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84862220879
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The hereditary angioedema burden of illness study in Europe (HAEBOIS- Europe): Background and methodology
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Bygum A, Aygoren-Pursun E, Caballero T, Beusterien K, Gholizadeh S, Musingarimi P, Wait S, Boysen H: The hereditary angioedema burden of illness study in Europe (HAEBOIS- Europe): background and methodology. BMC Dermatol 2012; 12: 4.
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Bygum, A.1
Aygoren-Pursun, E.2
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Beusterien, K.4
Gholizadeh, S.5
Musingarimi, P.6
Wait, S.7
Boysen, H.8
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2
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77649160177
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Is there a need for clinical guidelines in the United States for the diagnosis of hereditary angioedema and the screening of family members of affected patients?
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Lunn ML, Santos CB, Craig TJ: Is there a need for clinical guidelines in the United States for the diagnosis of hereditary angioedema and the screening of family members of affected patients? Ann Allergy Asthma Immunol 2010; 104: 211-214.
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Lunn, M.L.1
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Asphyxiation by laryngeal edema in patients with hereditary angioedema
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Bork K, Siedlecki K, Bosch S, Schopf RE, Kreuz W: Asphyxiation by laryngeal edema in patients with hereditary angioedema. Mayo Clin Proc 2000; 75: 349-354.
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77958102578
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The humanistic burden of hereditary angioedema: Impact on health-related quality of life, productivity, and depression
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Lumry WR, Castaldo AJ, Vernon MK, Blaustein MB, Wilson DA, Horn PT: The humanistic burden of hereditary angioedema: Impact on health-related quality of life, productivity, and depression. Allergy Asthma Proc 2010; 31: 407-414.
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65449188723
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Selfadministration of intravenous C1-inhibitor therapy for hereditary angioedema and associated quality of life benefits
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Bygum A, Andersen KE, Mikkelsen CS: Selfadministration of intravenous C1-inhibitor therapy for hereditary angioedema and associated quality of life benefits. Eur J Dermatol 2009; 19: 147-151.
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Bygum, A.1
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84868618172
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Development of a disease-specific quality of life questionnaire for adult patients with hereditary angioedema due to C1 inhibitor deficiency (HAE-QoL): Spanish multi-centre research project
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Prior N, Remor E, Gomez-Traseira C, Lopez- Serrano C, Cabanas R, Contreras J, Campos A, Cardona V, Cimbollek S, Gonzalez-Quevedo T, Guilarte M, de Rojas DH, Marcos C, Rubio M, Tejedor-Alonso MA, Caballero T: Development of a disease-specific quality of life questionnaire for adult patients with hereditary angioedema due to C1 inhibitor deficiency (HAE-QoL): Spanish multi-centre research project. Health Qual Life Outcomes 2012; 10: 82.
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Prior, N.1
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Campos, A.7
Cardona, V.8
Cimbollek, S.9
Gonzalez-Quevedo, T.10
Guilarte, M.11
De Rojas, D.H.12
Marcos, C.13
Rubio, M.14
Tejedor-Alonso, M.A.15
Caballero, T.16
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8
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84866446232
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Development and construct validation of the angioedema quality of life questionnaire
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Weller K, Groffik A, Magerl M, Tohme N, Martus P, Krause K, Metz M, Staubach P, Maurer M: Development and construct validation of the angioedema quality of life questionnaire. Allergy 2012; 67: 1289-1298.
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Maurer, M.9
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9
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84878003349
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Current status of implementation of self-administration training in various regions of Europe, Canada and the USA in the management of HAE
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SUPPL 1
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Caballero T, Sala-Cunill A, Cancian M, Craig TJ, Neri S, Keith PK, Boccon-Gibod I, Bethune C, Bork K: Current status of implementation of self-administration training in various regions of Europe, Canada and the USA in the management of HAE. Int Arch Allergy Immunol 2013; 161(suppl 1):10-16.
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Keith, P.K.6
Boccon-Gibod, I.7
Bethune, C.8
Bork, K.9
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10
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78650907391
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HAE international home therapy consensus document
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Longhurst HJ, Farkas H, Craig T, Aygoren- Pursun E, Bethune C, Bjorkander J, Bork K, Bouillet L, Boysen H, Bygum A, Caballero T, Cicardi M, Dempster J, Gompels M, Gooi J, Grigoriadou S, Huffer U, Kreuz W, Levi MM, Long J, Martinez-Saguer I, Raguet M, Reshef A, Bowen T, Zuraw B: HAE international home therapy consensus document. Allergy Asthma Clin Immunol 2010; 6: 22.
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Bethune, C.5
Bjorkander, J.6
Bork, K.7
Bouillet, L.8
Boysen, H.9
Bygum, A.10
Caballero, T.11
Cicardi, M.12
Dempster, J.13
Gompels, M.14
Gooi, J.15
Grigoriadou, S.16
Huffer, U.17
Kreuz, W.18
Levi, M.M.19
Long, J.20
Martinez-Saguer, I.21
Raguet, M.22
Reshef, A.23
Bowen, T.24
Zuraw, B.25
more..
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11
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84877963487
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Practical approach to self-administration of intravenous C1-INH concentrate: A nursing perspective
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SUPPL 1
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Symons C, Rossi O, Magerl M, Andritschke K: Practical approach to self-administration of intravenous C1-INH concentrate: a nursing perspective. Int Arch Allergy Immunol 2013; 161(suppl 1):17-20.
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Symons, C.1
Rossi, O.2
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Andritschke, K.4
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