Preserving personhood of individuals with advanced dementia: Lessons from family caregivers

Geriatric Nursing

Volumn 34, Issue 3, 2013, Pages 224-229

  Palmer, Janice L ^a  

^a SAINT LOUIS UNIVERSITY SCHOOL OF NURSING   (United States)

Author keywords

Alzheimer's disease; Caregiver; Dementia; Long term care; Personhood

Indexed keywords

ALZHEIMER DISEASE; ARTICLE; CAREGIVER; FAMILY; HUMAN; PERSONHOOD; PSYCHOLOGICAL ASPECT;

ALZHEIMER DISEASE; CAREGIVERS; FAMILY; HUMANS; PERSONHOOD;

EID: 84878493570     PISSN: 01974572     EISSN: 15283984     Source Type: Journal    
DOI: 10.1016/j.gerinurse.2013.03.001     Document Type: Article

References (24)

1. 2012 Alzheimer's disease facts and figures. Alzheimers Dement 2012, 8(2):131-168. Alzheimer's Association.
2. Smith G.E., O'Brien P.C., Ivnik R.J., Kokmen E., Tangalos E.G. Prospective analysis of risk factors for nursing home placement of dementia patients. Neurology 2001, 57:1467-1473.
3. Bharucha A.J., Pandav R., Shen C., Dodge H.H., Ganguli M. Predictors of nursing facility admission: a 12-year epidemiological study in the United States. J Am Geriatr Soc 2004, 52(3):434-439.
4. Mitchell S.L., Teno J.M., Miller S.C., Mor V. A national study of the location of death for older persons with dementia. J Am Geriatr Soc 2005, 53:299-305.
5. Yaffe K., Fox P., Newcomer R., et al. Patient and caregiver characteristics and nursing home placement in patients with dementia. JAMA 2002, 287(16):2090-2097.
6. Kitwood T. Dementia Reconsidered: The Person Comes First 1997, Open University Press, Buckingham, Great Britain.
7. Phinney A., Chesla C.A. The lived body in dementia. J Aging Stud 2003, 17:283-299.
8. Perry J., O'connor D. Preserving personhood: (re)membering the spouse with dementia. Fam Relat 2002, 51(1):55-62.
9. Palmer J.L. Caregivers' desired patterns of communication with nursing home staff: just T.A.L.K.K.K.!. J Gerontol Nurs 2012, 38(4):47-54.
10. Buron B. Levels of personhood: a model for dementia care. Geriatr Nurs 2008, 29(5):324-332.
11. Heidegger M. Being and Time. A Translation of SEIN UND ZEIT by John Macquarrie and Edward Robinson 1962, Harper & Row, Publishers, Incorporated, New York, (Translated from the German Sein und Zeit, 7th Ed., Neomarius Verlag, Tubingen).
12. Palmer J.L. Caregivers' Experiences Before and During the First Year of Nursing Home Placement of a Family Member with Alzheimer's Disease 2009, Saint Louis University.
13. Rodgers B.L., Cowles K.V. The qualitative research audit trail: a complex collection of documentation. Res Nurs Health 1993, 16:219-226.
14. Angen M.J. Evaluating, interpretive inquiry: reviewing the validity debate and opening the dialogue. Qual Health Res 2000, 10(3):378-395.
15. Benner P., Wrubel J. The Primacy of Caring. Stress and Coping in Health and Illness 1989, Addison-Wesley Publishing Company, Menlo Park, CA.
16. Fisher L.T., Wallhagen M.I. Day-to-day care: the interplay of CNAs' views of residents and nursing home environments. J Gerontol Nurs 2008, 34(11):26-33.
17. Kontos P.C., Naglie G. Expressions of personhood in Alzheimer's disease: an evaluation of research-based theatre as a pedagogical tool. Qual Health Res 2007, 17(6):799-811.
18. Heliker D. Story sharing: restoring the reciprocity of caring in long-term care. J Psychosoc Nurs Ment Health Serv 2007, 45(7):20-23.
19. Berdes C., Eckert J.M. The language of caring: nurse's aides' use of family metaphors conveys affective care. Gerontologist 2007, 47(3):340-349.
20. Benner P. The roles of embodiment, emotion, and lifeworld for rationality and agency in nursing practice. Nurs Philos 2000, 1:5-19.
21. Buron B. Life history collages: effects on nursing home staff caring for residents with dementia. J Gerontol Nurs 2010, 36(12):38-48.
22. Mueller C., Goering M., Talley K., Zaccagnini M. Taking on the challenge of clinical teaching in nursing homes. J Gerontol Nurs 2011, 37(4):32-38.
23. Teresi J.A., Ramirez M., Ellis J., et al. A staff intervention targeting resident-toresident elder mistreatment (R-REM) in long-term care increased staff knowledge, recognition and reporting: results from a cluster randomized trial. Int J Nurs Stud 2013, 50(5):644-656.
24. Rantz M.J., Zwyggart-Stauffacher M., Flesner M., et al. The influence of teams to sustain quality improvement in nursing homes that " need improvement". J Am Med Dir Assoc 2013, 14(1):48-52.