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Volumn 94, Issue , 2013, Pages 56-62

Prioritizing treatment of rare diseases: A survey of preferences ofNorwegian doctors

Author keywords

Doctor preferences; Norway; Orphan drugs; Priority setting; Rare diseases; Societal preferences

Indexed keywords

DISEASE PREVALENCE; DISEASE TREATMENT; DRUG; HEALTH WORKER; POLICY MAKING;

EID: 84881344116     PISSN: 02779536     EISSN: 18735347     Source Type: Journal    
DOI: 10.1016/j.socscimed.2013.06.019     Document Type: Article
Times cited : (31)

References (19)
  • 1
    • 28444492985 scopus 로고    scopus 로고
    • "Saying no is no easy matter" a qualitative study of competing concerns in rationing decisions in general practice
    • Carlsen B., Norheim O.F. "Saying no is no easy matter" a qualitative study of competing concerns in rationing decisions in general practice. BMC Health Services Research 2005, 5(70).
    • (2005) BMC Health Services Research , vol.5 , Issue.70
    • Carlsen, B.1    Norheim, O.F.2
  • 2
    • 0032699931 scopus 로고    scopus 로고
    • Public views on health care rationing: a group discussion study
    • Cookson R., Dolan P. Public views on health care rationing: a group discussion study. Health Policy 1999, 49:63-74.
    • (1999) Health Policy , vol.49 , pp. 63-74
    • Cookson, R.1    Dolan, P.2
  • 3
    • 77957171034 scopus 로고    scopus 로고
    • Societal views on orphan drugs: cross sectional survey of Norwegians aged 40 to 67
    • Desser A.S., Gyrd-Hansen D., Olsen J.A., Grepperud S., et al. Societal views on orphan drugs: cross sectional survey of Norwegians aged 40 to 67. British Medical Journal 2010, 341:c4715.
    • (2010) British Medical Journal , vol.341
    • Desser, A.S.1    Gyrd-Hansen, D.2    Olsen, J.A.3    Grepperud, S.4
  • 4
    • 84881340759 scopus 로고    scopus 로고
    • Eliciting preferences for rare diseases: Do respondents react to opportunity costs or framing issues?
    • University of Oslo. (submitted for publication)
    • Desser, A. S., Olsen, J. A., & Grepperud, S. Eliciting preferences for rare diseases: Do respondents react to opportunity costs or framing issues? University of Oslo. (submitted for publication).
    • Desser, A.S.1    Olsen, J.A.2    Grepperud, S.3
  • 6
    • 84881349517 scopus 로고    scopus 로고
    • EC No.141/2000, Retrieved from:
    • EC No.141/2000 Regulation on orphan medicinal products 2000, Retrieved from:. http://europa.eu/legislation_summaries/internal_market/single_market_for_goods/pharmaceutical_and_cosmetic_products/l21167_en.htm.
    • (2000) Regulation on orphan medicinal products
  • 7
    • 48549087399 scopus 로고    scopus 로고
    • HOD (Norwegian Ministry of Health and Care Services), Retrieved from:
    • HOD (Norwegian Ministry of Health and Care Services) The patients' rights act 1999, Retrieved from:. http://www.ub.uio.no/ujur/ulovdata/lov-19990702-063-eng.pdf.
    • (1999) The patients' rights act
  • 8
    • 27744461277 scopus 로고    scopus 로고
    • Drugs for exceptionally rare diseases: do they deserve special status for funding?
    • Hughes D.A., Tunnage B., Yeo S.T. Drugs for exceptionally rare diseases: do they deserve special status for funding?. QJM 2005, 98:829-836.
    • (2005) QJM , vol.98 , pp. 829-836
    • Hughes, D.A.1    Tunnage, B.2    Yeo, S.T.3
  • 9
    • 0013625464 scopus 로고
    • Lønning-I, Helse- og omsorgsdepartementet, Norway, Retrieved from:
    • Lønning-I NOU 1987:23 Retningslinjer for prioriteringer innen norsk helsetjeneste 1987, Helse- og omsorgsdepartementet, Norway, Retrieved from:. http://www.regjeringen.no/nb/dep/hod/dok/nouer/1999/nou-1999-2/4/2.html%3fid%3d350994.
    • (1987) NOU 1987:23 Retningslinjer for prioriteringer innen norsk helsetjeneste
  • 10
    • 84881334139 scopus 로고    scopus 로고
    • Lønning-, Helse- og omsorgsdepartementet, Norway, Retrieved from:
    • Lønning- NOU 1997:18 Prioritering på ny 1997, Helse- og omsorgsdepartementet, Norway, Retrieved from:. http://www.regjeringen.no/nb/dep/hod/dok/nouer/1997/nou-1997-18.html%3fid%3d140956.
    • (1997) NOU 1997:18 Prioritering på ny
  • 11
    • 27644486590 scopus 로고    scopus 로고
    • Orphan drugs and the NHS: should we value rarity?
    • McCabe C., Claxton K., Tsuchiya A. Orphan drugs and the NHS: should we value rarity?. British Medical Journal 2005, 331:1016-1019.
    • (2005) British Medical Journal , vol.331 , pp. 1016-1019
    • McCabe, C.1    Claxton, K.2    Tsuchiya, A.3
  • 12
    • 33646240617 scopus 로고    scopus 로고
    • Orphan drugs revisited
    • discussion 350-1
    • McCabe C., Tsuchiya A., Claxton K., Raftery J. Orphan drugs revisited. QJM 2006, 99:341-345. discussion 350-1.
    • (2006) QJM , vol.99 , pp. 341-345
    • McCabe, C.1    Tsuchiya, A.2    Claxton, K.3    Raftery, J.4
  • 13
    • 79960136544 scopus 로고    scopus 로고
    • Adiscrete choice experiment investigating preferences for funding drugs used to treat orphan diseases: an exploratory study
    • Mentzakis E., Stefanowska P., Hurley J. Adiscrete choice experiment investigating preferences for funding drugs used to treat orphan diseases: an exploratory study. Health Economics, Policy and Law 2011, 6:405-433.
    • (2011) Health Economics, Policy and Law , vol.6 , pp. 405-433
    • Mentzakis, E.1    Stefanowska, P.2    Hurley, J.3
  • 15
    • 0028789137 scopus 로고
    • Maximizing health benefits vs egalitarianism: an Australian survey of health issues
    • Nord E., Richardson J., Street A., Kuhse H., et al. Maximizing health benefits vs egalitarianism: an Australian survey of health issues. Social Science & Medicine 1995, 41:1429-1437.
    • (1995) Social Science & Medicine , vol.41 , pp. 1429-1437
    • Nord, E.1    Richardson, J.2    Street, A.3    Kuhse, H.4
  • 16
    • 0025688231 scopus 로고
    • EuroQol-a new facility for the measurement of health-related quality of life
    • The EuroQol Group
    • The EuroQol Group EuroQol-a new facility for the measurement of health-related quality of life. Health Policy 1990, 16(3):199-208.
    • (1990) Health Policy , vol.16 , Issue.3 , pp. 199-208
  • 17
    • 28444471711 scopus 로고    scopus 로고
    • The Norwegian Medical Association, Retrieved from:
    • The Norwegian Medical Association Etiske regler for leger (Ethical guidelines for physicians) 2002, Retrieved from:. http://legeforeningen.no/Om-Legeforeningen/Organisasjonen/Rad-og-utvalg/Organisasjonspolitiske-utvalg/etikk/etiske-regler-for-leger/.
    • (2002) Etiske regler for leger (Ethical guidelines for physicians)
  • 18
    • 84965454805 scopus 로고
    • Choice under conflict: the dynamics of deferred decision
    • Tversky A., Shafir E. Choice under conflict: the dynamics of deferred decision. Psychological Science 1992, 3(6):358-361.
    • (1992) Psychological Science , vol.3 , Issue.6 , pp. 358-361
    • Tversky, A.1    Shafir, E.2
  • 19
    • 13144272331 scopus 로고
    • US Food and Drug Administration, Retrieved from:
    • US Food and Drug Administration Orphan drug act (as amended) 1983, Retrieved from:. http://www.fda.gov/orpshan/oda.htm.
    • (1983) Orphan drug act (as amended)


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.