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Volumn 198, Issue 11, 2013, Pages 575-576

Challenges of transition to adult health services for patients with rare diseases

Author keywords

[No Author keywords available]

Indexed keywords

ANGIOOSTEOHYPERTROPHY SYNDROME; ARTICLE; BONE DYSPLASIA; CATAPLEXY; DUCHENNE MUSCULAR DYSTROPHY; EHLERS DANLOS SYNDROME; HEALTH CARE ACCESS; HEALTH CARE POLICY; HEALTH SERVICE; HUMAN; HYPOCHONDROPLASIA; HYPOPITUITARISM; LIFESPAN; NARCOLEPSY; PATIENT CARE; PHELAN MCDERMID SYNDROME; RARE DISEASE; RASMUSSEN SYNDROME; SURVIVAL;

EID: 84879145609     PISSN: 0025729X     EISSN: 13265377     Source Type: Journal    
DOI: 10.5694/mja13.10424     Document Type: Article
Times cited : (13)

References (10)
  • 1
    • 84879139688 scopus 로고    scopus 로고
    • Transition to adult care in an Australian context
    • In: Wood D, Reiss JG, Ferris ME, et al, editors, New York: Nova
    • Steinbeck KS, Brodie L, Towns SJ. Transition to adult care in an Australian context. In: Wood D, Reiss JG, Ferris ME, et al, editors. Transition from pediatric to adult medical care. New York: Nova, 2012: 261-270.
    • (2012) Transition From Pediatric to Adult Medical Care , pp. 261-270
    • Steinbeck, K.S.1    Brodie, L.2    Towns, S.J.3
  • 2
    • 1542603726 scopus 로고    scopus 로고
    • Transition to adult health care for adolescents and young adults with chronic conditions: Position paper of the Society for Adolescent Medicine
    • Rosen DS, Blum RW, Britto M, et al. Transition to adult health care for adolescents and young adults with chronic conditions: position paper of the Society for Adolescent Medicine. J Adolesc Health 2003; 33: 309-311.
    • (2003) J Adolesc Health , vol.33 , pp. 309-311
    • Rosen, D.S.1    Blum, R.W.2    Britto, M.3
  • 4
    • 84879180518 scopus 로고    scopus 로고
    • Final report: November 2008. Transition Care Network, NSW Agency for Clinical Innovation, accessed Apr
    • Lister S, Brodie L. Transition Care Workforce Project. Final report: November 2008. Transition Care Network, NSW Agency for Clinical Innovation. http://www.aci.health.nsw.gov.au/__data/assets/pdf_file/0003/153615/transition_care_workforce_report.pdf (accessed Apr 2013).
    • (2013) Transition Care Workforce Project
    • Lister, S.1    Brodie, L.2
  • 5
    • 84879166002 scopus 로고    scopus 로고
    • Transfer of young adults with complex medical needs project
    • Melbourne: RCH, accessed Mar 2013
    • Sloman F. Transfer of young adults with complex medical needs project. Royal Children's Hospital. Melbourne: RCH, 2005. www.health.vic.gov.au/subacute/transfer_young.pdf (accessed Mar 2013).
    • (2005) Royal Children's Hospital
    • Sloman, F.1
  • 6
    • 84860517155 scopus 로고    scopus 로고
    • Australia makes up for lost time on rare diseases
    • Kirby T. Australia makes up for lost time on rare diseases. Lancet 2012; 379: 1689-1690.
    • (2012) Lancet , vol.379 , pp. 1689-1690
    • Kirby, T.1
  • 7
    • 84873516202 scopus 로고    scopus 로고
    • Australian families living with rare disease: Experiences of diagnosis, health services use and needs for psychosocial support
    • Anderson M, Elliott EJ, Zurynski YA. Australian families living with rare disease: experiences of diagnosis, health services use and needs for psychosocial support. Orphanet J Rare Dis 2013; 8: 22.
    • (2013) Orphanet J Rare Dis , vol.8 , pp. 22
    • Anderson, M.1    Elliott, E.J.2    Zurynski, Y.A.3
  • 9
    • 0036437604 scopus 로고    scopus 로고
    • The Agrenska centre: A socioeconomic case study of rare diseases
    • Olauson A. The Agrenska centre: a socioeconomic case study of rare diseases. Pharmacoeconomics 2002; 20 Suppl 3: 73-75.
    • (2002) Pharmacoeconomics , vol.20 , Issue.SUPPL. 3 , pp. 73-75
    • Olauson, A.1


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.