemia major and medical abortion in Southern Iran. Hemoglobin 34(1):49-54
15. Kuliev A (1986) Thalassemia can be prevented. World Health Forum 7:286-290
16. Samavat A, Modell B (2004) Iranian national thalassemia screening programme. BMJ 329:1134-1137
17. Tan JA, Lee PC, Wee YC, Tan KL, Mahali NF, George E, Chua KH (2010) High prevalence of alpha- and beta-thalassemia in the Kadazandusuns in east Malaysia: challenges in providing effective health care for an indigenous group. J Biomed Biotechnol. doi: 10.1155/2010/706872
18. Teh AKH, Chan LL (2008) Fifth report of the national transplant registry 2008 http://www.mst.org.my/ntrSite/donwload/report2008/Chapter%201-BMT-2008.pdf. Accessed 25 April 2012
19. Weatherall DJ, Clegg JB (2001) Inherited hemoglobin disorders: an increasing global health problem. Bull World Health Organ 79:704-711
20. Wong LP, George E, Tan JA (2011) Public perceptions and attitudes toward thalassemia: influencing factors in a multi-racial population. BMC Publ Health 11:193
21. Zahed L, Bou-dames J (1997) Acceptance of first-trimester prenatal diagnosis for the haemoglobinopathies in Lebanon. Prenat Diagn 17(5):423-428