Use and need for psychosocial support in cancer patients: A population-based sample of patients with minor children

Cancer

Volumn 119, Issue 12, 2013, Pages 2333-2341

  Ernst, Johanna Christine ^a   Beierlein, Volker ^a   Romer, Georg ^a   Möller, Birgit ^a   Koch, Uwe ^a   Bergelt, Corinna ^a  

^a UNIVERSITY MEDICAL CENTER HAMBURG EPPENDORF   (Germany)

Author keywords

children; neoplasm; parental cancer; psychosocial needs; psychosocial use

Indexed keywords

ADULT; ANXIETY; ARTICLE; BREAST CANCER; CANCER PATIENT; CANCER REGISTRY; CANCER STAGING; CANCER SURVIVOR; CHILD PARENT RELATION; CONTROLLED STUDY; DEMOGRAPHY; DEPRESSION; DIGESTIVE SYSTEM CANCER; DISTRESS SYNDROME; FAMILY FUNCTIONING; FEMALE; FEMALE GENITAL TRACT CANCER; HUMAN; MAJOR CLINICAL STUDY; MALE; PRIORITY JOURNAL; PSYCHOSOCIAL CARE; QUALITY OF LIFE; SELF REPORT; SOCIAL STATUS; URINARY TRACT CANCER;

ADULT; ANXIETY DISORDERS; CHILD; DEPRESSIVE DISORDER; FAMILY; FEMALE; GERMANY; HEALTH SERVICES NEEDS AND DEMAND; HUMANS; MALE; MIDDLE AGED; NEOPLASMS; PARENTING; REGISTRIES; SOCIAL SUPPORT; SOCIOECONOMIC FACTORS;

EID: 84878584023     PISSN: 0008543X     EISSN: 10970142     Source Type: Journal    
DOI: 10.1002/cncr.28021     Document Type: Article

References (32)

1. Zabora J, BrintzenhofeSzoc K, Curbow B, Hooker C, Piantadosi S,. The prevalence of psychological distress by cancer site. Psychooncology. 2001; 10: 19-28.
2. Sellick SM, Crooks DL,. Depression and cancer: an appraisal of the literature for prevalence, detection, and practice guideline development for psychological interventions. Psychooncology. 1999; 8: 315-333.
3. Osborn T,. The psychosocial impact of parental cancer on children and adolescents: a systematic review. Psychooncology. 2007; 16: 101-126.
4. Hagedoorn M, Kreicbergs U, Appel C,. Coping with cancer: the perspective of patients' relatives. Acta Oncol. 2011; 50: 205-211.
5. Romer G, Möller B, Haagen M, Quitmann J, Riedesser P,. Psychological distress and coping of children with a parent having cancer. In:, Koch U, Weis J, eds. Psycho-oncology-a discipline in development. [in German]. Gottingen: Hogrefe; 2009: 44-62.
6. Ernst J, Richter D, Leuteritz K, Klenert E, Schmid R, Brahler E,. Psychological distress of parents of minor children having cancer. [in German]. Verhaltensther Psychosoz Praxis. 2011; 43: 55-62.
7. Weaver KE, Rowland JH, Alfano CM, McNeel TS,. Parental cancer and the family: a population-based estimate of the number of US cancer survivors residing with their minor children. Cancer. 2010; 116: 4395-4401.
8. Regan TW, Lambert SD, Girgis A, Kelly B, Kayser K, Turner J,. Do couple-based interventions make a difference for couples affected by cancer? A systematic review. BMC Cancer. 2012; 12: 279.
9. National Institute for Clinical Excellence. Guidance on Cancer Services: Improving Supportive and Palliative Care for Adults With Cancer. Available from URL: http://guidance.nice.org.uk/CSGSP/Guidance/pdf/English [accessed June 15, 2012].
10. Ernst J, Zenger M, Schmidt R, Schwarz R, Brahler E,. Medical and psychosocial care needs of cancer patients: a systematic review comparing urban and rural provisions [in German]. Dtsch Med Wochenschr. 2010; 135: 1531-1537.
11. Ernst JC, Beierlein V, Romer G, Moller B, Koch U, Bergelt C,. Psychosocial care of children with a parent having cancer-an appraisal of specific care services in Germany [in German]. Psychother Psychosom Med Psychol. 2011; 61: 426-434.
12. Niemela M, Paananen R, Hakko H, Merikukka M, Gissler M, Rasanen S,. The prevalence of children affected by parental cancer and their use of specialized psychiatric services: the 1987 Finnish Birth Cohort study. Int J Cancer. 2012; 131: 2117-2125.
13. Andersen RM,. Revisiting the behavioral model and access to medical care: does it matter? J Health Soc Behav. 1995; 36: 1-10.
14. Free and Hanseatic City of Hamburg, Public health authority and consumer protection. Cancer documentation of Hamburg 2007-2009. [in German] Available from URL: http://www.hamburg.de/contentblob/2157870/data/krebsdokumentation- 2007-2009-teil1.pdf [accessed June 13, 2012].
15. Cancer registry of Schleswig-Holstein, Institute of Cancer Epidemiology of Schleswig-Holstein. Incidence and Mortality in 2008. [in German]. Available from URL: http://www.krebsregister-sh.de/berichte/kish2008.pdf [accessed June 1, 2012].
16. Winkler J,. Measurement of social status with an index in health surveys of the DHP (Robert Koch-Institute papers). In:, Ahrens W, Bellach BM, Jockel KH, eds. Measurement of sociodemographic characteristics in epidemiology. [in German]. Munich: MMV Medizinverlag; 1998: 69-74.
17. Herrmann-Lingen C, Buss U, Snaith RP,. HADS-D: Hospital Anxiety and Depression Scale [German version]. Bern: Verlag Hans Huber; 1995.
18. Dowrick C, Casey P, Dalgard O, et al. Outcomes of Depression International Network (ODIN). Background, methods and field trials. ODIN Group. Br J Psychiatry. 1998; 172: 359-363.
19. Meltzer H,. Development of a common instrument for mental health. In:, Nosikov A, Gudex C, eds. EUROHIS: Developing Common Instruments for Health Surveys. Amsterdam, the Netherlands. IOS Press; 2003.
20. Epstein NB, Baldwin LM, Bishop DS,. The McMaster Family Assessment Device. J Marital Fam Ther. 1983; 9: 171-180.
21. Schmitt F, Piha J, Helenius H, et al. Multinational study of cancer patients and their children: factors associated with family functioning. J Clin Oncol. 2008; 26: 5877-5883.
22. Byles JA, Byrne C, Boyle MH, Offord DR,. Ontario Child Health Study: reliability and validity of the general functioning subscale of the McMaster Family Assessment Device. Fam Process. 1988; 27: 97-104.
23. Ware JE, Kosinski M, Dewey JE, Gandek B,. How to Score and Interpret Single-Item Health Status Measures: A Manual for Users of the SF-8 Health Survey. Lincoln, RI: QualityMetric Inc; 1999.
24. Plass A, Koch U,. Participation of oncological outpatients in psychosocial support. Psychooncology. 2001; 10: 511-520.
25. Stevens JP,. Applied Multivariate Statistics for the Social Sciences. 4th ed. Mahwah, NJ: Lawrence Erlbaum Associates; 2002.
26. Hosmer D, Lemeshow S,. Applied Logistic Regression. 2nd ed. New York, NY: John Wiley & Sons; 2000.
27. Cohen J,. Statistical Power Analysis for the Behavioral Science. Hillsdale, NJ: Lawrence Erlbaum Associates; 1988.
28. Mehnert A, Koch U,. Psychological comorbidity and health-related quality of life and its association with awareness, utilization, and need for psychosocial support in a cancer register-based sample of long-term breast cancer survivors. J Psychosom Res. 2008; 64: 383-391.
29. Romer G, Saha R, Haagen M, Pott M, Baldus C, Bergelt C,. Lessons learned in the implementation of an innovative consultation and liaison service for children of cancer patients in various hospital settings. Psychooncology. 2007; 16: 138-148.
30. Visser A, Huizinga GA, Hoekstra HJ, et al. Emotional and behavioural functioning of children of a parent diagnosed with cancer: a cross-informant perspective. Psychooncology. 2005; 14: 746-758.
31. Krizek C, Roberts C, Ragan R, Ferrara JJ, Lord B,. Gender and cancer support group participation. Cancer Pract. 1999; 7: 86-92.
32. Bellizzi KM, Smith A, Schmidt S, et al.; Adolescent and Young Adult Health Outcomes and Patient Experience (AYA HOPE) Study Collaborative Group. Positive and negative psychosocial impact of being diagnosed with cancer as an adolescent or young adult. Cancer. 2012; 118: 5155-5162.