Parent partnerships in communication and decision making about subspecialty referrals for children with special needs

Academic Pediatrics

Volumn 13, Issue 2, 2013, Pages 122-132

  Stille, Christopher J ^a   Fischer, Shira H ^b,c   Pelle, Nancy La ^b   Dworetzky, Beth ^d   Mazor, Kathleen M ^b,c   Cooley, W Carl ^e  

^a University of Colorado Denver and Children s Hospital Colorado   (United States)

^b UNIVERSITY OF MASSACHUSETTS   (United States)

^c UNIVERSITY OF MASSACHUSETTS MEDICAL SCHOOL   (United States)

^d BOSTON UNIVERSITY   (United States)

^e Center for Medical Home Improvement   (United States)

Author keywords

Communication; Family centered care; Medical home; Referral and consultation

Indexed keywords

ARTICLE; CHILD; CHILD HEALTH CARE; DOCTOR PARENT RELATION; GENERAL PRACTITIONER; HEALTH CARE NEED; HEALTH CARE PLANNING; HUMAN; INFORMATION DISSEMINATION; INTERPERSONAL COMMUNICATION; MEDICAL DECISION MAKING; PARENTAL ATTITUDE; PATIENT REFERRAL; PHYSICIAN ATTITUDE; VALIDITY;

EID: 84878149005     PISSN: 18762859     EISSN: 18762867     Source Type: Journal    
DOI: 10.1016/j.acap.2012.12.003     Document Type: Article

References (31)

1. Data Resource Center for Child and Adolescent Health, Child and Adolescent Health Measurement Initiative. National survey of children with special health care needs, 2009/10. Available at: Http://www.childhealthdata. org. Accessed January 2, 2013.
2. Forrest CB, Glade GB, Baker AE, et al. Coordination of specialty referrals and physician satisfaction with referral care. Arch Pediatr Adolesc Med. 2000;154:499-506. (Pubitemid 30252657)
3. Stille CJ, Primack WA, Savageau JA. Generalist-subspecialist communication for children with chronic conditions: A regional physician survey. Pediatrics. 2003;112:1314-1320. (Pubitemid 37523413)
4. Mehrotra A, Forrest CB, Lin CY. Dropping the baton: Specialty referrals in the United States. Milbank Q. 2011;89:39-68.
5. Committee on Quality of Health Care in America, Institute of Medicine. Crossing the Quality Chasm: A New Health System for the 21st Century. Washington, DC: National Academy Press; 2001.
6. Epstein RM. Communication between primary care physicians and consultants. Arch Fam Med. 1995;4:403-409.
7. Kanthor H, Pless B, Satterwhite B, et al. Areas of responsibility in the health care of multiply handicapped children. Pediatrics. 1974;54: 779-785.
8. Stille CJ, Primack WA, McLaughlin TJ, et al. Parents as information intermediaries between primary care and specialty physicians. Pediatrics. 2007;120:1238-1246. (Pubitemid 350223674)
9. Forrest CB. A typology of specialists' clinical roles. Arch Intern Med. 2009;169:1062-1068.
10. Charles C, Gafni A, Whelan T. Shared decision-making in the medical encounter: What does it mean? (or, It takes at least two to tango). Soc Sci Med. 1997;44:681-692. (Pubitemid 27067502)
11. Murray E, Charles C, Gafni A. Shared decision-making in primary care: Tailoring the Charles et al model to fit the context of general practice. Patient Educ Couns. 2006;62:205-211. (Pubitemid 43996932)
12. Stacey D, Legare F, Pouliot S, et al. Shared decision making models to inform an interprofessional perspective on decision making: A theory analysis. Patient Educ Couns. 2010;80:164-172.
13. Coylewright M, Montori V, Ting HH. Patient-centered shared decision-making: A public imperative. Am J Med. 2012;125:545-547.
14. Stille CJ, McLaughlin TJ, Primack WA, et al. Determinants and impact of generalist-specialist communication about pediatric outpatient referrals. Pediatrics. 2006;118:1341-1349. (Pubitemid 46393777)
15. Paget L, Han P, Nedza S, et al. Patient-clinician communication: Basic principles and expectations. Available at: Http://www.iom.edu/pcc. Accessed January 2, 2013.
16. National Center for Medical Home Implementation, American Academy of Pediatrics. New patient referral/consultation information. Available at: Http://www.medicalhomeinfo.org/downloads/pdfs/CMESeries2- PatientReferralConsultationForm.pdf. Accessed January 2, 2013.
17. National Center for Medical Home Implementation, American Academy of Pediatrics. Comprehensive care planning. Available at: Http://www. medicalhomeinfo.org/downloads/pdfs/ComprehensiveCare Planning.pdf. Accessed January 2, 2013.
18. Bethell CD, Read D, Stein REK, et al. Identifying children with special health care needs: Development and evaluation of a short screening instrument. Ambul Pediatr. 2002;2:38-48. (Pubitemid 44133341)
19. Morgan D, Krueger R, King J. The Focus Group Kit. Thousand Oaks, CA: Sage; 1998.
20. Stille CJ, Mazor KM, Meterko V, et al. Development and validation of a tool to improve paediatric referral/consultation communication. BMJ Qual Saf. 2011;20:692-697.
21. National Institute for Children's Healthcare Quality. Spread of the medical home concept: Comprehensive final report. Available at: Http://www.nichq.org/pdf/MHLC-2-Final-Report-Final%20Medical% 20Home%20footer%20link.pdf. Accessed January 2, 2013.
22. National Center for Medical Home Implementation, American Academy of Pediatrics. Medical home. Available at: Http://www. medicalhomeinfo.org. Accessed January 2, 2013.
23. Patton M. Qualitative Research and Evaluation Methods. Thousand Oaks, CA: Sage; 2002.
24. La Pelle N. Simplifying qualitative data analysis using general purpose software tools. Field Methods. 2004;16:85.
25. Bodenheimer T. Coordinating care-A perilous journey through the health care system. N Engl J Med. 2008;358:1064-1078.
26. Fortney JC, Burgess JF Jr, Bosworth HB, et al. A re-conceptualization of access for 21st century healthcare. J Gen Intern Med. 2011; 26(suppl 2):639-647.
27. National Center for Medical Home Implementation, American Academy of Pediatrics. Building your medical home toolkit. Available at: Http://www.pediatricmedhome.org/section3/step1/index. aspx. Accessed January 2, 2013.
28. Gandhi TK, Keating NL, Ditmore M, et al. Improving referral communication using a referral tool within an electronic medical record. In: Advances in Patient Safety: New Directions and Alternative Approaches, Vol 4, Technology and Medication Safety. Rockville, MD: Agency for Healthcare Research and Quality. AHRQ publication 08-0034-4. Available at: Http://www.ahrq.gov/qual/advances2/ #v4; 2008. Accessed January 2, 2013.
29. McManus M, Fox H, Limb S, et al. Promising approaches for strengthening the interface between primary and specialty pediatric care, 2006. Available at: Http://www.improvingchroniccare.org/downloads/12-federal-expert-work-group-on- pediatric-suspecialty-capacity-promising-approaches-for-strengthening-the- interface-between-primary-and-specialty-pediatric-care.pdf. Accessed January 2, 2013.
30. Antonelli RC, McAllister JW, Popp J. Making Care Coordination a Critical Component of the Pediatric Health System: A Multidisciplinary Framework. New York, NY: The Commonwealth Fund; 2009.
31. Stille CJ, Korobov N, PrimackWA. Generalist-subspecialist communication about children with chronic conditions: An analysis of physician focus groups. Ambul Pediatr. 2002;3:147-153. (Pubitemid 36582629)