Social media and patient self-management: Not all sites are created equal

Studies in Health Technology and Informatics

Volumn 183, Issue , 2013, Pages 291-295

  Ellis, Leonie ^a   Showell, Chris ^a   Turner, Paul ^a  

^a UNIVERSITY OF TASMANIA   (Australia)

Author keywords

HealthShare; PatientsLikeMe; self management; social media

Indexed keywords

HEALTH; UNDERPINNINGS;

HEALTH INFORMATIONS; HEALTHSHARE; PATIENTSLIKEME; PEER-TO-PEER COMMUNICATIONS; SELF MANAGEMENT; SHARING INFORMATION; SOCIAL MEDIA; SOCIAL NETWORKING SITES;

SOCIAL NETWORKING (ONLINE);

ARTICLE; COMPUTER INTERFACE; INFORMATION DISSEMINATION; INTERNET; METHODOLOGY; PATIENT EDUCATION; SELF CARE; SOCIAL MEDIA; TELEMEDICINE;

INFORMATION DISSEMINATION; INTERNET; PATIENT EDUCATION AS TOPIC; SELF CARE; SOCIAL MEDIA; TELEMEDICINE; USER-COMPUTER INTERFACE;

MLCS; MLOWN;

EID: 84880146442     PISSN: 09269630     EISSN: 18798365     Source Type: Conference Proceeding    
DOI: 10.3233/978-1-61499-203-5-291     Document Type: Article

References (17)

1. H. Cameron-Tucker, A study of supervised exercise with a chronic disease self-management programme for people with COPD, University of Tasmania, PhD Thesis 2009, Australia
2. T. O'Reilly, What is Web2.0-Design Patterns and Business Models for the Next Generation of Software. 2005 [cited 2012 January], Available from: http://oreilly.com/web2/archive/what-is-web.html.
3. J.H. Frost, M.P. Massagli, Social Uses of Personal Health Information Within PatientsLikeMe, an Online Patient Community: What Can Happen When Patients Have Access to One Anothers Data. Journal of Medical Internet Research 10(3) (2008).
4. D. Hoch, T. Ferguson, What I've Learned from E-Patients. PLoS Med 2(8) (2005),e206.
5. Health on the Net Foundation (HON Code) [cited October 2012]; Available from: http://www.hon.ch/HONcode/Patients/Visitor/visitor.html.
6. L.J. Trevena, PatientsLikeMe and the tale of three brothers. Medical journal of Australia 195(5) (2011), 258-9.
7. P. Wicks, M. Massagli, J. Frost, C. Brownstein, S. Okun, T. Vaughan, et al, Sharing Health Data for Better Outcomes on PatientsLikeMe. Journal of Medical Internet Research 12(2) (2010).
8. Anonymous. UCB to Mine Social Media Website for Data. Pharmaceutical Representative 39(8) (2009), 8.
9. J. Frost, S. Okun, T. Vaughan, J. Heywood, P. Wicks, Patient-reported outcomes as a source of evidence in off-Label prescribing: Analysis of data from PatientsLikeMe, Journal of Medical Internet Research 13(1) (2011).
10. G. Burnett, M.L.A. Lustria, J. Cortese, M. Kazmer, J. Frost, J.H. Kim, et al. PatientsLikeMe: Social norms and information values in an online health support group. Proceedings of the American Society for Information Science and Technology 46(1) (2009), 1-4.
11. J. Heywood. PatientsLikeMe. 2005 [cited Oct 2012]; Available from: http://www.patientslikeme.com/about.
12. Anonymous. PatientsLikeMe. 2005 [cited January 2012]; Available from: www.patientslikeme.com.
13. Darryl Jackson HC. HealthShare. 2011 [cited Jan 2012]; Available from: http://www.healthshare.com.au/docs/DOC-6685.
14. Channel 9 Television Australia, Kerri-Anne Morning Show Interview 13th October 2011. [updated 2011; cited Oct 2012] Available from: http://www.youtube.com/watch?v=YKm-3qtSU7k.
15. Darryl Jackson HC. HealthShare Pty Ltd [updated 2012; cited Oct 2012]; Available from: http://www.healthshare.com.au/questions/44932-how-can-our- company-sponsor-a-healthshare-community.
16. HealthShare Pty Ltd [cited Oct 2012]; Available from: http://www.healthshare.com.au/sponsor-profile-benefits.
17. BiolArtist2012 Science-Based Medicine: Exploring issues and controversies in the relationship between science and medicine [cited Oct 2012] Available from: http://www.sciencebasedmedicine.org/index.php/the-perils-of-patient- driven-clinical-research/commentpage-1/.