Nothing about us without Us: Guidelines for genetic testing

Genetic Testing and Molecular Biomarkers

Volumn 17, Issue 5, 2013, Pages 357-358

  Terry, Sharon F ^a   Bonhomme, Natasha ^a  

^a GENETIC ALLIANCE   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

CLINICAL RESEARCH; GENETIC SCREENING; HEALTH CARE DELIVERY; HEALTH CARE SYSTEM; HUMAN; NOTE; PRACTICE GUIDELINE;

GENETIC TESTING; GENETICS, MEDICAL; GYNECOLOGY; HETEROZYGOTE DETECTION; HUMANS; MUSCULAR ATROPHY, SPINAL; OBSTETRICS; PRACTICE GUIDELINES AS TOPIC; SOCIETIES, MEDICAL;

EID: 84876903686     PISSN: 19450265     EISSN: 19450257     Source Type: Journal    
DOI: 10.1089/gtmb.2013.1544     Document Type: Note

References (5)

1. American College of Obstetricians and Gynecologists Committee on Genetics (2009) ACOG committee opinion No. 432: Spinal muscular atrophy. Obstet Gynecol 113, 1194-1196.
2. Prior TW; Professional Practice and Guidelines Committee (2008) Carrier screening for spinal muscular atrophy. Genet Med 10, 840-842.
3. Committee On Bioethics; Committee on Genetics, American College of Medical Genetics and Genomics Social, Ethical, Legal Issues Committee (2013) Ethical and policy issues in genetic testing and screening of children. Pediatrics. 131, 620-622.
4. Institute of Medicine 2011. Engineering a learning healthcare system: a look to the future: Workshop Summary. Washington, DC: The National Academies Press.
5. Seifer S (2013) It's time to fully realize the potential of community engagement in the CTSA program. Available at: http://www.iom.edu/*/media/ Files/Activity%20Files/Research/CTSAReview/2013-JAN-24/Sarena%20Seifer.pdf, last accessed on March 27, 2013.