Factors associated with stroke survivor behaviors as identified by family caregivers

Rehabilitation Nursing

Volumn 38, Issue 4, 2013, Pages 202-211

  Gonzalez, Carmanny ^a   Bakas, Tamilyn ^a  

^a INDIANA UNIVERSITY SCHOOL OF NURSING   (United States)

Author keywords

Family caregiving; psychosocial issues; stroke

Indexed keywords

ADULT; AGED; ARTICLE; CAREGIVER; CEREBROVASCULAR ACCIDENT; FAMILY CAREGIVING; FEMALE; HUMAN; MALE; METHODOLOGY; MIDDLE AGED; MODEL; NURSING; PSYCHOLOGICAL ASPECT; PSYCHOSOCIAL ISSUES; REHABILITATION NURSING; SURVIVOR;

FAMILY CAREGIVING; PSYCHOSOCIAL ISSUES; STROKE;

ADULT; AGED; CAREGIVERS; FEMALE; HUMANS; MALE; MIDDLE AGED; MODELS, NURSING; REHABILITATION NURSING; STROKE; SURVIVORS;

EID: 84880204831     PISSN: 02784807     EISSN: 20487940     Source Type: Journal    
DOI: 10.1002/rnj.85     Document Type: Article

References (44)

1. Andersen, G., Vastergaard, K., Ingemann-Nielsen, M., &, Lauritzen, L., (1995). Risk factors for post-stroke depression. Acta Psychiatrica Scand., 92, 193-198.
2. Bakas, T., Austin, J. K., Jessup, S. L., Williams, L. S., &, Oberst, M. T., (2004). Time and difficulty of tasks provided by family caregivers of stroke survivors. Journal of Neuroscience Nursing, 36 (2), 95-106.
3. Bakas, T., Austin, J. K., Okonkwo, K. F., Lewis, R. R., &, Chadwick, L., (2002). Needs, concerns, strategies, and advice of stroke caregivers the first six months after discharge. Journal of Neuroscience Nursing, 34 (5), 242-251.
4. Bakas, T., &, Burgener, S. C., (2002). Predictors of emotional distress, general health, and caregiving outcomes in family caregivers of stroke survivors. Topics in Stroke Rehabilitation, 9 (1), 34-45.
5. Bakas, T., &, Champion, V., (1999). Development and psychometric testing of the Bakas caregiving outcomes scale. Nursing Research, 48, 250-259.
6. Bakas, T., Champion, V., Perkins, S., Farran, C., &, Williams, L., (2006). Psychometric testing of the revised 15-item Bakas caregiving outcomes scale. Nursing Research, 55 (5), 346-355.
7. Bakas, T., Farran, C. J., Austin, J. K., Given, B. A., Johnson, E. A., &, Williams, L. S., (2009a). Content validity and satisfaction with a stroke caregiver intervention program. Journal of Nursing Scholarship, 41 (4), 368-375.
8. Bakas, T., Farran, C. J., Austin, J. K., Given, B. A., Johnson, E. A., &, Williams, L. S., (2009b). Stroke caregiver outcomes from the telephone assessment and skill-building kit (TASK). Topics in Stroke Rehabilitation, 16 (2), 105-121.
9. Bakas, T., Kroenke, K., Plue, L. D., Perkins, S., &, Williams, L. S., (2006). Outcomes among family caregivers of aphasic versus non-aphasic stroke survivors. Rehabilitation Nursing, 31, 33-42.
10. Baum, M. C., &, Edwards, D. F., (2000). Documenting productive behaviors. Using the functional behavior profile to plan discharge following stroke. Journal of Gerontological Nursing, 26 (4), 34-40.
11. Berg, A., Palomaki, H., Lonnqvist, J., Lehtihalmes, M., &, Kaste, M., (2005). Depression among caregivers of stroke survivors. Stroke, 36, 639-643.
12. Cameron, J., Cheung, A., Streiner, D., Coyte, P., Singh, M. D., &, Stewart, D., (2008). Factor structure and reliability of the brain impairment behavior scale. Journal of Neuroscience Nursing, 40 (1), 40-47.
13. Cameron, J., Cheung, A., Streiner, D., Coyte, P., &, Stewart, D., (2006). Stroke survivors' behavioral and psychologic symptoms are associated with informal caregivers' experience of depression. Archives in Physical Medicine and Rehabilitation, 87, 177-183.
14. Carey, P. J., Oberst, M. T., McCubbin, M. A., &, Hughes, S. H., (1991). Appraisal and caregiving burden in family members caring for patients receiving chemotherapy. Oncology Nursing Forum, 18, 1341-1348.
15. Clark, P. C., Dunbar, S. B., Aycock, D. M., Courtney, E., &, Wolf, S. L., (2006). Caregiver perspectives of memory and behavior changes in stroke survivors. Rehabilitation Nursing, 31 (1), 26-32.
16. Clark, P. C., Dunbar, S. B., Shields, C. G., Viswanathan, B., Ayacock, D. M., &, Wolf, S. L., (2004). Influence of stroke survivor characteristics and family conflict surrounding recovery on caregivers' mental and physical health. Nursing Research, 53 (6), 406-413.
17. Gaugler, J. E., Duval, S., Anderson, K. A., &, Kane, R. L., (2007). Predicting nursing home admission in the US: a meta-analysis. BMC Geriatrics, 7, 13.
18. Gaugler, J. E., Kane, R. L., Kane, R. A., Clay, T., &, Newcomer, R., (2003a). Caregiving and institutionalization of cognitively impaired older people: utilizing dynamic predictors of change. Gerontologist, 43 (2), 219-229.
19. Gaugler, J. E., Kane, R. L., Kane, R. A., Clay, T., &, Newcomer, R., (2003b). The effects of duration of caregiving on institutionalization. Gerontologist, 45 (1), 78-89.
20. Grant, J. S., (1996). Home care problems experienced by stroke survivors and their family caregivers. Home Healthcare Nurse, 14 (11), 892-902.
21. Grant, J. S., Glandon, G. L., Elliott, T. R., Giger, J. N., &, Weaver, M., (2004). Caregiving problems and feelings experienced by family caregivers of stroke survivors the first month after discharge. International Journal of Rehabilitation Research, 27 (2), 105-111.
22. Haley, W. E., Allen, J. Y., Grant, J. S., Clay, O. J., Perkins, M., &, Roth, D. L., (2009). Problems and benefits reported by stroke family caregivers: results from a prospective epidemiological study. Stroke, 40, 2129-2133.
23. Han, B., &, Haley, W. E., (1999). Family caregiving for patients with stroke: review and analysis. Stroke, 30, 1478-1485.
24. King, R., Shade-Zeldow, Y., Carlson, C. E., Knafl, K., &, Roth, E. J., (1995). Early adaptation to stroke: patient and primary support person. Rehabilitation Nursing Research, 4, 82-89.
25. Kroenke, P., Spitzer, R., &, Williams, J., (2001). The PHQ-9: validity of a brief depression severity measure. Journal of General Internal Medicine, 16 (9), 606-613.
26. Lazarus, R. S., &, Folkman, S., (1984). Stress, appraisal, and coping. New York: Springer
27. Miller, E. T., Murray, L., Richards, L., Zorowitz, R. D., Bakas, T., Clark, P., et al., and on behalf of the American Heart Association Council on Cardiovascular Nursing and the Stroke Council. (2010). Comprehensive overview of nursing and interdisciplinary rehabilitation care of the stroke patient. A scientific statement from the American Heart Association. Stroke, 41 (10), 2402-2448.
28. National Alliance for Caregiving and American Association of Retired Persons. (2009). Caregiving in the U.S. Retrieved from http://assets.aarp.org/ rgcenter/il/caregiving-09-fr.pdf
29. Oberst, M. T., (1990). Caregiving burden scale. Unpublished manuscript, Madison, WI: University of Wisconsin-Madison.
30. Oberst, M. T., (1991). Appraisal of caregiving scale. Unpublished manuscript, Madison, WI: University of Wisconsin-Madison.
31. Oberst, M. T., Thomas, S. E., Gass, K. A., &, Ward, S. E., (1989). Caregiving demands and appraisal of stress among family caregivers. Cancer Nursing, 12, 209-215.
32. Pierce, L. L., &, Steiner, V., (2004). What are male caregivers talking about? Topics in Stroke Rehabilitation, 11 (2), 77-83.
33. Pierce, L. L., Steiner, V., Govoni, A. L., Hicks, B., Thompson, T. L. C., &, Friedman, M., (2004). Caregivers dealing with stroke pull together and feel connected. Journal of Neuroscience Nursing, 36 (1), 32-39.
34. Rigby, H., Gubitz, G., &, Phillips, S., (2009). A systematic review of caregiver burden following stroke. International Journal of Stroke, 4, 285-292.
35. Roger, V. L., Go, A. S., Lloyd-Jones, D. M., Adams, R. J., Berry, J. D., Brown, T. M., et al. on behalf of the American Heart Association Statistics Committee and Stroke Statistics Subcommittee. (2011). Heart disease and stroke statistics-2011 update: a report from the American Heart Association. Circulation, 123, e18-e209. doi: 10.1161/CIR.0b013e3182009701.
36. Spitzer, R. L., Kroenke, K., &, Williams, J. B., (1999). Validation and utility of a self-report version of PRIME-MD: the PHQ primary care study. Primary care evaluation of mental disorders. Patient health questionnaire. Journal of the American Medical Association, 282 (18), 1737-1744.
37. Spitzer, R. L., Williams, J. B., Kroenke, K., Homyak, R., &, McMurray, J., (2000). Validity and utility of the PRIME-MD patient health questionnaire in assessment of the 3000 obstetric-gynecological patients: the PRIME-MD patient health questionnaire obstetrics-gynecology study. American Journal of Obstetrics and Gynecology, 183 (3), 759-769.
38. Stephens, S., (2009). Who's there? When stroke or Alzheimer's changes a person's behavior, caregiving can become an extreme. Here, experienced caregivers, patients, and experts share their stories and advice. Neurology Now, July/Aug, 26-29.
39. Tabachnick, B. G., &, Fidell, L. S., (1996). Using multivariate statistics, 3rd Edition, New York: HarperCollins Publishers, Inc.
40. Teri, L., Truax, P., Logsdon, R., Uomoto, J., Zarit, S., &, Vitaliano, P., (1992). Assessment of behavioral problems in dementia: the revised memory and behavior problems checklist. Psychology and Aging, 7 (4), 622-631.
41. Tooth, L., McKenna, K., Barnett, A., Prescott, C., &, Murphy, S., (2005). Caregiver burden, time spent caring and health status in the first 12 months following stroke. Brain Injury, 19, 963-974.
42. Williams, A., (1994). What bothers caregivers of stroke victims? Journal of Neuroscience Nursing, 26 (3), 155-161.
43. Williams, L., Brizendine, E., Plue, L., Tu, W., Bakas, T., Hendrie, H., et al. (2005). Performance of the PHQ-9 as a screening tool for post-stroke depression. Stroke, 36, 635-638.
44. Williams, A. M., &, Dahl, C. W., (2002). Patient and caregiver perceptions of stroke survivor behavior: a comparison. Rehabilitation Nursing, 27 (1), 19-24.