Caregiver perspectives on cancer screening for persons with dementia: "why put them through it?"

Journal of the American Geriatrics Society

Volumn 61, Issue 8, 2013, Pages 1309-1314

  Torke, Alexia M ^a,b,c   Schwartz, Peter H ^a,d   Holtz, Laura R ^a,b   Montz, Kianna ^a,b   Sachs, Greg A ^a,b  

^a INDIANA UNIVERSITY   (United States)

^b REGENSTRIEF INSTITUTE   (United States)

^c INDIANA UNIVERSITY HEALTH   (United States)

^d Indiana University   (United States)

Author keywords

Alzheimer's disease; decision making; dementia; early detection of cancer

Indexed keywords

ADULT; AFRICAN AMERICAN; AGED; AMERICAN INDIAN; ARTICLE; CANCER SCREENING; CAREGIVER; DEMENTIA; FEMALE; GROUNDED THEORY; HUMAN; INFORMATION PROCESSING; MALE; PATIENT CARE; PHYSICIAN; QUALITY OF LIFE; SUPPORT GROUP;

ALZHEIMER'S DISEASE; DECISION-MAKING; DEMENTIA; EARLY DETECTION OF CANCER;

AGED; AGED, 80 AND OVER; ALZHEIMER DISEASE; ATTITUDE OF HEALTH PERSONNEL; ATTITUDE TO HEALTH; CAREGIVERS; COST OF ILLNESS; DECISION MAKING; EARLY DETECTION OF CANCER; FEMALE; FOCUS GROUPS; HUMANS; INDIANA; MALE; MIDDLE AGED; QUALITY OF LIFE; UNNECESSARY PROCEDURES;

EID: 84882277701     PISSN: 00028614     EISSN: 15325415     Source Type: Journal    
DOI: 10.1111/jgs.12359     Document Type: Article

References (22)

1. Brauner DJ, Muir JC, Sachs GA,. Treating nondementia illnesses in patients with dementia. JAMA 2000; 283: 3230-3235.
2. Walter LC, Eng C, Covinsky KE,. Screening mammography for frail older women: What are the burdens? J Gen Intern Med 2001; 16: 779-784.
3. Raik BL, Miller FG, Fins JJ,. Screening and cognitive impairment: Ethics of forgoing mammography in older women. J Am Geriatr Soc 2004; 52: 440-444.
4. Brookmeyer R, Corrada MM, Curriero FC, et al. Survival following a diagnosis of Alzheimer disease. Arch Neurol 2002; 59: 1764-1767.
5. Waring SC, Doody RS, Pavlik VN, et al. Survival among patients with dementia from a large multi-ethnic population. Alzheimer Dis Assoc Disord 2005; 19: 178-183.
6. Mehta KM, Fung KZ, Kistler CE, et al. Impact of cognitive impairment on screening mammography use in older US women. Am J Public Health 2010; 100: 1917-1923.
7. Walter LC, Lindquist K, Nugent S, et al. Impact of age and comorbidity on colorectal cancer screening among older veterans. Ann Intern Med 2009; 150: 465-473.
8. Schwartz LM, Woloshin S, Fowler FJ Jr., et al. Enthusiasm for cancer screening in the United States. JAMA 2004; 291: 71-78.
9. Lewis CL, Couper MP, Levin CA, et al. Plans to stop cancer screening tests among adults who recently considered screening. J Gen Intern Med 2010; 25: 859-864.
10. Torke AM, Schwartz PH, Holtz LR, et al. Older adults and forgoing cancer screening: "I think it would be strange." JAMA Intern Med 2013; 173: 526-531.
11. Lewis CL, Kistler CE, Amick HR, et al. Older adults' attitudes about continuing cancer screening later in life: A pilot study interviewing residents of two continuing care communities. BMC Geriatr 2006; 6: 10.
12. Sima CS, Panageas KS, Schrag D,. Cancer screening among patients with advanced cancer. JAMA 2010; 304: 1584-1591.
13. Strauss AC, Corbin J,. Basics of Qualitative Research: Techniques and Procedures for Developing Grounded Theory, 2nd Ed. Thousand Oaks, CA: Sage, 1998.
14. Lindloff TR, Taylor BC,. Qualitative Communication Research Methods, 2nd Ed. Thousand Oaks, CA: Sage, 2002.
15. Walter LC, Lewis CL,. Maximizing informed cancer screening decisions. Arch Intern Med 2007; 167: 2027-2028.
16. Walter LC, Covinsky KE,. Cancer screening in elderly patients: A framework for individualized decision making. JAMA 2001; 285: 2750-2756.
17. Choosing Wisely, 2012 [on-line]. Available at http://www.abimfoundation. org/Initiatives/Choosing-Wisely.aspx Accessed December 21, 2012.
18. Buchanan A, Brock DW,. Deciding for others. Milbank Q 1986; 64: 17-94.
19. Emanuel EJ, Emanuel LL,. Proxy decision making for incompetent patients. An ethical and empirical analysis. JAMA 1992; 267: 2067-2071.
20. Anthony-Bergstone CR, Zarit SH, Gatz M,. Symptoms of psychological distress among caregivers of dementia patients. Psychol Aging 1988; 3: 245-248.
21. Diwan S, Hougham GW, Sachs GA,. Strain experienced by caregivers of dementia patients receiving palliative care: Findings from the Palliative Excellence in Alzheimer Care Efforts (PEACE) Program. J Palliat Med 2004; 7: 797-807.
22. Torke AM, Simmerling M, Siegler M, et al. Rethinking surrogate decision-making: Evidence from a qualitative study of physicians. J Clin Ethics 2008; 19: 110-119.