Course and predictors of depressive symptoms among family caregivers of terminally ill cancer patients until their death

Psycho-Oncology

Volumn 22, Issue 6, 2013, Pages 1312-1318

  Tang, Siew Tzuh ^a   Chang, Wen Cheng ^b   Chen, Jen Shi ^b   Wang, Hung Ming ^b   Shen, Wen Chi ^b   Li, Chung Yi ^c   Liao, Yen Chi ^d  

^a CHANG GUNG UNIVERSITY   (Taiwan)

^b CHANG GUNG UNIVERSITY COLLEGE OF MEDICINE   (Taiwan)

^c NATIONAL CHENG KUNG UNIVERSITY   (Taiwan)

^d SHIN KONG WU HO SU MEMORIAL HOSPITAL   (Taiwan)

Author keywords

depressive symptoms; end of life care; family caregivers; longitudinal study; psycho oncology; terminally ill cancer patients

Indexed keywords

ADULT; AGED; ARTICLE; CANCER MORTALITY; CANCER PATIENT; CAREGIVER; CAREGIVER BURDEN; CAREGIVER REACTION ASSESSMENT SCALE; CENTER FOR EPIDEMIOLOGICAL STUDIES DEPRESSION SCALE; COURSE EVALUATION; DEPRESSION; DISEASE PREDISPOSITION; DISTRESS SYNDROME; FAMILY; FEMALE; HEALTH STATUS; HUMAN; LONGITUDINAL STUDY; MAJOR CLINICAL STUDY; MALE; NAMED INVENTORIES, QUESTIONNAIRES AND RATING SCALES; PATIENT ABANDONMENT; PREDICTIVE VALUE; PROSPECTIVE STUDY; PSYCHOLOGICAL RATING SCALE; SELF ESTEEM; SOCIAL SUPPORT; SYMPTOM DISTRESS SCALE; TERMINALLY ILL PATIENT;

ADULT; AGED; AGED, 80 AND OVER; CAREGIVERS; CHILD; COST OF ILLNESS; DEATH; DEPRESSION; FEMALE; HUMANS; MALE; MIDDLE AGED; NEOPLASMS; PROSPECTIVE STUDIES; RISK FACTORS; SELF CONCEPT; SOCIAL SUPPORT; STRESS, PSYCHOLOGICAL; TERMINAL CARE; TERMINALLY ILL;

EID: 84878797072     PISSN: 10579249     EISSN: 10991611     Source Type: Journal    
DOI: 10.1002/pon.3141     Document Type: Article

References (47)

1. Rhee Y, Degenholtz HB, Lo Sasso AT, Emanuel LL,. Estimating the quantity and economic value of family caregiving for community-dwelling older persons in the last year of life. J Am Geriatr Soc 2009; 57: 1654-1659.
2. Van Houtven CH, Ramsey SD, Hornbrook MC, Atienza AA, van Ryn M,. Economic burden for informal caregivers of lung and colorectal cancer patients. Oncologist 2010; 15: 883-893.
3. Yabroff KR, Kim Y,. Time costs associated with informal caregiving for cancer survivors. Cancer 2009; 115 (18 Suppl): 4362-4373.
4. Braun M, Mikulincer M, Rydall A, Walsh A, Rodin G,. Hidden morbidity in cancer: spouse caregivers. J Clin Oncol 2007; 25: 4829-4834.
5. Pitceathly C, Maguire P,. The psychological impact of cancer on patients' partners and other key relatives: a review. Eur J Cancer 2003; 39: 1517-1524.
6. Northouse L, Williams AI, Given B, McCorkle R,. Psychosocial care for family caregivers of patients with cancer. J Clin Oncol 2012; 30: 1227-1234.
7. Christakis NA, Allison PD,. Mortality after the hospitalization of a spouse. New Engl J Med 2006; 354: 719-730.
8. Boyle PJ, Feng Z, Raab GM,. Does widowhood increase mortality risk? Testing for selection effects by comparing causes of spousal death. Epidemiol 2011; 22: 1-5.
9. Fletcher BAS, Dodd MJ, Schumacher KL, Miaskowski C,. Symptom experience of family caregivers of patients with cancer. Oncol Nurs Forum 2008; 35: E23-E44.
10. Given B, Given CW,. Patient and family caregiver reaction to new and recurrent breast cancer. J Am Med Womens Assoc 1992; 47: 201-206.
11. Jepson C, McCorkle R, Adler D, Nuamah I, Lusk E,. Effects of home care on caregivers' psychosocial status. Image: J Nurs Scholarship 1999; 31: 115-120.
12. Kurtz ME, Kurtz JC, Given CW, Given BA,. Depression and physical health among family caregivers of geriatric patients with cancer-a longitudinal view. Med Sci Monitor 2004; 10: CR447-CR456.
13. Nijboer C, Triemstra M, Tempelaar R, Sanderman R, van den Bos GAM,. Determinants of caregiving experiences and mental health of partners of cancer patients. Cancer 1999; 86: 577-588.
14. Tuinstra J, Hagedoorn M, Van Sonderen E, Ranchor A, Van den Bos GA, Nijboer C,. Psychological distress in couples dealing with colorectal cancer: gender and role differences and intracouple correspondence. British J Health Psychol 2004; 9: 465-478.
15. Aranda SK, Hayman-White K,. Home caregivers of the person with advanced cancer: an Australian perspective. Cancer Nurs 2001; 24: 300-307.
16. Doorenbos AZ, Given B, Given CW, et al,. The influence of end-of-life cancer care on caregivers. Res Nurs Health 2007; 30: 270-281.
17. Grunfeld E, Coyle D, Whelan T, et al,. Family caregiver burden: results of a longitudinal study of breast cancer patients and their principal caregivers. Can Med Assoc J 2004; 170: 1795-1801.
18. Burridge LH, Barnett AG, Clavarino AM,. The impact of perceived stage of cancer on carers' anxiety and depression during the patients' final year of life. Psycho-Oncology 2009; 18: 615-623.
19. McCorkle R, Robinson L, Nuamah I, Lev E, Benoliel J,. The effects of home nursing care for patients during terminal illness on the bereaved's psychological distress. Nurs Res 1998; 47: 2-10.
20. Pearlin LI, Mullan JT, Semple SJ, Skaff MM,. Caregiving and the stress process: an overview of concepts and their measures. Gerontologist 1990; 30: 583-594.
21. Nijboer C, Tempelaar R, Triemstra M, van den Bos GAM, Sanderman R,. The role of social and psychologic resources in caregiving of cancer patients. Cancer 2001; 91: 1029-1039.
22. Schoenmakers B, Buntinx F, Delepeleire J,. Factors determining the impact of care-giving on caregivers of elderly patients with dementia. A systematic literature review. Maturitas 2010; 66: 191-200.
23. Radloff LS,. The CES-D Scale: a self-report depression scale for researching the general population. Appl Psychol Measures 1977; 1: 385-401.
24. Chien CP, Cheng TA,. Depression in Taiwan: epidemiological survey utilizing CES-D. Bull. Jpn. Soc. Neurol. Psychiatr 1985; 87: 335-338.
25. McCorkle R, Young K,. Development of a symptom distress scale. Cancer Nurs 1978; 1: 373-378.
26. Emanuel EJ, Fairclough DL, Slutsman J, Alpert H, Baldwin D, Emanuel LL,. Assistance from family members, friends, paid care givers and volunteers in the care of terminally ill patients. New Engl J Med 1999; 341: 956-963.
27. Sherbourne CD, Stewart AL,. The MOS Social Support Survey. Soc Sci Med 1991; 32: 705-714.
28. Shyu YIL, Tang WR, Liang J, Weng LJ,. Psychometric testing of the Social Support Survey on a Taiwanese sample. Nurs Res 2006; 55: 411-417.
29. Teno JM, Clarridge B, Casey V,. Validation of Toolkit After-death Bereaved Family Member Interview. J Pain Symptom Manag 2001; 22: 752-758.
30. Given CW, Given B, Stommel M, Collins C, King S, Franklin S,. The Caregiver Reaction Assessment (CRA) for caregivers to persons with chronic physical and mental impairments. Res Nurs Health 1992; 15: 271-283.
31. Tang ST, Li CY, Chen CCH,. Trajectory and determinants of the quality of life of family caregivers of terminally ill cancer patients in Taiwan. Qual Life Res 2008; 17: 387-395.
32. Christakis NA, Escarce JJ,. Survival of Medicare patients after enrollment in hospice programs. New Engl J Med 1996; 335: 172-178.
33. Burton P, Gurrin L, Sly P,. Extending the simple linear regression model to account for correlated responses: an introduction to generalized estimating equations and multi-level mixed modeling. Stat Med 1998; 17: 1261-1291.
34. Siminoff LA, Wilson-Genderson M, Baker S Jr,. Depressive symptoms in lung cancer patients and their family caregivers and the influence of family environment. Psycho-Oncology 2010; 19: 1285-1293.
35. Diwan S, Hougham GW, Sachs GA,. Strain experienced by caregivers of dementia patients receiving palliative care: findings from the Palliative Excellence in Alzheimer Care Efforts (PEACE) program. J Palliat Med 2004; 7: 797-806.
36. Given B, Wyatt G, Given C, et al,. Burden and depression among caregivers of patients with cancer at the end of life. Oncol Nurs Forum 2004; 31: 1105-1117.
37. Covinsky KE, Newcomer R, Fox P, et al,. Patient and caregiver characteristics associated with depression in caregivers of patients with dementia. J Gen Intern Med 2003; 18: 1006-1014.
38. William A, McCorkle R,. Cancer family caregivers during the palliative, hospice, and bereavement phases: a review of the descriptive psychosocial literature. Palliat Support Care 2011; 9: 315-325.
39. Kurtz ME, Kurtz JC, Given CW, Given B,. A randomized, controlled trial of a patient/caregiver symptom control intervention: effects on depressive symptomatology of caregivers of cancer patients. J Pain Symptom Manage 2005; 30: 112-122.
40. Stetz KM,. Caregiving demands during advanced cancer: the spouse's needs. Cancer Nurs 1987; 10: 260-268.
41. Ownsworth T, Henderson L, Chambers SK,. Social support buffers the impact of functional impairments on caregiver psychological well-being in the context of brain tumor and other cancers. Psycho-Oncology 2010; 19: 1116-1122.
42. Price MA, Butow PN, Costa DS, et al,. Prevalence and predictors of anxiety and depression in women with invasive ovarian cancer and their caregivers. Med J Australia 2010; 193 (5 Suppl): S52-S57.
43. Rhee YS, Yun YH, Park S, et al,. Depression in family caregivers of cancer patients: the feeling of burden as a predictor of depression. J Clin Oncol 2008; 26: 5890-5895.
44. Tang ST, Chen ML, Huang EW, Koong SL, Lin GL, Hsiao SC,. Hospice utilization in Taiwan by cancer patients who died between 2000 and 2004. J Pain Symptom Manage 2007; 33: 446-453.
45. Townsend A, Noelker L, Deimling G, Bass D,. Longitudinal impact of interhousehold caregiving on adult children's mental health. Psychol Aging 1989; 4: 393-401.
46. Harding R, List S, Epiphaniou E, Jones H,. How can informal caregivers in cancer and palliative care be supported? An updated systematic literature review of interventions and their effectiveness. Palliat Med 2012; 26: 7-22.
47. Candy B, Jones L, Drake R, Leurent B, King M,. Interventions for supporting informal caregivers of patients in the terminal phase of a disease. Cochrane Db Syst Rev 2011 6. Art. No.: CD007617. DOI: 10.1002/14651858.CD007617. pub2