-
1
-
-
77955628265
-
Offering individual genetic research results: Context matters
-
Beskow LM, Burke W. 2010. Offering individual genetic research results: Context matters. Sci Transl Med 2:3-5.
-
(2010)
Sci Transl Med
, vol.2
, pp. 3-5
-
-
Beskow, L.M.1
Burke, W.2
-
2
-
-
84859608971
-
Public preferences regarding the return of individual genetic research results: Findings from a qualitative focus group study
-
Bollinger JM, Scott J, Dvoskin R, Kaufman D. 2012. Public preferences regarding the return of individual genetic research results: Findings from a qualitative focus group study. Genet Med 14:451-457.
-
(2012)
Genet Med
, vol.14
, pp. 451-457
-
-
Bollinger, J.M.1
Scott, J.2
Dvoskin, R.3
Kaufman, D.4
-
3
-
-
84880743750
-
-
Montreal, Canada: International Congress of Human Genetics
-
Daack-Hirsch S, Spore A, Williams JK, Driessnack M, Simon C. 2011. Managing incidental findings from genomic testing: A public perspective. Montreal, Canada: International Congress of Human Genetics. P 1341T.
-
(2011)
Managing incidental findings from genomic testing: A public perspective
-
-
Daack-Hirsch, S.1
Spore, A.2
Williams, J.K.3
Driessnack, M.4
Simon, C.5
-
4
-
-
84859610203
-
Return of results: Not that complicated
-
Evans JP, Rothschild BB. 2012. Return of results: Not that complicated? Genet Med 14:358-3360.
-
(2012)
Genet Med
, vol.14
, pp. 358-3360
-
-
Evans, J.P.1
Rothschild, B.B.2
-
5
-
-
79960080588
-
The Deciphering Developmental Disorders (DDD) study
-
for the DDD study
-
Firth HV, Wright CF. for the DDD study. 2011. The Deciphering Developmental Disorders (DDD) study. Dev Med Child Neurol 53:702-703.
-
(2011)
Dev Med Child Neurol
, vol.53
, pp. 702-703
-
-
Firth, H.V.1
Wright, C.F.2
-
6
-
-
84880735084
-
-
ACMG Recommendations for Reporting of Incidental Findings in Clinical Exome and Genome Sequencing. American College of Medical Genetics and Genomics. Report accessed from 8th April 2013.
-
Green RC, Berg JS, Grody WW, Kalia SS, Korf BR, Martin CL, McGuire A, Nussbaum RL, O'Daniel JM, Ormond KE, et al. 2013. ACMG Recommendations for Reporting of Incidental Findings in Clinical Exome and Genome Sequencing. American College of Medical Genetics and Genomics. Report accessed from www.acmg.net 8th April 2013.
-
(2013)
-
-
Green, R.C.1
Berg, J.S.2
Grody, W.W.3
Kalia, S.S.4
Korf, B.R.5
Martin, C.L.6
McGuire, A.7
Nussbaum, R.L.8
O'Daniel, J.M.9
Ormond, K.E.10
-
7
-
-
84870244597
-
Incidental findings in genetic research and clinical diagnostic tests: A systematic review
-
Jackson LL, Goldsmith L, O'Connor A, Skirton H. 2012. Incidental findings in genetic research and clinical diagnostic tests: A systematic review. Am J Med Genet Part A 158A:3159-3167.
-
(2012)
Am J Med Genet Part A
, vol.158 A
, pp. 3159-3167
-
-
Jackson, L.L.1
Goldsmith, L.2
O'Connor, A.3
Skirton, H.4
-
8
-
-
84859564566
-
An empirical examination of the management of return of individual research results and incidental findings in genomic biobanks
-
Johnson G, Lawrenz F, Thao M. 2012. An empirical examination of the management of return of individual research results and incidental findings in genomic biobanks. Genet Med 14:444-450.
-
(2012)
Genet Med
, vol.14
, pp. 444-450
-
-
Johnson, G.1
Lawrenz, F.2
Thao, M.3
-
9
-
-
70449698177
-
Return of "accurate" and "actionable" results: Yes
-
Knoppers BM, Laberge C. 2009. Return of "accurate" and "actionable" results: Yes! Am J Bioeth 9:107-109.
-
(2009)
Am J Bioeth
, vol.9
, pp. 107-109
-
-
Knoppers, B.M.1
Laberge, C.2
-
10
-
-
33750388916
-
The emergence of an ethical duty to disclose genetic research results: International perspectives
-
Knoppers BM, Joly Y, Simard J, Durocher F. 2006. The emergence of an ethical duty to disclose genetic research results: International perspectives. Eur J Hum Genet 14:1170-1178.
-
(2006)
Eur J Hum Genet
, vol.14
, pp. 1170-1178
-
-
Knoppers, B.M.1
Joly, Y.2
Simard, J.3
Durocher, F.4
-
12
-
-
84874197574
-
Genetics professionals' perspectives on reporting incidental findings from clinical genome-wide sequencing
-
Lohn Z, Adam S, Birch PH, Townsend A, Friedman JM. 2012. Genetics professionals' perspectives on reporting incidental findings from clinical genome-wide sequencing. Am J Med Genet Part A 161A:542-549.
-
(2012)
Am J Med Genet Part A
, vol.161 A
, pp. 542-549
-
-
Lohn, Z.1
Adam, S.2
Birch, P.H.3
Townsend, A.4
Friedman, J.M.5
-
13
-
-
77951914791
-
Personal genome research: What should the participant be told
-
McGuire AL, Lupski JR. 2010. Personal genome research: What should the participant be told? Trends Genet 26:199-201.
-
(2010)
Trends Genet
, vol.26
, pp. 199-201
-
-
McGuire, A.L.1
Lupski, J.R.2
-
15
-
-
40849106526
-
When research seems like clinical care: A qualitative study of the communication of individual cancer genetic research results
-
Miller FA, Giacomini M, Ahern C, Robert JS, De Laat S. 2008a. When research seems like clinical care: A qualitative study of the communication of individual cancer genetic research results. BMC Med Ethics 9.
-
(2008)
BMC Med Ethics
, pp. 9
-
-
Miller, F.A.1
Giacomini, M.2
Ahern, C.3
Robert, J.S.4
De Laat, S.5
-
16
-
-
44949089705
-
Incidental findings in human subjects research: What do investigators owe research participants
-
Miller FG, Mello MM, Joffe S. 2008b. Incidental findings in human subjects research: What do investigators owe research participants? J Law Med Ethics 36:271-279.
-
(2008)
J Law Med Ethics
, vol.36
, pp. 271-279
-
-
Miller, F.G.1
Mello, M.M.2
Joffe, S.3
-
17
-
-
77954915671
-
What is a meaningful result? Disclosing the results of genomic research in autism to research participants
-
Miller FA, Hayeems RZ, Bytautas JP. 2010. What is a meaningful result? Disclosing the results of genomic research in autism to research participants. Eur J Hum Genet 18:867-871.
-
(2010)
Eur J Hum Genet
, vol.18
, pp. 867-871
-
-
Miller, F.A.1
Hayeems, R.Z.2
Bytautas, J.P.3
-
18
-
-
31644440090
-
Returning genetic research results to individuals: Points-to-consider
-
Renegar G, Webster CJ, Stuerzebecher S, Harty L, Ide SE, Balkite B, Rogalski-Salter TA, Cohen N, Spear BB, Barnes DM, et al. 2006. Returning genetic research results to individuals: Points-to-consider. Bioethics 20:24-36.
-
(2006)
Bioethics
, vol.20
, pp. 24-36
-
-
Renegar, G.1
Webster, C.J.2
Stuerzebecher, S.3
Harty, L.4
Ide, S.E.5
Balkite, B.6
Rogalski-Salter, T.A.7
Cohen, N.8
Spear, B.B.9
Barnes, D.M.10
-
19
-
-
0037043254
-
The debate over research on stored biological samples: What do sources think
-
Wendler D, Emanuel E. 2002. The debate over research on stored biological samples: What do sources think? Arch Intern Med 162:1457-1462.
-
(2002)
Arch Intern Med
, vol.162
, pp. 1457-1462
-
-
Wendler, D.1
Emanuel, E.2
-
20
-
-
44949211505
-
Managing incidental findings in human subjects research: Analysis and recommendations
-
Wolf SM, Lawrenz FP, Nelson CA, Kahn JP, Cho MK, Clayton EW, Fletcher JG, Georgieff MK, Hammerschmidt D, Hudson K, et al. 2008. Managing incidental findings in human subjects research: Analysis and recommendations. J Law Med Ethics 36:219-248.
-
(2008)
J Law Med Ethics
, vol.36
, pp. 219-248
-
-
Wolf, S.M.1
Lawrenz, F.P.2
Nelson, C.A.3
Kahn, J.P.4
Cho, M.K.5
Clayton, E.W.6
Fletcher, J.G.7
Georgieff, M.K.8
Hammerschmidt, D.9
Hudson, K.10
|