A grounded patient-centered approach generated the Personal and Societal Burden of Osteoarthritis model

Journal of Clinical Epidemiology

Volumn 66, Issue 9, 2013, Pages 994-1005

  Busija, Lucy ^a,d   Buchbinder, Rachelle ^b,c   Osborne, Richard H ^d  

^a UNIVERSITY OF MELBOURNE   (Australia)

^b CABRINI HOSPITAL   (Australia)

^c MONASH UNIVERSITY   (Australia)

^d DEAKIN UNIVERSITY   (Australia)

Author keywords

Burden of illness; Mixed methods research; Osteoarthritis; Patient centered outcomes; Quality of life; Theoretical model

Indexed keywords

ARTICLE; CLINICAL ARTICLE; FINANCIAL DEFICIT; FITNESS; HEALTH CARE COST; HEALTH PRACTITIONER; HUMAN; MODEL; OSTEOARTHRITIS; PATIENT CARE; PATIENT CENTERED PERSONAL AND SOCIETAL BURDEN OF OSTEOARTHRITIS MODEL; PERSONAL BURDEN OF OSTEOARTHRITIS MODEL; PHYSICAL DISEASE; PHYSICAL DISTRESS; PRIORITY JOURNAL; SOCIAL PSYCHOLOGY; WELFARE; WORK DISABILITY;

BURDEN OF ILLNESS; MIXED METHODS RESEARCH; OSTEOARTHRITIS; PATIENT-CENTERED OUTCOMES; QUALITY OF LIFE; THEORETICAL MODEL;

AGED; AGED, 80 AND OVER; AUSTRALIA; COST OF ILLNESS; EFFICIENCY; FEMALE; HEALTH CARE COSTS; HUMANS; MALE; MIDDLE AGED; MODELS, THEORETICAL; OSTEOARTHRITIS; PATIENT-CENTERED CARE; SOCIAL WELFARE; STRESS, PHYSIOLOGICAL; STRESS, PSYCHOLOGICAL; SWEDEN;

EID: 84882885026     PISSN: 08954356     EISSN: 18785921     Source Type: Journal    
DOI: 10.1016/j.jclinepi.2013.03.012     Document Type: Article

References (40)

1. World Health Organization World health report 2002. Reducing risks, promoting healthy life 2002 World Health Organization Geneva
2. Centers for Disease Control and Prevention Prevalence of doctor-diagnosed arthritis and possible arthritis - 30 States, 2002 MMWR Morb Mortal Wkly Rep 53 18 2004 383 386
3. L.M. March, and H. Bagga Epidemiology of osteoarthritis in Australia Med J Aust 180 2004 S6 S10
4. K. Hagen, J.-A. Zwart, S. Svebak, G. Bovim, and L.J. Stovner Low socioeconomic status is associated with chronic musculoskeletal complaints among 46,901 adults in Norway Scand J Public Health 33 2005 268 275
5. G.M. Machado, S.M. Barreto, V.M. Passos, and M.F. Lima-Costa Health status indicators among community-dwelling elders with arthritis: the Bambui health and aging study J Rheumatol 33 2006 342 347
6. Q.Y. Zeng, R. Chen, J. Darmawan, Z.Y. Xiao, S.B. Chen, and R. Wigley Rheumatic diseases in China Arthritis Res Ther 10 1 2008 R17
7. E.M. Badley, and P.P. Wang Arthritis and the aging population: projections of arthritis prevalence in Canada 1991 to 2031 J Rheumatol 25 1998 138 144
8. M.A. Allman-Farinelli, R.J. Aitken, L.A. King, and A.E. Bauman Osteoarthritis - the forgotten obesity-related epidemic with worse to come Med J Aust 188 2008 317
9. T. Rosemann, S. Joos, T.T. Koerner, J. Szecsenyi, and G.G. Laux Problems and needs for improving primary care of osteoarthritis patients: the views of patients, general practitioners and practice nurses BMC Musculoskelet Disord 7 2006 48 http://dx.doi.org/10.1186/1471-2474-7-48
10. C. Sanders, J. Donovan, and P. Dieppe The significance and consequences of having painful and disabled joints in older age: co-existing accounts of normal and disrupted biographies Sociol Health Illness 24 2002 227 253
11. G.A. Hawker, L. Stewart, M.R. French, J. Cibere, J.M. Jordan, and L. March Understanding the pain experience in hip and knee osteoarthritis - an OARSI/OMERACT initiative Osteoarthritis Cartilage 16 2008 415 422
12. K.K.W. Chan, and L.W.Y. Chan A qualitative study on patients with knee osteoarthritis to evaluate the influence of different pain patterns on patients' quality of life and to find out patients' interpretation and coping strategies for the disease Rheumatol Rep 3 e3 2011 9 15
13. J.D. Power, E.M. Badley, M.R. French, A.J. Wall, and G.A. Hawker Fatigue in osteoarthritis: a qualitative study BMC Musculoskelet Disord 9 2008 63
14. S. Gupta, G.A. Hawker, A. Laporte, R. Croxford, and P.C. Coyte The economic burden of disabling hip and knee osteoarthritis (OA) from the perspective of individuals living with this condition Rheumatology (Oxford) 44 2005 1531 1537
15. P. Croft, M. Lewis, J.C. Wynn, D. Coggon, and C. Cooper Health status in patients awaiting hip replacement for osteoarthritis Rheumatology (Oxford) 41 2002 1001 1007
16. G. Peat, R. McCarney, and P. Croft Knee pain and osteoarthritis in older adults: a review of community burden and current use of primary health care Ann Rheum Dis 60 2001 91 97
17. G. Bagnato, C. Arrigo, L. Bocchino, M. Como, R. Farina, and S. Morgante The impact of osteoarthritis on quality of life Ann Rheum Dis 62 2003 482
18. F. Salaffi, M. Carotti, A. Stancati, and W. Grassi Health-related quality of life in older adults with symptomatic hip and knee osteoarthritis: a comparison with matched healthy controls Aging Clin Exp Res 17 4 2005 255 263
19. G.M. Kiebzak, M. Campbell, and D.R. Mauerhan The SF-36 general health status survey documents the burden of osteoarthritis and the benefits of total joint arthroplasty: but why should we use it? Am J Manag Care 8 5 2002 463 474
20. M.L. Rothman, P. Beltran, J.C. Cappelleri, J. Lipscomb, B. Teschendorf Group tMFP-ROCM Patient-reported outcomes: conceptual issues Value Health 10 Supplement 2 2007 S66 S75
21. C.B. Terwee, S.D.M. Bot, M.R. De Boer, D.A.W.M. van der Windt, D.L. Knoll, and J. Dekker Quality criteria were proposed for measurement properties of health status questionnaires J Clin Epidemiol 60 2007 34 42
22. S. Alami, I. Boutron, D. Desjeux, M. Hirschhorn, G. Meric, and F. Rannou Patients' and practitioners' views of knee osteoarthritis and its management: a qualitative interview study PLoS One 6 5 2011 e19634
23. V. Wylde, S. Hewlett, I.D. Learmonth, and V.J. Cavendish Personal impact of disability in osteoarthritis: patient, professional and public values Musculoskeletal Care 4 2006 152 166
24. W.M. Trochim An introduction to concept mapping for planning and evaluation Eval Program Plann 12 1 1989 1 16
25. R. Buchbinder, R. Batterham, G. Elsworth, C.E. Dionne, E. Irvin, and R.H. Osborne A validity-driven approach to the understanding of the personal and societal burden of low back pain: development of a conceptual and measurement model Arthritis Res Ther 13 2011 R152
26. Trochim WM, editor. The reliability of concept mapping. Annual conference of the American Evaluation Association; 1993; Dallas.
27. Trochium WMK. The Concept System. Ithaca, NY, Cornell University, Department of Human Services Studies. 1989.
28. G. Elsworth, K. Anthony-Harvey-Beavis, and A. Rhodes What should community safety initiatives for bushfire achieve? J.W. Handmer, K. Haynes, Community bushfire safety 2008 CSIRO Publishing Collingwood, Vic 139 150
29. D. Wishart Clustan graphics 8 ed. 2005 Clustan Ltd Edinburgh, Scotland
30. C. Pope, S. Ziebland, and N. Mays Qualitative research in health care. Analysing qualitative data BMJ 320 2000 114 116
31. J.C. Greene, and C. McClintock The evolution of evaluation methodology Theor into Pract 30 1991 13 21
32. W.M. Trochim, J.A. Cook, and R.J. Setze Using concept mapping to develop a conceptual framework of staff's views of a supported employment program for individuals with severe mental illness J Consult Clin Psychol 62 4 1994 766 775
33. W.M. Trochim, and M. Kane Concept mapping: an introduction to structured conceptualization in health care Int J Qual Health Care 17 3 2005 187 191
34. C.L. Baird Living with hurting and difficulty doing: older women with osteoarthritis Clin Excell Nurse Pract 4 4 2000 231 237
35. R. Buchbinder, D. Jolley, and M. Wyatt Population based intervention to change back pain beliefs and disability: three part evaluation Br Med J 322 2001 1516 1520
36. W.C. Mann, K.J. Ottenbacher, L. Fraas, M. Tomita, and C.V. Granger Effectiveness of assistive technology and environmental interventions in maintaining independence and reducing home care costs for the elderly Arch Fam Med 8 1999 210 217
37. G. Stucki, and T. Ewert How to assess the impact of arthritis on the individual patient: the WHO ICF Ann Rheum Dis 64 5 2005 664 668
38. B. Johnson, and A.J. Onwuegbuzie Mixed methods research: a research paradigm whose time has come Educ Res 33 7 2003 14 26
39. C.J. Petrucci, and K.M. Quinlan Bridging the research-practice gap: concept mapping as a mixed methods strategy in practice-based research and evaluation J Soc Serv Res 34 2 2007 25 42
40. F.L. Leeuw Reconstructing program theories: methods available and problems to be solved Am J Eval 24 2003 5 20