메뉴 건너뛰기




Volumn 27, Issue 7, 2013, Pages 683-691

Spouse caregivers of people with advanced dementia in nursing homes: A longitudinal narrative study

Author keywords

Caregiver; dementia; nursing homes; palliative care; qualitative research; spouses

Indexed keywords

AGED; ARTICLE; CAREGIVER; CLINICAL ARTICLE; DEMENTIA; FEMALE; GUILT; HUMAN; INTERVIEW; MALE; NURSING HOME; SOCIETY; SPOUSE; UNITED KINGDOM; WORK EXPERIENCE;

EID: 84879741839     PISSN: 02692163     EISSN: 1477030X     Source Type: Journal    
DOI: 10.1177/0269216313479685     Document Type: Article
Times cited : (34)

References (58)
  • 2
    • 77951526097 scopus 로고    scopus 로고
    • London: Alzheimer's Disease International;
    • The prevalence of dementia worldwide. London: Alzheimer's Disease International ; 2008:
    • (2008) The Prevalence of Dementia Worldwide
  • 4
    • 70350458703 scopus 로고    scopus 로고
    • The clinical course of advanced dementia
    • Mitchell S, Teno J, Kiely D, et al. The clinical course of advanced dementia. New Engl J Med. 2009 ; 361 (16). 1529-1538
    • (2009) New Engl J Med , vol.361 , Issue.16 , pp. 1529-1538
    • Mitchell, S.1    Teno, J.2    Kiely, D.3
  • 5
    • 0036087772 scopus 로고    scopus 로고
    • Profiles of older medicare decedents
    • Lunney J, Lynn J, Hogan C. Profiles of older medicare decedents. J Am Geriatr Soc. 2002 ; 50 (6). 1108-1112
    • (2002) J Am Geriatr Soc , vol.50 , Issue.6 , pp. 1108-1112
    • Lunney, J.1    Lynn, J.2    Hogan, C.3
  • 7
    • 84898693536 scopus 로고    scopus 로고
    • Palliative care services for people with dementia: A synthesis of the literature reporting the views and experiences of professionals and family carers
    • Raymond M, Warner A, Davies N, et al. Palliative care services for people with dementia: a synthesis of the literature reporting the views and experiences of professionals and family carers. Dementia. 2012 ;:
    • (2012) Dementia
    • Raymond, M.1    Warner, A.2    Davies, N.3
  • 8
    • 77950383365 scopus 로고    scopus 로고
    • Place of death of older persons with dementia. A study in five European countries
    • Houttekier D, Cohen J, Bilsen J, et al. Place of death of older persons with dementia. A study in five European countries. J Am Geriatr Soc. 2010 ; 58 (4). 751-756
    • (2010) J Am Geriatr Soc , vol.58 , Issue.4 , pp. 751-756
    • Houttekier, D.1    Cohen, J.2    Bilsen, J.3
  • 9
    • 15044359033 scopus 로고    scopus 로고
    • A national study of the location of death for older persons with dementia
    • Mitchell S, Teno JM, Miller SC, et al. A national study of the location of death for older persons with dementia. J Am Geriatr Soc. 2005 ; 53: 299-305
    • (2005) J Am Geriatr Soc , vol.53 , pp. 299-305
    • Mitchell, S.1    Teno, J.M.2    Miller, S.C.3
  • 11
    • 0024476482 scopus 로고
    • Models of carers: How do social care agencies conceptualise their relationship with informal carers?
    • Twigg J. Models of carers: how do social care agencies conceptualise their relationship with informal carers?. J Soc Policy. 1989 ; 18 (1). 53-66
    • (1989) J Soc Policy , vol.18 , Issue.1 , pp. 53-66
    • Twigg, J.1
  • 16
    • 36049001187 scopus 로고    scopus 로고
    • Real men, real husbands: Caregiving and masculinities in later life
    • Ribeiro O, Paul C, Nogueira C. Real men, real husbands: caregiving and masculinities in later life. J Aging Stud. 2007 ; 21: 302-313
    • (2007) J Aging Stud , vol.21 , pp. 302-313
    • Ribeiro, O.1    Paul, C.2    Nogueira, C.3
  • 17
    • 0032794310 scopus 로고    scopus 로고
    • Living with a memory impaired spouse: (Re) cognising the experience
    • O'Connor DL. Living with a memory impaired spouse: (re) cognising the experience. Can J Aging. 1999 ; 18 (2). 211-235
    • (1999) Can J Aging , vol.18 , Issue.2 , pp. 211-235
    • O'Connor, D.L.1
  • 18
    • 84866368563 scopus 로고    scopus 로고
    • Continuity and loss: The carer's journey through dementia
    • Gillies B. Continuity and loss: the carer's journey through dementia. Dementia. 2012 ; 11 (5). 657-676
    • (2012) Dementia , vol.11 , Issue.5 , pp. 657-676
    • Gillies, B.1
  • 19
    • 84970425149 scopus 로고
    • Men: The forgotten carers
    • Arber S, Gilbert N. Men: the forgotten carers. Sociology. 1989 ; 23 (1). 111-118
    • (1989) Sociology , vol.23 , Issue.1 , pp. 111-118
    • Arber, S.1    Gilbert, N.2
  • 20
    • 21844511870 scopus 로고
    • Man-made care: Community care and older male carers
    • Fisher M. Man-made care: community care and older male carers. Brit J Soc Work. 1994 ; 24 (6). 659-680
    • (1994) Brit J Soc Work , vol.24 , Issue.6 , pp. 659-680
    • Fisher, M.1
  • 21
    • 75249084079 scopus 로고    scopus 로고
    • Transitions in men's caring identities: Experiences from home-based care to nursing home placement
    • Eriksson H, Sandberg J. Transitions in men's caring identities: experiences from home-based care to nursing home placement. Int J Older People Nurs. 2008 ; 3 (2). 131-137
    • (2008) Int J Older People Nurs , vol.3 , Issue.2 , pp. 131-137
    • Eriksson, H.1    Sandberg, J.2
  • 23
    • 32244439612 scopus 로고    scopus 로고
    • 'Making it better': Self-perceived roles of family caregivers of older people living in care homes: A qualitative study
    • Davies S, Nolan M. 'Making it better': self-perceived roles of family caregivers of older people living in care homes: a qualitative study. Int J Nurs Stud. 2006 ; 43: 281-291
    • (2006) Int J Nurs Stud , vol.43 , pp. 281-291
    • Davies, S.1    Nolan, M.2
  • 24
    • 0035352217 scopus 로고    scopus 로고
    • Placing a spouse in a care home: The importance of keeping
    • Sandberg J, Lundh U, Nolan M. Placing a spouse in a care home: the importance of keeping. J Clin Nurs. 2001 ; 10 (3). 406-416
    • (2001) J Clin Nurs , vol.10 , Issue.3 , pp. 406-416
    • Sandberg, J.1    Lundh, U.2    Nolan, M.3
  • 25
    • 77957347529 scopus 로고    scopus 로고
    • Approaching the end of life and dying with dementia in care homes: The accounts of family carers
    • Hennings J, Froggatt K, Keady J. Approaching the end of life and dying with dementia in care homes: the accounts of family carers. Rev Clin Gerontol. 2010 ; 20 (2). 114-127
    • (2010) Rev Clin Gerontol , vol.20 , Issue.2 , pp. 114-127
    • Hennings, J.1    Froggatt, K.2    Keady, J.3
  • 27
    • 0034780201 scopus 로고    scopus 로고
    • Life and death in English nursing homes: Sequestration or transition?
    • Froggatt K. Life and death in English nursing homes: sequestration or transition?. Ageing Soc. 2001 ; 21: 319-332
    • (2001) Ageing Soc , vol.21 , pp. 319-332
    • Froggatt, K.1
  • 28
    • 0003257452 scopus 로고
    • Moore S Myerhoff B, ed. Assen: Van Gorcum;
    • Turner VW Secular ritual. Moore S Myerhoff B, ed. Assen: Van Gorcum ; 1977: 36-52.
    • (1977) Secular Ritual , pp. 36-52
    • Turner, V.W.1
  • 29
    • 0031262066 scopus 로고    scopus 로고
    • Spousal caregiving in the institutional setting: Visiting
    • Ross M, Rosenthal C, Dawson P. Spousal caregiving in the institutional setting: visiting. J Clin Nurs. 1997 ; 6 (6). 473-483
    • (1997) J Clin Nurs , vol.6 , Issue.6 , pp. 473-483
    • Ross, M.1    Rosenthal, C.2    Dawson, P.3
  • 33
    • 78650631271 scopus 로고    scopus 로고
    • Dying with dementia: What we know after more than a decade of research
    • Van der Steen JT. Dying with dementia: what we know after more than a decade of research. J Alzheimers Dis. 2010 ; 22 (1). 37-55
    • (2010) J Alzheimers Dis , vol.22 , Issue.1 , pp. 37-55
    • Van Der Steen, J.T.1
  • 34
    • 49149084990 scopus 로고    scopus 로고
    • Developing narrative research in supportive and palliative care: The focus on illness narratives
    • Bingley AF, Thomas C, Brown J, et al. Developing narrative research in supportive and palliative care: the focus on illness narratives. Palliat Med. 2008 ; 22: 653-658
    • (2008) Palliat Med , vol.22 , pp. 653-658
    • Bingley, A.F.1    Thomas, C.2    Brown, J.3
  • 36
    • 65349154501 scopus 로고    scopus 로고
    • Narrative research methods in palliative care contexts: Two case studies
    • Thomas C, Reeve J, Bingley A, et al. Narrative research methods in palliative care contexts: two case studies. J Pain Symptom Manage. 2009 ; 37 (5). 788-796
    • (2009) J Pain Symptom Manage , vol.37 , Issue.5 , pp. 788-796
    • Thomas, C.1    Reeve, J.2    Bingley, A.3
  • 38
    • 0033084399 scopus 로고    scopus 로고
    • Revisiting thematisation in the narrative study of epilepsy
    • Faircloth C. Revisiting thematisation in the narrative study of epilepsy. Sociol Health Ill. 1999 ; 21 (2). 209-227
    • (1999) Sociol Health Ill , vol.21 , Issue.2 , pp. 209-227
    • Faircloth, C.1
  • 40
    • 23444435090 scopus 로고    scopus 로고
    • Digging deep: Using diary techniques to explore the place of health and well-being amongst older people
    • Milligan C, Bingley A, Gatrell T. Digging deep: using diary techniques to explore the place of health and well-being amongst older people. Soc Sci Med. 2005 ; 61 (9). 1882-1892
    • (2005) Soc Sci Med , vol.61 , Issue.9 , pp. 1882-1892
    • Milligan, C.1    Bingley, A.2    Gatrell, T.3
  • 45
    • 84993683831 scopus 로고    scopus 로고
    • From ritual to relationship: A person-centred approach to consent in qualitative research with older people who have a dementia
    • Dewing J. From ritual to relationship: a person-centred approach to consent in qualitative research with older people who have a dementia. Dementia. 2002 ; 1 (2). 157-171
    • (2002) Dementia , vol.1 , Issue.2 , pp. 157-171
    • Dewing, J.1
  • 46
    • 1842520270 scopus 로고    scopus 로고
    • The person of the voice: Narrative identities in informed consent
    • McCormack B. The person of the voice: narrative identities in informed consent. Nurs Philos. 2002 ; 3 (2). 114-119
    • (2002) Nurs Philos , vol.3 , Issue.2 , pp. 114-119
    • McCormack, B.1
  • 47
    • 16644384476 scopus 로고    scopus 로고
    • The narrative correspondence method: What a follow-up study can tell us about the longer term effect on participants in emotionally demanding research
    • Grinyer A. The narrative correspondence method: what a follow-up study can tell us about the longer term effect on participants in emotionally demanding research. Qual Health Res. 2004 ; 14 (10). 1326-1341
    • (2004) Qual Health Res , vol.14 , Issue.10 , pp. 1326-1341
    • Grinyer, A.1
  • 48
    • 84898690177 scopus 로고    scopus 로고
    • Experiences of spouses of people with dementia in long-term care
    • Mullin J, Simpson J, Froggatt K. Experiences of spouses of people with dementia in long-term care. Dementia. 2011 ;:
    • (2011) Dementia
    • Mullin, J.1    Simpson, J.2    Froggatt, K.3
  • 49
    • 54549092568 scopus 로고    scopus 로고
    • Health care proxy grief symptoms before the death of nursing home residents with advanced dementia
    • Kiely DK, Prigerson H, Mitchell SL. Health care proxy grief symptoms before the death of nursing home residents with advanced dementia. Am J Geriatr Psychiatry. 2008 ; 16 (8). 664-673
    • (2008) Am J Geriatr Psychiatry , vol.16 , Issue.8 , pp. 664-673
    • Kiely, D.K.1    Prigerson, H.2    Mitchell, S.L.3
  • 50
    • 77956284389 scopus 로고    scopus 로고
    • Making decisions for people with dementia who lack capacity: Qualitative study of family carers in UK
    • Livingston G, Leavey G, Manela M, et al. Making decisions for people with dementia who lack capacity: qualitative study of family carers in UK. BMJ. 2010 ; 341: c4184
    • (2010) BMJ , vol.341 , pp. 4184
    • Livingston, G.1    Leavey, G.2    Manela, M.3
  • 52
    • 84879748666 scopus 로고    scopus 로고
    • Quick guide to caring
    • Carers UK accessed 20 December 2012
    • CarersUK. Quick guide to caring. The stages of caring. Carers UK, 2011, http://www.carersuk.org/help-and-advice/quick-guide-to-caring/ the-stages-of-caring (accessed 20 December 2012).
    • (2011) The Stages of Caring
  • 53
    • 84879771616 scopus 로고    scopus 로고
    • Living in a care home
    • The Relatives & Residents Association accessed 20 December 2012
    • The Relatives & Residents Association. Living in a care home. Feelings of guilt, http://www.relres.org/living-in-a-care-home.html (2008, accessed 20 December 2012).
    • (2008) Feelings of Guilt
  • 54
    • 0006809130 scopus 로고
    • The knowing because experiencing subject. Narratives, lives and autobiography
    • Stanley L. The knowing because experiencing subject. Narratives, lives and autobiography. Women Stud Int Forum. 1993 ; 16 (3). 205-215
    • (1993) Women Stud Int Forum , vol.16 , Issue.3 , pp. 205-215
    • Stanley, L.1
  • 55
    • 67650604168 scopus 로고    scopus 로고
    • Portraits of caregivers of end-stage dementia patients receiving hospice care
    • Sanders S, Butcher HK, Swails P, et al. Portraits of caregivers of end-stage dementia patients receiving hospice care. Death Stud. 2009 ; 33 (6). 521-556
    • (2009) Death Stud , vol.33 , Issue.6 , pp. 521-556
    • Sanders, S.1    Butcher, H.K.2    Swails, P.3
  • 58
    • 84889402182 scopus 로고    scopus 로고
    • Burns A Winblad B, ed. Chichester: John Wiley & Sons;
    • Zarit S, Gaulger J Severe dementia. Burns A Winblad B, ed. Chichester: John Wiley & Sons ; 2006: 185-192.
    • (2006) Severe Dementia , pp. 185-192
    • Zarit, S.1    Gaulger, J.2


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.