Tensions around risks in pregnancy: A typology of women's experiences of surveillance medicine

Social Science and Medicine

Volumn 93, Issue , 2013, Pages 55-63

  Hammer, Raphaël P ^a   Burton Jeangros, Claudine ^b  

^a University of Health Sciences (HESAV)   (Switzerland)

^b UNIVERSITY OF GENEVA   (Switzerland)

Author keywords

Pregnancy; Risk; Surveillance medicine; Switzerland; Typology; Women's experiences

Indexed keywords

MEDICINE; PREGNANCY; RISK ASSESSMENT; TYPOLOGY; WOMENS HEALTH;

ADULT; ARTICLE; ATTITUDE; COPING BEHAVIOR; EXPERIENCE; FEMALE; HUMAN; MEDICAL PROCEDURES; MONITORING; PREGNANCY; RISK ASSESSMENT; SEMI STRUCTURED INTERVIEW; SWITZERLAND;

PREGNANCY; RISK; SURVEILLANCE MEDICINE; SWITZERLAND; TYPOLOGY; WOMEN'S EXPERIENCES;

ADAPTATION, PSYCHOLOGICAL; ADULT; ATTITUDE TO HEALTH; FEMALE; HUMANS; POPULATION SURVEILLANCE; PREGNANCY; PREGNANT WOMEN; PRENATAL CARE; QUALITATIVE RESEARCH; RISK ASSESSMENT; SWITZERLAND; UNCERTAINTY;

SWITZERLAND;

EID: 84880971244     PISSN: 02779536     EISSN: 18735347     Source Type: Journal    
DOI: 10.1016/j.socscimed.2013.05.033     Document Type: Article

References (58)

1. Armstrong D. The rise of surveillance medicine. Sociology of Health & Illness 1995, 17(3):393-404.
2. Armstrong E.M. Lessons in control: prenatal education in the hospital. Social Problems 2000, 47(4):583-605.
3. Armstrong E.M. Conceiving risk, bearing responsibility: Fetal alcohol syndrome and the diagnosis of moral disorder 2003, The Johns Hopkins University Press, Baltimore.
4. Aune I., Möller A. 'I want a choice, but I don't want to decide' - a qualitative study of pregnant women's experiences regarding early ultrasound risk assessment of chromosomal abnormalities. Midwifery 2012, 28(1):14-23.
5. Ballard K., Elston M.A. Medicalisation: a multi-dimensional concept. Social Theory and Health 2005, 3:228-241.
6. Barker K.K. Aship upon a stormy sea: the medicalization of pregnancy. Social Science & Medicine 1998, 47(8):1067-1076.
7. Bayrampour H., Heaman M., Duncan K.A., Tough S. Advanced maternal age and risk perception: a qualitative study. BMC Pregnancy and Childbirth 2012, 12:100.
8. Beck U. Risk society. Towards a new modernity 1992, Sage, London.
9. Bessett D. Negotiating normalization: the perils of producing pregnancy symptoms in prenatal care. Social Science & Medicine 2010, 71(2):370-377.
10. Burton-Jeangros C. Surveillance of risks in everyday life: the agency of pregnant women and its limitations. Social Theory and Health 2011, 9:419-436.
11. Burton-Jeangros C., Cavalli S., Gouilhers S., Hammer R. Between tolerable uncertainty and unacceptable risks: how health professionals and pregnant women think about the probabilities generated by prenatal screening. Health, Risk & Society 2013, 10.1080/13698575.2013.771737.
12. Cahill H.A. Male appropriation and medicalization of childbirth: an historical analysis. Journal of Advanced Nursing 2001, 33:334-342.
13. Christiaens W., van Teijlingen E. Four meanings of medicalization: childbirth as a case study. Salute E Società 2009, VIII(2):123-141.
14. Biomedicalization. Technoscience, health, and illness in the U.S 2010, Duke University Press, Durham & London. A.E. Clarke (Ed.).
15. Conrad P. Medicalization and social control. Annual Review of Sociology 1992, 18:209-232.
16. Conrad P. The medicalization of society. On the transformation of human conditions into treatable disorders 2007, John Hopkins University Press, Baltimore.
17. Conrad P., Schneider J. Deviance and medicalization. From badness to sickness 1992, Temple University Press, Philadelphia, 1st ed. 1980.
18. Copelton D.A. 'Your are what you eat': nutritional norms, maternal deviance, and neutralization of women's prenatal diets. Deviant Behavior 2007, 28:467-494.
19. Davis-Floyd R.E. Birth as an American rite of passage 1992, University of California Press, Berkeley.
20. De Vries R., et al. Birth by design 2001, Routledge, New York.
21. Douglas M. Risk and blame: Essays in cultural theory 1992, Routledge, London.
22. Faris M., Alfirevic Z. Procedure-related complications of amniocentesis and chorionic villous sampling. Systematic review. Obstetrics and Gynecology 2007, 110(3):687-694.
23. Garcia E., Timmermans D., van Leeuwen E. The impact of ethical beliefs on decisions about prenatal screening tests: searching for justification. Social Science & Medicine 2008, 66:753-764.
24. Getz L., Kirkengen A. Ultrasound screening in pregnancy: advancing technology, soft markers for fetal chromosomal aberrations, and unacknowledged ethical dilemmas. Social Science & Medicine 2003, 56:2045-2057.
25. Giddens A. Modernity and self-identity in the late modern age 1991, Polity Press, Cambridge.
26. Glaser B.G., Strauss A. Discovery of grounded theory. Strategies for qualitative research 2006, Aldine Publ., Chicago, 1st ed. 1967.
27. Goffman E. Asylums: Essays on the social situation of mental patients and other inmates 1968, Anchor Books, New York.
28. Guyon L., et al. Tabagisme et grossesse: représentations sociales chez des mères québecoises. Drogues, santé et société 2007, 6(1):105-142.
29. Illich I. Limits to medicine - Medical nemesis: The expropriation of health 1976, Penguin, Harmondsworth.
30. Jones D.J. Talking and taking risks: an exploration of women's perceptions of antenatal testing in pregnancy. Health, risk and vulnerability 2008, 102-118. Routledge, New York. A. Petersen, I. Wilkinson (Eds.).
31. Kluge S. Empirically grounded construction of types and typologies in qualitative social research. Forum Qualitative Sozialforschung/Forum: Qualitative Social Research 2000, 1(1). [on-line journal]. Available at:, [2010, November, 14]. http://www.qualitative-research.net/index.php/fqs/article/view/1124/2499.
32. Kukla R. The ethics and cultural politics of reproductive risk warnings: a case study of California's proposition 65. Health, Risk & Society 2010, 12(4):323-334.
33. Lee S., Ayers S., Holden D. Risk perception of women during high risk pregnancy: a systematic review. Health, Risk & Society 2012, 14(6):511-531.
34. Lupton D. Risk 1999, Routledge, London.
35. Lupton D. Risk and the ontology of pregnant embodiment. Risk and sociocultural theory 1999, 59-85. Cambridge University Press, Cambridge. D. Lupton (Ed.).
36. Manaï D., Burton-Jeangros C., Elger B. Risques et informations dans le suivi de la grossesse: droit, éthique et pratiques sociales 2010, Stämpfli & Bruylant, Bern and Bruxelles.
37. Markens S., Browner C.H., Preloran H.M. Interrogating the dynamics between power, knowledge and pregnant bodies in amniocentesis decision making. Sociology of Health & Illness 2010, 32(1):37-56.
38. Markens S., Browner C.H., Press N. Feeding the fetus: on interrogating the notion of maternal-fetal conflict. Feminist Studies 1997, 23(2):351-372.
39. Markens S., Browner C.H., Press N. 'Because of the risks': how US pregnant women account for refusing prenatal screening. Social Science & Medicine 1999, 49(3):359-369.
40. Massé R. Le risque en santé publique, pistes pour un élargissement de la théorie sociale. Sociologie et Sociétés 2007, 39(1):13-27.
41. Morgan K. Contested bodies, contested knowledges: women, health, and the politics of medicalization. The politics of women's health: Exploring agency and autonomy 1998, 83-121. Temple University Press, Philadelphia. S. Sherwin (Ed.).
42. Oakley A. The captured womb: A history of the medical care of pregnant women 1984, Basil Blackwell, Oxford.
43. Petersen A., Wilkinson I. Health, risk and vulnerability 2008, Routledge, New York.
44. Press N., Browner C. Why women say yes to prenatal diagnosis. Social Science & Medicine 1997, 45:979-989.
45. Rapp R. Testing women, testing the fetus. The social impact of amniocentesis in America 1999, Routledge, London.
46. Raymond N., Beer C., Glazebrook C., Kapil S. Pregnant women's attitudes towards alcohol consumption. BMC Public Health 2009, 9(175):1-8.
47. Reid B., et al. Ameta-synthesis of pregnant Women's decision-making processes with regard to antenatal screening for down syndrome. Social Science & Medicine 2009, 69:1561-1573.
48. Remennick L. The quest for the perfect baby: why do Israeli women seek prenatal genetic testing?. Sociology of Health & Illness 2006, 28(1):21-53.
49. Riessman C.K. Women and medicalization: a new perspective. Inventing women 1992, 123-144. Open University, Cambridge. G. Kirkup, L. Smith Keller (Eds.).
50. Riska E. Gender and medicalization and biomedicalization theories. Biomedicalization. Technoscience, health, and illness in the U.S 2010, 147-170. Duke University Press, Durham & London. A.E. Clarke (Ed.).
51. Root R., Browner C.H. Practices of the pregnant self: compliance with and resistance to prenatal norms. Culture, Medicine and Psychiatry 2001, 25(2):195-223.
52. Rothman B.K. The tentative pregnancy 1988, Pandora, London.
53. Schneider J., Conrad P. Medical and sociological typologies: the case of epilepsy. Social Science & Medicine 1981, 15A:211-219.
54. Searle J. Fearing the worst - why do pregnant women feel 'at risk'?. The Australian & New Zealand Journal of Obstetrics & Gynaecology 1996, 36(3):279-286.
55. Thomas H. Pregnancy, illness and the concept of career. Sociology of Health & Illness 2003, 25(5):383-407.
56. Williams S.J., Calnan M. Modern medicine and the lay populace: theoretical perspectives and Methodological issues. Modern medicine. Lay perspectives and experiences 1996, 2-25. UCL Press, London. S.J. Williams, M. Calnan (Eds.).
57. Williams C., et al. Women as moral pioneers? Experiences of first trimester antenatal screening. Social Science & Medicine 2005, 61:1983-1992.
58. Zola I.K. Medicine as an institution of social control. Sociological Review 1972, 4:487-504.