Physical symptoms, perceived social support, and affect in adolescents with cancer

Journal of Psychosocial Oncology

Volumn 31, Issue 4, 2013, Pages 451-467

  Wesley, Kimberly M ^a   Zelikovsky, Nataliya ^a,b   Schwartz, Lisa A ^b,c  

^a LA SALLE UNIVERSITY   (United States)

^b CHILDREN S HOSPITAL OF PHILADELPHIA   (United States)

^c UNIVERSITY OF PENNSYLVANIA   (United States)

Author keywords

adolescent; affect; cancer; oncology; social support

Indexed keywords

ADOLESCENT; ADOLESCENT BEHAVIOR; ADULT; AFFECT; ARTICLE; CANCER PATIENT; CLINICAL FEATURE; EMOTION; FAMILY FUNCTIONING; FAMILY INTERACTION; FATIGUE; FEMALE; FRIENDSHIP; HUMAN; MAJOR CLINICAL STUDY; MALE; NAUSEA; PAIN; SEX DIFFERENCE; SOCIAL SUPPORT; STRESS;

ADAPTATION, PSYCHOLOGICAL; ADOLESCENT; AFFECT; FAMILY; FATIGUE; FEMALE; FRIENDS; HUMANS; LIFE CHANGE EVENTS; MALE; NAUSEA; NEOPLASMS; PAIN; SOCIAL SUPPORT; YOUNG ADULT;

EID: 84880292677     PISSN: 07347332     EISSN: 15407586     Source Type: Journal    
DOI: 10.1080/07347332.2013.798761     Document Type: Article

References (49)

1. Aiken, L. S., & West, S. G. (1991). Multiple regression: Testing and interpreting interactions. Newbury Park, CA: Sage.
2. Alderfer, M., Navsaria, N., & Kazak, A. (2009). Family functioning and posttraumatic stress disorder in adolescent survivors of childhood cancer. Journal of Family Psychology, 23(5), 717-725.
3. American Cancer Society. (2010). Cancer facts and statistics. Retrieved from http://www.cancer.org/research/cancerfactsstatistics/index
4. Barrera, M., Andrews, S., Burnes, D., & Atenafu, E. (2007). Age differences in perceived social support by paediatric haematopoietic progenitor cell transplant patients: A longitudinal study. Child: Care, Health, and Development, 34(1),19-24.
5. Bellizzi, K. M., Smith, A., Schmidt, S., Keegan, T. H. M., Zebrack, B., Lynch, C. F., Simon, M. (2012). Positive and negative psychosocial impact of being diagnosed with cancer as an adolescent or young adult. Cancer, 13, 1-8.
6. Ben-Ari, E. (2011). AYAs are not alone: Confronting psychosocial challenges of cancer. National Cancer Institute Cancer Bulletin, 8(15), 6.
7. Cavusoglu, H. (2000). Problems related to the diagnosis and treatment of adolescents with leukemia. Issues in Comprehensive Pediatric Nursing, 23, 15-26.
8. Chiang, Y., Yeh, C., Wang, K., & Yang, C. (2009). The experience of cancer-related fatigue in Taiwanese children. European Journal of Cancer Care, 18, 43-49.
9. Compas, B. E., Davis, G. E., Forsythe, C. J., & Wagner, B. M. (1987). Assessment of major and daily stressful events during adolescence: The Adolescents Perceived Events Scale. Journal of Consulting and Clinical Psychology, 55(4), 534-341.
10. Compas, B. E., Howell, D. C., Phares, V., Williams, R. A., & Giunta, C. T. (1989). Risk factors for emotional/behavioral problems in young adolescents: A prospective analysis of adolescent and parental stress and symptoms. Journal of Consulting and Clinical Psychology, 57(6), 732-740.
11. Corey, A., Haase, J., Azzouz, F., & Monahan, P. (2008). Social support and symptom distress in adolescents/young adults with cancer. Journal of Pediatric Oncology Nursing, 25(5), 275-284.
12. Crawford, J. R., & Henry, J. D. (2004). The Positive and Negative Affect Schedule (PANAS): Construct validity, measurement, and normative data in a large nonclinical sample. British Journal of Clinical Psychology, 43, 245-265.
13. Decker, C. (2007). Social support and adolescent cancer survivors: A review of the literature. Psycho-Oncology, 16, 1-11.
14. Draguns, J. G., & Tanaka-Matsumi, J. (2003). Assessment of psychopathology across and within cultures: Issues and findings. Behaviour Research and Therapy,41(7), 755-776.
15. Edwards, B., & Clark, V. (2004). The psychological impact of a cancer diagnosis on families: The influence of family functioning and patients' illness characteristics on depression and anxiety. Psycho-Oncology, 13(8), 562-576.
16. Epstein, N. B., Baldwin, L. M., & Bishop, D.S. (1983). The McMaster Family Assessment Device. Journal of Marital and Family Therapy, 9, 171-180.
17. Fleming, J. E., & Offord, D. R. (1990). Epidemiology of childhood depressive disorders: A critical review. Journal of the American Academy of Child and Adolescent Psychiatry, 29(4), 571-580.
18. Grant, K., & Compas, B. (1995). Stress and anxious-depressed symptoms among adolescents: Searching for mechanisms of risk. Journal of Consulting and Clinical Psychology, 63(6), 1015-1021.
19. Green, R., Horn, H., & Erickson, J. (2010). Eating experiences of children and adolescents with chemotherapy-related nausea and mucositis. Journal of Pediatric Oncology Nursing, 27(4), 209-216.
20. Hockenberry, M. (2004). Symptom management research in children with cancer. Journal of Pediatric Oncology Nursing, 21(3), 132-136.
21. Jacob, E., Hesselgrave, J., Sambuco, G., & Hockenberry, M. (2007). Variations in pain, sleep, and activity during hospitalization in children with cancer. Journal of Pediatric Oncology Nursing, 24(4), 208-129.
22. Kabacoff, R. I., Miller, I. W., Bishop, D. S., Epstein, N. B., & Keitner, G. I. (1990). A psychometric study of the McMaster Family Assessment Device in psychiatric,medical, and nonclinical samples. Journal of Family Psychology, 3, 431- 439.
23. Knotkova, H., Clark, W., Mokrejs, P., Padour, F., & Kuhl, J. (2004). What do ratings on unidimensional pain and emotion scales really mean̈ A Multidimensional Affect and Pain Survey (MAPS) analysis of cancer patient responses. Journal of Pain and Symptom Management, 28(1), 19-27.
24. LeBaron, S., & Zeltzer, L. (1984). Assessment of acute pain and anxiety in children and adolescents by self-reports, observer reports, and a behavior checklist. Journal of Consulting and Clinical Psychology, 52(5), 729-738.
25. Li, C. E., DiGiuseppe, R., & Froh, J. (2006). The roles of sex, gender, and coping in adolescent depression. Adolescence, 41, 409-415.
26. Ljungman, G., Gordh, T., S̈orensen, S., & Kreuger, A. (1999). Pain in paediatric oncology: Interviews with children, adolescents and their parents. Acta Paediatrica,88, 623-630.
27. Manne, S., & Miller, D. (1998). Social support, social conflict, and adjustment among adolescents with cancer. Journal of Pediatric Psychology, 23(2), 121-130.
28. Moskowitz, J., Epel, E., & Acree, M. (2008). Positive affect uniquely predicts lower risk of mortality in people with diabetes. Health Psychology, 27, 73-82.
29. National Cancer Institute & LiveSTRONG Young Adult Alliance. (2006). Report of the adolescent and young adult oncology progress review group (NIH Publication No: 06-6067). Bethesda, MD: Retrieved from http://planning.cancer. gov/ library/AYAO-PRG-Report-2006-FINAL.pdf
30. Oldehinkel, A. J., Rosmalen, J. G. M., Veenstra, R., Dijkstra, J. K., & Ormel, J. (2007). Being admired or being liked: Classroom social status and depressive problems in early adolescent girls and boys. Journal of Abnormal Child Psychology, 35(3),417-427.
31. Ozono, S., Saeki, T., Mantani, T., Ogata, A., Okamura, H., Nakagawa, S., Yamawaki, S. (2010). Psychological distress related to patterns of family functioning among Japanese childhood cancer survivors and their parents. Psychooncology,19(5), 545-552.
32. Patenaude, A., & Kupst, M. (2005). Psychosocial functioning in pediatric cancer. Journal of Pediatric Psychology, 30(1), 9-27.
33. Pinquart, M., Frohlich, C., & Silbereisen, R. (2007). Optimism, pessimism, and change of psychological well-being in cancer patients. Psychology, Health, and Medicine, 12(4), 421-432.
34. Procidano, M., & Heller, K. (1983). Measures of perceived social support from friends and from family: Three validation studies. American Journal of Community Psychology, 11(1), 1-24.
35. Ritchie, M. (2001). Psychosocial nursing care for adolescents with cancer. Issues in Comprehensive Pediatric Nursing, 24, 165-175.
36. Ruland, C., Hamilton, G., & Schjodt-Osmo, B. (2009). The complexity of symptoms and problems experienced in children with cancer: A review of the literature. Journal of Pain and Symptom Management, 37(3), 403-418.
37. Ryder, A. G., Yang, J., Zhu, X., Yao, S., Yi, J., Heine, S., & Bagby, R. M. (2008). The cultural shaping of depression: Somatic symptoms in China, psychological symptoms in North Americä Journal of Abnormal Psychology, 117(2), 300-313.
38. Schwartz, L. A., Kazak, A. E., & Mougianis, I. (2009). Cancer. In W. O'Donohue & L. W. Tolle (Eds.), Behavioral approaches to chronic disease in adolescence (pp. 197-217). New York, NY: Springer Publishing.
39. Trask, P. C., Paterson, A. G., Trask, C. L., Bares, C. B., Birt, J., & Maan, C. (2003). Parental and adolescent adjustment to pediatric cancer: Associations with coping,social support, and family function. Journal of Pediatric Oncology Nursing,20, 36-47.
40. Ullrich, C., Dussel, V., Hilden, J., Sheaffer, J., Moore, C., Berde, C., & Wolfe, J. (2010). Fatigue in children with cancer at the end of life. Journal of Pain and Symptom Management, 40(4), 483-494.
41. Varni, J. W., Burwinkle, T. M., Katz, E. R., Meeske, K., & Dickinson, P. (2002). The PedsQL in paediatric cancer: Reliability and validity of the Paediatric Quality of Life Inventory generic core scales, multidimensional fatigue scale and cancer module. Cancer, 94, 2090-2106.
42. Varni, J., & Katz, E. (1997). Stress, social support, and negative affectivity in children with newly diagnosed cancer: A prospective transactional analysis. Psycho- Oncology, 6, 267-278.
43. Varni, J. W., Katz, E. R., Seid, M., Quiggins, D. J. L., Friedman-Bender, A., & Castro, C. M. (1998). The Pediatric Cancer Quality of Life Inventory (PCQL), I: Instrument development, descriptive statistics, and cross-informant variance. Journal of Behavioral Medicine, 21, 179-204.
44. Wallace, M. L., Harcourt, D., Rumsey, N., & Foot, A. (2007). Managing appearance changes resulting from cancer treatment: Resilience in adolescent females. Psycho-Oncology, 16, 1019-1027.
45. Watson, D., Clark, L., & Tellegen, A. (1988). Development and validation of brief measures of positive and negative affect: The PANAS scales. Journal of Personality and Social Psychology, 54(6), 1063-1070.
46. Williamson, H., Harcourt, D., Halliwell, E., Frith, H., & Wallace, M. (2010). Adolescents' and parents' experiences of managing the psychosocial impact of appearance change during cancer treatment. Journal of Pediatric Oncology Nursing,27(3), 168-175.
47. Woodgate, R. L. (1999a). Conceptual understanding of resilience in the adolescent with cancer: Part I. Journal of Pediatric Oncology Nursing, 16(1), 35-43.
48. Woodgate, R. L. (1999b). Conceptual understanding of resilience in the adolescent with cancer: Part II. Journal of Pediatric Oncology Nursing, 16(2), 78-90.
49. Woodgate, R. (2006). The importance of being there: Perspectives of social support by adolescents with cancer. Journal of Pediatric Oncology Nursing, 23, 122-134.