The Multiple Sclerosis Intimacy and Sexuality Questionnaire - Re-validation and development of a 15-item version with a large US sample

Multiple Sclerosis Journal

Volumn 19, Issue 9, 2013, Pages 1197-1203

  Foley, Frederick W ^a,b   Zemon, Vance ^a   Campagnolo, Denise ^f   Marrie, Ruth Ann ^c   Cutter, Gary ^d   Tyry, Tuula ^e   Beier, Meghan ^a   Farrell, Eileen ^a   Vollmer, Timothy ^f   Schairer, Laura ^a  

^a YESHIVA UNIVERSITY   (United States)

^b Holy Name Medical Center   (United States)

^c UNIVERSITY OF MANITOBA   (Canada)

^d UNIVERSITY OF ALABAMA AT BIRMINGHAM   (United States)

^e BARROW NEUROLOGICAL INSTITUTE   (United States)

^f University of Colorado Hospital   (United States)

Author keywords

measurement; Multiple sclerosis; self report; sexual dysfunction; validity

Indexed keywords

ADULT; ARTICLE; CONCURRENT VALIDITY; CONSTRUCT VALIDITY; CONTROLLED STUDY; DISEASE REGISTRY; DISTRESS SYNDROME; EXPANDED DISABILITY STATUS SCALE; FEMALE; HUMAN; INTIMACY; MAJOR CLINICAL STUDY; MALE; MULTIPLE SCLEROSIS; MULTIPLE SCLEROSIS INTIMACY AND SEXUALITY QUESTIONNAIRE 15; MULTIPLE SCLEROSIS INTIMACY AND SEXUALITY QUESTIONNAIRE 19; QUESTIONNAIRE; RATING SCALE; RELIABILITY; SELF REPORT; SEXUAL BEHAVIOR; SEXUAL DYSFUNCTION; SHORT FORM 12; UNITED STATES; VALIDATION STUDY;

MEASUREMENT; MULTIPLE SCLEROSIS; SELF-REPORT; SEXUAL DYSFUNCTION; VALIDITY;

FEMALE; HUMANS; MALE; MIDDLE AGED; MULTIPLE SCLEROSIS; PRINCIPAL COMPONENT ANALYSIS; QUESTIONNAIRES; REPRODUCIBILITY OF RESULTS; SEXUAL DYSFUNCTION, PHYSIOLOGICAL; SEXUAL DYSFUNCTIONS, PSYCHOLOGICAL;

EID: 84881062863     PISSN: 13524585     EISSN: 14770970     Source Type: Journal    
DOI: 10.1177/1352458512471876     Document Type: Article

References (25)

1. Anderson DW, Ellenberg JH, Leventhal CM, et al. Revised estimate of the prevalence of multiple sclerosis in the United States. Ann Neurol. 1992 ; 31: 333-336
2. DuPont S. Multiple sclerosis and sexual functioning - a review. Clin Rehabil. 1995 ; 9: 135-141
3. Miller DM, Kalb RC, Daily P, et al. Counseling section. J Neurol Rehabil. 1994 ; 8: 145-150
4. Sanders AS, Foley FW, LaRocca NG, et al. The multiple sclerosis intimacy and sexuality questionnaire-19 [MSISQ-19]. Sex Disabil. 2000 ; 18: 3-26
5. Foley FW, Iverson J MS & The family. Kalb RC Scheinberg LC, ed. New York: Demos Publications ; 1992 :
6. Mattson D, Petrie M, Srivastava DK, et al. Multiple sclerosis. Sexual dysfunction and its response to medications. Arch Neurol. 1995 ; 52: 862-868
7. Valleroy ML, Kraft GH. Sexual dysfunction in multiple sclerosis. Arch Phys Med Rehabil. 1984 ; 65: 125-128
8. Barrett M Sexuality and multiple sclerosis. Toronto, Ontario: The Multiple Sclerosis Society of Canada ; 1991:
9. DeLisa JA, Miller RM, Mikulic MA, et al. Multiple sclerosis: Part II. Common functional problems and rehabilitation. Am Fam Physician. 1985 ; 32: 127-132
10. Foley FW, Dince W, Bedell JR, et al. Psychoremediation of communication skills for cognitively impaired persons with multiple sclerosis. J Neurol Rehabil. 1994 ; 8: 165-179
11. Weiss J. Multiple sclerosis: Will it come between us? Sexual concerns of clients and their partners. J Neurosci Nurs. 1992 ; 24: 190-193
12. White DM, Catanzaro ML, Kraft GH. An approach to the psychological aspects of multiple sclerosis: A coping guide for healthcare providers and families. J Neurol Rehabil. 1993 ; 7: 43-52
13. Kalb RC, La Rocca NG, Kaplan SR Multiple sclerosis: A guide for patients and their families. Scheinberg LC Holland NJ, ed. New York: Raven Press ; 1987:
14. Marrie RA, Cutter G, Tyry T, et al. Validation of the NARCOMS registry: Diagnosis. Mult Scler. 2007 ; 13: 770-775
15. Hohol MJ, Orav EJ, Weiner HL. Disease steps in multiple sclerosis: A longitudinal study comparing disease steps and EDSS to evaluate disease progression. Mult Scler. 1999 ; 5: 349-354
16. Schwartz CE, Vollmer T, Lee H. Reliability and validity of two self-report measures of impairment and disability in MS. Neurol. 1999 ; 52: 63-70
17. Christopherson JM, Moore K, Foley FW, et al. A comparison of written materials vs. materials and counselling for women with sexual dysfunction and multiple sclerosis. J Clin Nurs. 2006 ; 15: 742-750
18. Marrie RA, Goldman M. Validity of performance scales for disability assessment in multiple sclerosis. Mult Scler. 2007 ; 13: 1176-1182
19. Ware JE, Kosinski M, Turner-Bowker DM, et al How to score version 2 of the SF-12 health survey. Lincoln, RI: Quality Metric Incorporated ; 2002:
20. Minden SL, Frankel D, Hadden L, et al. The Sonya Slifka Longitudinal Multiple Sclerosis Study: Methods and sample characteristics. Mult Scler. 2006 ; 12: 24-38
21. Nortvedt MW, Riise T, Myhr K, et al. Performance of the SF-36, SF-12, and RAND-36 Summary Scales in a multiple sclerosis population. Med Care. 2000 ; 38: 1022-1028
22. D'Alisa S, Miscio G, Baudo S, et al. Depression is the main determinant of quality of life in multiple sclerosis: A classification-regression (CART) study. Disabil Rehabil. 2006 ; 28: 307-314
23. Stoll T, Kauer Y, Büchi S, et al. Prediction of depression in systemic lupus erythematosus patients using SF-36 Mental Health scores. Rheumatology. 2001 ; 40: 695-698
24. Elliott TE, Renier CM, Palcher JA. Chronic pain, depression, and quality of life: Correlations and predictive value of the SF-36. Pain Medicine. 2003 ; 4: 331-339
25. Marrie R, Horwitz R, Cutter G, et al. Comorbidity, socioeconomic status and multiple sclerosis. Mult Scler. 2008 ; 14: 1091-1098