The life in sight application study (LISA): Design of a randomized controlled trial to assess the role of an assisted structured reflection on life events and ultimate life goals to improve quality of life of cancer patients

BMC Cancer

Volumn 13, Issue , 2013, Pages

  Kruizinga, Renske ^a   Scherer Rath, Michael ^b   Schilderman, Johannes B A M ^b   Sprangers, Mirjam A G ^a   Van Laarhoven, Hanneke W M ^a  

^a UNIVERSITY OF AMSTERDAM   (Netherlands)

^b RADBOUD UNIVERSITY NIJMEGEN   (Netherlands)

Author keywords

Cancer patients; Contingency; Empowerment; Meaning; Palliative care; Quality of life; Spiritual care; Spiritual wellbeing; Ultimate life goals

Indexed keywords

ADULT; ADVANCED CANCER; ANXIETY; ARTICLE; ASSISTED STRUCTURED REFLECTION; CANCER PATIENT; CONSULTATION; CONTROLLED STUDY; DEPRESSION; EMPOWERMENT; HEALTH CARE UTILIZATION; HUMAN; LIFE EVENT; LIFE IN SIGHT APPLICATION STUDY; LIFE SATISFACTION; MAJOR CLINICAL STUDY; MOTIVATION; QUALITY OF LIFE; RANDOMIZED CONTROLLED TRIAL; SPIRITUAL CARE; STRUCTURED INTERVIEW; STUDY DESIGN; WELLBEING; METHODOLOGY; NEOPLASM; ONLINE SYSTEM; PSYCHOLOGY; RELIGION;

HUMANS; NEOPLASMS; ONLINE SYSTEMS; QUALITY OF LIFE; RESEARCH DESIGN; SPIRITUALITY;

EID: 84880942381     PISSN: None     EISSN: 14712407     Source Type: Journal    
DOI: 10.1186/1471-2407-13-360     Document Type: Article

References (55)

1. Holland JC, Bultz BD. The NCCN guideline for distress management: a case for making distress the sixth vital sign. J Natl Compr Canc Netw 2007, 5:3-7.
2. Leget C, Staps T, van de Geer J, Mur-Anoldi C, Wulp M, Jochemsen H. Guideline spiritual care. [http://www.oncoline.nl/spiritual-care].
3. McCue JD. The naturalness of dying. JAMA 1995, 273:1039-1043. 10.1001/jama.1995.03520370081041, 7897788.
4. Puchalski C, Ferrell B, Virani R, Otis-Green S, Baird P, Bull J, et al. Improving the quality of spiritual care as a dimension of palliative care: the report of the Consensus Conference. J Palliat Med 2009, 12:885-904. 10.1089/jpm.2009.0142, 19807235.
5. World Health Organisation definition palliative care. [http://www.who.int/cancer/palliative/definition/en/].
6. True G, Phipps EJ, Braitman LE, Harralson T, Harris D, Tester W. Treatment preferences and advance care planning at end of life: the role of ethnicity and spiritual coping in cancer patients. Ann Behav Med 2005, 30:174-179. 10.1207/s15324796abm3002_10, 16173914.
7. Gall TL. Relationship with God and the quality of life of prostate cancer survivors. Qual Life Res 2004, 13:1357-1368.
8. Balboni TA, Vanderwerker LC, Block SD, Paulk ME, Lathan CS, Peteet JR, et al. Religiousness and spiritual support among advanced cancer patients and associations with end-of-life treatment preferences and quality of life. J Clin Oncol 2007, 25:555-560. 10.1200/JCO.2006.07.9046, 2515558, 17290065.
9. Pargament KI, Koenig HG, Perez LM. The many methods of religious coping: development and initial validation of the RCOPE. J Clin Psychol 2000, 56:519-543. 10.1002/(SICI)1097-4679(200004)56:4<519::AID-JCLP6>3.0.CO;2-1, 10775045.
10. Vachon ML. Meaning, spirituality, and wellness in cancer survivors. Semin Oncol Nurs 2008, 24:218-225. 10.1016/j.soncn.2008.05.010, 18687268.
11. Visser A, Garssen B, Vingerhoets A. Spirituality and well-being in cancer patients: a review. Psycho-Oncology 2010, 19:565-572.
12. Holzinger M. Kontingenz in der Gegenwartsgesellschaft. Dimensionen eines Leittbegriffs moderner Sozialtheorie 2007, Transcript Verlag: Bielefeld.
13. Keupp H. Identitätskonstruktionen. Das Patchwork der Identitäten in der Spätmoderne 2006, Hamburg: Rowohlt Taschenbuch Verlag, Ahbe T, Gmür W, Höfer R, Mitzscherlich B, Kraus W, Straus F.
14. Yang W, Staps T, Hijmans E. Existential crisis and the awareness of dying: the role of meaning and spirituality. Omega (Westport ) 2010, 61:53-69.
15. Scherer-Rath M, Van der Ven JA, Felling A. Images of death as perspectives in a life crisis. J Empirical Theology 2001, 14:5-26.
16. Scherer-Rath M, Sterkens C, van der Meer J. Pastorale zorg: kritisch pastoraat voor het leven van alledag. Kerk aan de stadsrand 2004, 87-106. Budel: Damon.
17. Ganzevoort RR, Bouwer J, Schweitzer F. Life story methods and care for the elderly. An empirical research project in practical theology 2007, 140-151. Dreaming the land: Theologies of Resistance and Hope.
18. Liebau E, Zirfas J, von Engelhardt M. Drama der Moderne. Kontingenz und Tragik im Zeitalter der Freiheit 2010, Transcript Verlag: Bielefeld.
19. Ricoeur P. Zufall und Vernunft in der Geschichte 1986, Tübingen: Verlag.
20. Straub J. Telling stories, Making History: Toward a Narrative Psychology of the Historical Construction of Meaning. Narration,identity,and historical consciousness 2005, Oxford/New York: Berghahn Books.
21. Schwemmer O. Das Neue und das Andere. Zum Verhältnis von Kontingenz und Kreativität. Der Mensch - ein kreatives Wesen? Kunst - Technik - Innovation 2008, 183-204. Darmstadt: WBG Wissenschaftliche Buchgesellschaft, Schmidinger H, Semak C.
22. Deci E, Ryan R. The 'what' an 'why' of goal pursuits: human needs ans the self.determination of behavior. Psychological Inquiry 2000, 11:227-268.
23. Van den Brand JAM, Hermans CAM, Scherer-Rath M, Verschuren PJM. An instrument for reconstructing interpretation of life stories. Religious stories we live by. Narrative approaches in theology and religious studies 2013, 104-110. Brill: Leiden, Ganzevoort RR.
24. Scherer-Rath M. Experience of contingency and congruence of interpretation of life-events in clinical psychiatric settings. J Empirical Theology 2012, 25:1-26.
25. Emmons RA. Abstract versus concrete goals: personal striving level, physical illness, and psychological well-being. J Pers Soc Psychol 1992, 62:292-300.
26. Frijda NH. The laws of emotion 2007, London: Erlbaum.
27. Tillich P. Chrisitanity and the encounter of world religions 1963, New York: Columbia University Press.
28. Dijkstra J. Gespreksvoering bij geestelijke verzorging. Een methodische ondersteuning om betekenisvolle gespreksvoering te voeren 2007, Nelissen: Soest.
29. van Schrojenstein Lantman R. Levensverhalen in het ziekteproces. Over geestelijke verzorging en interdisciplinaire samenwerking 2007, Kavanah: Dwingelo.
30. Morgenthaler C. Seelsorge 2009, Gütersloh: Gütersloher Verlagshaus.
31. Steinhauser KE, Alexander SC, Byock IR, George LK, Olsen MK, Tulsky JA. Do preparation and life completion discussions improve functioning and quality of life in seriously ill patients? Pilot randomized control trial. J Palliat Med 2008, 11:1234-1240. 10.1089/jpm.2008.0078, 19021487.
32. Steinhauser KE, Alexander SC, Byock IR, George LK, Tulsky JA. Seriously ill patients' discussions of preparation and life completion: an intervention to assist with transition at the end of life. Palliat Support Care 2009, 7:393-404. 10.1017/S147895150999040X, 19939302.
33. Ando M, Morita T, Akechi T, Okamoto T. Efficacy of short-term life-review interviews on the spiritual well-being of terminally ill cancer patients. J Pain Symptom Manage 2010, 39:993-1002. 10.1016/j.jpainsymman.2009.11.320, 20538183.
34. Ando M, Morita T, Okamoto T, Ninosaka Y. One-week Short-Term Life Review interview can improve spiritual well-being of terminally ill cancer patients. Psychooncology 2008, 17:885-890. 10.1002/pon.1299, 18050243.
35. Surbone A, Baider L. The spiritual dimension of cancer care. Crit Rev Oncol Hematol 2010, 73:228-235. 10.1016/j.critrevonc.2009.03.011, 19406661.
36. Strasser S. Das Gemüt: Grundgedanken zu einer phänomenologischen Philosophie und Theorie des menschlichen Gefühlslebens 1956, Freiburg: Herder, 3483417, 23022481.
37. Reker GT. Manual of Life Attitude Profile-Revisited (SOMP-R) 1992, Petersborough.
38. Shin DW, Choi JE, Miyashita M, Choi JY, Kang J, Baik YJ, et al. Cross-cultural application of the Korean version of the European Organization for Research and Treatment of Cancer Quality of Life Questionnaire-Core 15-Palliative Care. J Pain Symptom Manage 2011, 41:478-484. 10.1016/j.jpainsymman.2010.05.009, 21145697.
39. Kaasa S, Loge JH. Quality of life in palliative care: principles and practice. Palliat Med 2003, 17:11-20. 10.1191/0269216303pm662ra, 12597461.
40. Jordhoy MS, Fayers P, Loge JH, Ahlner-Elmqvist M, Kaasa S. Quality of life in palliative cancer care: results from a cluster randomized trial. J Clin Oncol 2001, 19:3884-3894.
41. Stromgren AS, Goldschmidt D, Groenvold M, Petersen MA, Jensen PT, Pedersen L, et al. Self-assessment in cancer patients referred to palliative care: a study of feasibility and symptom epidemiology. Cancer 2002, 94:512-520. 10.1002/cncr.10222, 11900236.
42. Brady MJ, Peterman AH, Fitchett G, Mo M, Cella D. A case for including spirituality in quality of life measurement in oncology. Psychooncology 1999, 8:417-428. 10.1002/(SICI)1099-1611(199909/10)8:5<417::AID-PON398>3.0.CO;2-4, 10559801.
43. Meezenbroek EJ, Garssen B, Van den Berg M, Tuytel G, Van DD, Visser A, et al. Measuring spirituality as a universal human experience: development of the Spiritual Attitude and Involvement List (SAIL). J Psychosoc Oncol 2012, 30:141-167. 10.1080/07347332.2011.651258, 22416953.
44. Peterman AH, Fitchett G, Brady MJ, Hernandez L, Cella D. Measuring spiritual well-being in people with cancer: the functional assessment of chronic illness therapy-Spiritual Well-being Scale (FACIT-Sp). Ann Behav Med 2002, 24:49-58. 10.1207/S15324796ABM2401_06, 12008794.
45. Kvåle K, Bondevik M. What is important for patient centred care? A qualitative study about the perceptions of patients with cancer. Scandinavian J Caring Sci 2008, 22:582-589.
46. Pearlin LI, Schooler C. The structure of coping. J Health Soc Behav 1978, 19:2-21. 10.2307/2136319, 649936.
47. Pearlin LI, Lieberman MA, Menaghan EG, Mullan JT. The stress process. J Health Soc Behav 1981, 22:337-356. 10.2307/2136676, 7320473.
48. Turner RJ, Noh S. Physical disability and depression: a longitudinal analysis. J Health Soc Behav 1988, 29:23-37. 10.2307/2137178, 2966841.
49. Diener E, Emmons RA, Larsen RJ, Griffin S. The satisfaction with life scale. J Pers Assess 1985, 49:71-75. 10.1207/s15327752jpa4901_13, 16367493.
50. Spinhoven P, Ormel J, Sloekers PP, Kempen GI, Speckens AE, Van Hemert AM. A validation study of the Hospital Anxiety and Depression Scale (HADS) in different groups of Dutch subjects. Psychol Med 1997, 27:363-370. 10.1017/S0033291796004382, 9089829.
51. van Roijen L. Hakkaart. Manual Trimbos/iMTA questionnaire for costs associated with psychiatric illness 2002, Rotterdam: Institute for Medical Technology Assessment.
52. Zaccaria F. Participation and Beliefs in Popular Religiosity: An Empirical-Theological Exploration Among Italian Catholics 2009, Leiden.
53. Higginson S, Mansell W. What is the mechanism of psychological change? A qualitative analysis of six individuals who experienced personal change and recovery. Psychol Psychother 2008, 81:309-328. 10.1348/147608308X320125, 18588749.
54. Lloyd-Williams M, Cobb M, O'Connor C, Dunn L, Shiels C. A pilot randomised controlled trial to reduce suffering and emotional distress in patients with advanced cancer. J Affect Disord 2012,
55. Pols J. The heart of the matter. About good nursing and telecare. Health Care Anal 2010, 18:374-388. 10.1007/s10728-009-0140-1, 2970812, 20063198.