Cross-cultural development of an EORTC questionnaire to assess health-related quality of life in patients with testicular cancer: The EORTC QLQ-TC26

Quality of Life Research

Volumn 22, Issue 2, 2013, Pages 369-378

  Holzner, Bernhard ^a   Efficace, Fabio ^b   Basso, Umberto ^c,d   Johnson, Colin D ^e   Aaronson, Neil K ^f   Arraras, Juan I ^g   Smith, Allan B ^h   Chow, Edward ⁱ   Oberguggenberger, Anne S ^a   Bottomley, Andrew ^j   Steiner, Hannes ^a   Incrocci, Luca ^k   Giesinger, Johannes M ^a  

^a INNSBRUCK MEDICAL UNIVERSITY   (Austria)

^b Data Center   (Italy)

^c VENETO INSTITUTE OF ONCOLOGY IOV IRCCS   (Italy)

^d Italian Germ Cell Cancer Group (IGG)   (Italy)

^e UNIVERSITY OF SOUTHAMPTON   (United Kingdom)

^f NETHERLANDS CANCER INSTITUTE   (Netherlands)

^g Instituto de Investigación Sanitaria de Navarra   (Spain)

^h UNIVERSITY OF SYDNEY   (Australia)

ⁱ DEPARTMENT OF RADIATION ONCOLOGY   (Canada)

^j EORTC DATA CENTER   (Belgium)

^k ERASMUS MEDICAL CENTER   (Netherlands)

more..

Author keywords

eortc qlq tc26; Quality of life; Questionnaire; Testicular cancer

Indexed keywords

ADULT; AGED; AUSTRALIA; CANADA; CULTURAL ANTHROPOLOGY; CULTURAL FACTOR; DEVICES; EUROPE; HEALTH STATUS; HUMAN; MALE; MIDDLE AGED; PSYCHOLOGY; PSYCHOMETRY; QUALITY OF LIFE; QUESTIONNAIRE; REPRODUCIBILITY; SENSITIVITY AND SPECIFICITY; SOCIOECONOMICS; SURVIVOR; TESTIS TUMOR; ARTICLE; EQUIPMENT; PSYCHOLOGICAL ASPECT;

ADULT; AGED; AUSTRALIA; CANADA; CROSS-CULTURAL COMPARISON; CULTURE; EUROPE; HEALTH STATUS; HUMANS; MALE; MIDDLE AGED; PSYCHOMETRICS; QUALITY OF LIFE; QUESTIONNAIRES; REPRODUCIBILITY OF RESULTS; SENSITIVITY AND SPECIFICITY; SOCIOECONOMIC FACTORS; SURVIVORS; TESTICULAR NEOPLASMS;

EID: 84878422556     PISSN: 09629343     EISSN: None     Source Type: Journal    
DOI: 10.1007/s11136-012-0147-1     Document Type: Article

References (37)

1. Bethesda, M. (2008). SEER cancer statistics review 1975-2005, in http://seer.cancer.gov/csr/1975-2005/, L. Ries, et al.; Editors, National Cancer Institute.
2. Sokoloff, M. H.; Joyce, G. F.; & Wise, M. (2007). Testis cancer. Journal of Urology, 177(6), 2030-2041.
3. Orre, I. J.; et al. (2008). Chronic cancer-related fatigue in long-term survivors of testicular cancer. Journal of Psychosomatic Research, 64(4), 363-371.
4. Dahl, A.; Mykletun, A.; & Fossa, S. (2005). Quality of life in survivors of testicular cancer. Urologic Oncology, 23, 193-200.
5. Fossa, S. D. (2004). Long-term sequelae after cancer therapy-survivorship after treatment for testicular cancer. Acta Oncologica, 43(2), 134-141.
6. Huddart, R. A.; et al. (2005). Fertility, gonadal and sexual function in survivors of testicular cancer. British Journal of Cancer, 93(2), 200-207.
7. Albers, P. et al. (2010). Guidelines on testicular cancer. European Association of Urology.
8. Sundstrom, J.; et al. (2001). Management of testicular cancer-16 years' experience from southwest Finland. Scandinavian Journal of Urology and Nephrology, 35(1), 21-25.
9. Steiner, H.; et al. (2002). Long-term experience with carboplatin monotherapy for clinical stage I seminoma: a retrospective single-center study. Urology, 60(2), 324-328.
10. Westermann, D. H.; et al. (2008). Long-term followup results of 1 cycle of adjuvant bleomycin, etoposide and cisplatin chemotherapy for high risk clinical stage I nonseminomatous germ cell tumors of the testis. Journal of Urology, 179(1), 163-166.
11. Dahl, A. A.; Mykletun, A.; & Fossa, S. D. (2005). Quality of life in survivors of testicular cancer. Urol Oncol, 23(3), 193-200.
12. Fossa, S. D.; et al. (2003). Quality of life in good prognosis patients with metastatic germ cell cancer: a prospective study of the European organization for research and treatment of cancer genitourinary group/medical research council testicular cancer study group (30941/TE20). Journal of Clinical Oncology, 21(6), 1107-1118.
13. Rudberg, L.; et al. (2002). Self-perceived physical, psychologic, and general symptoms in survivors of testicular cancer 3 to 13 years after treatment. Cancer Nursing, 25(3), 187-195.
14. Haugnes, H. S.; et al. (2010). Cardiovascular risk factors and morbidity in long-term survivors of testicular cancer: a 20-year follow-up study. Journal of Clinical Oncology, 28(30), 4649-4657.
15. Huddart, R. A.; et al. (2003). Cardiovascular disease as a long-term complication of treatment for testicular cancer. Journal of Clinical Oncology, 21(8), 1513-1523.
16. Matos, E.; Skrbinc, B.; & Zakotnik, B. (2010). Fertility in patients treated for testicular cancer. Journal of Cancer Survivorship, 4(3), 274-278.
17. Heidenreich, A.; & Hofmann, R. (1999). Quality-of-life issues in the treatment of testicular cancer. World Journal of Urology, 17(4), 230-238.
18. Nord, C.; et al. (2003). Gonadal hormones in long-term survivors 10 years after treatment for unilateral testicular cancer. European Urology, 44(3), 322-328.
19. Fegg, M. J.; et al. (2003). Subjective quality of life and sexual functioning after germ-cell tumour therapy. British Journal of Cancer, 89(12), 2202-2206.
20. Kuczyk, M.; et al. (2000). Sexual function and fertility after treatment of testicular cancer. Current Opinion in Urology, 10(5), 473-477.
21. Ozen, H.; et al. (1998). Psychosocial adjustment after testicular cancer treatment. Journal of Urology, 159(6), 1947-1950.
22. Oldenburg, J.; Fossa, S. D.; & Dahl, A. A. (2006). Scale for chemotherapy-induced long-term neurotoxicity (SCIN): psychometrics, validation, and findings in a large sample of testicular cancer survivors. Quality of Life Research, 15(5), 791-800.
23. Rutskij, R.; et al. (2010). A study of coping in long-term testicular cancer survivors. Psychology Health Medicine, 15(2), 146-158.
24. Tuinman, M. A.; et al. (2005). Marital and sexual satisfaction in testicular cancer survivors and their spouses. Supportive Care in Cancer, 13(7), 540-548.
25. Fossa, S. D.; Moynihan, C.; & Serbouti, S. (1996). Patients' and doctors' perception of long-term morbidity in patients with testicular cancer clinical stage I. A descriptive pilot study. Supportive Care in Cancer, 4(2), 118-128.
26. Sprangers, M. A.; et al. (1998). The European organization for research and treatment of cancer approach to developing questionnaire modules: an update and overview. EORTC quality of life study group. Quality of Life Research, 7(4), 291-300.
27. Vachalec, S.; et al. (2001). EORTC item bank guidelines. Brussels: EORTC Publications.
28. Dewolf, L.; et al. (2009). EORTC quality of life group translation procedure (3rd ed.). Brussels: EORTC.
29. Greimel, E.; et al. (2006). The European organization for research and treatment of cancer (EORTC) quality-of-life questionnaire cervical cancer module: EORTC QLQ-CX24. Cancer, 107(8), 1812-1822.
30. Velikova, G.; et al. (2007). The EORTC QLQ-HDC29: A supplementary module assessing the quality of life during and after high-dose chemotherapy and stem cell transplantation. European Journal of Cancer, 43(1), 87-94.
31. Davies, A. H. G.; et al. (2006). Development of a disease-specific quality of life questionnaire module for patients with gastrointestinal neuroendocrine tumours. European Journal of Cancer, 42(4), 477-484.
32. Greimel, E.; et al. (2003). An international field study of the reliability and validity of a disease-specific questionnaire module (the QLQ-OV28) in assessing the quality of life of patients with ovarian cancer. European Journal of Cancer, 39(10), 1402-1408.
33. Whistance, R. N.; et al. (2009). Clinical and psychometric validation of the EORTC QLQ-CR29 questionnaire module to assess health-related quality of life in patients with colorectal cancer. European Journal of Cancer, 45(17), 3017-3026.
34. Litwin, M. S.; et al. (1998). The UCLA prostate cancer index: Development, reliability, and validity of a health-related quality of life measure. Medical Care, 36(7), 1002-1012.
35. Cella, D. F.; et al. (1993). The functional assessment of cancer therapy scale: Development and validation of the general measure. Journal of Clinical Oncology, 11(3), 570-579.
36. Goldberg, D. P.; et al. (1997). The validity of two versions of the GHQ in the WHO study of mental illness in general health care. Psychological Medicine, 27(1), 191-197.
37. Johnson, C.; et al. (2010). Development of the European organisation for research and treatment of cancer quality of life questionnaire module for older people with cancer: The EORTC QLQ-ELD15. European Journal of Cancer, 46(12), 2242-2252.