메뉴 건너뛰기




Volumn 27, Issue 7, 2013, Pages 647-656

Living with breathlessness: A survey of caregivers of breathless patients with lung cancer or heart failure

Author keywords

cancer; caregiver burden; Dyspnoea; end of life care; family; heart disease; home; hospice; hospital; outcome; palliative

Indexed keywords

ADULT; AGED; CANCER PATIENT; CARDIAC PATIENT; CARE AND CARING; CAREGIVER; CAREGIVER BURDEN; COMPARATIVE STUDY; CROSS-SECTIONAL STUDY; DEPRESSION; DESCRIPTIVE RESEARCH; DISEASE SEVERITY; DYSPNEA; FEMALE; HEALTH CARE QUALITY; HEALTH SURVEY; HEART FAILURE; HUMAN; LUNG CANCER; MAJOR CLINICAL STUDY; MALE; REVIEW;

EID: 84879750469     PISSN: 02692163     EISSN: 1477030X     Source Type: Journal    
DOI: 10.1177/0269216313488812     Document Type: Review
Times cited : (85)

References (46)
  • 1
    • 33646006132 scopus 로고    scopus 로고
    • Breathlessness in cancer and chronic obstructive pulmonary disease: Using a qualitative approach to describe the experience of patients and carers
    • Booth S, Silvester S, Todd C. Breathlessness in cancer and chronic obstructive pulmonary disease: using a qualitative approach to describe the experience of patients and carers. Palliat Support Care. 2003 ; 1 (4). 337-344
    • (2003) Palliat Support Care , vol.1 , Issue.4 , pp. 337-344
    • Booth, S.1    Silvester, S.2    Todd, C.3
  • 2
    • 31344445894 scopus 로고    scopus 로고
    • A comparison of symptom prevalence in far advanced cancer, AIDS, heart disease, chronic obstructive pulmonary disease and renal disease
    • Solano JP, Gomes B, Higginson IJ. A comparison of symptom prevalence in far advanced cancer, AIDS, heart disease, chronic obstructive pulmonary disease and renal disease. J Pain Symptom Manage. 2006 ; 31 (1). 58-69
    • (2006) J Pain Symptom Manage , vol.31 , Issue.1 , pp. 58-69
    • Solano, J.P.1    Gomes, B.2    Higginson, I.J.3
  • 3
    • 34848923331 scopus 로고    scopus 로고
    • Experiences of breathlessness: A systematic review of the qualitative literature
    • Gysels M, Bausewein C, Higginson IJ. Experiences of breathlessness: a systematic review of the qualitative literature. Palliat Support Care. 2007 ; 5 (3). 281-302
    • (2007) Palliat Support Care , vol.5 , Issue.3 , pp. 281-302
    • Gysels, M.1    Bausewein, C.2    Higginson, I.J.3
  • 4
    • 0033964772 scopus 로고    scopus 로고
    • Is the presence of dyspnea a risk factor for morbidity in cancer patients?
    • Edmonds P, Higginson I, Altmann D, et al. Is the presence of dyspnea a risk factor for morbidity in cancer patients?. J Pain Symptom Manage. 2000 ; 19 (1). 15-22
    • (2000) J Pain Symptom Manage , vol.19 , Issue.1 , pp. 15-22
    • Edmonds, P.1    Higginson, I.2    Altmann, D.3
  • 5
    • 0034696509 scopus 로고    scopus 로고
    • Understanding economic and other burdens of terminal illness: The experience of patients and their caregivers
    • Emanuel EJ, Fairclough DL, Slutsman J, et al. Understanding economic and other burdens of terminal illness: the experience of patients and their caregivers. Ann Intern Med. 2000 ; 132 (6). 451-459
    • (2000) Ann Intern Med , vol.132 , Issue.6 , pp. 451-459
    • Emanuel, E.J.1    Fairclough, D.L.2    Slutsman, J.3
  • 6
    • 79956341677 scopus 로고    scopus 로고
    • How common are palliative care needs among older people who die in the emergency department?
    • Beynon T, Gomes B, Murtagh FE, et al. How common are palliative care needs among older people who die in the emergency department?. Emerg Med J. 2011 ; 28 (6). 491-495
    • (2011) Emerg Med J , vol.28 , Issue.6 , pp. 491-495
    • Beynon, T.1    Gomes, B.2    Murtagh, F.E.3
  • 8
    • 84857262553 scopus 로고    scopus 로고
    • Reversal of the British trends in place of death: Time series analysis 2004-2010
    • Gomes B, Calanzani N, Higginson IJ. Reversal of the British trends in place of death: time series analysis 2004-2010. Palliat Med. 2012 ; 26 (2). 102-107
    • (2012) Palliat Med , vol.26 , Issue.2 , pp. 102-107
    • Gomes, B.1    Calanzani, N.2    Higginson, I.J.3
  • 9
    • 78149359065 scopus 로고    scopus 로고
    • Individual breathlessness trajectories do not match summary trajectories in advanced cancer and chronic obstructive pulmonary disease: Results from a longitudinal study
    • Bausewein C, Booth S, Gysels M, et al. Individual breathlessness trajectories do not match summary trajectories in advanced cancer and chronic obstructive pulmonary disease: results from a longitudinal study. Palliat Med. 2010 ; 24 (8). 777-786
    • (2010) Palliat Med , vol.24 , Issue.8 , pp. 777-786
    • Bausewein, C.1    Booth, S.2    Gysels, M.3
  • 10
    • 66249108231 scopus 로고    scopus 로고
    • Palliative care in heart failure: A position statement from the palliative care workshop of the Heart Failure Association of the European Society of Cardiology
    • Jaarsma T, Beattie JM, Ryder M, et al. Palliative care in heart failure: a position statement from the palliative care workshop of the Heart Failure Association of the European Society of Cardiology. Eur J Heart Fail. 2009 ; 11 (5). 433-443
    • (2009) Eur J Heart Fail , vol.11 , Issue.5 , pp. 433-443
    • Jaarsma, T.1    Beattie, J.M.2    Ryder, M.3
  • 11
    • 67349287033 scopus 로고    scopus 로고
    • Symptom burden, depression, and spiritual well-being: A comparison of heart failure and advanced cancer patients
    • Bekelman DB, Rumsfeld JS, Havranek EP, et al. Symptom burden, depression, and spiritual well-being: a comparison of heart failure and advanced cancer patients. J Gen Intern Med. 2009 ; 24 (5). 592-598
    • (2009) J Gen Intern Med , vol.24 , Issue.5 , pp. 592-598
    • Bekelman, D.B.1    Rumsfeld, J.S.2    Havranek, E.P.3
  • 12
    • 0020410785 scopus 로고
    • Psychophysical bases of perceived exertion
    • Borg GA. Psychophysical bases of perceived exertion. Med Sci Sports Exerc. 1982 ; 14 (5). 377-381
    • (1982) Med Sci Sports Exerc , vol.14 , Issue.5 , pp. 377-381
    • Borg, G.A.1
  • 13
    • 0034799055 scopus 로고    scopus 로고
    • The Zarit Burden Interview: A new short version and screening version
    • Bedard MM, Molloy DW, Squire L, et al. The Zarit Burden Interview: a new short version and screening version. Gerontologist. 2001 ; 41: 652-657
    • (2001) Gerontologist , vol.41 , pp. 652-657
    • Bedard, M.M.1    Molloy, D.W.2    Squire, L.3
  • 14
    • 0020527558 scopus 로고
    • The Hospital Anxiety and Depression Scale
    • Zigmund A, Snaith R. The Hospital Anxiety and Depression Scale. Acta Psychiatr Scand. 1983 ; 67: 361-370
    • (1983) Acta Psychiatr Scand , vol.67 , pp. 361-370
    • Zigmund, A.1    Snaith, R.2
  • 15
    • 0024389366 scopus 로고
    • The Pittsburgh Sleep Quality Index: A new instrument for psychiatric practice and research
    • Buysse DJ, Reynolds CF. Monk TH, et al. The Pittsburgh Sleep Quality Index: a new instrument for psychiatric practice and research. Psychiatry Res. 1989 ; 28 (2). 193-213
    • (1989) Psychiatry Res , vol.28 , Issue.2 , pp. 193-213
    • Buysse, D.J.1    Reynolds, C.F.2    Monk, T.H.3
  • 16
    • 0026877917 scopus 로고
    • The MOS 36-item short-form health survey (SF-36). I. Conceptual framework and item selection
    • Ware JE, Sherbourne CD. The MOS 36-item short-form health survey (SF-36). I. Conceptual framework and item selection. Med Care. 1992 ; 30 (6). 473-483
    • (1992) Med Care , vol.30 , Issue.6 , pp. 473-483
    • Ware, J.E.1    Sherbourne, C.D.2
  • 17
    • 0002255373 scopus 로고    scopus 로고
    • You want to measure coping but your protocol's too long: Consider the brief COPE
    • Carver CS. You want to measure coping but your protocol's too long: consider the brief COPE. Int J Behav Med. 1997 ; 4 (1). 92-100
    • (1997) Int J Behav Med , vol.4 , Issue.1 , pp. 92-100
    • Carver, C.S.1
  • 18
    • 79957714453 scopus 로고    scopus 로고
    • The use of two common palliative outcome measures in clinical care and research: A systematic review of POS and STAS
    • Bausewein C, Le Grice C, Simon S, et al. The use of two common palliative outcome measures in clinical care and research: a systematic review of POS and STAS. Palliat Med. 2011 ; 25 (4). 304-313
    • (2011) Palliat Med , vol.25 , Issue.4 , pp. 304-313
    • Bausewein, C.1    Le Grice, C.2    Simon, S.3
  • 19
    • 84864090981 scopus 로고    scopus 로고
    • Republished: Which questions of two commonly used multidimensional palliative care patient reported outcome measures are most useful? Results from the European and African PRISMA survey
    • Higginson IJ, Simon ST, Benalia H, et al. Republished: which questions of two commonly used multidimensional palliative care patient reported outcome measures are most useful? Results from the European and African PRISMA survey. Postgrad Med J. 2012 ; 88 (1042). 451-457
    • (2012) Postgrad Med J , vol.88 , Issue.1042 , pp. 451-457
    • Higginson, I.J.1    Simon, S.T.2    Benalia, H.3
  • 20
    • 46349097491 scopus 로고    scopus 로고
    • Caregiver assessment of patients with advanced cancer: Concordance with patients, effect of burden and positivity
    • Higginson IJ, Gao W. Caregiver assessment of patients with advanced cancer: concordance with patients, effect of burden and positivity. Health Qual Life Outcomes. 2008 ; 6: 42
    • (2008) Health Qual Life Outcomes , vol.6 , pp. 42
    • Higginson, I.J.1    Gao, W.2
  • 21
    • 77955323545 scopus 로고    scopus 로고
    • Psychological well-being and quality of care: A factor-analytic examination of the Palliative Care Outcome Scale
    • Siegert RJ, Gao W, Walkey FH, et al. Psychological well-being and quality of care: a factor-analytic examination of the Palliative Care Outcome Scale. J Pain Symptom Manage. 2010 ; 40 (1). 67-74
    • (2010) J Pain Symptom Manage , vol.40 , Issue.1 , pp. 67-74
    • Siegert, R.J.1    Gao, W.2    Walkey, F.H.3
  • 22
    • 77949915191 scopus 로고    scopus 로고
    • Short-form Zarit Caregiver Burden Interviews were valid in advanced conditions
    • Higginson IJ, Gao W, Jackson D, et al. Short-form Zarit Caregiver Burden Interviews were valid in advanced conditions. J Clin Epidemiol. 2010 ; 63 (5). 535-542
    • (2010) J Clin Epidemiol , vol.63 , Issue.5 , pp. 535-542
    • Higginson, I.J.1    Gao, W.2    Jackson, D.3
  • 23
    • 33645762226 scopus 로고
    • A sharper Bonferroni procedure for multiple tests of significance
    • Hochberg Y. A sharper Bonferroni procedure for multiple tests of significance. Biometrika. 1988 ; 75 (4). 800-802
    • (1988) Biometrika , vol.75 , Issue.4 , pp. 800-802
    • Hochberg, Y.1
  • 24
    • 0035380808 scopus 로고    scopus 로고
    • Caregiving tasks among family caregivers of patients with lung cancer
    • Bakas T, Lewis RR, Parsons JE. Caregiving tasks among family caregivers of patients with lung cancer. Oncol Nurs Forum. 2001 ; 28 (5). 847-854
    • (2001) Oncol Nurs Forum , vol.28 , Issue.5 , pp. 847-854
    • Bakas, T.1    Lewis, R.R.2    Parsons, J.E.3
  • 25
    • 14544302811 scopus 로고    scopus 로고
    • Unmet desire for caregiver-patient communication and increased caregiver burden
    • Fried TR, Bradley EH, O'Leary JR, et al. Unmet desire for caregiver-patient communication and increased caregiver burden. J Am Geriatr Soc. 2005 ; 53 (1). 59-65
    • (2005) J Am Geriatr Soc , vol.53 , Issue.1 , pp. 59-65
    • Fried, T.R.1    Bradley, E.H.2    O'Leary, J.R.3
  • 26
    • 33644875921 scopus 로고    scopus 로고
    • The relationship of quality of life, depression, and caregiver burden in outpatients with congestive heart failure
    • Hooley PJ, Butler G, Howlett JG. The relationship of quality of life, depression, and caregiver burden in outpatients with congestive heart failure. Congest Heart Fail. 2005 ; 11 (6). 303-310
    • (2005) Congest Heart Fail , vol.11 , Issue.6 , pp. 303-310
    • Hooley, P.J.1    Butler, G.2    Howlett, J.G.3
  • 27
    • 34447133500 scopus 로고    scopus 로고
    • Informal caregiving burden in advanced non-small cell lung cancer: The HABIT study
    • Gridelli C, Ferrara C, Guerriero C, et al. Informal caregiving burden in advanced non-small cell lung cancer: the HABIT study. J Thorac Oncol. 2007 ; 2 (6). 475-480
    • (2007) J Thorac Oncol , vol.2 , Issue.6 , pp. 475-480
    • Gridelli, C.1    Ferrara, C.2    Guerriero, C.3
  • 28
    • 18044384993 scopus 로고    scopus 로고
    • Illness trajectories and palliative care
    • Murray SA, Kendall M, Boyd K, et al. Illness trajectories and palliative care. BMJ. 2005 ; 330 (7498). 1007-1011
    • (2005) BMJ , vol.330 , Issue.7498 , pp. 1007-1011
    • Murray, S.A.1    Kendall, M.2    Boyd, K.3
  • 29
    • 84875230715 scopus 로고    scopus 로고
    • Episodic breathlessness in patients with advanced disease: A systematic review
    • Simon ST, Bausewein C, Schildmann E, et al. Episodic breathlessness in patients with advanced disease: a systematic review. J Pain Symptom Manage. 2013 ; 45 (3). 561-578
    • (2013) J Pain Symptom Manage , vol.45 , Issue.3 , pp. 561-578
    • Simon, S.T.1    Bausewein, C.2    Schildmann, E.3
  • 30
    • 84898701689 scopus 로고    scopus 로고
    • Episodic and continuous breathlessness: A new categorization of breathlessness
    • Simon ST, Higginson IJ, Benalia H, et al. Episodic and continuous breathlessness: a new categorization of breathlessness. J Pain Symptom Manage.:
    • J Pain Symptom Manage
    • Simon, S.T.1    Higginson, I.J.2    Benalia, H.3
  • 31
    • 78650115451 scopus 로고    scopus 로고
    • Burden in caregivers of older adults with advanced illness
    • Garlo K, O'Leary JR, Van Ness PH, et al. Burden in caregivers of older adults with advanced illness. J Am Geriatr Soc. 2010 ; 58 (12). 2315-2322
    • (2010) J Am Geriatr Soc , vol.58 , Issue.12 , pp. 2315-2322
    • Garlo, K.1    O'Leary, J.R.2    Van Ness, P.H.3
  • 32
    • 2342477756 scopus 로고    scopus 로고
    • Evaluation of a short-term group intervention for informal carers of patients attending a home palliative care service
    • Harding R, Higginson IJ, Leam C, et al. Evaluation of a short-term group intervention for informal carers of patients attending a home palliative care service. J Pain Symptom Manage. 2004 ; 27 (5). 396-408
    • (2004) J Pain Symptom Manage , vol.27 , Issue.5 , pp. 396-408
    • Harding, R.1    Higginson, I.J.2    Leam, C.3
  • 33
    • 79953896558 scopus 로고    scopus 로고
    • Living and coping with Parkinson's disease: Perceptions of informal carers
    • McLaughlin D, Hasson F, Kernohan WG, et al. Living and coping with Parkinson's disease: perceptions of informal carers. Palliat Med. 2011 ; 25 (2). 177-182
    • (2011) Palliat Med , vol.25 , Issue.2 , pp. 177-182
    • McLaughlin, D.1    Hasson, F.2    Kernohan, W.G.3
  • 34
    • 77949468831 scopus 로고    scopus 로고
    • The experience of breathlessness: The social course of chronic obstructive pulmonary disease
    • Gysels M, Higginson IJ. The experience of breathlessness: the social course of chronic obstructive pulmonary disease. J Pain Symptom Manage. 2010 ; 39 (3). 555-563
    • (2010) J Pain Symptom Manage , vol.39 , Issue.3 , pp. 555-563
    • Gysels, M.1    Higginson, I.J.2
  • 35
    • 84863440748 scopus 로고    scopus 로고
    • Specialist palliative care is more than drugs: A retrospective study of ILD patients
    • Bajwah S, Higginson IJ, Ross JR, et al. Specialist palliative care is more than drugs: a retrospective study of ILD patients. Lung. 2012 ; 190 (2). 215-220
    • (2012) Lung , vol.190 , Issue.2 , pp. 215-220
    • Bajwah, S.1    Higginson, I.J.2    Ross, J.R.3
  • 36
    • 68949166018 scopus 로고    scopus 로고
    • Caring for a person in advanced illness and suffering from breathlessness at home: Threats and resources
    • Gysels MH, Higginson IJ. Caring for a person in advanced illness and suffering from breathlessness at home: threats and resources. Palliat Support Care. 2009 ; 7 (2). 153-162
    • (2009) Palliat Support Care , vol.7 , Issue.2 , pp. 153-162
    • Gysels, M.H.1    Higginson, I.J.2
  • 37
    • 80054067967 scopus 로고    scopus 로고
    • The lived experience of breathlessness and its implications for care: A qualitative comparison in cancer, COPD, heart failure and MND
    • Gysels MH, Higginson IJ. The lived experience of breathlessness and its implications for care: a qualitative comparison in cancer, COPD, heart failure and MND. BMC Palliat Care. 2011 ; 10: 15
    • (2011) BMC Palliat Care , vol.10 , pp. 15
    • Gysels, M.H.1    Higginson, I.J.2
  • 38
    • 0030046886 scopus 로고    scopus 로고
    • Determinants of informal caregivers' satisfaction with services for dying cancer patients
    • Fakhoury W, McCarthy M, Addington-Hall J. Determinants of informal caregivers' satisfaction with services for dying cancer patients. Soc Sci Med. 1996 ; 42 (5). 721-731
    • (1996) Soc Sci Med , vol.42 , Issue.5 , pp. 721-731
    • Fakhoury, W.1    McCarthy, M.2    Addington-Hall, J.3
  • 39
    • 58049208394 scopus 로고    scopus 로고
    • Depression in family caregivers of cancer patients: The feeling of burden as a predictor of depression
    • Rhee YS, Yun YH, Park S, et al. Depression in family caregivers of cancer patients: the feeling of burden as a predictor of depression. J Clin Oncol. 2008 ; 26 (36). 5890-5895
    • (2008) J Clin Oncol , vol.26 , Issue.36 , pp. 5890-5895
    • Rhee, Y.S.1    Yun, Y.H.2    Park, S.3
  • 40
    • 36048987953 scopus 로고    scopus 로고
    • Hidden morbidity in cancer: Spouse caregivers
    • Braun M, Mikulincer M, Rydall A, et al. Hidden morbidity in cancer: spouse caregivers. J Clin Oncol. 2007 ; 25 (30). 4829-4834
    • (2007) J Clin Oncol , vol.25 , Issue.30 , pp. 4829-4834
    • Braun, M.1    Mikulincer, M.2    Rydall, A.3
  • 41
    • 34447640466 scopus 로고    scopus 로고
    • Characteristics and views of family carers of older people with heart failure
    • Barnes S, Gott M, Payne S, et al. Characteristics and views of family carers of older people with heart failure. Int J Palliat Nurs. 2006 ; 12 (8). 380-389
    • (2006) Int J Palliat Nurs , vol.12 , Issue.8 , pp. 380-389
    • Barnes, S.1    Gott, M.2    Payne, S.3
  • 42
    • 33645101468 scopus 로고    scopus 로고
    • Caregiver unmet needs, burden, and satisfaction in symptomatic advanced cancer patients at a Veterans Affairs (VA) medical center
    • Hwang SS, Chang VT, Alejandro Y, et al. Caregiver unmet needs, burden, and satisfaction in symptomatic advanced cancer patients at a Veterans Affairs (VA) medical center. Palliat Support Care. 2003 ; 1 (4). 319-329
    • (2003) Palliat Support Care , vol.1 , Issue.4 , pp. 319-329
    • Hwang, S.S.1    Chang, V.T.2    Alejandro, Y.3
  • 43
    • 84555178558 scopus 로고    scopus 로고
    • How can informal caregivers in cancer and palliative care be supported? An updated systematic literature review of interventions and their effectiveness
    • Harding R, List S, Epiphaniou E, et al. How can informal caregivers in cancer and palliative care be supported? An updated systematic literature review of interventions and their effectiveness. Palliat Med. 2012 ; 26 (1). 7-22
    • (2012) Palliat Med , vol.26 , Issue.1 , pp. 7-22
    • Harding, R.1    List, S.2    Epiphaniou, E.3
  • 44
    • 84866304133 scopus 로고    scopus 로고
    • Development, effectiveness and cost-effectiveness of a new out-patient Breathlessness Support Service: Study protocol of a phase III fast-track randomised controlled trial
    • Bausewein C, Jolley C, Moxham J, et al. Development, effectiveness and cost-effectiveness of a new out-patient Breathlessness Support Service: study protocol of a phase III fast-track randomised controlled trial. BMC Pulm Med. 2012 ; 12 (1). 58
    • (2012) BMC Pulm Med , vol.12 , Issue.1 , pp. 58
    • Bausewein, C.1    Jolley, C.2    Moxham, J.3
  • 45
    • 34347380689 scopus 로고    scopus 로고
    • The impact of a breathlessness intervention service (BIS) on the lives of patients with intractable dyspnea: A qualitative phase 1 study
    • Booth S, Farquhar M, Gysels M, et al. The impact of a breathlessness intervention service (BIS) on the lives of patients with intractable dyspnea: a qualitative phase 1 study. Palliat Support Care. 2006 ; 4 (3). 287-293
    • (2006) Palliat Support Care , vol.4 , Issue.3 , pp. 287-293
    • Booth, S.1    Farquhar, M.2    Gysels, M.3


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.