Parent-reported pain in Rett syndrome

Clinical Journal of Pain

Volumn 29, Issue 8, 2013, Pages 744-746

  Symons, Frank J ^a   Byiers, Breanne ^a   Tervo, Raymond C ^a,b   Beisang, Arthur ^a,b  

^a UNIVERSITY OF MINNESOTA   (United States)

^b GILLETTE CHILDREN'S SPECIALTY HEALTHCARE   (United States)

Author keywords

Developmental disability; Pain; Rett syndrome

Indexed keywords

ADOLESCENT; ADULT; ARTICLE; CAREGIVER; CHILD; CLINICAL ARTICLE; DISABILITY; FACIAL EXPRESSION; FEMALE; GASTROINTESTINAL PAIN; HUMAN; PAIN; PAIN ASSESSMENT; PARENT; PRESCHOOL CHILD; PRIORITY JOURNAL; QUESTIONNAIRE; RETT SYNDROME; SCHOOL CHILD; VOCALIZATION;

ADOLESCENT; ADULT; CHILD; FEMALE; HEALTH SURVEYS; HUMANS; MALE; MIDDLE AGED; PAIN; PARENTS; RETT SYNDROME; YOUNG ADULT;

EID: 84880641970     PISSN: 07498047     EISSN: 15365409     Source Type: Journal    
DOI: 10.1097/AJP.0b013e318274b6bd     Document Type: Article

References (12)

1. Hagberg B, Hanefeld F, Percy A, et al. An update on clinically applicable diagnostic criteria in Rett syndrome: comments to the Rett syndrome clinical criteria consensus panel satellite to European Paediatric Neurology Society meeting Baden Baden, Germany, 11 September, 2001. Eur J Paediatr Neurol. 2002; 6:293-297.
2. Hagberg B. Clinical manifestations and stages of Rett syndrome. Ment Retard Dev Disabil Res Rev. 2002;8:61-65.
3. Rohdin M, Fernell E, Eriksson M, et al. Disturbances in cardiorespiratory function during day and night in Rett syndrome. Pediatr Neurol. 2007;37:338-344.
4. Lotan M, Kalron A. Pain sensation of individuals with Rett syndrome: a literature review. In: Merrick J, ed. Pain Management Yearbook. Hauppage, NY: Nova Science; 2009:3-12.
5. Smeets EE, Schrander-Stumpel CTRM. Rett syndrome. In: Cassidy S, Allanson J, eds. Management of Genetic Syndromes. 3rd ed. Hauppage, NY: Nova Science; 2010:677-691.
6. Devarakonda KM, Lowthian D, Raghavendra T. A case of Rett syndrome with reduced pain sensitivity. Paediatr Anaesth. 2009;19:623-650.
7. Coleman M, Brubaker J, Hunter K, et al. Rett syndrome: a survey of North American patients. J Ment Defic Res. 1988;32:117-124.
8. Down J, Geranton SM, Bebbington A, et al. Linking MECP2 and pain sensitivity: the example of Rett syndrome. Am J Med Genet. 2010;152A:1197-1205.
9. Breau LM, McGrath PJ, Camfield CS, et al. Psychometric properties of the Non-Communicating Children's Pain Checklist-Revised. Pain. 2002;99:349-357.
10. Symons FJ, Byiers B, Raspa M, et al. Self-injurious behavior and fragile X syndrome: findings from the National Fragile X Survey. Am J Intellect Dev Disabil. 2010;115:473-481.
11. Geranton SM, Morenilla-Palao C, Hunt SP. A role for transcriptional repressor methl-CpG-binding protein 2 and plasticity-related gene serum- and glucocorticoid-inducible kinase 1 in the induction of inflammatory pain states. J Neurosci. 2007;27:6163-6173.
12. Khasabov SG, Rogers SD, Ghilardi JR, et al. Spinal neurons that possess the substance P receptor are required for the development of central sensitization. J Neurosci. 2002;22: 9086-9098.