Diagnosing cancer in the bush: A mixed-methods study of symptom appraisal and help-seeking behaviour in people with cancer from rural Western Australia

Family Practice

Volumn 30, Issue 3, 2013, Pages 294-301

  Emery, Jon D ^a,b,c   Walter, Fiona M ^a,b   Gray, Vicky ^a   Sinclair, Craig ^a   Howting, Denise ^a   Bulsara, Max ^d   Bulsara, Caroline ^a   Webster, Andrew ^a   Auret, Kirsten ^a   Saunders, Christobel ^e   Nowak, Anna ^f   D'Arcy Holmand, C ^a  

^a UNIVERSITY OF WESTERN AUSTRALIA   (Australia)

^b UNIVERSITY OF CAMBRIDGE   (United Kingdom)

^c UNIVERSITY OF MELBOURNE   (Australia)

^d UNIVERSITY OF NOTRE DAME   (Australia)

^e Ear Science Institute of Australia   (Australia)

^f UNIVERSITY OF WESTERN AUSTRALIA   (Australia)

Author keywords

Breast cancer; Colorectal cancer; Lung cancer; Primary care; Prostate cancer; Rural health

Indexed keywords

ADULT; AGED; ARTICLE; AUSTRALIA; BREAST CANCER; CANCER DIAGNOSIS; CANCER PATIENT; COLORECTAL CANCER; COMPARATIVE STUDY; DIAGNOSTIC PROCEDURE; FEMALE; HEALTH CARE; HELP SEEKING BEHAVIOR; HUMAN; LUNG CANCER; MAJOR CLINICAL STUDY; MALE; PROSTATE CANCER; SYMPTOM ASSESSMENT; SYMPTOMATOLOGY;

BREAST CANCER; COLORECTAL CANCER; LUNG CANCER; PRIMARY CARE; PROSTATE CANCER; RURAL HEALTH.;

ADULT; AGED; BREAST NEOPLASMS; COLORECTAL NEOPLASMS; DELAYED DIAGNOSIS; FEMALE; HEALTH SERVICES ACCESSIBILITY; HUMANS; LUNG NEOPLASMS; MALE; MIDDLE AGED; MODELS, THEORETICAL; PATIENT ACCEPTANCE OF HEALTH CARE; PROSTATIC NEOPLASMS; RURAL POPULATION; WESTERN AUSTRALIA;

EID: 84878624310     PISSN: 02632136     EISSN: 14602229     Source Type: Journal    
DOI: 10.1093/fampra/cms087     Document Type: Article

References (35)

1. Underhill CR, Goldstein D, Grogan PB. Inequity in rural cancer survival in Australia is not an insurmountable problem. Med J Aust 2006; 185: 479-80.
2. Cancer in Australia 2010: An Overview. Canberra, Australia: Australian Institute of Health and Welfare, 2010.
3. Hall SE, Holman CD, Wisniewski ZS, Semmens J. Prostate cancer: socio-economic, geographical and private-health insurance effects on care and survival. BJU Int 2005; 95: 51-8.
4. Baade PD, Dasgupta P, Aitken JF, Turrell G. Distance to the closest radiotherapy facility and survival after a diagnosis of rectal cancer in Queensland. Med J Aust 2011; 195: 350-4.
5. Coory MD, Baade PD. Urban-rural differences in prostate cancer mortality, radical prostatectomy and prostate-specific antigen testing in Australia. Med J Aust 2005; 182: 112-5.
6. Mitchell KJ, Fritschi L, Reid A et al. Rural-urban differences in the presentation, management and survival of breast cancer in Western Australia. Breast 2006; 15: 769-76.
7. Delivering Regional Cancer Centres. Canberra, Australia: Department of Health and Ageing, 2010.
8. Jong KE, Vale PJ, Armstrong BK. Rural inequalities in cancer care and outcome. Med J Aust 2005; 182: 13-4.
9. Baade PD, Dasgupta P, Aitken J, Turrell G. Geographic remoteness and risk of advanced colorectal cancer at diagnosis in Queensland: a multilevel study. Br J Cancer 2011; 105: 1039-41.
10. Allgar VL, Neal RD. Delays in the diagnosis of six cancers: analysis of data from the National Survey of NHS Patients: Cancer. Br J Cancer 2005; 92: 1959-70.
11. Richards MA, Westcombe AM, Love SB, Littlejohns P, Ramirez AJ. Influence of delay on survival in patients with breast cancer: a systematic review. Lancet 1999; 353: 1119-26.
12. Tørring ML, Frydenberg M, Hansen RP et al. Time to diagnosis and mortality in colorectal cancer: a cohort study in primary care. Br J Cancer 2011; 104: 934-40.
13. Hall SE, Holman CD, Threlfall T et al. Lung cancer: an exploration of patient and general practitioner perspectives on the realities of care in rural Western Australia. Aust J Rural Health 2008; 16: 355-62.
14. Andersen BL, Cacioppo JT. Delay in seeking a cancer diagnosis: delay stages and psychophysiological comparison processes. Br J Soc Psychol 1995; 34 (Pt 1): 33-52.
15. Walter F, Webster A, Scott S, Emery J. The Andersen Model of Total Patient Delay: a systematic review of its application in cancer diagnosis. J Health Serv Res Policy 2012: 110-8.
16. ASGC Remoteness Classification: Purpose and Use. (Census Paper No. 03/01). Canberra, Australia: Australian Bureau of Statisitics, 2003.
17. Morgan DL. Practical strategies for combining qualitative and quantitative methods: applications to health research. Qual Health Res 1998; 8: 362-76.
18. Glasner T, van der Vaart W. Applications of calendar instruments in social surveys: a review. Qual Quant 2009; 43: 333-49.
19. Ritchie R, Spencer L. Qualitative data analysis for applied policy research. In: Bryman A, Burgess R (eds). Analysing Qualitative Data. London: Routledge,1994.
20. O'Cathain A, Murphy E, Nicholl J. Three techniques for integrating data in mixed methods studies. BMJ 2010; 341: c4587.
21. Miles M, Huberman A. Qualitative Data Analysis: An Expanded Sourcebook. Thousand Oaks, CA: Sage; 1994.
22. Cancer Incidence and Mortality in Western Australia, 2009. Perth, Australia: Western Australian Cancer Registry, 2011.
23. Torring M-L. Time from first presentation of symptoms in primary care until diagnosis of cancer: association with mortality.PhD Thesis. University of Aarhus, 2011.
24. Baade PD, Youlden DR, Coory MD, Gardiner RA, Chambers SK. Urban-rural differences in prostate cancer outcomes in Australia: what has changed?Med J Aust 2011; 194: 293-6.
25. Jordan SJ, Francis JE, Nelson AE, Zorbas HM, Luxford KA, Webb PM; Australian Cancer Study (Ovarian Cancer); Australian Ovarian Cancer Study Group. Pathways to the diagnosis of epithelial ovarian cancer in Australia. Med J Aust 2010; 193: 326-30.
26. Macleod U, Mitchell ED, Burgess C, Macdonald S, Ramirez AJ. Risk factors for delayed presentation and referral of symptomatic cancer: evidence for common cancers. Br J Cancer 2009; 101 Suppl 2: S92-S101.
27. Smith LK, Pope C, Botha JL. Patients' help-seeking experiences and delay in cancer presentation: a qualitative synthesis. Lancet 2005; 366: 825-31.
28. Howat A, Veitch C, Cairns W. A descriptive study comparing health attitudes of urban and rural oncology patients. Rural Remote Health 2006; 6: 563.
29. Smith J. Australia's Rural and Remote Health: A Social Justice Perspective. Croydon, Australia: Tertiary Press; 2007.
30. Oxford Dictionaries. 2011. www.oxforddictionairies.com (accessed on 7 October 2011).
31. Elliott-Schmidt R, Strong J. The concept of well-being in a rural setting: understanding health and illness. Aust J Rural Health 1997; 5: 59-63.
32. Dixon J, Welch N. Researching the rural-metropolitan health differential using the 'social determinants of health'. Aust J Rural Health 2000; 8: 254-60.
33. Judd F, Jackson H, Komiti Aet al.Help-seeking by rural residents for mental health problems: the importance of agrarian values. Aust N Z J Psychiatry 2006; 40: 769-76.
34. Improving Primary Health Care for All Australians. Canberra, Australia: Australian Government Department of Health and Ageing, 2010.
35. Richards MA. The National Awareness and Early Diagnosis Initiative in England: assembling the evidence. Br J Cancer 2009; 101 Suppl 2: S1-4.