Advanced lung cancer patients' experience with continuity of care and supportive care needs

Supportive Care in Cancer

Volumn 21, Issue 5, 2013, Pages 1351-1358

  Husain, Amna ^a   Barbera, Lisa ^b   Howell, Doris ^c   Moineddin, Rahim ^d   Bezjak, Andrea ^c   Sussman, Jonathan ^e  

^a UNIVERSITY OF TORONTO   (Canada)

^b DEPARTMENT OF RADIATION ONCOLOGY   (Canada)

^c PRINCESS MARGARET HOSPITAL   (Canada)

^d UNIVERSITY OF TORONTO   (Canada)

^e JURAVINSKI CANCER CENTRE   (Canada)

Author keywords

Communication; Continuity of care; Coordination of care; Lung cancer; Palliative care; Patient reported outcomes; Quality of care; Supportive care needs

Indexed keywords

ADULT; ADVANCED CANCER; AGED; ARTICLE; CROSS-SECTIONAL STUDY; FEMALE; HEALTH CARE NEED; HEALTH CARE QUALITY; HEALTH CARE SYSTEM; HUMAN; LUNG CANCER; MAJOR CLINICAL STUDY; MALE; MEDICAL INFORMATION; MENTAL HEALTH CENTER; PATIENT CARE; PRIORITY JOURNAL; SUPPORTIVE CARE NEED;

ADULT; AGED; AGED, 80 AND OVER; AMBULATORY CARE; CONTINUITY OF PATIENT CARE; CROSS-SECTIONAL STUDIES; DATA COLLECTION; HEALTH SERVICES NEEDS AND DEMAND; HUMANS; LUNG NEOPLASMS; MALE; MIDDLE AGED; OUTCOME ASSESSMENT (HEALTH CARE); PATIENT CARE; QUALITY INDICATORS, HEALTH CARE;

EID: 84879684987     PISSN: 09414355     EISSN: 14337339     Source Type: Journal    
DOI: 10.1007/s00520-012-1673-7     Document Type: Article

References (40)

1. Brazil K, Whelan T, O'Brien MA, Sussman J, Pyette N, Bainbridge D (2004) Towards improving the co-ordination of supportive cancer care services in the community. Health Policy 70:125-131
2. Sullivan T (2003) Cancer Quality Council of Ontario. Strengthening the Quality of Cancer Services in Ontario. CHA Press, Ottawa
3. Lohfeld L, Brazil K, Willison K (2007) Continuity of care for advanced cancer patients: comparing the views of spousal caregivers in Ontario, Canada, to Dumont et al.'s theoretical model. J Palliat Care 23:117-126
4. Rogers MS, Barclay SI, Todd CJ (1998) Developing the Cambridge palliative audit schedule (CAMPAS): a palliative care audit for primary health care teams. Br J Gen Pract 48:1224-1227
5. Shortell SM (1976) Continuity of medical care: conceptualization and measurement. Med Care 14:377-391
6. Snyder CF, Dy SM, Hendricks DE, Brahmer JR, Carducci MA, Wolff AC, Wu AW (2007) Asking the right questions: investigating needs assessments and health-related quality-of-life questionnaires for use in oncology clinical practice. Support Care Cancer 15:1075-1085
7. Turgeon J, Dumont S, St-Pierre M, Sevigny A, Vezina L (2006) Continuity of cancer care in Quebec: beyond the symptoms. Can Fam Physician 52:1572-1573
8. Committee on Quality Health Care In America, Institute of Medicine (2001) Crossing the quality chasm: a new health system for the 21st century. National Academy Press, Washington, DC
9. Haggerty JL, Reid RJ, Freeman GK, Starfield BH, Adair CE, McKendry R (2003) Continuity of care: a multidisciplinary review. BMJ 327:1219-1221
10. Coleman EA, Eilertsen TB, Magid DJ, Conner DA, Beck A, Kramer AM (2002) The association between care co-ordination and emergency department use in older managed care enrollees. Int J Integr Care 2:e03
11. Donaldson MS (2001) Continuity of care: a reconceptualization. Med Care Res Rev 58:255-290
12. Dumont I, Dumont S, Turgeon J (2005) Continuity of care for advanced cancer patients. J Palliat Care 21:49-56
13. Saultz JW, Lochner J (2005) Interpersonal continuity of care and care outcomes: a critical review. Ann Fam Med 3:159-166
14. Fan VS, Burman M, McDonell MB, Fihn SD (2005) Continuity of care and other determinants of patient satisfaction with primary care. J Gen Intern Med 20:226-233
15. Gulliford MC, Naithani S, Morgan M (2007) Continuity of care and intermediate outcomes of type 2 diabetes mellitus. Fam Pract 24:245-251
16. Nutting PA, Goodwin MA, Flocke SA, Zyzanski SJ, Stange KC (2003) Continuity of primary care: to whom does it matter and when? Ann Fam Med 1:149-155
17. Sanson-Fisher R, Girgis A, Boyes A, Bonevski B, Burton L, Cook P (2000) The unmet supportive care needs of patients with cancer. Supportive Care Review Group. Cancer 88:226-237
18. Canadian Cancer Society (2012) Estimated new cases and deaths for cancers by sex. Canadian Cancer Society, Toronto
19. Li J, Girgis A (2006) Supportive care needs: are patients with lung cancer a neglected population? Psychooncology 15:509-516
20. Sarhill N, Walsh D, Nelson KA, LeGrand S, Davis MP (2001) Assessment of delirium in advanced cancer: the use of the bedside confusion scale. Am J Hosp Palliat Care 18:335-341
21. Bonevski B, Sanson-Fisher R, Girgis A, Burton L, Cook P, Boyes A (2000) Evaluation of an instrument to assess the needs of patients with cancer. Supportive Care Review Group. Cancer 88:217-225
22. Boyes A, Newell S, Girgis A (2002) Rapid assessment of psychosocial well-being: are computers the way forward in a clinical setting? Qual Life Res 11:27-35
23. Cleary PD, Edgman-Levitan S, Roberts M, Moloney TW, McMullen W, Walker JD, Delbanco TL (1991) Patients evaluate their hospital care: a national survey. Health Aff (Millwood) 10:254-267
24. Picker Institute Europe (2009) North London Cancer Network Patient Survey: Executive Summary. Picker Institute Europe, Oxford
25. National Research Corporation, Ontario Hospital Association (2003) N.R.C.: Development and Validation of the Picker Ambulatory Oncology Survey Instrument in Canada. National Research Corporation, Lincoln, NE
26. Safran DG, Karp M, Coltin K, Chang H, Li A, Ogren J, Rogers WH (2006) Measuring patients' experiences with individual primary care physicians. Results of a statewide demonstration project. J Gen Intern Med 21:13-21
27. Flocke SA (1997) Measuring attributes of primary care: development of a new instrument. J Fam Pract 45:64-74
28. Booth L, Selby P, Lynch P, Brown J, Velikova G (2001) Measurement of continuity and co-ordination of care in a cancer centre. Qual Life Res 10:246-246 (Poster Abstract No. 212)
29. Flocke SA, Stange KC, Zyzanski SJ (1998) The association of attributes of primary care with the delivery of clinical preventive services. Med Care 36:AS21-AS30
30. Harley C, Adams J, Booth L, Selby P, Brown J, Velikova G (2009) Patient experiences of continuity of cancer care: development of a new medical care questionnaire (MCQ) for oncology outpatients. Value Health 12:1180-1186
31. Anderson F, Downing GM, Hill J, Casorso L, Lerch N (1996) Palliative performance scale (PPS): a new tool. J Palliat Care 12:5-11
32. Howell D, Prestwich C, Laughlin E, Giga N (2004) Enhancing the role of case managers with specialty populations: development and evaluation of a palliative care education program. Lippincotts Case Manag 9:166-174
33. Sussman J, Howell D, Whelan T, Brazil K, Pyette N, and Bainbridge D (2007) Prospective study of specialist oncology community nursing resulting in improvements in key patient supportive care outcomes. In Journal of Clinical Oncology: ASCO Annual Meeting Proceedings Part 1, 25:18 s Abstract No. 9107
34. Burge F, Lawson B, Johnston G, Cummings I (2003) Primary care continuity and location of death for those with cancer. J Palliat Med 6:911-918
35. Smith DP, Supramaniam R, King MT, Ward J, Berry M, Armstrong BK (2007) Age, health, and education determine supportive care needs of men younger than 70 years with prostate cancer. J Clin Oncol 25:2560-2566
36. Fletcher RW, Fletcher SW (2005) Clinical epidemiology: the essentials. Lippincott Williams & Wilkins, Baltimore
37. Cohen J, Cohen P, West S, Aiken L (2003) Applied multiple regression/correlation analysis for behavioral sciences. Lawrence Erlbaum Associates Inc., Mahwah
38. King M, Jones L, Richardson A, Murad S, Irving A, Aslett H, Ramsay A, Coelho H, Andreou P, Tookman A, Mason C, Nazareth I (2008) The relationship between patients' experiences of continuity of cancer care and health outcomes: a mixed methods study. Br J Cancer 98:529-536
39. Sandoval GA, Brown AD, Sullivan T, Green E (2006) Factors that influence cancer patients' overall perceptions of the quality of care. Int J Qual Health Care 18:266-274
40. Steginga SK, Occhipinti S, Dunn J, Gardiner RA, Heathcote P, Yaxley J (2001) The supportive care needs of men with prostate cancer (2000). Psychooncology 10:66-75