Participation after stroke: Do we understand all the components and relationships as categorised in the ICF?

Brain Impairment

Volumn 13, Issue 1, 2012, Pages 4-15

  Hoyle, Melanie ^a   Gustafsson, Louise ^a   Meredith, Pamela ^a   Ownsworth, Tamara ^b  

^a UNIVERSITY OF QUEENSLAND   (Australia)

^b GRIFFITH UNIVERSITY   (Australia)

Author keywords

environment; ICF; identity; participation; self concept; stroke

Indexed keywords

ARTICLE; BODY FUNCTION; BODY MOVEMENT; CEREBROVASCULAR ACCIDENT; CLASSIFICATION; COGNITION; DAILY LIFE ACTIVITY; DEPRESSION; EMOTION; ENVIRONMENTAL FACTOR; FUNCTIONAL ANATOMY; FUNCTIONAL ASSESSMENT; HUMAN; INTERNATIONAL CLASSIFICATION OF FUNCTIONING, DISABILITY AND HEALTH; INTERPERSONAL COMMUNICATION; MENTAL FUNCTION; MOTOR PERFORMANCE; NEUROMUSCULAR FUNCTION; PATIENT PARTICIPATION; PERCEPTION; PERSONAL CONTEXTUAL FACTOR; PHYSICAL ACTIVITY; PHYSICAL DISABILITY; QUALITY OF LIFE; SELF CONCEPT; SELF DISCREPANCY; SELF EVALUATION; SENSATION; SOCIAL ENVIRONMENT; SPEECH DISORDER;

EID: 84876938855     PISSN: 14439646     EISSN: 18395252     Source Type: Journal    
DOI: 10.1017/BrImp.2012.9     Document Type: Article

References (87)

1. Adamson, J., Beswick, A., & Ebrahim, S. (2004). Is stroke the most common cause of disability? Journal of Stroke and Cerebrovascular Disease, 13(4), 171-177. (Pubitemid 39349462)
2. Astrom, M. (1996). Generalized anxiety disorder in stroke patients: A 3-year longitudinal study. Stroke, 27, 270-275.
3. Aziz, N.A., Leonardi-Bee, J., Phillips, M.F., Gladman, J., Legg, L.A., & Walker, M. (2008). Therapybased rehabilitation services for patients living at home more than one year after stroke. The Cochrane Database of Systematic Reviews, 2008(2). doi:10.1002/14651858.CD005952.pub2 (Pubitemid 351807457)
4. Badley, E.M. (2008). Enhancing the conceptual clarity of the activity and participation components of the International Classification of Functioning, Disability and Health. Social Science & Medicine, 66, 2335-2345. (Pubitemid 351608736)
5. Baum, C., Foster, E., & Wolf, T. (2009). Addressing performance and participation in occupational therapy: The importance of cognition. British Journal of Occupational Therapy, 72(4), 143,152.
6. Bhogal, S.K., Teasell, R.W., Foley, N.C., & Speechley, M.R. (2003). Community reintegration after stroke. Topics in Stroke Rehabilitation, 10(2), 107-129. (Pubitemid 37013242)
7. Bornman, J. (2004). The World Health Organization's terminology and classification: Application to severe disability. Disability and Rehabilitation, 26(3), 182-188. (Pubitemid 38220152)
8. Brock, K., Black, S.L., Cotton, S., Kennedy, G., Wilson, S., & Sutton, E. (2009). Goal achievement in the six months after inpatient rehabilitation for stroke. Disability and Rehabilitation, 31(11), 880-886.
9. Bury, M. (1982). Chronic illness as biographical disruption. Sociology of Health and Illness, 4(2), 167-182. (Pubitemid 12060964)
10. Cantor, J.B., Ashman, T.A., Schwartz, M.E., Gordon, W.A., Hibbard, M.R., Brown, M., . . . Cheng, Z. (2005). The role of self-discrepancy theory in understanding post-traumatic brain injury affective disorders. The Journal of Head Trauma Rehabilitation, 20(6), 527-543. (Pubitemid 41690427)
11. Cardol,M., De Jong, B.A., &Ward, C.D. (2002). On autonomy and participation in rehabilitation. Disability and Rehabilitation, 24(18), 970-974. (Pubitemid 36032860)
12. Carey, L.M. (1995). Somatosensory loss after stroke. Critical Reviews in Physical and Rehabilitation Medicine, 7, 51-91.
13. Carod-Artal, F.J., Gonzalez-Gutierrez, J.L., Herrero, J.A.E., Horan, T., & De Seijas, E.V. (2002). Functional recovery and instrumental activities of daily living: Follow-up 1-year after treatment in a stroke unit. Brain Injury, 16(3), 207-216. (Pubitemid 34223455)
14. Clarke, P., & Black, S.E. (2005). Quality of life following stroke: Negotiating disability, identity, and resources. Journal of Applied Gerontology, 24(4), 319-336. (Pubitemid 41022919)
15. Conti-Becker, A. (2009). Between the ideal and the real: Reconsidering the International Classification of Functioning, Disability and Health. Disability and Rehabilitation, 31(25), 2125-2129.
16. Cott, C.A., Wiles, R., & Devitt, R. (2007). Continuity, transition and participation: Preparing clients for life in the community post-stroke. Disability and Rehabilitation, 29(20-21), 1566-1574.
17. Cruice, M., Worrall, L., Hickson, L., & Murison, R. (2003). Finding a focus for quality of life with aphasia: Social and emotional health, and psychological wellbeing. Aphasiology, 17(4), 333-353. (Pubitemid 36456982)
18. Dafer, R.M., Rao,M., Shareef, A., & Sharma, A. (2008). Poststroke depression. Topics in Stroke Rehabilitation, 15(1), 13-21. (Pubitemid 351160087)
19. Desrosiers, J., Noreau, L., & Rochette, A. (2004). Social participation of older adults in Quebec. Aging Clinical and Experimental Research, 16, 406-412. (Pubitemid 39618514)
20. Desrosiers, J., Noreau, L., Rochette, A., Bourbonnais, D., Bravo, G., & Bourget, A. (2006). Predictors of long-term participation after stroke. Disability and Rehabilitation 28(4), 221-230. (Pubitemid 43250493)
21. Deutsch, A., Braun, S., & Granger, C.V. (1997). The Functional Independence Measure (FIMTM) instrument. Journal of Rehabilitation Outcomes, 1(2), 67-71.
22. Dickson, S., Barbour, R.S., Brady, M., Clark, A.M. & Paton, G. (2008). Patients' experiences of disruptions associated with post-stroke dysarthria. International Journal of Language and Communication Disorders, 43(2), 135-153. (Pubitemid 351271858)
23. Donovan, N.J., Kendall, D.L., Heaton, S.C., Kwon, S., Velozo, C.A., & Duncan, P.W. (2008). Conceptualising functional cognition in stroke. Neurorehabilitation and Neural Repair, 22, 122-135.
24. Doolittle, N. (1992). The experience of recovery following lacunar stroke. Rehabilitation Nursing, 17, 122-125.
25. Doyle, S., Bennett, S., Fasoli, S.E., & McKenna, K.T. (2010). Interventions for sensory impairment in the upper limb after stroke. The Cochrane Database of Systematic Reviews, 2005(6). doi: 10.1002/14651858. CD006331.pub2
26. Early Supported Discharge Trialists. (2005). Services for reducing duration of hospital care for acute stroke patients. The Cochrane Database of Systematic Reviews, 2005(2). doi:10.1002/14651858. CD000443.pub2
27. Ekstam, L., Uppgard, B., von Koch, L., & Tham, K. (2007). Functioning in everyday life after stroke: A longitudinal study of elderly people receiving rehabilitation at home. Scandinavian Journal of Caring Science, 21, 434-446.
28. Ellis-Hill, C.S.,&Horn, S. (2000).Change in identity and self-concept: a new theoretical approach to recovery following a stroke. Clinical Rehabilitation, 14, 279-287. (Pubitemid 30330477)
29. Erikson, A., Park, M., & Tham, K. (2010). Belonging: A qualitative, longitudinal study of what matters for persons after stroke during one year of rehabilitation. Journal of Rehabilitation Medicine, 42, 831-838.
30. Eriksson, G., & Tham, K. (2010). The meaning of occupational gaps in everyday life in the first year after stroke. OTJR: Occupation Participation and Health, 30(4), 184-192.
31. Fougeyrollas, P., Noreau, L., Bergeron, H., Cloutier, R., Dion, S.A., & St-Michel, G. (1998). Social consequences of long term impairments and disabilities: conceptual approach and assessment of handicap. International Journal of Rehabilitation Research, 21, 127-141. (Pubitemid 28328972)
32. Fleming, J., Kuipers, P., Foster,M., Smith, S., & Doig, E. (2009). Evaluation of an outpatient, peer group intervention for people with acquired brain injury based on the ICF 'Environment' dimension. Disability and Rehabilitation, 31(20), 1666-1675.
33. Glass, T.A., & Maddox, G.L. (1992). The quality and quantity of social support: stroke recovery as psychosocial transition. Social Science and Medicine, 34(11), 1249-1261.
34. Glass, T.A., Matchar, D.B., Belyea, M., & Feussner, J.R. (1993). Impact of social support on outcome in first stroke. Stroke, 24, 64-70. (Pubitemid 23014384)
35. Geyh, S., Cieza, A., Schouten, J., Dickson, H., Frommelt, P., Omar, Z., . . . Stucki, G. (2004). ICF core sets for stroke. Journal of Rehabilitation Medicine, Supp 44, 135-141. (Pubitemid 39307123)
36. Geyh, S., Peter, G., Muller, R., Bickenbach, J.E., Kostanjsek, N., Ustun, B.T., . . . Cieza, A. (2011). The personal factors of the International Classification of Functioning, Disability and Health in the literature-a systematic review and content analysis. Disability and Rehabilitation, 33(13-14), 1089-1102.
37. Goldstein, K. (1939). The organism. New York, NY: Zone Books.
38. Goldstein, K. (1952). Effect of brain damage on the personality. Psychiatry, 15, 245-260.
39. Goljar, N., Burger, H., Vidmar, G., Marincek, C., Krizaj, J., Chatterji, S., . . . Bickenbach, J.E. (2010). Function and disability in stroke. Disability and Rehabilitation, 32(S1), S50-S58.
40. Gracey, F., Palmer, S., Rous, B., Psaila, K., Shaw, K., O'Dell, J., . . . Mohamed, S. (2008). 'Feeling part of things': Personal construction of self after brain injury. Neuropsychological Rehabilitation, 18(5), 627-650.
41. Hammel, J., Jones, R., Gossett, A., &Morgan, E. (2006). Examining barriers and supports to community living and participation after a stroke from a Participatory Action Research approach. Topics in Stroke Rehabilitation, 13(3), 43-58. (Pubitemid 44320641)
42. Hartman-Maeir, A., Soroker, N., Ring, H., Avi, N., & Katz, N. (2007). Activities, participation and satisfaction one-year post stroke. Disability and Rehabilitation, 29(7), 559-566. (Pubitemid 46534746)
43. Higgins, E.T. (1987). Self-discrepancy: a theory relating self and affect. Psychological Review, 94, 319-340.
44. Huber, J.G., Sillick, J.,&Skarakis-Doyle, E. (2010). Personal perception and personal factors: Incorporating health-related quality of life into the International Classification of Functioning, Disability and Health. Disability and Rehabilitation, 32(23), 1955-1965.
45. Indredavik, B., Bakke, F., Solberg, R., Rokseth, R., Haheim, L.L., & Holme, I. (1991). Benefit of a stroke unit: A randomized control trial. Stroke, 22, 1026-1031.
46. Indredavik, B., Bakke, F., Slordahl, S.A., Rokseth, R., & Haheim, L.L. (1999). Stroke unit treatment: 10 year follow-up. Stroke, 30, 1524-1527. (Pubitemid 29379596)
47. Jette, A.M., Keysor, J., Coster, W., Ni, P., & Haley, S. (2005). Beyond function: Predicting participation in a rehabilitation cohort. Archives of Physical Medicine and Rehabilitation, 86, 2087-2094. (Pubitemid 41566202)
48. Katz, N.,&Hartman-Maeir, A. (2005). Higher-level cognitive functions: Awareness and executive functions enabling engagement in occupation. In N. Katz (ed.) Cognition and occupation across the life span (2nd ed.). Bethesda, MD: AOTA Press.
49. Kelly, G.A. (1955). The psychology of personal constructs (Vols. 1 & 2). New York: Norton.
50. Landreville, P., Desrosiers, J., Vincent, C., Verreault, R., Boudreault, V., & The BRAD Group. (2009). The role of activity restriction in poststroke depressive symptoms. Rehabilitation Psychology, 54(3), 315-322.
51. Langhorne, P., Coupar, F., & Pollack, A. (2009). Motor recovery after stroke: A systematic review. Lancet Neurology, 8, 741-754.
52. Lazarus, R.S., & Folkman, S. (1984). Stress, appraisal, and coping. New York, NY: Springer.
53. Leonard, C.T., Miller, K.E., Griffiths, H.I., McClatchie, B.J., & Wherry, A.B. (1998). A sequential study assessing functional outcomes of first-time stroke survivors 1 to 5 years after rehabilitation. Journal of Stroke and Cerebrovascular Diseases, 7(2), 145-153.
54. Mahoney, F.I., & Barthel, D. (1965). Functional evaluation: The Barthel Index. Maryland State Medical Journal, 14, 56-61.
55. Mayo, N.E., Nadeau, L., Daskalopoulou, S.S., & Cote, R. (2007). The evolution of stroke in Quebec: A 15 year perspective. Neurology, 68(14), 1122-1127 (Pubitemid 46559846)
56. Mayo, N.E., Wood-Dauphinee, S., Ahmed, S., Gordon, C., Higgins, J., McEwen, S., & Salbach, N. (1999). Disablement following stroke. Disability and Rehabilitation, 21(5/6), 258-268. (Pubitemid 29248607)
57. Mayo, N.E., Wood-Dauphinee, S., Cote, R., Durcan, L., & Carlton, J. (2002). Activity, participation, and quality of life 6months poststroke. Archives of Physical Medicine and Rehabilitation, 83, 1035-1042. (Pubitemid 34832929)
58. Pound, P., Gompertz, P., & Ebrahim, S. (1998). Illness in the context of older age: The case of stroke. Sociology of Health and Illness, 20(4), 489-506.
59. Pohjasvaara, T., Vataja, R., Leppavuori, A., Kaste, M., & Erkinjuntti, T. (2001). Depression is an independent predictor of poor long-term functional outcome poststroke. European Journal of Neurology, 8, 315-319. (Pubitemid 32612893)
60. Reutter-Bernays, D., & Rentsch, H.P. (1993). Rehabilitation of the elderly patient with stroke: An analysis of short-term and long-term results. Disability and Rehabilitation, 15, 90-95. (Pubitemid 23136550)
61. Riley, G.A., Brennan, A.J., & Powell, T. (2004). Threat appraisal and avoidance after traumatic brain injury: Why and how often are activities avoided? Brain Injury, 18(9), 871-888. (Pubitemid 38996821)
62. Rimmer, J.H. (2006). Use of the ICF in identifying factors that impact participation in physical activity/rehabilitation among people with disabilities. Disability and Rehabilitation, 28(7), 1087-1095. (Pubitemid 44322645)
63. Rittman, M., Faircloth, C., Boylstein, C., Gubrium, J.F., Williams, C., Van Puymbroeck, M., & Ellis, C. (2004). The experience of time in the transition from hospital to home following stroke. Journal of Rehabilitation Research & Development, 41(3A), 259-268. (Pubitemid 39022682)
64. Robinson, J., Wiles, R., Ellis-Hill, C., McPherson, K., Hyndman, D.,&Ashburn, A. (2009). Resuming previously valued activities post stroke-who or what helps? Disability and Rehabilitation, 31(9), 1555-1566.
65. Rochette, A., Bravo, G., Desrosiers, J., St-Cyr/Tribble, D.,&Bourget, A. (2007).Adaptation process, participation and depression over six months in first-stroke individuals and spouses. Clinical Rehabilitation, 21, 554-562. (Pubitemid 47091253)
66. Rochette, A., Desrosiers, J., & Noreau, L. (2001). Association between personal and environmental factors and the occurrence of handicap situations following a stroke. Disability and Rehabilitation, 23(13), 559-569. (Pubitemid 32633424)
67. Rochette, A., Desrosiers, J., Bravo, G., St-Cyr/Tribble, D., & Bourget, A. (2007). Changes in participation after a mild stroke: Quantitative and qualitative perspectives. Topics in Stroke Rehabilitation, 14(3), 59-68. (Pubitemid 46878122)
68. Shadden, B.B., & Agan, J.P. (2004). Renegotiation of identity: The social context of aphasia support groups. Topics in Language Disorders, 24(3), 174-186. (Pubitemid 39443499)
69. Spitzer, J., Tse, T., Baum, C.M., & Carey, L.M. (2011). Mild impairment of cognition impacts on activity participation after stroke in a community-dwelling Australian cohort. OTJR: Occupation, Participation and Health, 31(1) Supp, S8-S15.
70. Stroke Unit Trialists' Collaboration. (2007). Organised inpatient (stroke unit) care for stroke. The Cochrane Database of Systematic Reviews, 2007(4). doi:10.1002/14651858.CD0001967.pub2
71. Sturm, J.W., Donnan, G.A., Dewey, H.M., Macdonnel, R.A., Gilligan, A.K., Srikanth, V., & Thrift, A.G. (2004). Quality of life after stroke: The north east Melbourne stroke incidence study (NEMESIS). Stroke, 35, 2340-2345. (Pubitemid 39311260)
72. Sumathipala, K., Radcliffe, E., Sadler, E., Wolfe, C.D.A., & McKevitt, C. (2011). Identifying the long-term needs of stroke survivors using the International Classification of Functioning, Disability and Health. Chronic Illness, 8(1), 31-44.
73. Tatemichi, T.K., Desmond, D.W., Stern, Y., Paik, M., Sano, M., & Bagiella, E. (1994). Cognitive impairment after stroke: Frequency, patterns, and relationship to functional abilities. Journal of Neurology, Neurosurgery & Psychiatry, 57, 202-207. (Pubitemid 24050461)
74. Teasell, R., Foley, N., Bhogal, S., & Speechley, M. (2011). Evidence Review 6: The elements of stroke rehabilitation. In EBRSR: Evidence-Based Review of Stroke Rehabilitation [Online]. Retrieved from http://www.ebrsr.com/uploads/ Module-6-elements-001.pdf
75. Teasell, R., Salter, K., Bitensky, J., Bhogal, S.K., Foley, N., Menon, A., . . . Jutai, J. (2011). Evidence Review 13: Perceptual disorders. In EBRSR: Evidence-Based Review of Stroke Rehabilitation [Online]. Retrieved from http://www.ebrsr.com/uploads/Module-13-Perceptual-Disorders.pdf
76. Tempest, S., & McIntyre, A. (2006). Using the ICF to clarify team roles and demonstrate clinical reasoning in stroke rehabilitation. Disability and Rehabilitation, 28(10), 663-667. (Pubitemid 43738894)
77. Threats, T.T. (2007) Access for persons with neurogenic communication disorders: Influences of personal and environmental factors of the ICF. Aphasiology, 21(1), 67-80.
78. Turner, J.C. (1982). Towards a cognitive redefinition of the social group. In H. Tajfel (Ed.), Social identity and intergroup relations (pp. 15-40). Cambridge, England: Cambridge University Press.
79. Tyson, S., & Turner, G. (2000). Discharge and follow-up for people with stroke: What happens and why. Clinical Rehabilitation, 14, 381-392. (Pubitemid 30488755)
80. Vanhook, P. (2009). The domains of stroke recovery: A synopsis of the literature. Journal of Neuroscience Nursing, 41(1), 6-17.
81. Viscogliosi, C., Belleville, S., Desrosiers, J., Caron, C.D., Ska, B., & the BRAD Group. (2011). Participation after a stroke: Changes over time as a function of cognitive deficits. Archives of Gerontology and Geriatrics, 52, 336-343.
82. Viscogliosi, C., Desrosiers, J., Belleville, S., Caron, C.D., Ska, B., & BRAD Group. (2011). Differences in participation according to specific cognitive deficits following a stroke. Applied Neuropsychology, 18(2), 117-126.
83. Warlow, C., van Gijn, J., Dennis, M.S.,Wardlaw, J.M., & Bamford, J. (2008). Stroke: Practical management (3rd ed.). Oxford: Blackwell.
84. Waters, S.J., Keefe, F.J., & Strauman, T.J. (2004). Self-Discrepancy in chronic low back pain: Relation to pain, depression, and psychological distress. Journal of Pain Symptom Management, 27, 251-259. (Pubitemid 38317062)
85. White, J.H., MacKenzie, L.,Magin, P.,&Pollack,M.R.P. (2008). The occupational experience of stroke survivors in a community setting. OTJR: Occupation, Participation and Health, 28(4), 160-167.
86. Wolf, T.J., Baum, C., & Connor, L.T. (2009). Changing face of stroke: Implications for occupational therapy practice. American Journal of Occupational Therapy, 63, 621-625.
87. World Health Organization. (2001). International Classification of Functioning, Disability and Health. Geneva, Switzerland: Author.