"it's Somebody else's responsibility" - Perceptions of general practitioners, heart failure nurses, care home staff, and residents towards heart failure diagnosis and management for older people in long-term care: A qualitative interview study

BMC Geriatrics

Volumn 13, Issue 1, 2013, Pages

  Close, Helen ^a   Hancock, Helen ^a   Mason, James M ^a   Murphy, Jerry J ^b   Fuat, Ahmet ^b   De Belder, Mark ^c   Hungin, A Pali S ^a  

^a DURHAM UNIVERSITY   (United Kingdom)

^b DARLINGTON MEMORIAL HOSPITAL   (United Kingdom)

^c JAMES COOK UNIVERSITY HOSPITAL   (United Kingdom)

Author keywords

Heart failure; Long term care; Older people; Quality of care and outcomes

Indexed keywords

AGED; ARTICLE; CONTROLLED CLINICAL TRIAL; CONTROLLED STUDY; DISEASE MANAGEMENT; FEMALE; GENERAL PRACTITIONER; HEALTH PERSONNEL ATTITUDE; HEART FAILURE; HUMAN; LONG TERM CARE; MALE; METHODOLOGY; NURSE; PATIENT PARTICIPATION; PERCEPTION; PSYCHOLOGICAL ASPECT; QUESTIONNAIRE; RANDOMIZED CONTROLLED TRIAL; SOCIAL BEHAVIOR; VERY ELDERLY; PROCEDURES; PSYCHOLOGY;

AGED; AGED, 80 AND OVER; ATTITUDE OF HEALTH PERSONNEL; DISEASE MANAGEMENT; FEMALE; GENERAL PRACTITIONERS; HEART FAILURE; HUMANS; LONG-TERM CARE; MALE; NURSES; PATIENT PARTICIPATION; PERCEPTION; QUESTIONNAIRES; SOCIAL RESPONSIBILITY; SURVEYS AND QUESTIONNAIRES;

EID: 84879829143     PISSN: None     EISSN: 14712318     Source Type: Journal    
DOI: 10.1186/1471-2318-13-69     Document Type: Article

References (39)

1. Care Quality Commission, website http://www.cqc.org.uk/newsandevents/ pressreleases.cfm Last accessed 17th August 2011
2. British Geriatrics Society, Quest for Quality. Joint Working Party Inquiry into the Quality of Healthcare Support for Older People in Care Homes: A Call for Leadership, Partnership and Quality Improvement 2011 http://www.bgs.org.uk/campaigns/./quest-quality-care-homes.pdf Last accessed January 2012
3. Department of Health, National Health Service Future Forum Summary report on proposed changes to the NHS (Professor Steve Field-Chairman) London: The Stationary Office: Department of Health 2011 http://www.dh.gov.uk/prod-consum- dh/groups/dh./dh-127540.pdf Last accessed December 2011
4. Department of Health, Care and compassion? Report of the Health Service Ombudsman on ten investigations into NHS care of older people Fourth report of the Health Service Commissioner for England Session 2010-2011, London: Parliamentary and Health Service Ombudsman. http://www.ombudsman.org.uk/care- and-compassion/downloads Last accessed December 2011
5. Bajekal M, Health Survey for England 2000: Characteristics of care homes and their residents London: The Stationery Office 2002
6. Barriers to accurate diagnosis and effective management of heart failure in primary care: qualitative study. Fuat A, Hungin A, Murphy J, BMJ 2003 326 196 10.1136/bmj.326.7382.196 12543836
7. Management of heart failure. Diller PM, Smucker DR, Prim Care. 2000 27 651 675 10.1016/S0095-4543(05)70168-8 10918674 (Pubitemid 30660924)
8. An evaluation of the economic cost of heart failure to the national health service in the united kingdom. McMurray J, Hart W, Rhodes G, British Journal of Medical Economics. 1993 6 99 110 (Pubitemid 24078263)
9. Trends in hospitalization for heart failure in Scotland 1980-1990. McMurray J, McDonagh T, Morrison CE, Dargie HJ, Eur Heart J. 1993 14 1158 1162 10.1093/eurheartj/14.9.1158 8223728 (Pubitemid 23288284)
10. Increase in hospital admission rates for heart failure in The Netherlands, 1980-1993. Reitsma JB, Mosterd A, de Craen AJ, Koster RW, van Capelle FJ, Grobbee DE, Tijssen JG, Heart 1996 76 388 392 10.1136/hrt.76.5.388 8944582 (Pubitemid 26390792)
11. Prevalence of heart failure in nursing homes: a systematic literature review. Daamen M, Schols J, Jaarsma T, Hamers JPH, Scand J Caring Sci. 2010 24 202 208 10.1111/j.1471-6712.2009.00708.x 20070599
12. Heart failure in nursing homes: prevalence, hospitalization, compliance to guidelines. Lo scompenso cardiaco nelle case di riposo: prevalenza, ospedalizzazione, aderenza alle linee guida. Valle R, Chinellato M, Gallo G, Milani L, Ital Heart J Suppl. 2001 2 772 774 11508295 (Pubitemid 32807782)
13. Prevalence and misdiagnosis of chronic heart failure in nursing home residents: the role of B-type natruiretic peptides. Barents M, van der Horst I, Voors A, Hillege JL, Muskiet FAJ, de Jongste MJL, Neth Hear J 2008 16 123 128 10.1007/BF03086130 (Pubitemid 351563970)
14. Department of Health, The Residential care and Nursing Home sector for older people-an analysis of past trends, current and future demand London: The Stationary Office 2002 http://www.dh.gov.uk/en/Publicationsandstatistics/ Publications/PublicationsPolicyAndGuidance/DH-4006749 Last accessed October 2011 23545551
15. Establishing benchmarks for quality care for an aging population: caring for vulnerable older adults. Fried LP, Ann Intern Med 2003 139 784 786 10.7326/0003-4819-139-9-200311040-00014 14597464 (Pubitemid 38129078)
16. Help the Aged, My Home Life: Quality of life in care homes London: Help the Aged 2006
17. Dixon-Woods M, Kirk D, Agarwal S, Annandale E, Arthur T, Harvey J, Hsu R, Katbamna S, Olsen R, Riley R, Smith L, Sutton A, Vulnerable groups and access to health care: A critical interpretive review London: National Co-ordinating Centre for NHS Service Delivery and Organisation (NCCSDO) 2005 http://mighealth.net/uk/images/8/84/Dix1.pdf Last accessed November 2011
18. An exploration of help-seeking behaviour in older people with unmet needs. Walters K, Iliffe S, Orrell M, Fam Pract 2001 18 277 282 10.1093/fampra/18.3.277 11356734 (Pubitemid 32514681)
19. Including older people in clinical research. Witham MD, Gillespie ND, BMJ 2005 331 1036 1037 10.1136/bmj.331.7524.1036 16269472 (Pubitemid 41597848)
20. High prevalence of undetected heart failure in long-term care residents: findings from the heart failure in care homes (HFinCH) study. Hancock H, Close H, Mason JM, Murphy JJ, Fuat A, Singh R, Wood E, de Belder M, Brennan G, Hussain N, Kumar N, Wilson D, Hungin APSH, Eur J Heart Fail 15 2 158 165 10.1093/eurjhf/hfs165
21. Utility of biomarkers in the differential diagnosis of heart failure in older people: findings from the heart failure in care homes (HFinCH) diagnostic accuracy study. Mason J, Hancock H, Close H, Murphy J, Fuat A, de Belder M, Singh R, Teggert A, Wood E, Brennan G, Hussain N, Kumar N, Manshani N, Hodges D, Wilson D, Hungin APS, PLoS One 2013 8 1 53560 10.1371/journal.pone.0053560 23326457
22. Feasibility of evidence-based diagnosis and management of heart failure in older people in care: a pilot randomised controlled trial. Hancock HC, Close H, Mason JM, Murphy JJ, Fuat A, de Belder M, Hunt T, Baker A, Wilson D, Hungin AP, BMC Geriatr 2012 12 70 10.1186/1471-2318-12-70 23150980
23. A practical method for grading the cognitive state of patients for the clinician. Folstein MF, Folstein SE, McHugh PR, Mini-Mental State, J Psychiatr Res. 1975 12 189 198 10.1016/0022-3956(75)90026-6 1202204
24. Evaluation of a mental test score for assessment of mental impairment in the elderly. Hodkinson HM, Age Ageing. 1972 1 233 238 10.1093/ageing/1.4.233 4669880
25. Moustakas C, Phenomenological research methods Thousand Oaks, CA, US: Sage Publications 1994
26. The descriptive phenomenological psychological method. Giorgi A, Giorgi B, Qualitative research in psychology: expanding perspectives in methodology and design (pp 243-73) Washington DC: American Psychological Association, Camic PM, Rhodes JE, Yardley L, 2003
27. A phenomenological study: the lived experience of persons having a different sense of hearing. Aquino-Russell CE, Nurs Sci Q 2006 19 4 339 348 10.1177/0894318406292827 16982722 (Pubitemid 44359230)
28. The phenomenology of death, embodiment and organ transplantation. Haddow G, Sociology of Health and Illness 2005 27 1 92 113 10.1111/j.1467-9566.2005. 00433.x 15762953 (Pubitemid 40576965)
29. The dual faces of service user participation: implications for empowerment processes in interprofessional practice. Kvarnstrom S, Hedberg B, Cedersund E, J Soc Work 2012 13 3 287 307
30. Exploring the lived experience of waiting for persons in long-term care. Mitchell GJ, Pilkington FB, Jonas-Simpson C, Aiken F, Carson MG, Fisher A, Lyno P, Nurs Sci Q 2005 18 2 163 170 10.1177/0894318405274829 15802749
31. The family experience when an adult member is hospitalised with a critical illness. Eggenberger SK, Nelms TP Being family, J Clin Nurs 2007 16 1618 1628 10.1111/j.1365-2702.2007.01659.x 17727583
32. Management of heart failure among very old persons living in long-term care: has the voice of trials spread? Gambassi G, Forman DE, Lapane KL, Mor V, Sgadari A, Lipsitz LA, Bernabei R, The SAGE Study Group, Am Heart J 2000 139 85 93 10618567 (Pubitemid 30043629)
33. Quality of care of nursing home residents hospitalized with heart failure. Ahmed A, Weaver M, Allman RM, DeLong JF, Aronow WS, J Am Geriatr Soc 2002 50 1831 1836 10.1046/j.1532-5415.2002.50512.x 12410902 (Pubitemid 35299388)
34. Medication undertreatment in assisted living settings. Sloane PD, Gruber-Baldini AL, Zimmerman S, Roth M, Watson L, Boustani M, Magaziner J, Hebel JR, Arch Intern Med 2004 164 2031 2037 10.1001/archinte.164.18.2031 15477439 (Pubitemid 39390561)
35. Heart failure specialist nurses' use of palliative care services: a comparison of surveys across England in 2005 and 2010. Johnson MJ, MacCallumb A, Butler J, Rogers A, Sam E, Fuller A, Beattie JM, Eur J Cardiovasc Nurs 10.1016/j.ejcnurse.2011.03.004
36. Difficulties in recruiting older people in clinical trials: an examination of barriers and solutions. Ridda I, MacIntyre CR, Lindley RI, Tan TC, Vaccine 2010 28 901 906 10.1016/j.vaccine.2009.10.081 19944149
37. Unmet needs following hospitalization with heart failure: implications for clinical assessment and program planning. Davidson PM, Cockburn J, Newton PJ, J Cardiovasc Nursing. 2008 23 541 546 10.1097/01.JCN.0000338927.43469.35
38. Involving older people in health research. Fudge N, Wolfe CDA, McKevitt C, Age Ageing. 2007 36 492 500 10.1093/ageing/afm029 17395618 (Pubitemid 47558836)
39. When "no" might not quite mean "no"; the importance of informed and meaningful non-consent: results from a survey of individuals refusing participation in a health-related research project. Williams B, Irvine L, McGinnis AR, McMurdo MET, Crombie IK, BMC Heal Serv Res 2007 7 59 10.1186/1472-6963-7-59 (Pubitemid 46729232)