The Dermatitis Family Impact questionnaire: A review of its measurement properties and clinical application

British Journal of Dermatology

Volumn 169, Issue 1, 2013, Pages 31-46

  Dodington, S R ^a   Basra, M K A ^a   Finlay, A Y ^a   Salek, M S ^a  

^a CARDIFF UNIVERSITY   (United Kingdom)

Author keywords

[No Author keywords available]

Indexed keywords

5 ALPHA AVOCUTA; BETAMETHASONE; DERMATOLOGICAL AGENT; EMOLLIENT AGENT; EXOMEGA; PEROXISOME PROLIFERATOR ACTIVATED RECEPTOR ALPHA AGONIST; PROBIOTIC AGENT; STELATOPIA; UNCLASSIFIED DRUG;

ATOPIC DERMATITIS; BIFIDOBACTERIUM ANIMALIS; CLINICAL STUDY; DATA EXTRACTION; DATA SYNTHESIS; DERMATITIS FAMILY IMPACT; HUMAN; INTERNAL CONSISTENCY; LACTOBACILLUS ACIDOPHILUS; LONGITUDINAL STUDY; NAMED INVENTORIES, QUESTIONNAIRES AND RATING SCALES; PRIORITY JOURNAL; QUALITY OF LIFE; REVIEW; TEST RETEST RELIABILITY; CULTURAL ANTHROPOLOGY; FAMILY; FAMILY HEALTH; PARENT; PSYCHOLOGY; PUBLICATION; QUESTIONNAIRE; REPRODUCIBILITY; SICKNESS IMPACT PROFILE; STANDARDS;

CULTURE; DERMATITIS, ATOPIC; FAMILY; FAMILY HEALTH; HUMANS; PARENTS; QUALITY OF LIFE; QUESTIONNAIRES; REPRODUCIBILITY OF RESULTS; SICKNESS IMPACT PROFILE; TRANSLATIONS;

EID: 84879943348     PISSN: 00070963     EISSN: 13652133     Source Type: Journal    
DOI: 10.1111/bjd.12232     Document Type: Review

References (62)

1. Carroll CL, Balkrishnan R, Feldman SR, et al. The burden of atopic dermatitis: impact on the patient, family and society. Pediatr Dermatol 2005; 22: 192-9.
2. Warschburger P, Buchholz HT, Petermann F,. Psychological adjustment in parents of young children with atopic dermatitis: which factors predict parental quality of life. Br J Dermatol 2004; 150: 304-11.
3. Lawson V, Lewis-Jones MS, Finlay AY, et al. The family impact of childhood atopic dermatitis: the Dermatitis Family Impact questionnaire. Br J Dermatol 1998; 138: 107-13.
4. Basra MKA, Sue-Ho R, Finlay AY,. The Family Dermatology Life Quality Index: measuring the secondary impact of skin disease. Br J Dermatol 2007; 156: 528-38.
5. Basra MKA, Finlay AY,. The family impact of skin diseases: the Greater Patient concept. Br J Dermatol 2007; 156: 929-37.
6. Beattie PE, Lewis-Jones MS,. An audit of the impact of a consultation with a paediatric dermatology team on quality of life in infants with atopic eczema and their families: further validation of the Infants' Dermatitis Quality of Life Index and Dermatitis Family Impact Score. Br J Dermatol 2006; 155: 1249-55.
7. Basra MKA, Fenech R, Gatt RM, et al. The Dermatology Life Quality Index 1994-2007: a comprehensive review of validation data and clinical results. Br J Dermatol 2008; 159: 997-1035.
8. Lewis-Jones MS, Finlay AY, Dykes PJ,. The Infants' Dermatitis Quality of Life Index. Br J Dermatol 2001; 144: 104-10.
9. Aziah MS, Rosnah T, Mardziah A, Norzila MZ,. Childhood atopic dermatitis: a measurement of quality of life and family impact. Med J Malaysia 2002; 57: 329-39.
10. Al Robaee AA,. Clinical trial: reliability and validity of the Arabic version of 'Dermatitis Family Impact' questionnaire in children with atopic dermatitis. Int J Dermatol 2010; 49: 1063-7.
11. Ho RC, Giam YC, Ng TP, et al. The influence of childhood atopic dermatitis on health of mothers, and its impact on Asian families. Pediatr Allergy Immunol 2010; 21: 501-7.
12. Kirshner B, Guyatt G,. A methodological framework for assessing health indices. J Chron Dis 1985; 38: 27-36.
13. Ben-Gashir MA, Seed PT, Hay RJ,. Are quality of family life and disease severity related in childhood atopic dermatitis? J Eur Acad Dermatol Venereol 2002; 16: 455-62.
14. Chinn DL, Poyner T, Sibley G,. Randomized controlled trial of a single dermatology nurse consultation in primary care on the quality of life of children with atopic eczema. Br J Dermatol 2002; 146: 432-9.
15. Thomas KS, Armstrong S, Avery A, et al. Randomised controlled trial of short bursts of a potent corticosteroid versus prolonged use of a mild preparation for children with mild or moderate atopic eczema. BMJ 2002; 324: 768.
16. Baron SE, Layton A, Goulden V,. A pilot study of hypnotherapy to treat adults and children with moderate to severe atopic dermatitis. Br J Dermatol 2005; 153 (Suppl. 1): 37.
17. Grillo M, Gassner L, Marshman G, et al. Pediatric atopic eczema: the impact of an educational intervention. Pediatr Dermatol 2006; 23: 428-36.
18. Grimalt R, Mengeaud V, Cambazard F,. The steroid-sparing effect of an emollient therapy in infants with atopic dermatitis: a randomised controlled study. Dermatology 2007; 214: 61-7.
19. Weber MB, Fontes Neto Pde T, Prati C, et al. Improvement of pruritus and quality of life of children with atopic dermatitis and their families after joining support groups. J Eur Acad Dermatol Venereol 2008; 22: 992-7.
20. Gerasimov SV, Vasjuta VV, Myhovych OO, Bondarchuk LI,. Probiotic supplement reduces atopic dermatitis in preschool children: a randomized, double-blind, placebo-controlled, clinical trial. Am J Clin Dermatol 2010; 11: 351-61.
21. Schuttelaar ML, Vermeulen KM, Drukker N, Coenraads PJ,. A randomized controlled trial in children with eczema: nurse practitioner vs. dermatologist. Br J Dermatol 2010; 162: 162-70.
22. Farina S, Gisondi P, Zanoni M, et al. Balneotherapy for atopic dermatitis in children at Comano spa in Trentino, Italy. J Dermatolog Treat 2011; 22: 366-71.
23. Thomas KS, Dean T, O'Leary C, et al. A randomised controlled trial of ion-exchange water softeners for the treatment of eczema in children. PLoS Med 2011; 8: e1000395.
24. De Belilovsky C, Roo-Rodriguez E, Baudouin C, et al. Natural peroxisome proliferator-activated receptor-α agonist cream demonstrates similar therapeutic response to topical steroids in atopic dermatitis. J Dermatolog Treat 2011; 22: 359-65.
25. Wootton CI, Koller K, Lawton S, et al. Are accelerometers a useful tool for measuring disease activity in children with eczema? Validity, responsiveness to change, and acceptability of use in a clinical trial setting. Br J Dermatol 2012; 167: 1131-7.
26. Ricci G, Bendandi B, Bellini F, et al. Atopic dermatitis: quality of life of young Italian children and their families and correlation with severity score. Pediatr Allergy Immunol 2007; 18: 245-9.
27. Al Shobaili HA,. The impact of childhood atopic dermatitis on the patients' family. Pediatr Dermatol 2010; 27: 618-23.
28. Amaral CS, March MdeF, Sant'Anna CC,. Quality of life in children and teenagers with atopic dermatitis. An Bras Dermatol 2012; 87: 717-23.
29. Lewis-Jones MS, Finlay AY, Dykes PJ,. Measurement of the impact of atopic dermatitis on infant's and their families lives. Br J Dermatol 1999; 141 (Suppl. 55): 105-6.
30. Foo C, Schofield OM,. Influences on the quality of family life in atopic eczema. Br J Dermatol 2000; 143 (Suppl. 5): 45.
31. Shin N, Kim SH, Cho S, et al. The impact of childhood atopic dermatitis on their families. Korean J Dermatol 2000; 38: 494-9.
32. Gånemo A, Wahlgren CF, Svensson A,. Quality of life and clinical features in Swedish children with psoriasis. Pediatr Dermatol 2011; 28: 375-9.
33. Park CW, Lee CH,. Quality of life and the family impact of atopic dermatitis in children. Korean J Dermatol 2007; 45: 429-38.
34. Chernyshov PV,. Creation and cross-cultural adaptation of Ukrainian versions of questionnaires for assessment of quality of life of children with atopic dermatitis and their families. Lik Sprava 2008; 2: 124-8.
35. Ahmad K, Ramsay B,. Measuring the impact on quality of life of infants with atopic dermatitis in a dedicated clinic. J Am Acad Dermatol 2009; 60 (Suppl. 1): AB6.
36. Alvarenga TM, Caldeira AP,. Quality of life in pediatric patients with atopic dermatitis. J Pediatr (Rio J) 2009; 85: 415-20.
37. Chernyshov PV,. May the gender of a parent influence assessment of health-related quality of life, family impact and severity of atopic dermatitis in children? Pediatr Dermatol 2009; 26: 99-100.
38. Msika P,. New natural PPAR-α agonist for childhood atopic dermatitis: dermocorticoid-sparing and quality of life improvement. J Am Acad Dermatol 2007; 56 (Suppl. 2): AB67.
39. Gånemo A,. Quality of life in Swedish children with congenital ichthyosis. Dermatol Rep 2010; 2: 18-20.
40. Monti F, Agostini F, Gobbi F, et al. Quality of life measures in Italian children with atopic dermatitis and their families. Ital J Pediatr 2011; 37: 59.
41. Chernyshov PV,. Gender differences in health-related and family quality of life in young children with atopic dermatitis. Int J Dermatol 2012; 51: 290-4.
42. Neri E, Agostini F, Gremigni P, et al. Italian validation of the Childhood Atopic Dermatitis Impact Scale: a contribution to its clinical application. J Invest Dermatol 2012; 132: 2534-43.
43. Cardiff University, Department of Dermatology & Wound Healing. Dermatitis Family Impact, Different Language Versions, 2012. Available at: http://www.dermatology.org.uk/quality/dfi/quality-dfi-languages.html (last accessed 28 January 2013).
44. Gånemo A, Svensson A, Lindberg M, Wahlgren CF,. Quality of life in Swedish children with eczema. Acta Derm Venereol 2007; 87: 345-9.
45. Jiráková A, Vojáčková N, Göpfertová D, Hercogová J,. A comparative study of the impairment of quality of life in Czech children with atopic dermatitis of different age groups and their families. Int J Dermatol 2012; 51: 688-92.
46. Guillemin F, Bombardier C, Beaton D,. Cross-cultural adaptation of health-related quality of life measures: literature review and proposed guidelines. J Clin Epidemiol 1993; 46: 1417-32.
47. Balkrishnan R, Housman TS, Grummer S, et al. The family impact of atopic dermatitis in children: the role of the parent caregiver. Pediatr Dermatol 2003; 20: 5-10.
48. Balkrishnan R, Janeen M, Clarke J, et al. Effects of an episode of specialist care on the impact of childhood atopic dermatitis on the child's family. J Pediatr Health Care 2003; 17: 184-9.
49. Beattie PE, Lewis-Jones MS,. An audit of the usefulness of quality of life measures in secondary care for assessing the impact of atopic dermatitis on infants and their families and the benefit obtained from consultation with a dermatology team. Br J Dermatol 2005; 153 (Suppl. 1): 82.
50. Rice ZP, Pavlis MB, Veledar E, et al. Family impact of cutaneous disease in the ectodermal dysplasia. J Investig Dermatol 2009; 60: AB5.
51. Ricci G, Bendandi B, Aiazzi R, et al. Three years of Italian experience of an educational program for parents of young children affected by atopic dermatitis: improving knowledge produces lower anxiety levels in parents of children with atopic dermatitis. Pediatr Dermatol 2009; 26: 1-5.
52. Al Robaee AA, Shahzad M,. Impairment quality of life in families of children with atopic dermatitis. Acta Dermatovenerol Croat 2010; 18: 243-7.
53. Weber M, Mazzotti N, Barzenski B, Silva T,. Evaluation of the quality of life in patients with atopic dermatitis participating in support groups. J Am Acad Dermatol 2005; 52 (Suppl. 1): 70.
54. De Belilovsky C, Chdoutaud B, Msika P,. Cosmetics and quality of life. J Am Acad Dermatol 2007; 56 (Suppl. 2): AB85.
55. Humbert PH, Basses-Bresca S, Van der Valk P, et al. Interest of an emollient combination of two hygiene products and a cream containing oak rhealba extract in atopic dermatitis. J Eur Acad Dermatol Venereol 2003; 17 (Suppl. 3): 174.
56. Taïeb C, Macy G, Sibaud V, et al. Atopic dermatitis: European evaluation in young children. J Eur Acad Dermatol Venereol 2004; 18 (Suppl. 2): 300.
57. Yang SJ, Yun SJ, Lee JW, et al. Relationship between severity of childhood atopic dermatitis and subject's characteristics including psychological, behavioural and familial problems. Korean J Dermatol 2005; 43: 1170-6.
58. Thomas KS, Sach TH,. A multicentre randomized controlled trial of ion-exchange water softeners for the treatment of eczema in children: protocol for the Softened Water Eczema Trial (SWET). Br J Dermatol 2008; 159: 561-6.
59. Lapidus CS, Kerr PE,. Social impact of atopic dermatitis. Med Health R I 2001; 84: 294-5.
60. Su JC, Kemp A, Varigos GA, Nolan TM,. Atopic eczema: its impact on the family and financial cost. Arch Dis Child 1997; 76: 159-62.
61. Ben-Gashir MA,. Relationship between quality of life and disease severity in atopic dermatitis/eczema syndrome during childhood. Curr Opin Allergy Clin Immunol 2003; 3: 369-73.
62. Basra MKA, Edmunds O, Salek MS, Finlay AY,. Measurement of family impact of skin disease: further validation of the Family Dermatology Life Quality Index (FDLQI). J Eur Acad Dermatol Venereol 2008; 22: 813-21.