The person with a spinal cord injury. an evolving prototype for life care planning.

Physical Medicine and Rehabilitation Clinics of North America

Volumn 24, Issue 3, 2013, Pages 419-444

  Stiens, Steven A ^a,b   Fawber, Heidi L ^c,d   Yuhas, Steven A ^d,e  

^a UNIVERSITY OF WASHINGTON   (United States)

^b UNIVERSITY OF WASHINGTON MEDICAL CENTER   (United States)

^c Rehabilitation Consultant   (United States)

^d International Association of Rehabilitation Professionals   (United States)

^e Directions Group Inc   (United States)

Author keywords

Cost of care; Life care plan; Outcome; Patient centered care; Prevention; Problem list; Spinal cord injury

Indexed keywords

DAILY LIFE ACTIVITY; EMPLOYMENT STATUS; FUNCTIONAL ELECTRICAL STIMULATION; HEALTH CARE NEED; HOSPITAL PATIENT; HUMAN; LIFE CARE PLANNING; MEDICAL RECORD REVIEW; MOTOR DYSFUNCTION; NUTRITION; OCCUPATIONAL THERAPY; ORTHOSIS; OUTPATIENT; PATHOGENESIS; PATIENT ASSESSMENT; PATIENT CARE; PHYSICAL CAPACITY; PLANNING; PRIORITY JOURNAL; REHABILITATION CARE; REVIEW; SELF CARE; SENSORY DYSFUNCTION; SPINAL CORD INJURY; TASK PERFORMANCE; TRAFFIC AND TRANSPORT; TREATMENT PLANNING; VOCATIONAL REHABILITATION; WHEELCHAIR;

COST OF CARE; LIFE CARE PLAN; OUTCOME; PATIENT-CENTERED CARE; PREVENTION; PROBLEM LIST; SPINAL CORD INJURY;

ACTIVITIES OF DAILY LIVING; ARCHITECTURAL ACCESSIBILITY; CASE MANAGEMENT; COUNSELING; GOALS; HOME CARE SERVICES; HUMANS; NEEDS ASSESSMENT; PATIENT NAVIGATION; SELF-HELP DEVICES; SPINAL CORD INJURIES; TRANSPORTATION;

EID: 84881254070     PISSN: 10479651     EISSN: 15581381     Source Type: Journal    
DOI: 10.1016/j.pmr.2013.03.006     Document Type: Review

References (56)

1. International Academy of Life Care Planners Standards of practice. JLife Care Plan 2002, 1(1):51.
2. Marino R.J. Domains of outcomes in spinal cord injury for clinical trials to improve function. JRehabil Res Dev 2007, 44(1):113-122.
3. Stripling T., Cohen C.J., Nalle K.S. Consortium for spinal cord medicine clinical practice guidelines. Spinal cord medicine: principles and practice 2010, 1080-1085. Demos Medical Publishing, New York. 2nd edition. V.W. Lin, C.M. Bono, D.D. Cardenas (Eds.).
4. Lin V.W., Bono C., Cardenas D., et al. Spinal cord medicine: principles and practice 2010, Demos Medical Publishing, New York. 2nd edition.
5. Campagnolo D.I., Kirshblum S., Nash M.S., et al. Spinal cord medicine 2011, Lippincott Williams & Wilkins, Philadelphia. 2nd edition.
6. Kirshblum S.C., Waring W., Biering-Sorensen F., et al. Reference for the 2011 revision of the International Standards for Neurological Classification of Spinal Cord Injury. JSpinal Cord Med 2011, 34(6):547-554.
7. Academy of Spinal Cord Injury Professionals. Inc. Available at:. Accessed September 1, 2012. http://www.academyscipro.org/.
8. Blackwell T.L., Krause J.S., Winkler T., et al. Spinal cord injury desk reference: guidelines for life care planning and case management 2001, Demos Medical Publishing, New York.
9. New Mobility: The magazine for active wheelchair users. Available at:. Accessed September 1, 2012. http://www.newmobility.com/.
10. Frankel H.L., Hancock D.O., Hyslop G., et al. The value of postural reduction in the initial management of closed injuries of the spine with paraplegia and tetraplegia. Paraplegia 1969, 7(3):179-192.
11. Paralyzed Veterans of America. Consortium for Spinal Cord Medicine. Available at:. Accessed September 1, 2012. http://www.pva.org/site/c.ajIRK9NJLcJ2E/b.6431479/k.3D9E/Consortium_for_Spinal_Cord_Medicine.htm.
12. Kirshblum S.C., Priebe M.M., Ho C.H., et al. Spinal cord injury medicine. 3. Rehabilitation phase after acute spinal cord injury. Arch Phys Med Rehabil 2007, 88(Suppl 1):S62-S70.
13. Stiens S.A., O'Young B., Young M.A. Person-centered rehabilitation: interdisciplinary intervention to enhance patient enablement. Physical medicine and rehabilitation secrets 2008, 118-125. Hanley & Belfus, Philadelphia. 3rd edition. B. O'Young, M. Young, S. Stiens (Eds.).
14. Thibault-Halman G., Casha S., Singer S., et al. Acute management of nutritional demands after spinal cord injury. JNeurotrauma 2011, 28:1497-1507.
15. Groah S.L., Stiens S.A., Gittler M.S., et al. Spinal cord injury medicine 5. Preserving wellness and independence of the aging spinal cord injured: a primary care approach for the rehabilitation medicine specialist. Arch Phys Med Rehabil 2002, 83(3 Suppl 1):S82-S89. S90-8.
16. Stiens S.A., Biener Bergman S., Goetz L.L. Neurogenic bowel dysfunction after spinal cord injury: clinical evaluation and rehabilitation management. Arch Phys Med Rehabil 1997, 78(Suppl 3):S86-S102.
17. Pardee C., Bricker D., Rundquist J., et al. Characteristics of neurogenic bowel in spinal cord injury and perceived quality of life. Rehabil Nurs 2012, 37(3):128-135.
18. Sadowski C.L., McDonald J.W. Activity-based restorative therapies: concepts and applications in spinal cord injury-related neurorehabilitation. Dev Disabil Res Rev 2009, 15(2):112-116.
19. Edgerton R.V., Harkema S.J., Roy R.R. Retraining the human spinal cord: exercise interventions to enhance recovery after spinal cord injury. Spinal cord medicine: principles and practice 2010, 939-950. Demos Medical Publishing, New York. 2nd edition. V.W. Lin, C.M. Bono, D.D. Cardenas (Eds.).
20. Stiens S.A., Shamberg S., Shamberg A. Environmental barriers: solutions for participation, collaboration, and togetherness. Physical medicine and rehabilitation secrets 2008, 76-86. Hanley & Belfus, Philadelphia. 3rd edition. B. O'Young, M. Young, S. Stiens (Eds.).
21. Hammell K.W. Exploring quality of life following high spinal cord injury: a review and critique. Spinal Cord 2004, 42(9):491-502.
22. Manns P.J., Chad K.E. Components of quality of life for persons with a quadriplegic and paraplegic spinal cord injury. Qual Health Res 2001, 11(6):795-811.
23. Boswell B.B., Dawson M., Heininger E. Quality of life as defined by adults with spinal cord injuries. JRehabil 1998, 64:27-32.
24. Kendall M.B., Ungerer G., Dorsett P. Bridging the gap: transitional rehabilitation services for people with spinal cord injury. Disabil Rehabil 2003, 25(7):1008-1015.
25. Boschen K.A., Tonack M., Gargaro J. Long-term adjustment and community reintegration following spinal cord injury. Int J Rehabil Res 2003, 26(3):157-164.
26. Krause J.S., Anson C.A. Adjustment after spinal cord injury: relationship to participation in employment or educational activities. Rehabil Couns Bull 1997, 40(3):202-214.
27. Frieden L., Winnegar A.J. Opportunities for research to improve employment for people with spinal cord injuries. Spinal Cord 2012, 50(3):379-381.
28. Van Velzen J.M., de Groot S., Post M.W., et al. Return to work after spinal cord injury: is it related to wheelchair capacity at discharge from clinical rehabilitation?. Am J Phys Med Rehabil 2009, 88(1):47-56.
29. Kennedy Krieger Institute. Activity-based restorative therapies: concepts and applications in spinal cord injury-related neurorehabilitation. Available at:. Accessed September 1, 2012. http://www.kennedykrieger.org/research-training/biblio/activity-based-restorative-therapies-concepts-and-applications-spinal-cord-.
30. Pushing boundaries. Exercise, health and hope for people with paralysis. Available at:. Accessed September 1, 2012. http://www.pushing-boundaries.com/.
31. Beyond Therapy. A Shepherd Center Program. Available at:. Accessed September 1, 2012. http://www.beyond-therapy.org/.
32. Hocoma. Available at:. Accessed September 1, 2012. http://www.hocoma.com/.
33. Second Step. Helping people walk again. Available at:. Accessed September 1, 2012. http://www.secondstep.com/.
34. WAVE Vibration Exercise Machines. Available at:. Accessed September 1, 2012. http://www.wavexercise.com/index.html.
35. Bioness. Foot drop, drop foot, hand treatment, hand rehabilitation. Available at:. Accessed September 1, 2012. http://www.bioness.com.
36. Restorative Therapies. Holistic techniques that bring you back to balance. Available at:. Accessed September 1, 2012. http://www.restorativetherapies.com/.
37. Deutsch P.M., Allison L., Cimino-Ferguson S. Life care planning assessments and their impact on quality of life in spinal cord injury. Top Spinal Cord Inj Rehabil 2005, 10(4):135-145.
38. McCollom P. Applying life care planning principles in acute situations. Case Manager 2006, 17(5):66-68.
39. Priebe M.M., Chiodo A.E., Scelza W.M., et al. Spinal cord injury medicine. 6. Economic and societal issues in spinal cord injury. Arch Phys Med Rehabil 2007, 88(3 Suppl 1):S84-S88.
40. Life care planning and case management handbook 2004, CRC Press, Boca Raton (FL). 2nd edition. R.O. Weed (Ed.).
41. AbleNet. Assistive technology products and specialized curriculum for persons with disabilities. Available at:. Accessed September 1, 2012. http://www.ablenetinc.com/.
42. Rigby P., Ryan S., Joos S., et al. Impact of electronic aids to daily living on the lives of persons with cervical spinal cord injuries. Assist Technol 2005, 17(2):89-97.
43. Brandt A., Samuelsson K., Töytäri O., et al. Activity and participation, quality of life and user satisfaction outcomes of environmental control systems and smart home technology: a systematic review. Disabil Rehabil Assist Technol 2011, 6(3):189-206.
44. Downey G. What is a rehab engineer and why do you need one?. RehabPro 2007, 15(1):33-38.
45. Rutherford Owen T., Marini I. Attendant care and spinal cord injury: usage patterns and perspectives for those with life care plans. JLife Care Plan 2012, 10(4):33-43.
46. Feinberg L, Reinhard SC, Houser A, etal. AARP Public Policy Institute. Valuing the invaluable: 2011 update. The growing contributions and costs of family caregiving. Available at:. Accessed December 30, 2012. http://assets.aarp.org/rgcenter/ppi/ltc/i51-caregiving.pdf.
47. Harrell T.W., Krause J.S. Personal assistance services in patients with SCI: modeling an appropriate level of care in a life care plan. Top Spinal Cord Inj Rehabil 2002, 7(4):38-48.
48. Rutherford Owen T., Thomas R.L. National spinal cord statistical center cost figures: a comparison to the life care planning approach. JLife Care Plan 2012, 11(2):27-34.
49. Deutch P.M., Sawyer H.W. Aguide to rehabilitation 1993, Matthew Bender, New York.
50. Life care planning and case management handbook 2010, Taylor & Francis Group, Boca Raton (FL). 3rd edition. R.O. Weed, D.E. Berens (Eds.).
51. USA TechGuide. Guide to wheelchairs and assistive technology. Available at:. Accessed September 1, 2012. http://www.usatechguide.org/.
52. Cardenas D.D., Hoffman J.M., Kirshblum S., et al. Etiology and incidence of rehospitalization after traumatic spinal cord injury: a multicenter analysis. Arch Phys Med Rehabil 2004, 85(11):1757-1763.
53. Dryden D.M., Saunders L.D., Rowe R.H., et al. Utilization of health services following spinal cord injury: a 6-year follow-up study. Spinal Cord 2004, 42(9):513-525.
54. Blackwell T.L., Weed R.O., Powers A.S. Life care planning for spinal cord injury: a resource manual for case managers 1994, Elliott and Fitzpatrick, Athens (GA).
55. Stiens S.A. Personhood, disablement, and mobility technology: personal control of development. Designing and using assistive technology: the human perspective 1998, 29-49. Paul Brookes, Baltimore (MD). D.B. Gray, L.A. Quatrano, M.L. Lieberman (Eds.).
56. Morrison S.A., Pomeranz J.L., Yu N., et al. Life care planning projections for individuals with motor incomplete spinal cord injury before and after locomotor training intervention: a case series. JNeurol Phys Ther 2012, 36(3):144-153.