Found Your DNA on the Web: Reconciling Privacy and Progress

Hastings Center Report

Volumn 43, Issue 3, 2013, Pages 15-18

  Gutmann, Amy ^a   Wagner, James W ^a  

^a NONE

Author keywords

[No Author keywords available]

Indexed keywords

ACCESS TO INFORMATION; ANONYMOUS TESTING; ARTICLE; COMPUTER SECURITY; ETHICS; HUMAN; HUMAN GENOME; INTERNET; LEGAL ASPECT; PEDIGREE; PRIVACY;

ACCESS TO INFORMATION; ANONYMOUS TESTING; COMPUTER SECURITY; GENOME, HUMAN; HUMANS; INTERNET; PEDIGREE; PRIVACY;

EID: 84877652790     PISSN: 00930334     EISSN: 1552146X     Source Type: Journal    
DOI: 10.1002/hast.162     Document Type: Article

References (15)

1. R. Stein, "Found on the Web, with DNA: A Boy's Father, " Washington Post, November 13, 2005; R. Lehmann-Haupt, "Are Sperm Donors Really Anonymous Anymore?" Slate, March 1, 2010; G. Naik, "Family Secrets: An Adopted Man's 26-Year Quest for His Father, " Wall Street Journal, May 2, 2009.
2. M. Gymrek et al., "Identifying Personal Genomes by Surname Inference, " Science 339 (2013): 321-24.
3. Presidential Commission for the Study of Bioethical Issues, Privacy and Progress in Whole Genome Sequencing (Washington, D.C.: Government Printing Office, 2012), http://bioethics.gov/cms/sites/default/files/PrivacyProgress508.pdf.
4. U.S. Department of Health and Human Services, Office for Human Research Protections, "OHRP Guidance on Research Involving Coded Private Information or Biological Specimens, " October 16, 2008, http://www.hhs.gov/ohrp/policy/cdebiol.html.
5. Presidential Commission for the Study of Bioethical Issues, Privacy and Progress in Whole Genome Sequencing, 64.
6. L.L. Rodriguez et al., "The Complexities of Genomic Identifiability, " Science 339 (2013): 275-76.
7. 1000 Genomes Project, "Samples Included in the Project, " May 2011, http://www.1000genomes.org/about#ProjectSamples.
8. Presidential Commission for the Study of Bioethical Issues, Privacy and Progress in Whole Genome Sequencing, 75-76.
9. Presidential Commission for the Study of Bioethical Issues, Privacy and Progress in Whole Genome Sequencing, 74.
10. Gymrek et al., "Identifying Personal Genomes by Surname Inference, " 324.
11. Presidential Commission for the Study of Bioethical Issues, Privacy and Progress in Whole Genome Sequencing, 82.
12. J. Wilbanks, "Privacy II-Control, Access and Human Genome Sequence Data, " presentation to the Presidential Commission for the Study of Bioethical Issues, February 2, 2012, http://bioethics.gov/cms/node/659.
13. Presidential Commission for the Study of Bioethical Issues, Privacy and Progress in Whole Genome Sequencing, 82.
14. Presidential Commission for the Study of Bioethical Issues, Privacy and Progress in Whole Genome Sequencing, pp. 69, 81-82, 91.
15. Gymrek et al., "Identifying Personal Genomes by Surname Inference, " 324; Rodriguez et al., "The Complexities of Genomic Identifiability, " 276; Presidential Commission for the Study of Bioethical Issues, Privacy and Progress in Whole Genome Sequencing, 16.