Association between anticipatory grief and problem solving among family caregivers of persons with cognitive impairment

Journal of Aging and Health

Volumn 25, Issue 3, 2013, Pages 493-509

  Fowler, Nicole R ^a   Hansen, Alexandra S ^b   Barnato, Amber E ^a   Garand, Linda ^c  

^a UNIVERSITY OF PITTSBURGH SCHOOL OF MEDICINE   (United States)

^b CARNEGIE MELLON UNIVERSITY   (United States)

^c UNIVERSITY OF PITTSBURGH   (United States)

Author keywords

Alzheimer's disease; anticipatory grief; caregivers; dementia; medical decision making; problem solving

Indexed keywords

AGED; ARTICLE; CAREGIVER; DECISION MAKING; FEMALE; GRIEF; HUMAN; MALE; MIDDLE AGED; MILD COGNITIVE IMPAIRMENT; PROBLEM SOLVING; PSYCHOLOGICAL ASPECT; RETROSPECTIVE STUDY; VERY ELDERLY;

AGED; AGED, 80 AND OVER; CAREGIVERS; DECISION MAKING; FEMALE; GRIEF; HUMANS; MALE; MIDDLE AGED; MILD COGNITIVE IMPAIRMENT; PROBLEM SOLVING; RETROSPECTIVE STUDIES;

MLCS; MLOWN;

EID: 84876592025     PISSN: 08982643     EISSN: 15526887     Source Type: Journal    
DOI: 10.1177/0898264313477133     Document Type: Article

References (45)

1. Bachara A.. The role of emotion in decision-making: Evidence from neurological patients with orbitofrontal damage. Brain and Cognition. 2004 ; 55: 30-40
2. Baumgarten M., Battista R., Infante-Rivard C., Hanley J., Becker R., Gauthier S.. The psychological and physical health of family members caring for an elderly person with dementia. Journal of Clinical Epidemiology. 1992 ; 45: 61-70
3. Caron C. D., Griffith J., Arcand M.. Dementia: How family caregivers perceive their interactions with health care providers in long-term-care settings. Journal of Applied Gerontology. 2005 ; 24: 231-247
4. Chang E. C., D'Zurilla T. J.. Relations between problem orientation and optimism, pessimism, and trait affectively: A construct validation study. Behavioral Research and Therapy. 1996 ; 34: 185-194
5. Demiris G., Oliver D. P., Washington K., Fruehling L. T., Haggarty-Robbins D., Doorenbos A., Berry D.. A problem solving intervention for hospice caregivers: A pilot study. Journal of Palliative Care. 2010 ; 13: 1005-1011
6. Dolgin M. J., Phipps S., Fairclough D. L., Sahler O. J., Askins M., Noll R. B.,...Katz E. R.. Trajectories of adjustment in mothers of children with newly diagnosed cancer: A national history of investigation. Journal of Pediatric Psychology. 2007 ; 32: 771-782
7. D'Zurilla T. J., Nezu A. M., Maydeu-Olivares A. B. Social Problem-Solving Inventory-Revised (SPSI-R). North Tonawanda, NY: Multi-Health Systems, Inc ; 2002:
8. D'Zurilla T. J., Nezu A. M. Advances in cognitive-behavioral research theory. Kendall P. C., ed. New York, NY: Academies Press ; 1985: 201-274.
9. Elliot T. R., Berry J. W.. Brief problem-solving training for family caregivers of persons with recent-onset spinal cord injuries: A randomized controlled trial. Journal of Clinical Psychology. 2009 ; 65: 406-422
10. Faschingbauer T. R., Devaul R. A., Zisook S.. Development of the Texas inventory of grief. American Journal of Psychiatry. 1977 ; 134: 696-698
11. Fulton R., Gottesman D. J.. Anticipatory grief: A psychosocial concept reconsidered. British Journal of Psychiatry. 1980 ; 137: 45-54
12. Garand L., Dew M. A., Eazor L. R., DeKosky S. T., Reynolds C. F.. Caregiver burden and psychiatric morbidity in spouses of persons with mild cognitive impairment. International Journal of Geriatric Psychiatry. 2005 ; 20: 512-522
13. Garand L., Lingler J. H., Deardorf K., Reynolds C. F., DeKosky S. T., Schulz R., Dew M. A.. Anticipatory grief in new family caregivers of persons with mild cognitive impairment and dementia. Alzheimer's Disease and Associated Disorders. 2012 ; 26 (2). 159-165
14. Gentry J. W., Goodwin C.. Social support for decision making during grief due to death. American Behavioral Scientist. 1995 ; 38: 553-563
15. Gibbs L. M., Dombrovski A. Y., Morse J., Siegle G. J., Houck P. R., Szanto K.. When the solution is part of the problem: Problem solving in elderly suicide attempters. International Journal of Geriatric Psychiatry. 2009 ; 24: 1396-1404
16. Hepburn K. W., Tornatore J., Center B., Ostwald S. W.. Dementia family caregiving training: Affecting beliefs about caregiver and caregiver outcomes. Journal of the American Geriatrics Society. 2001 ; 49: 450-457
17. Hirschman K., Kapo J., Karlawish J.. Why doesn't a family member of a person with advanced dementia use a substituted judgment when making a decision for that person?. American Journal of Geriatric Psychiatry. 2006 ; 14: 659-667
18. Johnson M. O., Elliott T. R., Neilands T. B., Morin S. F., Chesney M. A.. A social problem-solving model of adherence to HIV medications. Health Psychology. 2006 ; 25: 355-363
19. Lerner J. S., Goldberg J. H., Tetlock P. E.. Sober second thought: The effects of accountability, anger, and authoritarianism on attributions of responsibility. Personality and Social Psychology Bulletin. 1998 ; 24: 563-574
20. Lerner J. S., Keltner D.. Fear, anger, and risk. Journal of Personality and Social Psychology. 2001 ; 81: 146-159
21. Lerner J. S., Small D. A., Loewenstein G.. Heart strings and purse strings: Carryover effects of emotions on economic decisions. Psychological Science. 2004 ; 15: 337-341
22. Lewis M., Hepburn K., Narayan S., Corcoran-Perry S., Maddox M., Lally R., Haase S.. Decision making by family caregivers of elders experiencing dementia. American Journal of Alzheimer's Disease and Other Dementias. 2000 ; 15: 361-366
23. Livingston G., Leavey G., Manela M., Livingston D., Rait G., Sampson E., Cooper C.. Making decisions for people with dementia who lack capacity: Qualitative study of family carers in UK. British Medical Journal. 2010 ; 341: c4184
24. Loewenstein G.. Hot-cold empathy gaps and medical decision making. Health Psychology. 2005 ; 24: S49 - S56
25. Loewenstein G. F., Lerner J. S. Handbook of affective sciences. Davidson R. J. Scherer K. R. Goldsmith H. H., ed. Oxford, UK: Oxford University Press ; 2003: 619-642.
26. Loewenstein G. F., Weber E. U., Hsee C. K., Welch E.. Risk as feelings. Psychological Bulletin. 2001 ; 127: 267-286
27. Marwit S. J., Meuser T. M.. Development and initial validation of an inventory to measure grief in caregivers of persons with Alzheimer's disease. The Gerontologist. 2002 ; 42: 51-65
28. Marwit S. J., Meuser T. M.. Development of a short form inventory to assess grief in caregivers of dementia patients. Death Studies. 2005 ; 29: 191-205
29. Morris J. C.. Clinical dementia rating: A reliable and valid diagnostic and staging measure for dementia of the Alzheimer type. International Psychogeriatrics. 1997 ; 9: 173-176
30. Nezu A. M., Nezu C. M., Friedman S. H., Faddis S., Houts P. S. A problem solving approach: Helping cancer patients cope. Washington, DC: American Psychological Association ; 1998:
31. O'Connor A. M., Bennet C. L., Stacey D., Barry M., Col N. F., Eden K. B.,...Rovner D.. Decision aids for people facing treatment or screening decisions. The Cochrane Library. 2009 ; 3:
32. Ott C. H., Sanders S., Kelber S. T.. Grief and personal growth experience of spouses and adult-child caregivers of individuals with Alzheimer's disease and related dementias. The Gerontologist. 2007 ; 47: 798-809
33. Ponder R. J., Pomeroy E. C.. The grief of caregivers: How pervasive is it?. Journal of Gerontological Social Work. 1996 ; 27: 3-21
34. Rando T. A. Loss and anticipatory grief. Rando T. A., ed. New York, NY: Lexington Books ; 1986: 1-36.
35. Rando T. A. Clinical dimensions of anticipatory mourning: Theory and practice in working with the dying, their loved ones, and their caregivers. Rando T. A., ed. Champaign, IL: Research Press ; 2000: 17-50.
36. Reyna V. F.. How people make decisions that involve risk: A dual-processes approach. Current Directions in Psychological Science. 2004 ; 13: 60-66
37. Rick S., Loewenstein G. Handbook of emotions. Lewis M. Haviland-Jones J. M., ed. New York, NY: Guilford Press ; 2008: 138-158.
38. Sainio C., Lauri S., Eriksson E.. Cancer patients' views and experience of participation care and decision making. Nursing Ethics. 2001 ; 8: 97-113
39. Schulz R., Mendelsohn A. B., Haley W. E., Mahoney D., Allen R. S., Zhang S., Belle S. H.. for the Resources for enhancing Alzheimer's caregiver health investigators. End-of-life care and the effects of bereavement on family caregivers of persons with dementia. New England Journal of Medicine. 2003 ; 349: 1936-1942
40. Schulz R., O'Brien A. T., Bookwalla J., Fleissner K.. Psychiatric and physical morbidity effects of dementia caregiving: Prevalence, correlates, and causes. The Gerontologist. 1995 ; 35: 771-791
41. Sepucha K., Mulley A. G.. A perspective on the patient's role in treatment decisions. Medical Care Research and Review. 2009 ; 66: 53S - 74S
42. Sorenson S., Pinquart M., Duberstein P.. How effective are interventions with caregivers? An updated meta-analysis. Gerontologist. 2002 ; 42: 356-372
43. Theut S. K., Pedersen F. A., Zaslow M. J., Cain R. L., Rabinovich B. A., Morihisa J. M.. Perinatal loss and parental bereavement. American Journal of Psychiatry. 1989 ; 146: 635-639
44. Theut S. K., Jordan L., Ross L. A., Deutsch S. I.. Caregiver's anticipatory grief in dementia: A pilot study. International Journal of Aging and Human Development. 1991 ; 33: 113-118
45. Volandes A. E., Paasche-Orlow M., Gillick M. R., Cook E. F., Shaykevich S., Abbo E. D., Lehmann L.. Health literacy not race predicts end-of-life care preferences. Journal of Palliative Medicine. 2008 ; 11: 754-762