Importance of support groups for intersex (disorders of sex development) patients, families and the medical profession

Sexual Development

Volumn 4, Issue 4-5, 2010, Pages 310-312

  Cull, M L ^a,c   Simmonds, M ^b  

^a Adrenal Hyperplasia Network   (United Kingdom)

^b Androgen Insensitivity Support Group   (United Kingdom)

^c Adrenal Hyperplasia Network   (United States)

Author keywords

Awareness; Education; Emotions; Intersex; Secrecy; Self management; Shame; Support; Taboo; Well being

Indexed keywords

ARTICLE; AWARENESS; COOPERATION; FAMILY; HUMAN; ORGANIZATION; PHYSICIAN; PROFESSIONAL PRACTICE; PSYCHOLOGICAL ASPECT; SELF HELP; SEX DIFFERENTIATION DISORDER;

AWARENESS; CONGRESSES AS TOPIC; COOPERATIVE BEHAVIOR; DISORDERS OF SEX DEVELOPMENT; FAMILY; HUMANS; PHYSICIANS; PROFESSIONAL PRACTICE; SELF-HELP GROUPS;

EID: 84882383246     PISSN: 16615425     EISSN: 16615433     Source Type: Journal    
DOI: 10.1159/000313889     Document Type: Article

References (5)

1. Creighton SM, Minto CL, Liao LM, Alderson J, Simmonds M: Meeting between experts: evaluation of the first UK forum for lay and professional experts in intersex. Patient Educ Couns 54: 153-157 (2004).
2. Cull ML: Treatment of intersex needs open discussion. BMJ 324:919 (2002).
3. Cull ML: A support group's perspective. BMJ 330: 341 (2005).
4. Cull ML: Dispelling the taboo of intersex conditions: we're only human like you!, in Balen R, Crawshaw M (eds): Sexuality and Fertility Issues in Ill Health and Disability: From Early Adolescence to Adulthood, chapter 12 (Jessica Kingsley Publisher, London 2006).
5. Simmonds M: Patients and parents in decision making and management, in Balen AH, Creighton SM, Davies MC, MacDougall J, Stanhope R (eds): Paediatric and Adolescent Gynaecology: A Multidisciplinary Approach, chapter 17, pp 205-228 (Cambridge University Press, Cambridge 2004).