Assessing parent-child agreement in health-related quality of life among three health status groups

Social Psychiatry and Psychiatric Epidemiology

Volumn 48, Issue 3, 2013, Pages 503-511

  Dey, Michelle ^a   Landolt, Markus A ^b   Mohler Kuo, Meichun ^a  

^a UNIVERSITY OF ZURICH   (Switzerland)

^b UNIVERSITY CHILDREN S HOSPITAL   (Switzerland)

Author keywords

Health related quality of life; Mental; Parent child agreement; Physical

Indexed keywords

ADOLESCENT; ARTICLE; CASE CONTROL STUDY; CHILD; CHILD PARENT RELATION; FEMALE; HEALTH STATUS; HEALTH STATUS INDICATOR; HUMAN; MALE; MENTAL DISEASE; PARENT; PROXY; PSYCHOLOGICAL ASPECT; QUALITY OF LIFE; SICKNESS IMPACT PROFILE;

ADOLESCENT; CASE-CONTROL STUDIES; CHILD; FEMALE; HEALTH STATUS; HEALTH STATUS INDICATORS; HUMANS; MALE; MENTAL DISORDERS; PARENT-CHILD RELATIONS; PARENTS; PROXY; QUALITY OF LIFE; SICKNESS IMPACT PROFILE;

EID: 84878361244     PISSN: 09337954     EISSN: None     Source Type: Journal    
DOI: 10.1007/s00127-012-0556-z     Document Type: Article

References (36)

1. Achenbach TM, McConaughy SH, Howell CT (1987) Child/adolescent behavioral and emotional problems: implications of cross-informant correlations for situational specificity. Psychol Bull 101(2):213-232
2. Mesman J, Koot HM (2000) Child-reported depression and anxiety in preadolescence: I. Associations with parent- and teacher-reported problems. J Am Acad Child Adolesc Psychiatry 39(11):1371-1378. doi: 10.1097/00004583- 200011000-00011
3. Salbach-Andrae H, Lenz K, Lehmkuhl U (2009) Patterns of agreement among parent, teacher and youth ratings in a referred sample. Eur Psychiatry 24(5):345-351. doi: 10.1016/j.eurpsy.2008.07.008
4. Woo BS, Ng TP, Fung DS, Chan YH, Lee YP, Koh JB, Cai Y (2007) Emotional and behavioural problems in Singaporean children based on parent, teacher and child reports. Singapore Med J 48(12):1100-1106
5. Taylor RM, Gibson F, Franck LS (2008) A concept analysis of health-related quality of life in young people with chronic illness. J Clin Nurs 17(14):1823-1833. doi: 10.1111/j.1365-2702.2008.02379.x
6. Matza LS, Swensen AR, Flood EM, Secnik K, Leidy NK (2004) Assessment of health-related quality of life in children: a review of conceptual, methodological, and regulatory issues. Value Health 7(1):79-92. doi: 10.1111/j.15241524-4733,2004.71273.x
7. Coghill D, Danckaerts M, Sonuga-Barke E, Sergeant J (2009) Practitioner review: quality of life in child mental health-conceptual challenges and practical choices. J Child Psychol Psychiatry 50(5):544-561. doi: 10.1111/j.1469-7610.2009.02008.x
8. Eiser C, Morse R (2001) A review of measures of quality of life for children with chronic illness. Arch Dis Child 84(3):205-211
9. Wallander JL, Schmitt M, Koot HM (2001) Quality of life measurement in children and adolescents: issues, instruments, and applications. J Clin Psychol 57(4):571-585
10. Eiser C, Morse R (2001) Can parents rate their child's health-related quality of life? Results of a systematic review. Qual Life Res 10(4):347-357
11. Upton P, Lawford J, Eiser C (2008) Parent-child agreement across child health-related quality of life instruments: a review of the literature. Qual Life Res 17(6):895-913. doi: 10.1007/s11136-008-9350-5
12. McGraw KO, Wong SP (1996) Forming inferences about some intraclass correlation coefficients. Psychol Methods 1(1):30-46
13. Sattoe JN, van Staa A, Moll HA, Feet RGOYO (2010) The proxy problem anatomized: child-parent disagreement in health related quality of life reports of chronically ill adolescents. Health Qual Life Outcomes 2012 10(10): 1-13
14. Klassen AF, Miller A, Fine S (2004) Health-related quality of life in children and adolescents who have a diagnosis of attention-deficit/hyperactivity disorder. Pediatrics 114(5):e541-e547. doi: 10.1542/peds.2004-0844
15. Limbers CA, Ripperger-Suhler J, Heffer RW, Varni JW (2011) Patient-reported Pediatric Quality of Life Inventory 4.0 Generic Core Scales in pediatric patients with attention-deficit/hyperactivity disorder and comorbid psychiatric disorders: feasibility, reliability, and validity. Value Health 14(4):521-530. doi: S1098-3015(10)00038-0
16. Escobar R, Soutullo CA, Hervas A, Gastaminza X, Polavieja P, Gilaberte I (2005) Worse quality of life for children with newly diagnosed attention-deficit/hyperactivity disorder, compared with asthmatic and healthy children. Pediatrics 116(3):e364-e369. doi: 10.1542/peds.2005-0386
17. Varni JW, Burwinkle TM (2006) The PedsQL as a patient-reported outcome in children and adolescents with attention-deficit/hyperactivity disorder: a population-based study. Health Qual Life Outcomes 4:26-36. doi: 10.1186/1477-7525-4-26
18. Shipman DL, Sheldrick C, Perrin EC (2011) Quality of life in adolescents with autism spectrum disorders: reliability and validity of self-report. J Dev Behav Pediatr 32:85-89
19. Kiss E, Kapornai K, Baji I, Mayer L, Vetro A (2009) Assessing quality of life: mother-child agreement in depressed and non-depressed Hungarian. Eur Child Adolesc Psychiatry 18(5):265-273. doi: 10.1007/s00787-008-0727-3
20. Lack CW, Storch EA, Keeley ML, Geffken GR, Ricketts ED, Murphy TK, Goodman WK (2009) Quality of life in children and adolescents with obsessive-compulsive disorder: base rates, parent-child agreement, and clinical correlates. Soc Psychiatry Psychiatr Epidemiol 44(11):935-942. doi: 10.1007/s00127-009-0013-9
21. Rotsika V, Coccossis M, Vlassopoulos M, Papaeleftheriou E, Sakellariou K, Anagnostopoulos DC, Kokkevi A, Skevington S (2011) Does the subjective quality of life of children with specific learning disabilities (SpLD) agree with their parents' proxy reports? Qual Life Res 20(8):1271-1278. doi: 10.1007/s11136-011- 9857-z
22. Bastiaansen D, Koot HM, Ferdinand RF, Verhulst FC (2004) Quality of life in children with psychiatric disorders: self-, parent, and clinician report. J Am Acad Child Adolesc Psychiatry 43(2):221-230. doi: 00004583-200402000-00019
23. Mohler-Kuo M, Jann B, Dey M, Zellweger U (2011) A recruitment method to obtain community samples of children for survey research in Switzerland. Int J Public Health 56(3):353-356
24. Bethell CD, Read D, Stein REK, Blumberg SJ, Wells N, Newacheck PW (2002) Identifying children with special health care needs: development and evaluation of a short screening instrument. Ambul Pediatr 2(1):38-48
25. WHO (1992) The ICD-10 classification of mental and behavioural disorders. Clinical descriptions and diagnostic guidelines. WHO, Geneva
26. Mohler-Kuo M, Dey M (2011) A comparison of health-related quality of life between children with versus without special health care needs, and children requiring versus not requiring psychiatric services. Quality Life Res. doi: 10.1007/s11136-011-0078-2 [Epub ahead of print]
27. The KIDSCREEN Group (2006) The Kidscreen questionnaires. Quality of life questionnaires for children and adolescents. Pabst Science Publishers, Lengerich
28. Cronbach LJ (1951) Coefficient alpha and the internal structure of tests. Psychometrika 16(3):297-334
29. Nunnally JC, Bernstein IR (1994) Psychometric theory, 3rd edn. McGraw-Hill, New York
30. Landis JR, Koch GG (1977) The measurement of observer agreement for categorical data. Biometrics 33:159-174
31. Norman GR, Sloan JA, Wyrwich KW (2003) Interpretation of changes in health-related quality of life. The remarkable universality of half a standard deviation. Med Care 41(5):582-592
32. Sneeuw KCA, Sprangers MAG, Aaronson NK (2002) The role of health care providers and significant others in evaluating the quality of life of patients with chronic disease. J Clin Epidemiol 55(11):1130-1143
33. Danckaerts M, Sonuga-Barke EJ, Banaschewski T, Buitelaar J, Dopfner M, Hollis C, Santosh P, Rothenberger A, Sergeant J, Steinhausen HC, Taylor E, Zuddas A, Coghill D (2009) The quality of life of children with attention deficit/hyperactivity disorder: a systematic review. Eur Child Adolesc Psychiatry 19(2):83-105. doi: 10.1007/s00787-009-0046-3
34. Katschnig H (2006) How useful is the concept of quality of life in psychiatry? In: Katschnig H, Freeman H, Sartorius N (eds) Quality of life in mental disorders. John Wiley, Chichester
35. Davis E, Nicolas C, Waters E, Cook K, Gibbs L, Gosch A, Ravens-Sieberer U (2007) Parent-proxy and child self-reported health-related quality of life: using qualitative methods to explain the discordance. Qual Life Res 16(5):863-871. doi: 10.1007/S11136-007-9187-3
36. Biederman J, Newcorn J, Sprich S (1991) Comorbidity of attention-deficit hyperactivity disorder with conduct, depressive, anxiety, and other disorders. Am J Psychiatry 148(5):564-577